Comments on: Why this site was created

By: biff

biff — Mon, 04 Aug 2008 06:01:59 +0000

Hi Janie:
It’s our, the hypothyroid population’s luck, that you’ve not only survived being hypo, but you’ve persisted in understanding thyroid disease, and indomitably fought thru: Doc/Dogma!

Since the fall of 2007, I’ve been accumulating info re: CSN type (sleep pathologies described as various forms of insomnia) Disordered/Unrestorative sleep.

(Even) The medical “profession” (esp. since: 2007/08) is now acknowledging that Non-Restorative Sleep may be a significant pre-morbidity for MANY health pathologies: Endocrine, Cardiovascular, Mental, Behavioral, and so on.

I wonder: is hypothyroidism a pre/co/ or post-morbidity of Disordered/Unrestorative sleep (esp.: CNS type)?

Ironically 4x more medical resources are poured into OSA as opposed to CNS, Disordered Sleep. Hopefully CNS Disordered Sleep will get the same resource allocation as OSA.

I wonder if you or any other STTM contributors might be familiar with the new high profile role Non-Restorative Sleep plays in human pathology, esp. hypothyroidism?

Good luck to us all in our effort to survive.

By: Deanna Tacderas

Deanna Tacderas — Mon, 09 Jul 2007 15:26:59 +0000

Hello! I was diagnosed with hypothyroidisim about 5 weeks ago. Lab values have returned to “normal”, but still feel like you know what! Looking back, I started having symptoms fall 06, but lab values were “normal” then, so I was not diagnosed til my lab results were out of wack! So…this website is really helping me! My husband and I are both nurses and he is working on a master’s as a nurse practicioner! Thanks so much

By: Jen

Jen — Wed, 13 Jun 2007 23:53:56 +0000

Thank you for being an advocate for thyroid sufferers and victims of the traditional medicine. I went to my endo yesterday and more or less begged to be put on Armour. He told me he wouldn’t change my meds because my TSH was perfect. I have been feeling like hell for 4 years on Eltroxin and I just want to feel well again. He said that my fatigue is not from my thryoid as my TSH is perfect. Normally, I would be leaving his office in tears, however, I am awaiting an appointment with a doctor who does prescribe Armour and I am hoping that is the answer for me too. My endo did however, agree to give me a lab requisition for all the blood tests that you recommend on this website. I have requested a copy be faxed to me (so I can bring it to my new doctor!) Keep up the great work on this website! Jen

By: Don

Don — Thu, 03 May 2007 13:39:36 +0000

I am not making this up. Check the web links for yourself. Our government warned Kodak to sheild their warehoused photographic film canisters because the govenment did not want to be liable for damaged and fogged film from the radioactive fallout from Nevada testing. This took place at a time when I was being raised on a farm and drinking whole milk from our own cows that my mom pasteurized on the stove. We lived in one of the counties in Iowa that got some of the worst fallout in the nation. I was 1 to 2 years old then. The cows were eating grass that had nuclear fall out on it. I’ve checked the maps. I have taken the survey. I have good reason to suspect my hypothyroid problems are due to these events occuring at a most suseptible age as a toddler. The web links are:

http://harkin.senate.gov/specials/20020301-fallout.cfm

http://www.cdc.gov/nceh/radiation/fallout/default.htm

http://www.downwinders.org/indexend.htm

http://deseretnews.com/dn/view/0,1249,600141354,00.html

By: Tommy Walters

Tommy Walters — Mon, 16 Apr 2007 23:22:29 +0000

Janie, I have a long story to tell too but basically I was diagnosed with Hypothyroid 9 years ago. My symptoms never improved and got worse. I suggested that the TSH normal range may not be accurate to my Thyroid function. I was told this was impossible by my endo and assured the tests were reliable. I doubled up on my Synthroid and felt better. However my TSH levels were way too low according to my Endo and he insisted I stop doubling up. Months later I was much worse. I again felt my TSH was not properly being measured. My Endo tested me one last time at TSH 8.8, increased my synthroid slightly. The next day I went to a new Gen Pract. He did a blood test, sent to the same lab and got TSH 34.35. Gen Pract increased my synthoid significantly. Now the Gen Pract says I am in normal range but I still feel lousy and getting worse. I feel my TSH may be like a 450 lb man being weighed on a 300 lb bathroom scale. The reading would be 150 lbs even though it is clear as day that cannot be. Is it possible a doctor’s perscription for a blood test could set limits on the TSH level range they are testing and thus I am “Tipping the scale”? That is the only thing that can make sense to me.

By: Elaine

Elaine — Mon, 08 May 2006 21:00:25 +0000

May 8, 2006!

Dear Janie! You are our Earth Angel indeed! Thank you for everything that you do for all of us! This site absolutely rocks and so do you Janie! *Congratulations on becoming an advocate for all of us who suffer under the hands of the doctors that have become our foes!*

I love the Blog commentaries, let the Truth be Told, let our knowledge combined be to our Power and not to the big pharmaceuticals, that have one agenda in mind, is to keep us sick and to make tons of money off of us who suffer daily!

I thank God for a caring and totally cool Doctor that I have that grants me all the support I need, including dessicated thyroid!

This site is right on the mark here, and I am absolutely stoked and amazed! I commend the creator of this website, Janie, your mission in life is to change, inhance, educate and relieve all of us, who have been absolutey lied to by you know who!

I will forward this site to everyone I know that is suffering from thyroid conditions, and also the link between adrenal fatigue and low ferritin levels, in which I too suffer from and self medicate, have noticed an absolute diff in my physical well being!

In the End we all will benefit!

Sincerely, Elaine

By: Janie

Janie — Thu, 02 Mar 2006 01:37:48 +0000

That is true about iodine missing in his diet. But Armour does give patient iodine, since thyroid hormones are composed mainly of iodine. But, several of us are experimenting with iodine and will report the results eventually. So far, there are no huge results as far as the thyroid improving.

By: Dave Frahm

Dave Frahm — Thu, 02 Mar 2006 00:49:06 +0000

There is a missing nutrient in the American diet. Iodine. It’s the only thing that feeds the thyroid gland. 8 out of 10 Americans have low thyroid function. All forms of cancer begin here. Feed your thyroid glands. Armour doesn’t. Synthroid doesn’t And all their “cousins” don’t. They are a misguided attempt by MD’s to give hormone replacement rather than feed the thyroid in order for it to make its own hormones. I’ve yet to have a client with a dysfunctional thyroid…but 8 out 10 have a thyroid that’s starving!!!!!!!!!!!!!

By: Janie

Janie — Sun, 26 Feb 2006 18:43:45 +0000

Hey Joe, come on into the FORUMS where we can answer questions, such as the 2 grains you started on, which was too high to “start” on actually, and how to raise. We have good information to share with you.

By: Joe Brundage

Joe Brundage — Sun, 26 Feb 2006 18:24:40 +0000

Janie,
Thanks so much for your site. I have always felt my thyroid wasn’t square. I became panhypopituitary as a result of botched sinus surgery in a military hospital. I was sent to a shrink who told me I was low thyroid, not necessarily nuts. I have been fighting with endos since. At the time I was only on 100 mcg. I was recently on 180 Synthroid and doing so so, still unable to work, which I so loathe. Once it was raised to 200 and my heart started racing and I was told to wait 6 months! My DO primary care immediately lowered it to 180. My 5th endo wanted to do the TSH thing and lower me to 150 mcg. I told her I would get worse, in 2 weeks I did get worse, told her, and the office told us, ‘well you have a followup in 3 months’. So, I have to suffer for 3 months? I changed endos. The new one did add 5mg of T-3. It helped but not much. They agreed to start me on Armour, at 2 grains. Well, I have felt some better, especially mentally, but have a long way to go and am confused as to what time frame we should be raising and by what amount? I now weigh 220, up from 190. They want to see me back about 6 weeks after starting the thyroid. Should they raise me 1/4 or 1/2 then? Sorry, I don’t know what my free T-3 is. I have about 3/4 of the symptoms you list. Going from 180 down to 150 synthroid made my mental health take a nose dive as well as my energy. My aches and pains went up, too. I have never had a good nights sleep since the sinus surgery damaged my pituitary gland in 1997. Life has not held much joy. All your stuff makes good logic.
r/Joe Brundage