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	<title>Comments on: Sincerity doesn&#8217;t equal accuracy&#8211;a very bad thyroid website</title>
	<atom:link href="http://www.stopthethyroidmadness.com/2006/03/12/sincerity-doesnt-equal-accuracy/feed/" rel="self" type="application/rss+xml" />
	<link>http://www.stopthethyroidmadness.com/2006/03/12/sincerity-doesnt-equal-accuracy/</link>
	<description>Not just another Thyroid site</description>
	<pubDate>Wed, 07 Jan 2009 12:56:35 +0000</pubDate>
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		<title>By: Ann</title>
		<link>http://www.stopthethyroidmadness.com/2006/03/12/sincerity-doesnt-equal-accuracy/#comment-14900</link>
		<dc:creator>Ann</dc:creator>
		<pubDate>Thu, 27 Sep 2007 06:03:31 +0000</pubDate>
		<guid isPermaLink="false">http://www.stopthethyroidmadness.com/blog/2006/03/12/sincerity-doesnt-equal-accuracy/#comment-14900</guid>
		<description>Thanks.
For years I've been trying to understand some of the cruel and strange behavior my mother had towards me as a child. She was eventually diagnosed as Bipolar. She hallucinated during her episodes and talked to people who weren't there. Then she tried to commit sucide. I was about six years old. She had electorshock which actually helped and she seemed ok after that. I always knew she was very hypothyroid but I learned later she would just stop taking her pills every so often. I always wondered if there was a connection between the bizarre and cruel behavior which was mixed with affectionate and loving behavior. So now I know there's a connection with the thyroid problems and I've learned she probably was not aware of her behavior during an episode. She passed away about fifteen years ago but its always concerned me.</description>
		<content:encoded><![CDATA[<p>Thanks.<br />
For years I&#8217;ve been trying to understand some of the cruel and strange behavior my mother had towards me as a child. She was eventually diagnosed as Bipolar. She hallucinated during her episodes and talked to people who weren&#8217;t there. Then she tried to commit sucide. I was about six years old. She had electorshock which actually helped and she seemed ok after that. I always knew she was very hypothyroid but I learned later she would just stop taking her pills every so often. I always wondered if there was a connection between the bizarre and cruel behavior which was mixed with affectionate and loving behavior. So now I know there&#8217;s a connection with the thyroid problems and I&#8217;ve learned she probably was not aware of her behavior during an episode. She passed away about fifteen years ago but its always concerned me.</p>
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		<title>By: Valeria</title>
		<link>http://www.stopthethyroidmadness.com/2006/03/12/sincerity-doesnt-equal-accuracy/#comment-6372</link>
		<dc:creator>Valeria</dc:creator>
		<pubDate>Sat, 28 Apr 2007 05:22:04 +0000</pubDate>
		<guid isPermaLink="false">http://www.stopthethyroidmadness.com/blog/2006/03/12/sincerity-doesnt-equal-accuracy/#comment-6372</guid>
		<description>Janie, there are two "thyroid support" organisations in Australia that I know of.  The people involved in running both of them unfortunately believe it is advantageous to keep the medical profession on their side.  It gives them a sort of status which they value.  Both of them have members' stories on their websites and/or in their journals, and these are usually HORROR stories of neglect and failure by that same medical profession.
I tried one org. for a few years but gave up in disappointment.  I now belong to the other one but very nearly did not renew my membership this year.  It was only the prospect of local meetings in my home town that changed my mind.  I am thinking of going to the meetings and being completely "alternative" so that the people attending have their eyes opened. I can tell them about a special doctor in Sydney too. 
I tried last year to get something published in the group's journal to open people's eyes. It was mainly about the benefits of T3 (and we have to face the fact that combined T4/T3 is the best most people will be able to get, and it's better than T4 alone) but the editor never even gave me an acknowledgement. He had published an article called "Scientific Review" which supposedly critiqued some studies in 2004-2005.  The sub-title of his article was "T3/T4 Combination not more effective than T4 alone." I pointed out, among other things, that studies which stress "normal TSH" and last only a few weeks are not really useful.    
I'm afraid we have a long way to go, when even patient groups submit meekly to the all-powerful medical profession.</description>
		<content:encoded><![CDATA[<p>Janie, there are two &#8220;thyroid support&#8221; organisations in Australia that I know of.  The people involved in running both of them unfortunately believe it is advantageous to keep the medical profession on their side.  It gives them a sort of status which they value.  Both of them have members&#8217; stories on their websites and/or in their journals, and these are usually HORROR stories of neglect and failure by that same medical profession.<br />
I tried one org. for a few years but gave up in disappointment.  I now belong to the other one but very nearly did not renew my membership this year.  It was only the prospect of local meetings in my home town that changed my mind.  I am thinking of going to the meetings and being completely &#8220;alternative&#8221; so that the people attending have their eyes opened. I can tell them about a special doctor in Sydney too.<br />
I tried last year to get something published in the group&#8217;s journal to open people&#8217;s eyes. It was mainly about the benefits of T3 (and we have to face the fact that combined T4/T3 is the best most people will be able to get, and it&#8217;s better than T4 alone) but the editor never even gave me an acknowledgement. He had published an article called &#8220;Scientific Review&#8221; which supposedly critiqued some studies in 2004-2005.  The sub-title of his article was &#8220;T3/T4 Combination not more effective than T4 alone.&#8221; I pointed out, among other things, that studies which stress &#8220;normal TSH&#8221; and last only a few weeks are not really useful.<br />
I&#8217;m afraid we have a long way to go, when even patient groups submit meekly to the all-powerful medical profession.</p>
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