Comments on: Let me say it clearly–the TSH does not work

By: Marie

Marie — Thu, 07 Aug 2008 17:02:21 +0000

I’m glad to have found this website but am not sure if my answer is here. I was hyper at 8, treated until 18. Then hypo at 22 (or at least that’s what the dr said). Levoxyl until 41 yo. Always exhausted, dr said numbers perfect, diagnosed with Fibromyalgia, Mixed Connective Tissue Disease, depressed, anxious…Anyway, switched to Armour 120 mg. Felt heavy arms and legs, same other symptoms. Lowered to 90 mg, felt better. TSH was 31, T3 was 23.3, and T4 was 3.4 (I don’t think these are the Free tests you talk about) Dr said I needed more Armour, now on 105 mg, and feeling the arm and leg symptoms and such fatigue, not sleeping well. I think I’m over medicated again. I’m going to get your book. (from Janie: you have adrenal fatigue)

By: leisa

leisa — Sun, 09 Sep 2007 19:01:18 +0000

me too!! 3 yrs of total hypo symptoms…i was put on 1/2 grain. symptoms worsened. NEVER has a doc felt my throat.now finally one thinks I have a nodule.

By: SeaLady

SeaLady — Wed, 30 Aug 2006 23:51:24 +0000

I went to my GP for 14 yrs, sleep was my main problem, followed by hip pain - he said I had bursitis, but isn’t that when there is excessive use of the joint I asked???

I Had exhaustion, unexplained weight gain, eyebrow and hair loss, dry skin, ridged fingernails etc.

I did not know anything about the thyroid - he finally did bloodwork, a TSH was included - he just told me I was normal. I didn’t know better.

Years later with the same complaints plus…..he again checked my thyroid - NOPE your normal, you need to get more exercise and eat better.

Could I kill him???? Maybe………when I finally switched doctors, in my Meet and Greet wellness visit, he said: You have thyroid problems??? I said No…….its been tested and is normal.

He said “I don’t think so, you need an ultrasound”

Well, enlarged thyroid, goiter and 7 nodules were hanging out in my throat.

Please, please can someone tell me HOW the other doc missed this?????? He not only relied on the wonderful TSH test, but he didn’t even bother to feel around on my neck!!!!!

AND people wonder why we do not trust Doctors????

Paleeeeeese!!!!!!

By: Administrator

Administrator — Thu, 27 Jul 2006 19:02:54 +0000

Hi Kelly. Your information and questions really belong over at the forums. You can find a link to them on the left of any page, towards the bottom of the links. (And by way, you need to strongly request having the free T3 and free T4, not a simple T4, or the useless Uptake.)

By: Kelly

Kelly — Thu, 20 Jul 2006 01:44:17 +0000

New lab tests…TSH = 0.050 range: 0.350-5.500
T4= 10.2 range: 4.5-12.0
T3 uptake = 32 range: 24-39
Free T Indez = 3.3 range: 1.2-4.9.
I have been on 100 Levo + 30 mg Armour + 25mg Cytomel daily. I split the Cyto and Armour and multi dose. After seeing these results, can anyone tell me WHY the doc would tell me to cut BACK on the meds? If the T3 and T4 are mid range shouldnt I stay with what I’m taking or even slightly increase? Seems this is proving the point of the weight the docs put on the TSH and ignore the T3 + T4. By the way, my temp is still below 98 in the AM and PM, I am dog-tired, still losing hair and struggling to lose an ounce. Stay with the dose or increase—advice? Thanks

By: Zev Lewinson

Zev Lewinson — Sun, 16 Jul 2006 17:57:08 +0000

Hello. I’m just amazed at this site. Sam, who is one of the contributors in the STORIES OF OTHERS page here, saw a post I once placed and emailed me this URL. I’ll be reading it and I’ll keep in touch. I’m the CEO of a mortgage company and a writer of childrens stories. I’m 53 and I lost my thyroid because of mercury poisoning. It’s a bit of a long story which I can’t get into now. I merely wanted to express my sincere thanks for your efforts with regard to creating this site. Thanks so much! Sincerely, Zev

By: Janie

Janie — Thu, 13 Jul 2006 14:51:50 +0000

Faith, just peruse this site and you’ll find everything you need. Read T4-ONLY MEDS DON’T WORK, then NATURAL THYROID 101 and THINGS WE HAVE LEARNED. Look at HOW TO FIND A GOOD DOC. And before you visit the new doc, read MISTAKES PATIENTS MAKE to avoid them. Become familiar with the page RECOMMENDED LABWORK. All can be found in the links to the left of the page. I also have a SITE MAP page to find any page on this site. If you want one-on-one help, go to the FORUMS. And remember: YOU are your own best advocate in the face of doctors who are keeping patients sick. Become informed. This site will help you. We’ve treaded the path before you and this site gives you what we have learned. Janie

By: faith

faith — Thu, 13 Jul 2006 06:21:00 +0000

I some how happened across your web site. I have been treated for hypo thyroid for 17+ years. I was diagnosed after I gave birth to twins. I am so tired of going from doctor to doctor. I know my family thinks I’m crazy, but I am soooooooo tired of being tired. I have so many of the symptoms today that I had 17 years ago when I started this venture. I have lost so many good years but I don’t know where to go? All I hear is your TSH is normal, with the medicine you are taking. Don’t they think I should know what is normal? please email me with some ideas on where to go from here?

By: PN

PN — Sat, 08 Jul 2006 22:32:31 +0000

It just hit me this week that doctors will ignore all or our complaints of common symptoms of hypothyroidism;
exhaustion, unexplained weight gain, eyebrow and hair loss, skin disorders, constipation, brain fog, heavy periods, depression, feeling cold all the time…
YET, let us have even ONE symptom of HYPERthyroidism, such as high blood pressure, feeling warm (which can be caused by medication) or irritablility (which can be caused by endos) we are branded hyper.

Their worship of the TSH test, which has been proven to be useless in patients who are already taking armour, and their insistence that synthroid is superior despite all evidence to the contrary leaves patients wondering if they have forgotten the most important part of their oath, ‘first, do no harm.’

By: Mark

Mark — Wed, 05 Jul 2006 03:23:41 +0000

I have had thyroid/adrenal gland problems for over 20+ years now and it sure is a major relief to find this site. I have only recently discovered the real cure for hypothyroidism and this site adds even more great information. To make a long story short, I found my answer when I heard Dr. Hotze’s radio show (am 700 KSEV in Houston) and first heard of Armour thyroid.

Dr. Hotze was a conventional dr, but almost quit because he couldn’t really help his patients with all the standard drugs that only cover up symptoms and do not identify and remove the cause the illness. By the grace of God, he ran into many others who led him down the right road to proper health treatments.

His services are very expensive ($2,500 and up) because he does not use insurance companies, which end up controlling the care a doctor can give to their patients in a negative way. The upside is that he has total control and can give the best care possible. His websites will prove very helpful to any body with hormone problems.

As an alternative, Dr Pharo does a similar service for much much less. http://www.awakenhealth.com/id4.htm

Hope all is well!