Comments on: I tried to get a STTM book published–to no avail http://www.stopthethyroidmadness.com/2007/05/02/sttm-book/ Not just another Thyroid site Fri, 05 Dec 2008 11:27:10 +0000 http://wordpress.org/?v=2.6.3 By: Linda http://www.stopthethyroidmadness.com/2007/05/02/sttm-book/#comment-12329 Linda Thu, 12 Jul 2007 04:47:00 +0000 http://www.stopthethyroidmadness.com/blog/2007/05/02/sttm-book/#comment-12329 Dear Janie, Please be persistant in getting published. The information you've gained from listening to people actually getting well, is so valuable. Most of us have read most of the books, even at that they are missing something. I get so frustrated knowing that people will, say for instance, try Armour without supporting their adrenals first. They will fail and think it didn't work. Or, they will incorrectly try Cortef, but never succeed because of the lack of information on how to do it. It's not rocket science - but it's tricky. If you want to PM me I can give you my two cents about self-publishing. I've worked in self-publishing for years for an author who has sold over a million books, so I have some experience. I'm not so sure it is the way to go these days. Dear Janie,
Please be persistant in getting published. The information you’ve gained from listening to people actually getting well, is so valuable. Most of us have read most of the books, even at that they are missing something. I get so frustrated knowing that people will, say for instance, try Armour without supporting their adrenals first. They will fail and think it didn’t work. Or, they will incorrectly try Cortef, but never succeed because of the lack of information on how to do it. It’s not rocket science - but it’s tricky. If you want to PM me I can give you my two cents about self-publishing. I’ve worked in self-publishing for years for an author who has sold over a million books, so I have some experience. I’m not so sure it is the way to go these days.

]]> By: Jamie http://www.stopthethyroidmadness.com/2007/05/02/sttm-book/#comment-12045 Jamie Mon, 02 Jul 2007 01:17:56 +0000 http://www.stopthethyroidmadness.com/blog/2007/05/02/sttm-book/#comment-12045 You should try going to your local health food store and writing down the publishers on all the niche-oriented health books. Maybe they will give you a try. I do think your book would be so important, I know completely where you are coming from, and if I were not a stubborn "uppity and throwing her education around" college educated young woman I do not think I would have gotten help for my thyroid and instead would be stuck on psychiatric drugs right now. I just love that you are such a militant and righteous voice, it's awesome. We have a right to be angry. Look how much of our lives we have lost. There is a bigger issue I think you should frame your book around if you keep having trouble and that is doctors not taking women seriously when they "complain" about subjective symptoms. It's not just Thyroid madness...it's heart attack madness, cancer madness, and it's about women not getting the care they need at the doctor even if they are trying to get it!!! Anyway -- I suspect I have had Hashimoto's with transient thyrotoxicosis for 10+ years after puberty and lately my thyroid's just been giving up the ghost. Having anyone tell me "everything's in my head" now that I am older just pisses me off. When I was younger my parents were in total control and unfortunately they went along with what the doctors would say. And the thyroid is a hell of a ride too. Why the hell did I have to wait a year after being severely hyperthyroid for my TSH to rise beyond a "range" to get treated for hypo if they knew I had antibodies and if they also know it will take me months to get back to normal? How the hell am I supposed to work and live all symptomatic in the meantime? I am lucky I guess in that I even got FT4 and antibody tests from what I have been reading, and that they have been testing me every 2-3 months, but I hate that all the info I got on the thyroid from the doc was mailed to me in a 1998 dated pamphlet along with a Synthroid prescription. That's it. "Take this for the rest of your life" in the damn MAIL. I also hate that every time I go in they bring up that I discontinued the psychiatric medication I was given before everyone found out I was severely hyperthyroid. There is not much else out there on mental symptoms and the thyroid besides this site. A lot of docs still think "correlative but not causative" which is such BS. I know they use that incorrect psychiatric diagnosis to ignore my legitimate, REAL thyroid problems and POOR treatment and after a final followup appt to go get my medical records I plan to find an endo who will consider trying out Armour. Sorry for the off topic rant. I guess you are probably used to it though. If you need any help I have an Honors English degree I'm not using :) You should try going to your local health food store and writing down the publishers on all the niche-oriented health books. Maybe they will give you a try. I do think your book would be so important, I know completely where you are coming from, and if I were not a stubborn “uppity and throwing her education around” college educated young woman I do not think I would have gotten help for my thyroid and instead would be stuck on psychiatric drugs right now.

I just love that you are such a militant and righteous voice, it’s awesome. We have a right to be angry. Look how much of our lives we have lost. There is a bigger issue I think you should frame your book around if you keep having trouble and that is doctors not taking women seriously when they “complain” about subjective symptoms. It’s not just Thyroid madness…it’s heart attack madness, cancer madness, and it’s about women not getting the care they need at the doctor even if they are trying to get it!!!

Anyway — I suspect I have had Hashimoto’s with transient thyrotoxicosis for 10+ years after puberty and lately my thyroid’s just been giving up the ghost. Having anyone tell me “everything’s in my head” now that I am older just pisses me off. When I was younger my parents were in total control and unfortunately they went along with what the doctors would say.

And the thyroid is a hell of a ride too. Why the hell did I have to wait a year after being severely hyperthyroid for my TSH to rise beyond a “range” to get treated for hypo if they knew I had antibodies and if they also know it will take me months to get back to normal? How the hell am I supposed to work and live all symptomatic in the meantime? I am lucky I guess in that I even got FT4 and antibody tests from what I have been reading, and that they have been testing me every 2-3 months, but I hate that all the info I got on the thyroid from the doc was mailed to me in a 1998 dated pamphlet along with a Synthroid prescription. That’s it. “Take this for the rest of your life” in the damn MAIL. I also hate that every time I go in they bring up that I discontinued the psychiatric medication I was given before everyone found out I was severely hyperthyroid. There is not much else out there on mental symptoms and the thyroid besides this site. A lot of docs still think “correlative but not causative” which is such BS. I know they use that incorrect psychiatric diagnosis to ignore my legitimate, REAL thyroid problems and POOR treatment and after a final followup appt to go get my medical records I plan to find an endo who will consider trying out Armour.

Sorry for the off topic rant. I guess you are probably used to it though. If you need any help I have an Honors English degree I’m not using :)

]]> By: Zelda Canuck http://www.stopthethyroidmadness.com/2007/05/02/sttm-book/#comment-11784 Zelda Canuck Sun, 24 Jun 2007 18:34:52 +0000 http://www.stopthethyroidmadness.com/blog/2007/05/02/sttm-book/#comment-11784 Maybe you haven't met a publisher that has the cajones to take on Big Pharma. Cause when this news spreads there will be millions perhaps billions of dollars Big Pharma will not be making anymore. Maybe you haven’t met a publisher that has the cajones to take on Big Pharma. Cause when this news spreads there will be millions perhaps billions of dollars Big Pharma will not be making anymore.

]]> By: Andrea http://www.stopthethyroidmadness.com/2007/05/02/sttm-book/#comment-11744 Andrea Sat, 23 Jun 2007 15:31:51 +0000 http://www.stopthethyroidmadness.com/blog/2007/05/02/sttm-book/#comment-11744 Why not start accepting donations to have the book self-published by a POD publisher? It can cost as little as $400 just to get it in print. Then once it starts selling, you make the money back. I've heard good things about Outskirts Press www.outskirtspress.com Give it a shot -- you definitely have to get this information out there! Why not start accepting donations to have the book self-published by a POD publisher? It can cost as little as $400 just to get it in print. Then once it starts selling, you make the money back.

I’ve heard good things about Outskirts Press http://www.outskirtspress.com Give it a shot — you definitely have to get this information out there!

]]> By: Chantelle http://www.stopthethyroidmadness.com/2007/05/02/sttm-book/#comment-11442 Chantelle Thu, 14 Jun 2007 15:33:24 +0000 http://www.stopthethyroidmadness.com/blog/2007/05/02/sttm-book/#comment-11442 Janie. So many nights I have lay there thinking of how there could be a book published containing the information and personal experiences of the people on this website! A referral source for armour treatment and the hurdles along the way, such as finding a doc, understanding blood tests, anxiety, low cortisol, low ferritin etc... I am yet to find a practical printed guide to getting well with hypothyroidism, but I have looked. This book could help those less web savvy, or less likely to search the web for health questions. I would be happy to offer my graphic design services for the formatting/layout of your book, should you publish this yourself. It would be an honour to be involved with helping others. Yours Forever Grateful, Chantelle Boudreau Janie. So many nights I have lay there thinking of how there could be a book published containing the information and personal experiences of the people on this website! A referral source for armour treatment and the hurdles along the way, such as finding a doc, understanding blood tests, anxiety, low cortisol, low ferritin etc… I am yet to find a practical printed guide to getting well with hypothyroidism, but I have looked. This book could help those less web savvy, or less likely to search the web for health questions.

I would be happy to offer my graphic design services for the formatting/layout of your book, should you publish this yourself. It would be an honour to be involved with helping others.

Yours Forever Grateful,
Chantelle Boudreau

]]> By: Wendy (they just don't care) http://www.stopthethyroidmadness.com/2007/05/02/sttm-book/#comment-11411 Wendy (they just don't care) Wed, 13 Jun 2007 17:05:59 +0000 http://www.stopthethyroidmadness.com/blog/2007/05/02/sttm-book/#comment-11411 Hi, they don't care do they! You know, the Doctors. Or they skipped a few page's in their medical schooling!!!!! Ok, here's a perfect example you have all experienced. I can go a year sometimes 2 and still get my lousy medication thru the pharmacist calling and getting my THYROXINE filled. I take..250mcg as we all know that is EXTREMELY DANGEROOUSLY HIGH when in fact 300mcg's is the limit. That's right, they could care less about bringing me in and checking the T4, T3. And we all know we've got that little THYROID DEVIL that keeps telling us it's fine, just fine. Of course untill you're so sick like when your 2 years or so are up, and the DR. says 'oh my, you need to come and get blood work done'. Well by then you haven't been able to, or your pharmacist hasn't been able to get (bless his heart) a refill for you. So now you are 30lbs. overweight, hair is falling out, your stool looks like rat turds and you're either bawling like a baby or you're ready to kill someone. Somehow you pull yourself together (somewhat) shake off the THYROID DEVIL and crawl to your next appointment to get your FIX. Well I'm 45yrs old and I do have a GOITER. it is great to finally find some help and someone to talk to that knows WHAT I AM TALKING ABOUT. Thanks to my sister and to her friend for this information. I am now looking for ARMOUR. Hi, they don’t care do they! You know, the Doctors. Or they skipped a few page’s in their medical schooling!!!!!
Ok, here’s a perfect example you have all experienced. I can go a year sometimes 2 and still get my lousy medication thru the pharmacist calling and getting my THYROXINE filled. I take..250mcg as we all know that is EXTREMELY DANGEROOUSLY HIGH when in fact 300mcg’s is the limit. That’s right, they could care less about bringing me in and checking the T4, T3. And we all know we’ve got that little THYROID DEVIL that keeps telling us it’s fine, just fine. Of course untill you’re so sick like when your 2 years or so are up, and the DR. says ‘oh my, you need to come and get blood work done’. Well by then you haven’t been able to, or your pharmacist hasn’t been able to get (bless his heart) a refill for you. So now you are 30lbs. overweight, hair is falling out, your stool looks like rat turds and you’re either bawling like a baby or you’re ready to kill someone. Somehow you pull yourself together (somewhat) shake off the THYROID DEVIL and crawl to your next appointment to get your FIX. Well I’m 45yrs old and I do have a GOITER. it is great to finally find some help and someone to talk to that knows WHAT I AM TALKING ABOUT. Thanks to my sister and to her friend for this information. I am now looking for ARMOUR.

]]> By: Teresa in Tulsa http://www.stopthethyroidmadness.com/2007/05/02/sttm-book/#comment-8856 Teresa in Tulsa Thu, 31 May 2007 20:31:10 +0000 http://www.stopthethyroidmadness.com/blog/2007/05/02/sttm-book/#comment-8856 Hi Janie, Have you thought about making the book available on the stopthethyroidmadness website as an E-book? Everyone on the yahoo groups, myself included, would be standing in line (figuratively speaking) to pay for and download a copy of your book!! Just a thought :) Teresa in Tulsa Hi Janie,
Have you thought about making the book available on the stopthethyroidmadness website as an E-book? Everyone on the yahoo groups, myself included, would be standing in line (figuratively speaking) to pay for and download a copy of your book!!
Just a thought :)
Teresa in Tulsa

]]> By: Shana http://www.stopthethyroidmadness.com/2007/05/02/sttm-book/#comment-7916 Shana Thu, 17 May 2007 20:46:43 +0000 http://www.stopthethyroidmadness.com/blog/2007/05/02/sttm-book/#comment-7916 I wanted to add to the encouragement of self publishing. There is another website that I have used for a small project but they also have a merchant section where you can sell it online without any up front cost. You could just advertise the link. This is important information to spread!!! www.lulu.com I wanted to add to the encouragement of self publishing. There is another website that I have used for a small project but they also have a merchant section where you can sell it online without any up front cost. You could just advertise the link. This is important information to spread!!! http://www.lulu.com

]]> By: bonnie http://www.stopthethyroidmadness.com/2007/05/02/sttm-book/#comment-7812 bonnie Mon, 14 May 2007 21:06:30 +0000 http://www.stopthethyroidmadness.com/blog/2007/05/02/sttm-book/#comment-7812 Have you tried any of the independent publishing houses? Here's one called Volcano Press that I came across in a quick search: www.volcanopress.com. While their focus seems to be domestic violence, they also publish books related to women's health. There must be other publishers like them out there too. Please don't give up. We need an STTM book! Have you tried any of the independent publishing houses? Here’s one called Volcano Press that I came across in a quick search: http://www.volcanopress.com. While their focus seems to be domestic violence, they also publish books related to women’s health. There must be other publishers like them out there too. Please don’t give up. We need an STTM book!

]]> By: Marge E http://www.stopthethyroidmadness.com/2007/05/02/sttm-book/#comment-7789 Marge E Mon, 14 May 2007 01:13:38 +0000 http://www.stopthethyroidmadness.com/blog/2007/05/02/sttm-book/#comment-7789 I think your book would benefit many, many people. Aren't the elderly particularly subject to thyroid deficiency? And they are the ones least likely to use the internet and thus have no access to the life saving information from your website. The other group without internet access would be lower-income folks, another group that would particularly benefit from your info. As far as publishers not being interested - Big Pharma and the AMA are powerful, influential, and not always ethical forces. I think your book would benefit many, many people. Aren’t the elderly particularly subject to thyroid deficiency? And they are the ones least likely to use the internet and thus have no access to the life saving information from your website. The other group without internet access would be lower-income folks, another group that would particularly benefit from your info. As far as publishers not being interested - Big Pharma and the AMA are powerful, influential, and not always ethical forces.

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