Comments on: Oh..oh..oh..do you think the Endrocrine Society is going to understand FACTS??? http://www.stopthethyroidmadness.com/2007/05/05/endocrine-society/ Not just another Thyroid site Fri, 05 Dec 2008 12:02:52 +0000 http://wordpress.org/?v=2.6.3 By: Jim http://www.stopthethyroidmadness.com/2007/05/05/endocrine-society/#comment-12633 Jim Wed, 25 Jul 2007 18:05:36 +0000 http://www.stopthethyroidmadness.com/blog/2007/05/05/endocrine-society/#comment-12633 I hope it OK for me to say this here: Synthroid works great for me. (from Janie: And I hope it's OK for me to say this here: I bet you do have symptoms due to a T4-only treatment, even if manageable compared to others. So when you decide down the line that you'd like even those to go away, the information is here for you, and so are a growing body of doctors who'll help you switch. :) Until then...best wishes! I hope it OK for me to say this here: Synthroid works great for me. (from Janie: And I hope it’s OK for me to say this here: I bet you do have symptoms due to a T4-only treatment, even if manageable compared to others. So when you decide down the line that you’d like even those to go away, the information is here for you, and so are a growing body of doctors who’ll help you switch. :) Until then…best wishes!

]]> By: Glo http://www.stopthethyroidmadness.com/2007/05/05/endocrine-society/#comment-12480 Glo Mon, 16 Jul 2007 22:24:17 +0000 http://www.stopthethyroidmadness.com/blog/2007/05/05/endocrine-society/#comment-12480 Hello, I also have had total thyroidectomy due to papillary cancer 5 years ago. That's not the problem. The problem is my meds won't work now(Levoxyl) and nervous system suddenly went haywire after a dental visit and adrenaline injection. Endo lowered them 4 times and now I'm hypo. Feel rotten. Fired him. New endo is testing me for pheo and other adrenal/pituitary but I don't know results. At any rate, he is going to up my meds because he says not good for thyroid cancer patient to be hypo. I hope he gives me T3. I have been messed up for the past 3 months and never felt this bad, not even after surgery. I am now taking a tranquilizer which I've never ever had to do before. When will this madness end? I hope I get lucky with my meds like you finally did. Thank you. Hello,
I also have had total thyroidectomy due to papillary cancer 5 years ago. That’s not the problem. The problem is my meds won’t work now(Levoxyl) and nervous system suddenly went haywire after a dental visit and adrenaline injection. Endo lowered them 4 times and now I’m hypo. Feel rotten. Fired him. New endo is testing me for pheo and other adrenal/pituitary but I don’t know results. At any rate, he is going to up my meds because he says not good for thyroid cancer patient to be hypo. I hope he gives me T3. I have been messed up for the past 3 months and never felt this bad, not even after surgery. I am now taking a tranquilizer which I’ve never ever had to do before. When will this madness end? I hope I get lucky with my meds like you finally did. Thank you.

]]> By: Emma Lee http://www.stopthethyroidmadness.com/2007/05/05/endocrine-society/#comment-12354 Emma Lee Thu, 12 Jul 2007 18:37:43 +0000 http://www.stopthethyroidmadness.com/blog/2007/05/05/endocrine-society/#comment-12354 Oh my goodness, where have you people been all my life? My case is classic, November 2003, total thyroidectomy, When I asked about after affects of surgery I was told, "You'll be a little tired at first and you may gain a little weight." Three weeks later, 32 pounds heavier and totally exhausted, I began an 18 month battle with my doctor. Did I mention I lost my voice. I am a professional singer and a public speaking/Forensics coach. Try that while having a two-note range and little to no volume. It came to either suicide or finding a new doctor. Finally through Mary Shoman's site I found a natural physician who took me off the synthroid and put me on armour. The loss of voice? Acid reflux caused by synthroid.  I know synthroid works for some people, but oh my gosh, it didn't work for me. I hear your anger and frustration. After switching to armour (I take 120 first thing in the morning and 90/120 in early evening) I finally lost 20 pounds. However, two months ago I started on South Beach. I work at a company with a fitness room so I treadmill daily for at least a half hour. In the past 8 weeks I have lost 16 pounds. Hard to believe this journey is almost four years long, but there is hope...Unfortunately you have to fight. In this day and age, if you dont' agree with your physician, find another one. Hang in there, things will get better. Oh my goodness, where have you people been all my life?

My case is classic, November 2003, total thyroidectomy, When I asked about after affects of surgery I was told, “You’ll be a little tired at first and you may gain a little weight.” Three weeks later, 32 pounds heavier and totally exhausted, I began an 18 month battle with my doctor.

Did I mention I lost my voice. I am a professional singer and a public speaking/Forensics coach. Try that while having a two-note range and little to no volume.

It came to either suicide or finding a new doctor. Finally through Mary Shoman’s site I found a natural physician who took me off the synthroid and put me on armour. The loss of voice? Acid reflux caused by synthroid.  I know synthroid works for some people, but oh my gosh, it didn’t work for me.

I hear your anger and frustration. After switching to armour (I take 120 first thing in the morning and 90/120 in early evening) I finally lost 20 pounds.

However, two months ago I started on South Beach. I work at a company with a fitness room so I treadmill daily for at least a half hour. In the past 8 weeks I have lost 16 pounds.

Hard to believe this journey is almost four years long, but there is hope…Unfortunately you have to fight. In this day and age, if you dont’ agree with your physician, find another one. Hang in there, things will get better.

]]> By: Linda http://www.stopthethyroidmadness.com/2007/05/05/endocrine-society/#comment-12218 Linda Sat, 07 Jul 2007 13:30:32 +0000 http://www.stopthethyroidmadness.com/blog/2007/05/05/endocrine-society/#comment-12218 Janie, Just curious...Do we know what Dr. Cooper said? I'm sure it was pathetic. Janie,
Just curious…Do we know what Dr. Cooper said?
I’m sure it was pathetic.

]]> By: Sheryl http://www.stopthethyroidmadness.com/2007/05/05/endocrine-society/#comment-12004 Sheryl Sat, 30 Jun 2007 04:01:43 +0000 http://www.stopthethyroidmadness.com/blog/2007/05/05/endocrine-society/#comment-12004 Here's a good one for you - my mom is now 83 - 5 years ago she had a heart attack, but no surgery or anything, and she's been fine since then - EXCEPT - her new doctor for the last 5 years - internal medicine - does blood work every 3 months for her and right away told her that her thyroid was low and she needed to take Synthroid. Mom is into herbal stuff and refuses to take drugs, so she said she would do it with herbs first. Next checkup and the next, nothing much had changed (I don't remember what her TSH was, not that it really matters). Anyway, about the same time now, looking back, she started having a lot of problem with her knees aching like all get out. This has kept on and on - she has tried cortisone shots, rooster comb shots, etc., and nothing has changed. Should note that about 6 months after the heart attac, the doc convinced her to take Synthroid. Because of our huge interest in natural things as opposed to chemical concoctions, one day we went to see our chiropractor, who does computer electrodermal screening in his experimental lab, and I took along her herbal formulas AND the Synthroid. He tested her against the synthroid, and his red lights started flashing on the computer. The screening said that she was very, very allergic to synthroid! I was grumbling about wanting to change to Armour but my doc (now fired) wouldn't change it, so he gave me the name of the gal who is now our new doc. She switched both of us to Armour, and although mom hasn't completely gotten rid of the knee pain yet, she is much better! She will have another TSH done in a couple of weeks, and I suspect she will have a large increase in the Armour - she's at 60mg right now. So - all those aches and pains - I would be so tickled for her if we finally get her to the level of Armour where it all goes away. What a day of rejoicing that will be! There is nothing wrong with her other than that - she could live to be 100 at the rate she's going! Here’s a good one for you - my mom is now 83 - 5 years ago she had a heart attack, but no surgery or anything, and she’s been fine since then - EXCEPT - her new doctor for the last 5 years - internal medicine - does blood work every 3 months for her and right away told her that her thyroid was low and she needed to take Synthroid. Mom is into herbal stuff and refuses to take drugs, so she said she would do it with herbs first. Next checkup and the next, nothing much had changed (I don’t remember what her TSH was, not that it really matters). Anyway, about the same time now, looking back, she started having a lot of problem with her knees aching like all get out. This has kept on and on - she has tried cortisone shots, rooster comb shots, etc., and nothing has changed. Should note that about 6 months after the heart attac, the doc convinced her to take Synthroid. Because of our huge interest in natural things as opposed to chemical concoctions, one day we went to see our chiropractor, who does computer electrodermal screening in his experimental lab, and I took along her herbal formulas AND the Synthroid. He tested her against the synthroid, and his red lights started flashing on the computer. The screening said that she was very, very allergic to synthroid! I was grumbling about wanting to change to Armour but my doc (now fired) wouldn’t change it, so he gave me the name of the gal who is now our new doc. She switched both of us to Armour, and although mom hasn’t completely gotten rid of the knee pain yet, she is much better! She will have another TSH done in a couple of weeks, and I suspect she will have a large increase in the Armour - she’s at 60mg right now.

So - all those aches and pains - I would be so tickled for her if we finally get her to the level of Armour where it all goes away. What a day of rejoicing that will be! There is nothing wrong with her other than that - she could live to be 100 at the rate she’s going!

]]> By: Helena http://www.stopthethyroidmadness.com/2007/05/05/endocrine-society/#comment-9130 Helena Fri, 01 Jun 2007 18:43:02 +0000 http://www.stopthethyroidmadness.com/blog/2007/05/05/endocrine-society/#comment-9130 Thank you so much for all the information regarding this disease. I work for an Internist and I was diagnosed with low thyroid. My doctor started me on the .025mcg Synthroid. I asked and pleaded for Armour (after reading your info). He told me "No-it is not standardized and do not ask me again!" I then made an appointment with one of your website doctors and asked for Armour, she replied " No problem ". I started the 30mcg of Armour today. I was an office manager for a Chiropractor for 19 years (was fired because I was diagnosed with Cancer)and I am used to the fight with the medical community. You just have to stay focused and demand what you want, because it is your body and your health! If that doesn't work, seek out another doctor. I just want to thank you so much for all the information you have provided me, I am recently diagnosed with Hasimotos and this site was The Best! Thank you so much for all the information regarding this disease. I work for an Internist and I was diagnosed with low thyroid. My doctor started me on the .025mcg Synthroid. I asked and pleaded for Armour (after reading your info). He told me “No-it is not standardized and do not ask me again!” I then made an appointment with one of your website doctors and asked for Armour, she replied ” No problem “. I started the 30mcg of Armour today. I was an office manager for a Chiropractor for 19 years (was fired because I was diagnosed with Cancer)and I am used to the fight with the medical community. You just have to stay focused and demand what you want, because it is your body and your health! If that doesn’t work, seek out another doctor.
I just want to thank you so much for all the information you have provided me, I am recently diagnosed with Hasimotos and this site was The Best!

]]> By: Cathy http://www.stopthethyroidmadness.com/2007/05/05/endocrine-society/#comment-8160 Cathy Fri, 25 May 2007 01:55:34 +0000 http://www.stopthethyroidmadness.com/blog/2007/05/05/endocrine-society/#comment-8160 I recently started on Westhyroid (today is my fourth day) and I already feel better than I ever did in the 12 years I was hypothyroid. The best thing would be for the Endos to be hypothyroid themselves and to depend solely on their beloved Synthyroid. I recently started on Westhyroid (today is my fourth day) and I already feel better than I ever did in the 12 years I was hypothyroid.

The best thing would be for the Endos to be hypothyroid themselves and to depend solely on their beloved Synthyroid.

]]> By: Dr. Kate http://www.stopthethyroidmadness.com/2007/05/05/endocrine-society/#comment-8145 Dr. Kate Thu, 24 May 2007 03:23:42 +0000 http://www.stopthethyroidmadness.com/blog/2007/05/05/endocrine-society/#comment-8145 Amen to Karen! The drug companies ARE trying to keep us sick! I am a chiropractor recently diagnosed with Hashi's, and I am going to go into the endocrinologist's with guns blazing....becuase I'm used to it! I have to fight the medical establishment every day, and to me, this is just another extension of the battle, albeit more personal. BTW...thank you for an informational website. Everything I have read is so true...my mother struggled with Hashi's for years before she went to a holistic MD who said "low normal" T4 and T3 is actually abnormal (like, a tenth of a point above abnormal)! Hoping my fight is easier, and I have the bonus of being able to order pharmaceutical grade supplements MYSELF Amen to Karen!

The drug companies ARE trying to keep us sick! I am a chiropractor recently diagnosed with Hashi’s, and I am going to go into the endocrinologist’s with guns blazing….becuase I’m used to it! I have to fight the medical establishment every day, and to me, this is just another extension of the battle, albeit more personal.
BTW…thank you for an informational website. Everything I have read is so true…my mother struggled with Hashi’s for years before she went to a holistic MD who said “low normal” T4 and T3 is actually abnormal (like, a tenth of a point above abnormal)! Hoping my fight is easier, and I have the bonus of being able to order pharmaceutical grade supplements MYSELF

]]> By: Astrid http://www.stopthethyroidmadness.com/2007/05/05/endocrine-society/#comment-7834 Astrid Tue, 15 May 2007 14:35:28 +0000 http://www.stopthethyroidmadness.com/blog/2007/05/05/endocrine-society/#comment-7834 I switched from Synthroid to Armour and feel way better. For those of us having a conversion problem, Armour really is the best way to go. I am angry to have lost the years I did to Synthroid. However, I am also a scientist, and the problem (besides the pharma propaganda) truly is that there haven't been the studies done to "prove" the efficacy of Armour. My guess is that the producers of Armour don't want to spend the money (or can't). However, if the scientific literature is not there, it will always be hard to convince scientific minded people otherwise. So, if people really want to do something about this issue and fight the Synthroid big pharma propaganda, then they should lobby for the funding and studies to be done proving the efficacy of Armour. My two cents. Astrid I switched from Synthroid to Armour and feel way better. For those of us having a conversion problem, Armour really is the best way to go. I am angry to have lost the years I did to Synthroid. However, I am also a scientist, and the problem (besides the pharma propaganda) truly is that there haven’t been the studies done to “prove” the efficacy of Armour. My guess is that the producers of Armour don’t want to spend the money (or can’t). However, if the scientific literature is not there, it will always be hard to convince scientific minded people otherwise. So, if people really want to do something about this issue and fight the Synthroid big pharma propaganda, then they should lobby for the funding and studies to be done proving the efficacy of Armour.

My two cents.
Astrid

]]> By: Karen http://www.stopthethyroidmadness.com/2007/05/05/endocrine-society/#comment-7820 Karen Tue, 15 May 2007 02:13:24 +0000 http://www.stopthethyroidmadness.com/blog/2007/05/05/endocrine-society/#comment-7820 If amour has a DIN (drug number) then each tablet is guaranteed to be a consistent dose. Remember they are not trying to get us well - they like to keep us sick - that way when we can't function at peak levels we can be controlled and manipulated and there is NO MONEY IN BEING HEALTHY for the drugs companies. We have to look after ourselves If amour has a DIN (drug number) then each tablet is guaranteed to be a consistent dose.
Remember they are not trying to get us well - they like to keep us sick - that way when we can’t function at peak levels we can be controlled and manipulated and there is NO MONEY IN BEING HEALTHY for the drugs companies.
We have to look after ourselves

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