Comments on: Good grief! Stop the judgment! http://www.stopthethyroidmadness.com/2008/09/15/stop-the-judgment/ Not just another Thyroid site Sat, 07 Nov 2009 21:14:04 -0800 http://wordpress.org/?v=abc hourly 1 By: Mel http://www.stopthethyroidmadness.com/2008/09/15/stop-the-judgment/comment-page-1/#comment-27737 Mel Sat, 18 Oct 2008 05:44:04 +0000 http://www.stopthethyroidmadness.com/?p=401#comment-27737 Hi, I agree with the comments above. Thanks for the site. It is very informative and highly needed for so many. I just wanted to respond to Sandy's comment above. And say, that I am on Whole Thyroid, I am from New Zealand too. And there are doctors that do prescribe it. And a pharmacy that makes it over here. Pharmaceutical Compounding New Zealand compounds whole thyroid and also, dhea, and other hormones such as progesterone, estrogen (natural hormone replacement therapy). I have a doctor that they recommended for my region. Near Wgtn. Anyhow, best wishes for your recovery! And PCNZ have a site with their contact details. It is http://www.pharmaceutical.co.nz/ Their Phone number is (09) 4425850 Let me know if you need more info... Thanks again, for this site! Mel Hi, I agree with the comments above. Thanks for the site. It is very informative and highly needed for so many.
I just wanted to respond to Sandy’s comment above. And say, that I am on Whole Thyroid, I am from New Zealand too. And there are doctors that do prescribe it. And a pharmacy that makes it over here.
Pharmaceutical Compounding New Zealand compounds whole thyroid and also, dhea, and other hormones such as progesterone, estrogen (natural hormone replacement therapy). I have a doctor that they recommended for my region. Near Wgtn. Anyhow, best wishes for your recovery!
And PCNZ have a site with their contact details.
It is http://www.pharmaceutical.co.nz/
Their Phone number is (09) 4425850
Let me know if you need more info…
Thanks again, for this site!
Mel

]]> By: Sandy http://www.stopthethyroidmadness.com/2008/09/15/stop-the-judgment/comment-page-1/#comment-25668 Sandy Thu, 18 Sep 2008 13:08:44 +0000 http://www.stopthethyroidmadness.com/?p=401#comment-25668 Hi Janie I would like to thank you for your courage and determination. I am a thyroid cancer patient from New Zealand and have been treated with Eltroxin / Levothyroxine for nearly two years. I had been absolutely devastated by the reality of not ever feeling 'normal' energy levels in this time. Some weeks ago the new formation Eltroxin hit our headlines as people who had been taking their T4 meds (GSK is the only subsidised Thyroxine med here) for years, began to complain about new and unpleasant symptoms (the possible connection with GSK's med is disputed by some). Thus began my search for information through local discussion boards etc - and the trail leads to your wonderful site. We are trying to start up a support group/society here. We intend to continue to advocate for greater choice and for 'listening' to patients, and I (along with others) hope to convince our doctors to prescribe T4 + T3, or WTE; as well as find a pharmacy willing to supply it. Thank you so much for the resources you so readily share, and for all of the research and time you have put into this. Your knowledge and experience benefits sooooo many. You are a legend !! Hi Janie
I would like to thank you for your courage and determination. I am a thyroid cancer patient from New Zealand and have been treated with Eltroxin / Levothyroxine for nearly two years. I had been absolutely devastated by the reality of not ever feeling ‘normal’ energy levels in this time. Some weeks ago the new formation Eltroxin hit our headlines as people who had been taking their T4 meds (GSK is the only subsidised Thyroxine med here) for years, began to complain about new and unpleasant symptoms (the possible connection with GSK’s med is disputed by some). Thus began my search for information through local discussion boards etc — and the trail leads to your wonderful site.
We are trying to start up a support group/society here. We intend to continue to advocate for greater choice and for ‘listening’ to patients, and I (along with others) hope to convince our doctors to prescribe T4 + T3, or WTE; as well as find a pharmacy willing to supply it.
Thank you so much for the resources you so readily share, and for all of the research and time you have put into this. Your knowledge and experience benefits sooooo many.
You are a legend !!

]]> By: Colleen Devlin http://www.stopthethyroidmadness.com/2008/09/15/stop-the-judgment/comment-page-1/#comment-25591 Colleen Devlin Wed, 17 Sep 2008 20:38:30 +0000 http://www.stopthethyroidmadness.com/?p=401#comment-25591 I just found your site and I'm really grateful to you for doing what you're doing. I was diagnosed with Hashi's 25 years ago, treated with synthroid all these years, and have still experienced the host of ills and symptoms outlined here, and with increasing severity. This past year I'd become convinced I was simply destined to be incapacitated and debilitated for the rest of my life (I'm 54 and have felt 90+ I think) and depressed beyond measure anymore. Lately I've been wondering what life's good for and well gad. None of my docs would agree to investigate other treatment than synthroid until my new doctor's nurse practioner who put me on Armour just last week. I swear to god I feel 20 years younger. I've had increasingly debilitating dizziness for years now, and good lord I think it's cleared. It's been a daily nightmare and now... I'm afraid to hope. Could it be that I can live a normal life again? I have energy. I can think. I have a libido again! I'm suddenly joyful and happy for the first time in years. I'm also frankly stunned. My husband says I need to give that nurse a big kiss for both of us.... And now I come here and read nearly identical stories from so many people. It's astonishing. I've been to one doctor after another trying to get some answers now for years. And then I give up, and then it gets so bad I start all over again. I've suspected for years that the culprit was insufficiently-treated Hashimoto's, but of course that suggestion has always gone nowhere. Thank you for your work. I just found your site and I’m really grateful to you for doing what you’re doing. I was diagnosed with Hashi’s 25 years ago, treated with synthroid all these years, and have still experienced the host of ills and symptoms outlined here, and with increasing severity. This past year I’d become convinced I was simply destined to be incapacitated and debilitated for the rest of my life (I’m 54 and have felt 90+ I think) and depressed beyond measure anymore. Lately I’ve been wondering what life’s good for and well gad. None of my docs would agree to investigate other treatment than synthroid until my new doctor’s nurse practioner who put me on Armour just last week. I swear to god I feel 20 years younger. I’ve had increasingly debilitating dizziness for years now, and good lord I think it’s cleared. It’s been a daily nightmare and now… I’m afraid to hope. Could it be that I can live a normal life again? I have energy. I can think. I have a libido again! I’m suddenly joyful and happy for the first time in years. I’m also frankly stunned. My husband says I need to give that nurse a big kiss for both of us.… And now I come here and read nearly identical stories from so many people. It’s astonishing. I’ve been to one doctor after another trying to get some answers now for years. And then I give up, and then it gets so bad I start all over again. I’ve suspected for years that the culprit was insufficiently-treated Hashimoto’s, but of course that suggestion has always gone nowhere. Thank you for your work.

]]> By: Shawndra http://www.stopthethyroidmadness.com/2008/09/15/stop-the-judgment/comment-page-1/#comment-25439 Shawndra Tue, 16 Sep 2008 03:04:32 +0000 http://www.stopthethyroidmadness.com/?p=401#comment-25439 Hi Janie, I just wanted to say thanks for all of the incredible info on your site. I'm 24 years old, and I was diagnosed with Graves Disease when I was 20. I went through a miserable season of anxiety, depression and chronic fatigue. It pretty much ruined my athletic career. Reading the info on your site has shown me that I probably had a thyroid problem since I was a little girl. I am now on my second endocrinologist, and I am still being told that if the labs are normal then everything is fine and I just need to eat better. But, now I know that my symptoms are valid and not just in my head. Somehow these doctors have made me feel responsible for my symptoms. The depression/anxiety never left completely, and I am DEAD TIRED all the time. It's the hardest thing in the world for me to just wake up in the morning. I'll spare you any further details, I just wanted to say THANK YOU! I don't feel crazy anymore, and the madness has definitely got to STOP. I'm going to switch to Armour ASAP. Again, thank you. ~Shawndra Hi Janie,

I just wanted to say thanks for all of the incredible info on your site. I’m 24 years old, and I was diagnosed with Graves Disease when I was 20. I went through a miserable season of anxiety, depression and chronic fatigue. It pretty much ruined my athletic career. Reading the info on your site has shown me that I probably had a thyroid problem since I was a little girl.

I am now on my second endocrinologist, and I am still being told that if the labs are normal then everything is fine and I just need to eat better. But, now I know that my symptoms are valid and not just in my head. Somehow these doctors have made me feel responsible for my symptoms. The depression/anxiety never left completely, and I am DEAD TIRED all the time. It’s the hardest thing in the world for me to just wake up in the morning.

I’ll spare you any further details, I just wanted to say THANK YOU! I don’t feel crazy anymore, and the madness has definitely got to STOP. I’m going to switch to Armour ASAP.

Again, thank you.

~Shawndra

]]> By: Tracy http://www.stopthethyroidmadness.com/2008/09/15/stop-the-judgment/comment-page-1/#comment-25400 Tracy Mon, 15 Sep 2008 18:13:45 +0000 http://www.stopthethyroidmadness.com/?p=401#comment-25400 Amen!! I read the article, too, and I was disgusted with the smug attitude these so-called patient advocates have. One doctor actually mocked a commenter because she stated that armour contains T1,2,3,4 and calcitonin. The doctor said that we cannot claim that armour is better because it has more of the right ingredients!!!!! Isn't that what makes a cake better--if it's made with sugar instead of salt? The right ingredients DO MATTER! As someone with no thyroid, I contacted this self proclaimed thyroid advocate. I told her my story and about my cancer. She didn't bother to send me even a junk mail response. As soon as I comment that T4 meds don't work, THEN she responds to me, saying "you don't get it." Uh, no, sweetie--it's YOU who is in the dark. Sorry if I sound a little ticked here, folks, but I am. With "advocates" like that, who needs enemies? Amen!! I read the article, too, and I was disgusted with the smug attitude these so-called patient advocates have. One doctor actually mocked a commenter because she stated that armour contains T1,2,3,4 and calcitonin. The doctor said that we cannot claim that armour is better because it has more of the right ingredients!!!!! Isn’t that what makes a cake better–if it’s made with sugar instead of salt? The right ingredients DO MATTER!

As someone with no thyroid, I contacted this self proclaimed thyroid advocate. I told her my story and about my cancer. She didn’t bother to send me even a junk mail response. As soon as I comment that T4 meds don’t work, THEN she responds to me, saying “you don’t get it.” Uh, no, sweetie–it’s YOU who is in the dark.

Sorry if I sound a little ticked here, folks, but I am. With “advocates” like that, who needs enemies?

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