Comments on: Tips on how to do desiccated thyroid sublingually

By: Juliane

Juliane — Sun, 11 Oct 2009 01:24:54 +0000

Is Nature-Throid gluten free? I am gluten intollerant and would like a recommendation of the best Armour replacement med.

Thanks!

By: Samantha

Samantha — Sat, 15 Aug 2009 05:48:04 +0000

FYI: I was having a conversation with a lawyer when this subject came up… turns out that not a whole lot can be done if the pill doesn’t cause new symtoms that didnt exist before the pill was taken. Example: If the pill simply doesnt work and you die because of low thyroid, there isnt much you can do execpt try to sue them for false advertising. If the pill actually created a new problem that doesnt exist without the pill, then you have a case.

It is probably best if we hold an intention for someone to start making the original formula again.

By: Dawn Wood

Dawn Wood — Thu, 06 Aug 2009 18:05:08 +0000

can I just correct the comment that all ndt’s have been banned in the UK. As they are legal medications they cannot be without a lengthy procedure, which hasn’t happened

Earlier this year the Royal College of Physicians along with the Endo org and others put out a statement saying that thyroxine was the only treatment for hypo, as well as saying not to treat until TSH of 10. A handful of people were told by their endo that they had been told would be struck off if they prescribed it. However this letter hasn’t been seen and a number of dr friends of mine haven’t had one.

Ourselves and other advocates and orgs in the UK challenged this and sent proof they were wrong. They haven’t had a cahnge of heart but then said it was advisory not mandatory, this after being asked if we could sue them if we got ill again on their regime. They cited just 6 pieces of reference to back themselves up.

I get my armour on the NHS so prescribed, not privately bought, and instead of being taken off it I was put on repeat so i don’t have to bother the doc when I need one. Many of my members report the same so we are stll gettign it.

However this problem with armour and forest is worrying as it adds more fuel to their campaign to get rid of it. i’m experiencing problems myself as are others here so how can we now defend the product when Forest are being so difficult.

When the reformulation of Eltroxin in Australia, a couple of years ago, caused problems GSK did something about it and the patients were vocal enough to make them, but we shoot ourselves in the foot if we are don’t we

By: Mia

Mia — Thu, 16 Jul 2009 19:09:51 +0000

I’d be all for switching to Naturethroid if not for the Magnesium Stearate! It’s a neuro-toxin, friends! I’m careful to avoid it with all of my supplements.

I must be the only person in my area taking it sublingually b/c my pharmacists had no idea of the change–no one had complained I guess! But my symptoms have definitely returned.

Does anyone know if just increasing my dose will help?

By: michelle

michelle — Wed, 15 Jul 2009 17:43:37 +0000

I just got my labs done after a week on the new formula, all I can say is what a drop!!!! my labs march28, 2009 old formula TSH less than .01 Free t4 1.9 Free T3 4.46 Labs taken after a week on new formula July 10, 2009 TSH less than .01 Free T4 .8 Free T3 4.25.

By: patricia white

patricia white — Mon, 13 Jul 2009 09:53:05 +0000

why do good things have to change and now we go backwards???????? yes i too have all the old symtoms again i ask why ????? patty

By: Colleen

Colleen — Sat, 04 Jul 2009 02:43:23 +0000

In response to Alice Cavallo, I had no idea that Britain had removed all the natural thyroid from the market. That is super scary! I had earlier posted in response to the reformulation that we should be calling Forest and our congresspersons. Since it seems that a lot of people are having a recurrance of symptoms after taking the new formulation, it would seem that something they added or subtracted is cancelling out the effective portions of the formula. So, couldn’t Forest be held liable if someone dies from their reformulation??? Since not having enough thyroid affects the heart, blood pressure, etc. I would think Forest would have had to run a gamut of tests and trials before the reformulation would be approved by the FDA.
Curiouser and curiouser.
By the way, I think the idea of using sugar with the new formula is a good one. I’m going to try it. It should only take a tiny bit.
Good luck everyone.

By: Julie

Julie — Sun, 28 Jun 2009 02:45:30 +0000

I find taking the armour sublingually (in my cheek) with an altoid mint helps the armour dissolve and improves the taste. I will get labs checked soon. I was optimized at 4 grains for at least 8 months and feeling great. I have noticed hair loss and joint pain returning…so curious if new formulation having an effect??

By: Alice Cavallo

Alice Cavallo — Sat, 27 Jun 2009 02:09:03 +0000

I have been hypothyroid for about 5 yrs. I took Synthroid for the first year, and didn’t improve AT ALL. After that time I read about Armour Thyroid. My new endocrinologist was quite nasty to me when I asked to try the Armour. Thank God my P.A. agreed to let me try. Overall, the Armour has done wonders, at least until several months ago. I started regressing and wondered what in the world happened!! My doc. even increased the dosage-still no improvement. I wondered if there had been a change in the Armour formulation, and just found out a few days ago, that indeed that is what has occurred. I will switch to Nature-Throid as others have been doing. But, a word of caution!!! If you call Forest Labs complaining of an adverse reaction, they have to alert the FDA. This will be taken as a black mark against natural thyroid meds. We’d better be very careful before we find ourselves in the same position as our fellow thyroid sufferers in Britain. The government has taken all natural thyroid meds. off the market. They can only be prescribed a synthetic-Synthroid! The poor people over there are going crazy. Forest has reformulated their product, yes, but the fact that we are no longer doing as well should not be termed an adverse reaction….That implies something far different than we intend. Let’s not wake up someday and find out there is no natural thyroid available in the USA.

By: Pam in NH

Pam in NH — Fri, 26 Jun 2009 23:31:56 +0000

New Armour Thyroid is making my hypothyroid symptoms all come back! I first noticed the new formulation — no more sweetness, no more slightly porcine odor or taste, but instead a tasteless, pulpy mass just like the old T4 (Levothroid) preparation I used to take — when I took the first of a newly refilled bottle sublingually as usual. Yuck! I actually took the pill out of my mouth and checked to make sure it wasn’t T4. Nope, it is actually 60 mg of newly reformulated Armour. Called the pharmacy to ask if there was a mistake. They did not know, nor did my doctor, that Armour had been reformulated. But my body knew! That was two months ago.

Slowly, all my hypothyroid symptoms are coming back: numb feet, numb hands, numb lips and face. Very painful. Cramping muscles. Ten pound weight gain despite strenuous workouts daily. Weight gain of 10 pounds despite careful diet. Terrible, painful PMS. Irregular menses. Headaches. The hypothyroid nightmare of my T4 days has returned.

I am researching what to do and am open to suggestions. I did call Forrest Pharmaceuticals today and reported the problem to a representative who said I will next need to fill out an adverse reactions form with someone else in the company. He said they are receiving a lot of calls from patients who use Armour sublingually. SInce I have celiac deisease and problems with digstive absorption, sublingually is what has always worked well for me.

And I have still been doing that with the new formulation. The taste does not matter to me a bit; what I am concerned about is that it is not being absorbed by my body. That, or they have somehow bound the T3 in a way that is no longer available to metabolisms like mine.

Please, fellow Armour Thyroid patients, call Forrest Pharmaceuticals and report whatever adverse symptoms you may be experiencing on the new Armour formulation. They will track the symptoms and, who knows, perhaps, like the classic Coca Cola lovers of old, we can have our Classic Armour Thyroid back.

Please join me in singing this true hymn to Forrest Pharmaceuticals restore thyroid health: “Bring back, bring back, bring back old Armour to me, to me ! “