Comments on: An open letter to Mary Shomon

By: Donna

Donna — Sat, 14 Nov 2009 19:07:35 +0000

(From Janie about the below post: I do want to clarify to readers of the STTM blog that there is no verified ban by the FDA against desiccated thyroid. This is patient speculation, not current verified reality. We’ll have to see what the future holds for the truth.)

There is a petition to the FDA to stop the ban on desiccated thyroid.

http://www.thepetitionsite.com/7/tell-the-fda-not-to-ba...

By: Ann

Ann — Mon, 28 Sep 2009 23:31:55 +0000

Yes, I am using both but feel lousy. I am going to try to get some Nature-Throid from AZ. Here is the following e-mail I received from RLC today:

Hi Ann,

Thank you for contacting RLC Labs. At this time we are experiencing a backorder in all strengths of Nature-Throid and Westhroid. Nature-Thoid 1 grain will be the first released in mid-late November. If you need a pharmacy to fill a prescription, I do know of one mail order pharmacy that has some available stock. You will need your physician to fax a copy of your prescription to Clarke’s Pharmacy. Please make sure it has your name and phone number on it also. Then you need to call Clarke’s and provide them with your address and billing information. If you have any further question please let me know.

Clarke’s Pharmacy
480–488-2007 Phone
480–575-0541 Fax

Phalene Leichtman
Customer Service & Sales Assistant
RLC labs, Inc.

602–276-1693 Fax
602–314-7888 Direct
877–797-7997 Toll free
PLeichtman@rlclabs.com

By: Rene

Rene — Sat, 29 Aug 2009 00:18:56 +0000

Is using synthroid and cytomel together an option???

By: Cindy

Cindy — Fri, 28 Aug 2009 02:31:17 +0000

I’m going nuts. I live in NE PA. Armour is backordered. No Naturthroid or Westroid– both unavailable for 90 days. My alternative? Synthroid or some other T4 only med. When I was taking T4 alone I felt like I did when I was taking nothing. I switched over to Armour and it was like I was a new person. Now I’ve been without for over a month. Not feeling too good. Actually, I feel really crappy. And I’m pi**ed. Mostly I’m exhausted and shakey and I have to think about thinking.

By: kendra

kendra — Thu, 27 Aug 2009 15:18:23 +0000

Im in, and very worried, was the reformulation of Armour just the beggining of a nightmare? do we even know exactly why it was reformulated? Im glad Janie and Mary are uniting whatever is needed I will do, anything to not have to go back to Synthroid. Im about to get my doc to write a prescription for teh Canadian Efra thyroid. But Ill be on thyroid the rest of my life since I dont have one! So Id rather just pick up my meds at the drug store, duh~!

By: Connie

Connie — Thu, 27 Aug 2009 14:42:01 +0000

I myself will write to the FDA, I have been on Armor since feb, and feel like a different person, its been like a miracle for me, I temporarily swithed to naturethroid but it didn’t work for me and switched back to armor and am great, but went to fill my RX and they were out and another pharmacy only had ! bottle of 100 left, its upsetting, my mother was on armor for 45 yrs !!! what is their problem !!!

By: Heidi

Heidi — Thu, 27 Aug 2009 12:50:04 +0000

To all who belong to this site, rest assured this “Pitbull” of a woman already called Forest Labs not about the Bull about the shortage, but about the reformulation and ripped the drug safety woman “Christine” a new A**hole!!!! I’m extremely vocal and assertive ask Missy , and I will call these people myself and and tell them my story and my voice WILL be heard. Remember, the “sqeaky wheel gets the grease” Let’s inundate them today and not let up!!! There is power in numbers and many voices!!!!

By: Mary Shomon

Mary Shomon — Thu, 27 Aug 2009 12:38:58 +0000

(Below is a response from Mary Shomon, and we have also emailed privately with more thoughts. My hope is that from this day forward, Mary and I will be able to share our names to our concerns, and share our names to actions. Together, with out combined talents and communication skills, I think Mary and I can be powerful against the current idiocy, and against what may lie ahead. And we’ll hope all of you will join us. Janie)

Janie,

There isn’t any specific or organized initiative (I wish there was some huge thyroid patient association, with phones, and offices, and funding, don’t you?) so I know we’re all just doing our best individually to muddle through all the conflicting information we’re getting, info from the companies, the FDA, conversations with people, etc., and doing our best to share what we’ve found online, or in forums, articles, etc. Yesterday, I put together a site for people who were looking for a home base where they could coordinate their grassroots efforts: http://www.savenaturalthyroid.com and a page at Facebook http://www.facebook.com/pages/manage/#/pages/Save-Natural-Thyroid/121680434089 (The http://www.savenaturalthyroid.com site is, for now, just a feed to the FB page, but perhaps it can be developed further?) Everyone is doing brainstorming and coordination and I know your thoughts and expertise would be most welcome. We are all on board together to do whatever we can to protect our rights to life-saving medication that so many of us rely on. But let’s not tip off the FDA, so if you have specific thoughts on ways that we can work and should together, please do email me directly at mshomon@thyroid-info.com so we can discuss it.

Thanks,

Mary

By: Nikki

Nikki — Thu, 27 Aug 2009 09:44:41 +0000

Janie,

I agree with the above comment, “Power in Nunbers.” We all need to stick together and strive for one cause here.

That’s to keep desiccated thyroid medication available.

I know the leadership I provide is not as large with desiccated medication as you are, but I too have many people worried about this and want to fight to keep going.

One in particular is an 8 year old little girl who was born with no thyroid at all. Sick as an infant the mother sought out desiccated thryoid medication and got her on it. Finally after years of illness she is living the life a little girl should. Isn’t that what this is all about?

I for 2 years now — have moved this forum into the facts about desiccated natural thyroid meds and have openly made milestones in keeping awareness over there too on labs and supplements that are essential to us.

I ask you as a thyroid patient and Co Leader to please be open to my request of asking you to let some of us join in on the fight to change this situation too.

Please contact me.

By: Belinda Raley

Belinda Raley — Thu, 27 Aug 2009 08:04:39 +0000

United We Stand, Divided we Fall.
It is a sign of strength and real leadership when one can put down personal feelings and make a decision which is for the good of the whole. I heard somewhere:

You can only lead as far as you have come.