Comments on: American Association of Health Freedom has reported on this situation http://www.stopthethyroidmadness.com/2009/09/01/american-association-of-health-freedom-has-reported-on-this-situation/ Thyroid Treatment Scandal and Hypothyroid Mistreatment Thu, 29 Jul 2010 14:02:28 -0600 http://wordpress.org/?v=2.9.2 hourly 1 By: Alice Cavallo http://www.stopthethyroidmadness.com/2009/09/01/american-association-of-health-freedom-has-reported-on-this-situation/comment-page-1/#comment-42676 Alice Cavallo Thu, 03 Sep 2009 00:08:42 +0000 http://www.stopthethyroidmadness.com/?p=3427#comment-42676 Hi Everyone!!! I, too, am very upset about the shortage of natural thyroid, and the reason that could be behind it. My pharmacy has about 6 months supply that he is saving for me, but after that the problem will really hit home. Has anyone ever heard about Low Dose Naltrexone?? It began as an approved drug about 20 years ago, under just the name Naltrexone, it's purpose being treatment for drug/alcohol addictions. There are some doctors that have been having success using it for thyroid patients. It is apparently a jewel of a drug, used for many autoimmune diseases....MS, Parkinson's, Crohn's, and many more. I have provided my doctor with some material I printed off the internet site. There are a number of clinical trials being carried out around the world for a number of illnesses. If you want more info., go to http://www.lowdosenaltrexone.org. Also if you google the name, you will find much info. The web site is very large, and my advise is to read it ALL, so that you can talk intelligently to your doctor. The small reference to the thyroid is found here:When you get to the home page, scroll down, and you'll see a number of blue boxes. Click on "What is LDN." When you get to the page, scroll down to the phrase"What Dose and frequency should my physician prescribe." Under notable exceptions you will find the reference. Please read everything. This can't be gotten at your local pharmacy. It must come from a compounding pharmacy. Do NOT get the slow release form, and also see the note about the filler to use...The site has the best compounding pharmacies listed. The only other thing we will have left, and who?knows who it might help, will be the awful Synthroid along with a synthetic T3, Cytomel. Let's hope that this is just a nightmare that will not materialize. But, friends, make sure you google the names of your Senators and Congressmen/women. Let them know what is happening at the the FDA and their buddies in Big Pharma. There are 2 million of us in the USA, we must take the time to make our voices heard. May God bless us every one.... Hi Everyone!!! I, too, am very upset about the shortage of natural thyroid, and the reason that could be behind it. My pharmacy has about 6 months supply that he is saving for me, but after that the problem will really hit home. Has anyone ever heard about Low Dose Naltrexone?? It began as an approved drug about 20 years ago, under just the name Naltrexone, it’s purpose being treatment for drug/alcohol addictions. There are some doctors that have been having success using it for thyroid patients. It is apparently a jewel of a drug, used for many autoimmune diseases.…MS, Parkinson’s, Crohn’s, and many more. I have provided my doctor with some material I printed off the internet site. There are a number of clinical trials being carried out around the world for a number of illnesses. If you want more info., go to http://www.lowdosenaltrexone.org. Also if you google the name, you will find much info. The web site is very large, and my advise is to read it ALL, so that you can talk intelligently to your doctor. The small reference to the thyroid is found here:When you get to the home page, scroll down, and you’ll see a number of blue boxes. Click on “What is LDN.” When you get to the page, scroll down to the phrase“What Dose and frequency should my physician prescribe.” Under notable exceptions you will find the reference. Please read everything. This can’t be gotten at your local pharmacy. It must come from a compounding pharmacy. Do NOT get the slow release form, and also see the note about the filler to use…The site has the best compounding pharmacies listed. The only other thing we will have left, and who?knows who it might help, will be the awful Synthroid along with a synthetic T3, Cytomel. Let’s hope that this is just a nightmare that will not materialize. But, friends, make sure you google the names of your Senators and Congressmen/women. Let them know what is happening at the the FDA and their buddies in Big Pharma. There are 2 million of us in the USA, we must take the time to make our voices heard. May God bless us every one.…

]]> By: Diane http://www.stopthethyroidmadness.com/2009/09/01/american-association-of-health-freedom-has-reported-on-this-situation/comment-page-1/#comment-42669 Diane Wed, 02 Sep 2009 19:31:39 +0000 http://www.stopthethyroidmadness.com/?p=3427#comment-42669 When I hear the FDA is involved I am wondering who (large Pharma) is buying off the manufacturers and FDA so that we have to compound (more expensive) or go without. I will be in the looney farm for the exhausted! I can't take synthroid and the synthethic T-3 formulation....it only gives me heart palps .... Who benefits from stopping Armour production?........ Yes it is a drug that has helped millions live a more normal life for a hundred years without side effects! Let's break what works???? I think there needs to be an investigation of the stortage of WHO tapped the FDA on the shoulder..................and started all this!!! That's what we should be writing our congressmen about. When I hear the FDA is involved I am wondering who (large Pharma) is buying off the manufacturers and FDA so that we have to compound (more expensive) or go without.

I will be in the looney farm for the exhausted! I can’t take synthroid and the synthethic T-3 formulation.…it only gives me heart palps .…

Who benefits from stopping Armour production?.….… Yes it is a drug that has helped millions live a more normal life for a hundred years without side effects! Let’s break what works???? I think there needs to be an investigation of the stortage of WHO tapped the FDA on the shoulder.….….….…..and started all this!!! That’s what we should be writing our congressmen about.

]]> By: Colleen Coble http://www.stopthethyroidmadness.com/2009/09/01/american-association-of-health-freedom-has-reported-on-this-situation/comment-page-1/#comment-42662 Colleen Coble Wed, 02 Sep 2009 15:37:49 +0000 http://www.stopthethyroidmadness.com/?p=3427#comment-42662 I called my compounding pharmacy today and they are having no trouble getting desiccated thyroid to make into their formulations. They actually had a little bit of Naturethroid on hand that they're going to send me but when it's gone, I'll try their compounded version. They haven't heard anything from the FDA. They ship all over the country. It's H & H Compounding in Grenada MS if anyone is interested and having trouble getting it. They usually get my stuff out to me within 24 hours. I wrote my congressman this morning too, just to let him know that we must keep the supplies available! I called my compounding pharmacy today and they are having no trouble getting desiccated thyroid to make into their formulations. They actually had a little bit of Naturethroid on hand that they’re going to send me but when it’s gone, I’ll try their compounded version. They haven’t heard anything from the FDA. They ship all over the country. It’s H & H Compounding in Grenada MS if anyone is interested and having trouble getting it. They usually get my stuff out to me within 24 hours.

I wrote my congressman this morning too, just to let him know that we must keep the supplies available!

]]> By: Laurie http://www.stopthethyroidmadness.com/2009/09/01/american-association-of-health-freedom-has-reported-on-this-situation/comment-page-1/#comment-42648 Laurie Wed, 02 Sep 2009 08:18:59 +0000 http://www.stopthethyroidmadness.com/?p=3427#comment-42648 I've been productive today. I've written to my senators, congressmen and have drafted several letters to the local and national media outlets. I've also had a great conversation with my new dermatologist who was checking out my dry skin/skin rash/hair loss complaints. I made reference to my hypo; he started flipping back through my chart and asked me if I had ever tried Armour. I almost fell off the table. Only two people in my city use that word. Me & my nurse practitioner And most of the time, it's whispered. Like it's a real bad thing, you know! Our conversation continued and I was fortunate to let him know some info he was not even aware of (does the word REFORMULATION ring a bell???. He was very interested in hearing more about Nature-Throid too and asked me to please bring in my last 10 thyroid lab results when I returned in late October for a follow-up. It's been a good day. I think a cookie is in order. I’ve been productive today. I’ve written to my senators, congressmen and have drafted several letters to the local and national media outlets. I’ve also had a great conversation with my new dermatologist who was checking out my dry skin/skin rash/hair loss complaints. I made reference to my hypo; he started flipping back through my chart and asked me if I had ever tried Armour. I almost fell off the table. Only two people in my city use that word. Me & my nurse practitioner And most of the time, it’s whispered. Like it’s a real bad thing, you know! Our conversation continued and I was fortunate to let him know some info he was not even aware of (does the word REFORMULATION ring a bell???. He was very interested in hearing more about Nature-Throid too and asked me to please bring in my last 10 thyroid lab results when I returned in late October for a follow-up. It’s been a good day. I think a cookie is in order.

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