Comments on: Oprah leaves her show behind in 2011, and also leaves millions of thyroid patients in the dust

By: London lady

London lady — Tue, 15 Dec 2009 19:42:24 +0000

Hi there, listen folks, Oprah is just one human being. It is not her responsibility to fight anyones health corner. She is a chat show host not a health guru. The world gives her two much power. As a collective it is up to us to make a real difference and raise these issues anyway we can.

I have been asked today to make a documentary on the thyroid scandel. I live in London and would love to speak with individuals who could support this documentary in anyway.

I have also suffered with this dis-ease for 10 years and am finally on cynomel. Please email me on carterchat@hotmail.com.

By: Donna

Donna — Mon, 30 Nov 2009 18:45:27 +0000

Janie: Have you contacted Oprah’s people about reporting on your finding on her show? Get her the book! We will all corroborate your findings- BTW- Has anyone felt very HOT- like a burning sensation across the back of the neck and arms? I have had this for years and have just realized (now that it was gone when I was on Naturethroid and is back now that I have begun NDT) that it is as a result of a need to correct dosing- more corrections are needed, I guess- Painful. Would love to hear comments

From Janie: Yes, and a handful of people have used the publishing company to send her the book. She has ignored it all. As far as the issue you mention, also use this page: http://www.stopthethyroidmadness.com/talk-to-others )

By: micheleabelle

micheleabelle — Fri, 27 Nov 2009 03:14:43 +0000

i don’t understand why we should care? she didn’t exactly let us down, as she was never on our side to begin with. she doesn’t “get” it, never did and probably never will. she parades so-called medical “experts” around in front of the unsuspecting masses who will go on feeling ill, thinking all that is needed is to NOT “swallow their words” in order to feel better. i say good riddance. that woman has irritated me for over 20 years.

By: Lee Roy

Lee Roy — Mon, 23 Nov 2009 23:28:23 +0000

So sad about Oprah (don’t have pay TV)
mainly trying to contact you janie about some thyroid issues. is this the right place? please email me Thanks

(From Janie: Hi there. If it’s non-personal-treatment questions, there’s a Contact Me form on any page on STTM. Or, if you need feedback on your personal thyroid issues, here’s where you go for feedback: http://www.stopthethyroidmadness.com/talk-to-others )

By: Val M.

Val M. — Mon, 23 Nov 2009 22:55:04 +0000

Thanks Janie, Someone on oprah.com keeps posting that Oprah does not read the comments… If thats true perhaps one of her workers is “filtering” the posts Oprah actually reads. I say never give up. Eventually something should happen ( I sure hope so)…. and maybe Oprah falls into a boat I once occupied.. believing without question– whatever the doctor said, being led into a premature RAI procedure and given virtually NO information as to the side effects Rai can give you.. In my case the radiation damaged my Parathyroid gland and now Im contending with that problem too.
When I had tripped out symptoms I called the endo’s office who told me my symptoms had NOTHING to do with my thyroid. I then got onto the net and discovered they were in error. I do not see him anymore. I have a new doctor whose eyes are open as well as her mind and am improving. Lets just hope –in regard to Oprah. I personally feel she would not maliciously ignore us or dismiss us if she was on to what is going on. But, indeed, it is a sad state of affairs that the emails from us thyroid sufferers who share in her disease have not yet been either addressed nor brought to her attention so she can investigate for herself.

By: Val M.

Val M. — Sun, 22 Nov 2009 17:57:51 +0000

To me it looks like Oprah is a victim of this thyroid scandal– she has helped so many in other areas. Her doctor/endocrinologist is probably also Ignorant of what we now know or one of them Rigid ones who worships the false god of t4 only for everyone despite continuing symptoms. Assuming this is true… how do we educate and help Oprah? Before I found this site, I was unaware of the t3 thing, having an endo that never even told me about natural thyroid and having endless symptoms while on synthroid. Is it possible Oprah falls into this boat some of us were in? Could be. So lets try to help her.. If she discovers what we know to be true and finds relief.. Im sure she would start spreading the news. Time to go to Oprah.com and post yer stories in a calm lucid tone. People are more apt to listen then,. since shouting never worked for me.

(From Janie: Great post, Val. I want to add that patients have been sending her calm lucid emails for years. So far, no response whatsoever.)

By: Rose

Rose — Sat, 21 Nov 2009 19:48:18 +0000

Can you leave a link to the Takshoe show? Thanks much, Janie. Rose

From Janie: link in blog post right below this. lol.

By: Rachel

Rachel — Fri, 20 Nov 2009 20:26:32 +0000

Right on, Oprah has definetly let us down!

I would like to add to the “..55-year medical scandal of thyroid treatment..” that it has also left many many people UNDIAGNOSED and still needlessly suffering.

I like Dr. David Derry’s comment regarding the use of the TSH test for diagnosis and treatment (instead of clinical presentation), “The consequences of this have been horrendous.”