Comments on: The dark ages in the United Kingdom–don’t think it might not happen where YOU live!

By: Gillian Broughton

Gillian Broughton — Mon, 24 Jan 2011 11:24:22 +0000

I live in the UK and they do live in the dark ages regarding a lot of treatments and testing such as Pituatry testing , Thyroid tesing is not worth the paper its wriitten on , CFS/ME which effects the hormones as well as various multi- systems are treated with graded exercise therapy and cognitive beavioural therapy ( what an insult and negegence to 250,000 + people here in the UK suffering from CFS/ME ) .
I am forced to self medicate on Cytomel T3 which as been a life saver for me , my GP refuses to prescribe this life saving drug , and i am forced to have to purchase this myself . The NHS for now maybe a free service , but i can tell you its not that usefull if you have an Endocrine,CFS/ME , Neuroimmune disorder as very little doctors are trained in these areas . Thousands are left on the scrap heap. !!!

By: Eva

Eva — Thu, 05 Aug 2010 06:29:34 +0000

Tonia Collins, stop spreading political propaganda. I’m living in a country with state run healthcare and we don’t see the stupidity seen in the UK, and I don’t think we will either since we have scientists here working with American scientists on this precise subject. I have one of them as my specialist. The UK is something completely different. They are rather special in Europe because they always go about things in strange ways. It’s an extremely conservative country (I know, I’ve lived there) and it plays a huge role in why this is happening. BTW, it’s not state run healthcare which decides what medications are allowed an not. It’s the equivalent to FDA. Yes! The US has it! We all have! It is basically a sound idea, to protect people from harmful and untested drugs, but get the wrong people there and this will happen.

By: Amypea

Amypea — Thu, 05 Aug 2010 02:50:56 +0000

Doctors become scared by patients who have bad reactions to regular cytomel. I ended up in the ER twice from regular cytomel. As soon as my doctor figured out that the problem was a sensitivity to it, he prescribed sustained released T3 and the cardiac reactions stopped. He also prescribed a beta blocker. I think doctors get scared away from bad reactions when these reactions are entirely treatable by modifying the compound or prescribing an additional medication.

By: Amypea

Amypea — Thu, 05 Aug 2010 02:48:52 +0000

T3 saved my life. I take sustained released T3 in a quantity of 560mcg per day to treat resistance to thyroid hormone. I cannot imagine not having access to this life saving medication.

By: Carlal

Carlal — Thu, 05 Aug 2010 02:15:39 +0000

I spent years on T-4 alone and was miserable to say the least. I talked a holistic dr into it and she gave me the minimal Armour (t3/t4 combined) did well for a while but learned I needed almost twice that amount. Now, no mood swings, no pain, no swelling, i sleep better…what’s with these drs wanting to get rid of it?

By: Tonia Collins

Tonia Collins — Thu, 05 Aug 2010 01:57:09 +0000

Up until recently there was one key difference in the the U.S. and the U.K. It’s called state run healthcare and yes, stupidity DOES abound…because we now have it- We will very likely encounter this very problem because in state run healthcare the “accepted” treatment often becomes the ONLY treatment..and seeking a doctor outside of the universal healthcare system is so expensive most people simply can’t do it.
I will certainly fill out the questionnaire and I hope this turns out to be enough, but I think it is very smart to be prepared for the day when we have to seek alternatives- where will we obtain this “forbidden” med? How will we obtain it? Will we do what we need to in order to support doctors who go against the state?

By: Tonia Collins

Tonia Collins — Thu, 05 Aug 2010 01:43:15 +0000

This is one of the biggest problems with state run healthcare (Hello Americans….we NOW have it)- the “accepted” treatment becomes the ONLY one allowed and/or covered- you can expect the situation to get worse sadly.

By: Theresa

Theresa — Wed, 04 Aug 2010 23:18:50 +0000

I’m not holding my breath. Just when I think someone in the medical establishment might be getting a clue, they do or say something so illogical or ignorant, that I just want to give up! I agree with Janie, stupidity does abound!

By: Johann Mitchell

Johann Mitchell — Wed, 04 Aug 2010 19:45:45 +0000

Thank you so much for this information! I’ve been feeling the need for this for a while without quite knowing what it was that I needed!

I’m so tired of hearing about all the proven information about T4 only drugs, and nobody who has ever talked about this “proven information” has ever been able to tell me anything about this proof, or what was actually proven.

I really hope that, with this registry, we can get together a large enough body of proof for the help that NDT provides to finally get the establishment to listen!