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	<title>Stop The Thyroid Madness &#187; desiccated thyroid</title>
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		<title>Is Cellulose the real problem in desiccated thyroid meds for many?</title>
		<link>http://www.stopthethyroidmadness.com/2009/11/11/is-cellulose-the-real-problem/</link>
		<comments>http://www.stopthethyroidmadness.com/2009/11/11/is-cellulose-the-real-problem/#comments</comments>
		<pubDate>Wed, 11 Nov 2009 23:27:42 +0000</pubDate>
		<dc:creator>Janie</dc:creator>
				<category><![CDATA[desiccated thyroid]]></category>
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		<guid isPermaLink="false">http://www.stopthethyroidmadness.com/?p=3928</guid>
		<description><![CDATA[When Forest Labs reformulated Armour earlier this year, they stated they increased the filler Microcrystalline Cellulose, and decreased the Sucrose (sugar). The tablets became impossible to do sublingually, and you have to wonder why they would change a quality that patients praised so heavily.  Positive opinion among patients for Forest Labs slipped several notches.
But the [...]]]></description>
			<content:encoded><![CDATA[<p><img class="alignleft size-full wp-image-3933" title="cellulose" src="http://www.stopthethyroidmadness.com/wp/../images/cellulose.jpg" alt="cellulose" width="155" height="146" />When Forest Labs reformulated Armour earlier this year, they stated they <em><strong>increased the filler Microcrystalline Cellulose, and decreased the Sucrose (sugar).</strong></em> The tablets became impossible to do <a href="/sublingual/">sublingually</a>, and you have to wonder why they would change a quality that patients praised so heavily.  Positive opinion among patients for Forest Labs slipped several notches.</p>
<p>But the real cuckoo&#8217;s nest for many thyroid patients, who knew firsthand the life-changing benefits of <a href="/natural-thyroid-101/">natural desiccated thyroid</a>, was a maddening return of serious hypo symptoms on the new Armour and subsequent new stress on their adrenals, sooner&#8230;or later! You can read several horror stories in the comments of the post below, or go <a href="http://www.stopthethyroidmadness.com/2009/11/06/how-are-you-doing/">here</a>.</p>
<p>So patients turned to other alternatives: Naturethroid and Westhroid by RLC Labs&#8230;then when the desiccated thyroid shortages hit in the Fall of 2009, Erfa&#8217;s Thyroid, Compounded desiccated thyroid, and others. And there have been problems for some patients on most everything they switched to.  The LEAST problematic has been Erfa&#8217;s Thyroid, and the most problematic was Compounded.</p>
<p><strong><em>So what has been the common thread in </em><em>the most problematic desiccated thyroid products?</em> CELLULOSE, a plant fiber, and more commonly known by the trade name Avicel. And what does fiber do in your stomach?  Inhibits absorption.</strong><strong> Armour&#8217;s cellulose was raised, and bamm&#8230;problems.  Compounded desiccated thyroid, with cellulose as a filler, has been problematic for many patients with a return of hypo symptoms,  especially if  it was <a href="http://en.wikipedia.org/wiki/Methyl_cellulose">Methyl Cellulose</a>, a larger particle size product. But some have even had problems with compounded containing Microcrystalline Cellulose, the smaller cellular product. </strong><strong>And a certain body of patients even had problems with Naturethroid before it became scarce. And Naturethroid uses cellulose as a filler. </strong></p>
<p><strong>Is this problem true with T3-only products? </strong>Yup. Patients have noted that generic T3 is far less effective than the brand name Cytomel (both Liothyronine Sodium)  And what filler it up to 70% in the generic T3?  CELLULOSE.  See the percentages <a href="http://www.paddocklabs.com/forms/msds/Liothyronine%20MSDS.pdf">here</a> for Paddock&#8217;s generic T3. <strong><br />
</strong></p>
<p><strong>Why have less problems been reported with Erfa&#8217;s Thyroid?</strong> Perhaps because <em>it has no cellulose as a filler! </em>See <a href="http://www.stopthethyroidmadness.com/armour-vs-other-brands/">this list</a> of ingredients, which STTM has been working on lovingly for a few years. <em><br />
</em></p>
<p><strong>What does literature say about the use of Cellulose as a filler in medications?</strong> Plenty. Cellulose is from wood. Wood is fiber. And fiber in your gut affects absorption. From <a href="http://www.umm.edu/altmed/articles/fiber-000303.htm" target="_blank">http://www.umm.edu/altmed/articles/fiber-000303.htm</a> we get this:</p>
<blockquote><p>* Dietary fiber has been reported to lower the blood levels and effectiveness of tricyclic antidepressant medications&#8230;Reduced dietary fiber intake increased the blood levels and improved symptoms in these patients.</p>
<p>* While fiber supplements may help to regulate blood sugar levels, they may also interfere with the absorption of anti-diabetic medications&#8230;.Therefore, fiber supplements should not be taken at the same time as these medications.</p>
<p>* Taking soluble fiber such as psyllium with carbamazepine (Tegretol), a medication used to treat seizure disorders, may decrease the absorption and effectiveness of carbamazepine.</p>
<p>* Fiber in the form of pectin (from fruit) and oat bran reportedly reduces the body&#8217;s ability to absorb cholesterol-lowering medications known as &#8220;statins,&#8221;&#8230; and could lead to decreased effectiveness of these medications.</p>
<p>* Fiber supplements may reduce the body&#8217;s ability to absorb digoxin (Lanoxin), a medication used to regulate heart function.</p>
<p>* Clinical reports suggest that psyllium or other soluble fibers may lower lithium levels in the blood, reducing the effectiveness of this medication.</p>
<p>* In one clinical study, the fiber supplement guar gum reduced blood levels of penicillin.</p></blockquote>
<p><strong>Cellulose can clearly be a problem, especially when it&#8217;s ratio is too high as compared to the desiccated thyroid. So what can you do?</strong></p>
<p>If you are using a compounded medication, strongly request powdered <a href="http://www.nextdaysite.net/radiant7/What_Acidophilus_Does.pdf">acidophiles</a> as your filler.  One gal states her compounding pharmacy uses powdered Ginger (but beware of too much Ginger if you have Mitral Valve Prolapse. It can cause palps if you take too much&#8211;my experience).  See what other fillers your compounder can offer.</p>
<p>Another possibility is <strong><em>Cellulase</em>,</strong> an enzyme which helps the splitting and breakdown of cellulose, and which was proposed to me by Naturopathic student <a href="http://www.naturalthyroidchoices.com">Stephanie Buist</a>. Google &#8220;cellulase&#8221; and find supplements that contain it.  If it looks promising to you, I&#8217;ll be curious to read your experience with swallowing a cellulase supplement, then swallowing your problematic desiccated thyroid.</p>
<p>And leaning towards Erfa&#8217;s Thyroid can be a plus.</p>
<p><strong>Have other ideas or comments about Cellulose in our desiccated thyroid? Use the COMMENT function below and let&#8217;s talk!</strong></p>
<p><strong>**************************************<br />
</strong></p>
<p><em>*Want to be infor­med of these ‘fringe web­site’ blog posts?   <img src="../wp-includes/images/smilies/icon_wink.gif" alt=";-)" /> Curious what’s on radi­cal Janie’s mind? Just use the Noti­fi­ca­tions on the left below the links.<br />
</em></p>
<p><em> </em><em>* The extre­mely hip and sophis­ti­ca­ted <a href="../../2009/09/t-shirt/">STTM t-shirts</a> are half price! I love sales! Spread the word!<br />
</em></p>
<p><em> </em><em>* Pre­fer STTM in book form with more detail? You can read about it <a href="../../book/">here</a>.</em></p>
<p><strong><em>*Need options for thy­roid treat­ment during the current shor­ta­ges due to demand being grea­ter than supply? Go <a href="../../options-for-thyroid-treatment/">here</a>.</em></strong></p>
]]></content:encoded>
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		<slash:comments>23</slash:comments>
		</item>
		<item>
		<title>How are YOU doing with the current desiccated thyroid shortages?</title>
		<link>http://www.stopthethyroidmadness.com/2009/11/06/how-are-you-doing/</link>
		<comments>http://www.stopthethyroidmadness.com/2009/11/06/how-are-you-doing/#comments</comments>
		<pubDate>Fri, 06 Nov 2009 21:02:00 +0000</pubDate>
		<dc:creator>Janie</dc:creator>
				<category><![CDATA[Armour]]></category>
		<category><![CDATA[desiccated thyroid]]></category>
		<category><![CDATA[fda]]></category>
		<category><![CDATA[shortages of desiccated thyroid]]></category>
		<category><![CDATA[1938]]></category>
		<category><![CDATA[2009]]></category>
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		<category><![CDATA[canada]]></category>
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		<category><![CDATA[coalition for desiccated thyroid]]></category>
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		<category><![CDATA[compounded]]></category>
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		<category><![CDATA[forest labs]]></category>
		<category><![CDATA[grandfatthered]]></category>
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		<category><![CDATA[lyn]]></category>
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		<category><![CDATA[microcrystalline cellulose]]></category>
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		<guid isPermaLink="false">http://www.stopthethyroidmadness.com/?p=3904</guid>
		<description><![CDATA[
(This post garnered a lot of attention, up to FIFTY comments just a few hours after it went up. People are very interested in sharing their experiences in coping with the shortages! See below and add your own.)
This year will go down in history as shockingly miserable for enlightened thyroid patients on natural desiccated thyroid.
First [...]]]></description>
			<content:encoded><![CDATA[<p><img class="alignleft size-full wp-image-3910" title="Pills Spilled Shortages" src="http://www.stopthethyroidmadness.com/wp/../images/Pills-Spilled-Shortages.jpg" alt="Pills Spilled Shortages" width="145" height="133" /></p>
<p><em>(This post garnered a lot of attention, up to FIFTY comments just a few hours after it went up. People are very interested in sharing their experiences in coping with the shortages! See below and add your own.)</em></p>
<p>This year will go down in history as shockingly miserable for enlightened thyroid patients on <a href="/natural-thyroid-101/">natural desiccated thyroid</a>.</p>
<p><strong><em>First</em> came a reformulation in the most popular brand&#8211;Armour by Forest Labs.</strong> Patients worldwide in groups and forums reported a serious return of their hypothyroid symptoms on this product. A huge disappointment.</p>
<p><strong><em>Second</em> came the production shutdown of the two generic makers of desiccated thyroid: Time Caps Labs and Major Pharmaceuticals.</strong> It&#8217;s the first step in the FDA&#8217;s <a href="http://www.fda.gov/ICECI/ComplianceManuals/CompliancePolicyGuidanceManual/ucm074382.htm">compliance plan</a> to corral all grandfathered-in drugs (drugs already in existence when the the FDA was created in 1938) and make them each prove the efficacy and safety of their medication via very expensive clinical trials.  <em>i.e. over 110 years of safe and effective use of desiccated thyroid is not enough for the FDA?? </em>We are still waiting to see the outcome of that plan with RLC  and Forest Labs.&#8211;the two who were actually in existence before 1938. <em><br />
</em></p>
<p><strong><em>Third</em> came demand being greater than supply and shortages. </strong> Because of informative patient websites like Stop the Thyroid Madness,  Sheila&#8217;s TPA-UK, Lyn&#8217;s ThyroidUK, Stephanie&#8217;s Natural Thyroid Choices, some areas of about.com (and other good websites I don&#8217;t mean to miss here), plus many fine <a href="/talk-to-others/">patient forums and groups</a>,  patients found out why they had <a href="/long-and-pathetic/">continuing symptoms</a> on <a href="/t4-only-meds-dont-work/">T4</a> thyroxine, and demand for natural desiccated thyroid grew exponentially.</p>
<p>STTM then created a <a href="/options-for-thyroid-treatment/">list of options</a> for all thyroid patients until the shortages resolved themselves, and also created <a href="http://health.groups.yahoo.com/group/CoalitionForDesiccatedThyroid/?yguid=402420630">CDT (Coalition for Desiccated Thyroid) </a>where patients could discuss alternatives in a supportive and factual atmosphere.</p>
<p>And we&#8217;ve seen some interesting experiences and comments:</p>
<p><strong>The new Armour: </strong>One grain tabs started to appear on some pharmacy shelves the past month.  Other pharmacies have still been waiting.  Many patients appear to have switched to other alternatives, though. One gal still on it feels she is finding success by adding T3 to the amount of new Armour she is on.  Time will tell if patients can ever find success with the newly formulated Armour, and most feel it&#8217;s a huge loss.</p>
<p><strong>Naturethroid and Westhroid: </strong>Patients reporting on their switch to either of RLC Lab&#8217;s two identical products report doing well, having to raise it slightly or lower it slightly, or just not liking them at all. Others have had a hard time finding it on their pharmacy shelves, but have been seeing some appear in the last few weeks.</p>
<p><strong>Erfa&#8217;s Thyroid from Canada: </strong>When it became clear that the FDA was allowing this excellent product to be shipped to patients, many switched and had their prescriptions faxed to a Canadian pharmacy. Prices at many of those pharmacy websites were doubled after prescriptions started to come in from the US. Most patient who stuck with it seem to love it, reporting you can do it <a href="/sublingual/">sublingually</a>, as well. A few haven&#8217;t been impressed, but were finding their former success by raising it.</p>
<p><strong>Compounded desiccated thyroid: </strong>In spite of being a more expensive option, some patients found success with this. Others learned they preferred the filler to be Acidophiles.  If not the latter, Microcrystalline Cellulose was preferred over Methyl Cellulose&#8211;the latter which appeared to lessen the effectiveness of the compounded thyroid.</p>
<p><strong>Synthetic T4 and Synthetic T3:</strong> some patients switched back to the synthetic combination, but many report that it hasn&#8217;t been as effective as desiccated thyroid was.</p>
<p><strong>Other options: </strong>Patients moved to OTC products like Nutri-Meds, etc, which can be much weaker. Others sought desiccated thyroid from other countries and have found success.</p>
<p><strong>So I&#8217;d like to hear from all of you.   Did you go back to synthetic T4?  What desiccated thyroid did you switch to? What worked and why? What didn&#8217;t work for you and why?  What product do you hope to switch to once you run out of your current meds?</strong></p>
<p><strong>**************************************<br />
</strong></p>
<p><em>*Want to be infor­med of these ‘fringe web­site’ blog posts?   <img src='http://www.stopthethyroidmadness.com/wp/wp-includes/images/smilies/icon_wink.gif' alt=';-)' class='wp-smiley' />   Curious what’s on radi­cal Janie’s mind? Just use the Noti­fi­ca­tions on the left below the links.<br />
</em></p>
<p><em> </em><em>* The extre­mely hip and sophis­ti­ca­ted <a href="../../2009/09/t-shirt/">STTM t-shirts</a> are half price! I love sales! Spread the word!<br />
</em></p>
<p><em> </em><em>* Pre­fer STTM in book form with more detail? You can read about it <a href="../../book/">here</a>.</em></p>
<p><strong><em>*Need options for thy­roid treat­ment during the current shor­ta­ges due to demand being grea­ter than supply? Go <a href="../../options-for-thyroid-treatment/">here</a>.</em></strong></p>
]]></content:encoded>
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		<slash:comments>89</slash:comments>
		</item>
		<item>
		<title>Is there a genetic reason many of us do lousy on T4?</title>
		<link>http://www.stopthethyroidmadness.com/2009/10/28/is-there-a-genetic-reason-many-of-us-do-lousy-on-t4/</link>
		<comments>http://www.stopthethyroidmadness.com/2009/10/28/is-there-a-genetic-reason-many-of-us-do-lousy-on-t4/#comments</comments>
		<pubDate>Wed, 28 Oct 2009 16:10:29 +0000</pubDate>
		<dc:creator>Janie</dc:creator>
				<category><![CDATA[Research studies]]></category>
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		<guid isPermaLink="false">http://www.stopthethyroidmadness.com/?p=3825</guid>
		<description><![CDATA[Last May, a very interesting article appeared in the May 2009 issue of the Journal of Clinical Endocrinology and Metabolism, titled For Some, L-Thyroxine Replacement Might Not Be Enough: A Genetic Rationale and presented by Endocrinologists in Bristol in the UK. It&#8217;s accompanied with an editorial by Endocrinologists Brian W. Kim and Antonio C. Bianco.
This [...]]]></description>
			<content:encoded><![CDATA[<p><img class="alignleft size-full wp-image-3835" title="deiodinase2" src="http://www.stopthethyroidmadness.com/wp/../images/deiodinase2.jpg" alt="deiodinase2" width="135" height="101" />Last May, a very interesting article appeared in the May 2009 issue of the Journal of Clinical Endocrinology and Metabolism, titled <strong>For Some, L-Thyroxine Replacement Might Not Be Enough: A Genetic Rationale </strong>and presented by Endocrinologists in Bristol in the UK. It&#8217;s accompanied with an editorial by Endocrinologists Brian W. Kim and Antonio C. Bianco.</p>
<p>This is the same article referred to by Endocrinologist Dr. Gary Pepper on the last Thyroid Patient Community Call on <a href="http://www.talkshoe.com/talkshoe/web/talkCast.jsp?masterId=62603&amp;cmd=tc">Talkshoe</a>.</p>
<p><strong>Basically, the article states that a genetic variation in the enzyme that converts T4 to T3, <em>deiodinase D2</em> (also called Type 2 Deiodinase, or 5&#8242;-Deiodinase), may be responsible for why so many thyroid patients don&#8217;t do well on Synthroid, Levoxyl, levothyroxine, etc, and in turn, do so much better on <a href="/natural-thyroid-101/">natural desiccated thyroid</a> like Naturethroid, Erfa&#8217;s Thyroid, or the combined synthetic T4 and synthetic T3 (Cytomel). </strong></p>
<p>In other words, where some may have a strongly functioning deiodinase D2 enzyme which converts T4 to the active T3 well,  others may have a modified deiodinase D2 enzyme, causing less optimal conversion.</p>
<p>In the Editorial, the two Endos  Kim and  Bianco explain the reality of &#8220;polymorphism&#8221;&#8211;a condition in nature in which changes or variations occur, and in one patient from another,  a change in the DNA.  As related to conversion of T4 to T3,  some thyroid patients have a less effective deiodinase D2 enzyme in the conversion of T4 to T3.  Specifically, there is a  common variant of the gene, threonine (Thr)<sup> </sup>92 alanine (Ala), and it results in  decreased<sup> </sup>D2 enzymatic activity.</p>
<p>The study proposes that this alteration from polymorphism  occurs in 16% of those studied, and concludes that the majority don&#8217;t have this problem, and thus, &#8220;most do fine on T4-only medications&#8221;. But 16% do have this problem and need the combined therapy of T4 with T3.</p>
<p>Bristol was also mentioning this reality in 2004 <a href="http://www.endocrinology.org/education/resource/EndocrineNurseCourse/ent04/ent04_day3.htm">here</a>, even if they thought it was as low as 5%.</p>
<p><strong>As Dr. Pepper hinted, this study could do wonders to open the eyes of Endocrinologists about the use of desiccated thyroid, or at the very least, about combined hypothyroid treatment with synthetic T3 added to synthetic T4.  And I&#8217;m glad for that when so many patients have found Endocrinologists to be narrow-mindedly stuck on Synthroid or other T4-only thyroxine products.</strong></p>
<p>Of course, informed thyroid patients know this is only a baby step in the right direction, even if a good one! So we&#8217;ll rejoice for this study, and watch for more progress from the medical community and Endocrinology in general.  For example, saying that &#8220;most do fine on T4&#8243; simply because they have may a non-variation might be proven wrong as physicians take the time to really look at those &#8220;fine&#8221; patients, especially as they age and <a href="/long-and-pathetic/">symptoms of an inferior treatment</a> do pop up. And though the combination of synthetic T3 with synthetic T4 definitely gives better results, thyroid patients who then moved to desiccated thyroid with it&#8217;s T4, T3, T2, T1 and calcitonin report even better results and clinical presentation!  We&#8217;ve also learned that the TSH lab test absolutely sucks when it comes to diagnosis and treatment.  Read <a href="/tsh-why-its-useless/">TSH Why It&#8217;s Useless</a>, or see even more detail in Chapter Four of the <a href="/bookj/">STTM book</a>, titled Thyroid Stimulating Hooey.</p>
<p>And finally: do thyroid patients really believe that problems with T4-only treatment is  simply due to a genetic abnormality or variation? Maybe. But isn&#8217;t it funny that a healthy human thyroid does NOT depend solely on conversion, but also gives direct T3. hmmmmmm</p>
<p>P.S.  Patients also know that the use of the supplement Selenium helps with conversion, by the way, but has never stopped our first-hand knowledge that desiccated thyroid rocks!</p>
<p><em>*Want to be infor­med of these ‘fringe web­site’ blog posts?  <img src="../../wp-includes/images/smilies/icon_lol.gif" alt=":lol:" /> Curious what’s on radi­cal Janie’s mind? Just use the Noti­fi­ca­tions on the left below the links.<br />
</em></p>
<p><em> </em><em>* The extre­mely hip and sophis­ti­ca­ted <a href="../../2009/09/t-shirt/">STTM t-shirts</a> are half price! I love sales!<br />
</em></p>
<p><em> </em><em>* Pre­fer STTM in book form with more detail? You can read about it <a href="../../book/">here</a>.</em></p>
<p><strong><em>*Need options for thy­roid treat­ment during the current shor­ta­ges due to demand being grea­ter than supply? Go <a href="../../options-for-thyroid-treatment/">here</a>.</em></strong></p>
]]></content:encoded>
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		<slash:comments>7</slash:comments>
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		<title>Thyroid patients report despising their Endocrinologists&#8212;but here&#8217;s one you might just love!</title>
		<link>http://www.stopthethyroidmadness.com/2009/10/19/endo-you-might-just-love/</link>
		<comments>http://www.stopthethyroidmadness.com/2009/10/19/endo-you-might-just-love/#comments</comments>
		<pubDate>Mon, 19 Oct 2009 20:49:25 +0000</pubDate>
		<dc:creator>Janie</dc:creator>
				<category><![CDATA[Doctors]]></category>
		<category><![CDATA[desiccated thyroid]]></category>
		<category><![CDATA[endocrinology]]></category>
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		<category><![CDATA[dr. gary pepper]]></category>
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		<category><![CDATA[endo]]></category>
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		<category><![CDATA[gary pepper md]]></category>
		<category><![CDATA[hypothyroid]]></category>
		<category><![CDATA[Janie]]></category>
		<category><![CDATA[levothyroxine]]></category>
		<category><![CDATA[metabolism]]></category>
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		<category><![CDATA[william osler]]></category>

		<guid isPermaLink="false">http://www.stopthethyroidmadness.com/?p=3781</guid>
		<description><![CDATA[
I once cracked open an egg to find it had TWO shells.  And that oddity is equivalent to finding an Endocrinologist who supports the use of natural desiccated thyroid.   
Voila!! ~~ you can listen and talk to an Endo who does just that on this Thursday evening&#8217;s popular THYROID PATIENT COMMUNITY CALL on TalkShoe. [...]]]></description>
			<content:encoded><![CDATA[<p><img class="alignleft size-full wp-image-3812" title="officedoor2" src="http://www.stopthethyroidmadness.com/wp/../images/officedoor21.jpg" alt="officedoor2" width="126" height="225" /></p>
<p><strong>I once cracked open an egg to find it had TWO shells.  And that oddity is equivalent to finding an Endocrinologist who supports the use of natural desiccated thyroid.  <em> </em></strong></p>
<p><em><span style="font-size: small;">Voila!!</span></em><strong><em><span style="font-size: small;"> ~~ </span></em></strong><em>you can listen and talk to an Endo who does just that on this Thursday evening&#8217;s popular <a href="http://www.talkshoe.com/talkshoe/web/talkCast.jsp?masterId=62603&amp;cmd=tc">THYROID PATIENT COMMUNITY CALL</a> on TalkShoe. </em></p>
<p>His name is <strong>Dr. Gary Pepper</strong>, Board Certified by the American Boards of Internal Medicine, and Endocrinology and Metabolism and editor-in-chief of  <a href="http://www.metabolism.com">metabolism.com</a>.  Besides serving many years in distinguished leadership positions, he was selected as one of the top 100 physicians in New York City by New York Magazine and is also a featured expert with CNBC and ivillage on topics of diabetes and endocrinology. He states:  <em>Almost daily I reread the words of Sir William Osler: “It’s often more important to know what sort of person this disease has than to know what disease the person has.”</em></p>
<p><strong>i.e. this is one of a rare but growing breed of doctors who supports what we as thyroid patients already know&#8211;that desiccated thyroid is a five-star hypothyroid treatment and T4-only is about as effective as a doughnut diet for most. And lo and behold,  Dr. Pepper is an Endocrinologist! <em>Of course, I can give no guarantees how he is as a doctor in his own office, but I do appreciate his understanding that T4-only treatment may not be the best way to treat hypo. </em><br />
</strong></p>
<p>Join us this Thursday evening, 6 pm Pacific, 7 pm Mountain, 8 pm Central and 9 pm Eastern by clicking on the first link above titled Thyroid Patient Community Call.  When on that page, you&#8217;ll also see the exact day and time left before the call. You&#8217;ll be able to listen to the call right on your computer, or you can dial in and listen on your phone. There is also an option to talk  one-on-one live with Dr. Pepper and Janie.</p>
<p><em>And remember: neither I or Dr. Pepper can offer personal medical advice or provide individual specific counseling. Those are between you and your <a href="/how-to-find-a-good-doc/">personal physician</a>.<br />
</em></p>
<p>***P.S.  <a href="http://www.pharmatimes.com/WorldNews/article.aspx?id=16742">PharmaTimes</a> this month reported that <span>this quarter&#8217;s sales of  Synthroid (levothyroxine) were up 3.7% to $134 million by Abbott Labs.</span><strong><span> </span></strong><span> Sad for most of those patients. </span><strong></strong><span>If you know of someone who has been put on a T4 med, send them here: <a href="/t4-only-meds-dont-work/">www.stopthethyroidmadness.com/t4-only-meds-dont-work</a> or to the audio page here: <a href="/audio-shorts/">www.stopthethyroidmadness.com/audio-shorts</a></span> (third one down).<a title="Synthroid" href="http://stopthethyroidmadness.com/mp3/synthroid.mp3"></a></p>
<p><em>*Want to be infor­med of these ‘fringe web­site’ blog posts?  <img src="../wp-includes/images/smilies/icon_lol.gif" alt=":lol:" /> Curious what’s on radi­cal Janie’s mind? Just use the Noti­fi­ca­tions on the left below the links.<br />
</em></p>
<p><em> </em><em>* The extre­mely hip and sophis­ti­ca­ted <a href="../../2009/09/t-shirt/">STTM t-shirts</a> are half price! I love sales!<br />
</em></p>
<p><em> </em><em>* Pre­fer STTM in book form with more detail? You can read about it <a href="../../book/">here</a>.</em></p>
<p><strong><em>*Need options for thy­roid treat­ment during the current shor­ta­ges due to demand being grea­ter than supply? Go <a href="../../options-for-thyroid-treatment/">here</a>.</em></strong></p>
]]></content:encoded>
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		<slash:comments>3</slash:comments>
<enclosure url="http://stopthethyroidmadness.com/mp3/synthroid.mp3" length="2581047" type="audio/mpeg" />
		</item>
		<item>
		<title>FDA is not requiring form when you order Erfa&#8217;s Thyroid</title>
		<link>http://www.stopthethyroidmadness.com/2009/09/29/fda-form-not-required-with-erfa/</link>
		<comments>http://www.stopthethyroidmadness.com/2009/09/29/fda-form-not-required-with-erfa/#comments</comments>
		<pubDate>Tue, 29 Sep 2009 20:22:27 +0000</pubDate>
		<dc:creator>Janie</dc:creator>
				<category><![CDATA[desiccated thyroid]]></category>
		<category><![CDATA[shortages of desiccated thyroid]]></category>
		<category><![CDATA[Armour]]></category>
		<category><![CDATA[australia]]></category>
		<category><![CDATA[australians]]></category>
		<category><![CDATA[canadian desiccated thyroid]]></category>
		<category><![CDATA[compounded]]></category>
		<category><![CDATA[erfa]]></category>
		<category><![CDATA[fda]]></category>
		<category><![CDATA[forest labs]]></category>
		<category><![CDATA[form 1572]]></category>
		<category><![CDATA[iodine]]></category>
		<category><![CDATA[levothyroxine]]></category>
		<category><![CDATA[levoxyl]]></category>
		<category><![CDATA[natural desiccated thyroid]]></category>
		<category><![CDATA[natural thyroid]]></category>
		<category><![CDATA[naturethroid]]></category>
		<category><![CDATA[prescription]]></category>
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		<category><![CDATA[sterphanie buist]]></category>
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		<category><![CDATA[westhroid]]></category>

		<guid isPermaLink="false">http://www.stopthethyroidmadness.com/?p=3643</guid>
		<description><![CDATA[Sometimes there is a silver lining with the storm cloud of backordered US desiccated thyroid.
Erfa, the makers of the Canadian version of natural desiccated thyroid, simply called &#8220;Thyroid&#8221;, has recently announced that the FDA is not requiring the extensive FDA Form 1572 from US citizens and their doctors when they fill their prescriptions from Erfa [...]]]></description>
			<content:encoded><![CDATA[<p><img class="alignleft size-full wp-image-3646" title="CloudSilverLining" src="http://www.stopthethyroidmadness.com/wp/../images/CloudSilverLining.JPG" alt="CloudSilverLining" width="150" height="100" />Sometimes there is a silver lining with the storm cloud of backordered US desiccated thyroid.</p>
<p><strong>Erfa, the makers of the Canadian version of <a href="/natural-thyroid-101/">natural desiccated thyroid,</a> simply called &#8220;Thyroid&#8221;, has recently announced that the FDA is not requiring the extensive FDA Form 1572 from US citizens and their doctors when they fill their prescriptions from Erfa directly. i.e. it&#8217;s now a lot easier to get your prescription filled directly from them.</strong></p>
<p><a href="http://www.erfa-sa.com/thyroid_usa.htm">http://www.erfa-sa.com/thyroid_usa.htm</a></p>
<p>And those who have started to use Erfa&#8217;s Thyroid report being quite pleased. A cherry on top is that Thyroid has that old sweet taste we used to all like with the old Armour, and it can be done <a href="/sublingual/">sublingually</a> as well! You can see the ingredients <a href="/armour-vs-other-brands/">here</a>.</p>
<p>Also, I am continuing to get emails from patients that both Armour and Naturethroid is starting to appear on pharmacy shelves, even if in small quantities.  I&#8217;m personally not too excited about Armour reappearing if Forest continues to make the reformulated version. Just too many patients reporting a return of hypo symptoms, even when they raise it, plus new symptoms of undertreatment and/or challenged adrenals thanks to the reformulated version. Sad. Oh how we will all miss the old Armour.</p>
<p>In the meantime, here are <a href="/options-for-thyroid-treatment/">options for thyroid treatment</a> we all have until we see a good return of desiccated thyroid, including Naturethroid and Westhroid. They are all far, far better than being on T4 alone like Synthroid, Levoxyl, levothyroxine, et al. You&#8217;ll also note compounded thyroid, which can be a good option, and you can read about on a <a href="http://www.stopthethyroidmadness.com/2009/09/19/compounded-natural-desiccated-thyroid/">recent blog post</a>.  Australians happily use compounded in their own country. Any option you and <a href="/how-to-find-a-good-doc/">your doctor</a> choose may mean a readjustment by your body, by the way.</p>
<p>Want to talk to other patients on how they are dealing with the shortages? Join the <a href="http://health.groups.yahoo.com/group/CoalitionForDesiccatedThyroid/">Coalition for Desiccated Thyroid</a>.  Or if you simply need patient feedback about your hypothyroidism, go to the<a href="/talk-to-others/"> Talk to Others</a> page.  Remember that no patient group is meant to be a substitute for your relationship with your doctor.</p>
<p>**The next Thyroid Patient Community Call will be held Thursday Oct. 8th on <a href="http://www.talkshoe.com/talkshoe/web/talkCast.jsp?masterId=62603&amp;cmd=tc">TalkShoe</a>, and our topic will be iodine and your thyroid with patient expert Stephanie Buist. Come join us and listen right on your computer, or you can also talk live to Stephanie or Janie with your questions.</p>
<p><em>*Want to be infor­med of these &#8216;fringe web­site&#8217; blog posts? Curious what’s on radical Janie’s mind? Just use the Noti­fi­ca­tions on the left below the links. <img src="../wp-includes/images/smilies/icon_wink.gif" alt=":wink:" /><br />
</em></p>
<p><em>* The extre­mely hip and sophis­ti­ca­ted <a href="../../2009/09/t-shirt/">STTM t-shirts</a> are half price! I love sales!</em></p>
<p><em>* Prefer STTM in book form with more detail? You can read about it <a href="/book/">here</a>.<br />
</em></p>
]]></content:encoded>
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		<slash:comments>19</slash:comments>
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		<item>
		<title>Yes, desiccated thyroid is making its way to pharmacy shelves!</title>
		<link>http://www.stopthethyroidmadness.com/2009/09/24/yes-desiccated-thyroid-is-making-its-way-to-pharmacy-shelves/</link>
		<comments>http://www.stopthethyroidmadness.com/2009/09/24/yes-desiccated-thyroid-is-making-its-way-to-pharmacy-shelves/#comments</comments>
		<pubDate>Thu, 24 Sep 2009 15:42:07 +0000</pubDate>
		<dc:creator>Janie</dc:creator>
				<category><![CDATA[Coalition for Natural Desiccated Thyroid]]></category>
		<category><![CDATA[desiccated thyroid]]></category>
		<category><![CDATA[shortages of desiccated thyroid]]></category>
		<category><![CDATA[Armour]]></category>
		<category><![CDATA[cdt]]></category>
		<category><![CDATA[coalition for desiccated thyroid]]></category>
		<category><![CDATA[cvs]]></category>
		<category><![CDATA[desiccated thyroid shortages]]></category>
		<category><![CDATA[elenor]]></category>
		<category><![CDATA[fda]]></category>
		<category><![CDATA[janie bowthorpe]]></category>
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		<category><![CDATA[wal mart]]></category>

		<guid isPermaLink="false">http://www.stopthethyroidmadness.com/?p=3612</guid>
		<description><![CDATA[
With all the panic among thyroid patients of the last several weeks, we are now seeing light at the end of the current tunnel of desiccated thyroid shortages. More reports are coming in by patients that it&#8217;s appearing on shelves at their local pharmacies, including both Armour and Naturethroid. Sure, it&#8217;s a trickle compared to [...]]]></description>
			<content:encoded><![CDATA[<p><img class="alignleft size-full wp-image-3635" title="shortage" src="http://www.stopthethyroidmadness.com/wp/../images/shortage3.jpg" alt="shortage" width="150" height="127" /></p>
<p>With all the panic among thyroid patients of the last several weeks, we are now seeing light at the end of the current tunnel of desiccated thyroid shortages. More reports are coming in by patients that it&#8217;s appearing on shelves at their local pharmacies, including both Armour and Naturethroid. Sure, it&#8217;s a trickle compared to the amount of US patients that need it. But it&#8217;s a sign of hope of more to come.</p>
<p>On the <a href="http://health.groups.yahoo.com/group/CoalitionForDesiccatedThyroid/">CDT (Coalition for Desiccated Thyroid) yahoo group</a>, where patients have been discussing the shortages and finding places to get their desiccated thyroid, patient Elenor gave just one more example:</p>
<p><em>&#8220;After losing &#8220;my&#8221; Wal-Mart&#8217;s last left-over bottle of Naturethroid to some other thyroid person (lucky him or her){wink}, I called around to pharms &#8212; and Sam&#8217;s Club Pharm two towns over had just gotten ONE bottle of 60mg Armour in yesterday. (I did also find a CVS that had a bottle and a half of the 90mg Armour &#8212; so there are some dribs-and-drabs left around&#8230; My doc wouldn&#8217;t write for me to get that too&#8230;) (YAY!) Emailed my doc&#8217;s nurse begging her to do it right away &#8212; which thankfully she did, so they dispensed it &#8220;to me&#8221; and I can pick it up today! Down to three days left in my possession, so &#8230; WHEW!&#8221;</em></p>
<p>Elenor concluded: <em>Still gonna see my doc 5th Oct and try to order 500 tablets from Canada. I do not EVER want to be scrambling like this again &#8212; for ANY reason&#8230;</em></p>
<p>And we all agree with you, Elenor!<em> </em></p>
<p><strong>Clearly, our current shortages were caused by two factors: demand being greater than supply thanks to websites like Stop the Thyroid Madness (STTM), forums, groups and others, as well as the remarkably poor timing by the FDA in causing the only remaining generic makers of desiccated thyroid to cease production.</strong></p>
<p>And in case you haven&#8217;t caught up with what&#8217;s going on, you can read a <a href="http://www.stopthethyroidmadness.com/desiccated-thyroid-unapproved-drug/">summary</a> of  the history about the FDA and regulations which will explain what we will have to face for desiccated thyroid in the future, which is our real challenge.</p>
<blockquote><p><strong>**JOIN US TONIGHT for our weekly <a href="http://www.talkshoe.com/talkshoe/web/talkCast.jsp?masterId=62603&amp;cmd=tc">THYROID PATIENT COMMUNITY CALL</a> hosted by Janie Bowthorpe. We&#8217;ll have an open topic night and perhaps a surprise guest (still waiting on confirmation on that). Let&#8217;s talk about the shortages, ways to continue treating during this time, and more. NOTE that I have moved up the times by one hour. Just click on the link and you&#8217;ll see a countdown of when it starts: <em>6 pm Pacific, 7 pm Mountain, 8 pm Central and 9 pm Eastern. </em></strong></p></blockquote>
<p><strong>**Need alter­na­ti­ves during this shor­tage time? Here are <a href="../../options-for-thyroid-treatment/">options</a> you can consider. </strong></p>
<p><em>*Want to be infor­med of these &#8220;fringe web­site&#8221; blog posts? Curious what’s on Janie’s mind? Just use the Noti­fi­ca­tions on the left below the links. <img src="../wp-includes/images/smilies/icon_wink.gif" alt=":wink:" /><br />
</em></p>
<p><em>* The extre­mely hip and sophis­ti­ca­ted <a href="../../t-shirt/">STTM t-shirts</a> are half price! I love sales!</em></p>
]]></content:encoded>
			<wfw:commentRss>http://www.stopthethyroidmadness.com/2009/09/24/yes-desiccated-thyroid-is-making-its-way-to-pharmacy-shelves/feed/</wfw:commentRss>
		<slash:comments>26</slash:comments>
		</item>
		<item>
		<title>Glad to see some reason creeping in with thyroid patient discussion!</title>
		<link>http://www.stopthethyroidmadness.com/2009/09/09/reason-creeping-in-with-thyroid-patient-discussion/</link>
		<comments>http://www.stopthethyroidmadness.com/2009/09/09/reason-creeping-in-with-thyroid-patient-discussion/#comments</comments>
		<pubDate>Wed, 09 Sep 2009 19:34:59 +0000</pubDate>
		<dc:creator>Janie</dc:creator>
				<category><![CDATA[Coalition for Natural Desiccated Thyroid]]></category>
		<category><![CDATA[Patients]]></category>
		<category><![CDATA[desiccated thyroid]]></category>
		<category><![CDATA[fda]]></category>
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		<category><![CDATA[Armour]]></category>
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		<category><![CDATA[Mary Shomon]]></category>
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		<category><![CDATA[unapproved drugs]]></category>
		<category><![CDATA[westhroid]]></category>

		<guid isPermaLink="false">http://www.stopthethyroidmadness.com/?p=3493</guid>
		<description><![CDATA[If you have been keeping up with my posts, you&#8217;ll know that thyroid patients have been facing a shortage of desiccated thyroid for many weeks, probably due to sharp increased demand i.e. thyroid patients have been finding out how lousy T4-only treatment like Synthroid has been for them, and how much better desiccated thyroid is. [...]]]></description>
			<content:encoded><![CDATA[<p><img class="alignleft size-full wp-image-3501" title="IMG_2564" src="http://www.stopthethyroidmadness.com/wp/../images/IMG_25642.JPG" alt="IMG_2564" width="175" height="123" />If you have been keeping up with my posts, you&#8217;ll know that thyroid patients have been facing a shortage of desiccated thyroid for many weeks, probably due to sharp increased demand <em>i.e. thyroid patients have been finding out how lousy <a href="/t4-only-meds-dont-work/">T4-only treatment</a> like Synthroid has been for them, and how much better <a href="/natural-thyroid-101/">desiccated thyroid</a> is. </em></p>
<p>That demand became especially true after a reformulation of Armour by Forest Labs in 2009 drove patients to RLC&#8217;s Naturethroid and Westhroid. The &#8220;new&#8221; Armour caused a return of hypo symptoms plus new maddening ones, including palpitations and sleep problems never seen before.  As Julia Roberts said in the 1990 movie Pretty Woman: <em> Big mistake</em>, <em>Big</em>, <em>Huge</em>.</p>
<p>In addition, it didn&#8217;t help when Time Cap Labs, a pharmaceutical which made plenty of desiccated thyroid for other pharmaceuticals, stopped production after being contacted by the FDA. This action was probably in line with their aims to make long-term unapproved drugs become approved, even if the timing was incredibly stupid.</p>
<p><strong>As all the above was happening, panic ensued! </strong></p>
<p>We&#8217;ve heard all varieties of negative presumptions from thyroid patients about what caused the shortage, including an FDA conspiracy and an overt belief that desiccated thyroid is about to be removed.  Patients have threatened law suits, blamed pharmaceuticals, and/or sent numerous letters to FDA pleading to keep desiccated thyroid as if it was to be gone tomorrow. Even I, at first, fell in line wondering about the FDA.</p>
<p><strong>But it started to dawn on me, as it has others, than we have been jumping the gun, not giving enough emphasis to facts and reason.</strong></p>
<p>And finally, facts and reason are starting to appear on blogs and groups:</p>
<p><strong>1) Yes, Forest Labs, the makers of Armour, and RLC, the makers of Naturethroid and Westhroid, state they have <em>not</em> been contacted by the FDA. We have no reason to disbelieve them!</strong></p>
<p><strong>2) Yes, RLC is working hard to catch up, as is American Laboratories, both state. We also have no reason to disbelieve them!</strong></p>
<p><strong>3) Yes, thyroid patients who know the superiority of desiccated thyroid have always been there to support them. Glad to see that recognition in blog and group postings.</strong></p>
<p><strong>4) Yes, as health writer Mary Shomon has stated, <em>information-gathering, brainstorming, and communicating with our doctors</em> is a good thing to be doing.  That is contrary to making panicky negative predictions about desiccated thyroid,  rallying for law suits, and feeding ideas to the FDA that may not be there in the first place.</strong></p>
<p><strong>5) Yes, we need to put energy in <a href="/stories-of-others/">letting the world know</a> about the superiority of desiccated thyroid treatment in our lives. That is where our power lies in the face of clueless Endocrinologists and their equally-clueless medical boards like AACE. </strong></p>
<p><strong>6) Yes, we need to listen to and support the pharmaceuticals and laboratories which give us the desiccated thyroid we need. It&#8217;s they who have to walk the line with the FDA. Let&#8217;s listen to their cautions and support them. </strong></p>
<p>Strangely, there are still misconceptions being reported by patient blogs and posts:</p>
<p><em>1) That we don&#8217;t know what caused the shortage.</em> But we do! Demand is as logical as it gets.  All of us have succeeded in getting the word out! That is exactly why I created STTM in the first place!  And by emails I get every week, it&#8217;s clear that it&#8217;s been working.</p>
<p>2) <em>That groups like the <a href="http://health.groups.yahoo.com/group/CoalitionForDesiccatedThyroid/">Coalition for Desiccated Thyroid</a> (CDT) have a wait-and-see attitude. </em>That is as silly as saying STTM wants to ban T4 or encourages self-treatment. There are simply some thyroid patients who don&#8217;t agree with the extreme panic and negative presumptions that have been going on, and want more reason in our pro-activity!  Patients have been encouraged to spread the word in any way possible about the superiority of desiccated thyroid and how it&#8217;s changed lives, NOT to feed dire negative predictions which only end up giving ideas we don&#8217;t want to give! You are most welcome to join the Coalition above in addition to other groups.</p>
<p><strong>Good for patients and advocates alike for putting more reason and fact in this situation. </strong></p>
<p>I&#8217;m also glad to see some strategic, pro-active behind-the-scenes work going on as a <em>just-in-case</em> line of activism. That is the way it should have always been&#8211;a plan for action &#8220;just in case&#8221;, not dire predictions and fear mongering as if it all WAS going to happen.</p>
<p><strong>We&#8217;ll get through this, folks. Here are <a href="/options-for-thyroid-treatment/">options for thyroid treatment</a> in the meantime. And if you want to talk to other patients, join our thyroid patient Community Call this Friday. Details are found in the <a href="http://www.stopthethyroidmadness.com/2009/09/07/join-us-every-friday-night-for-a-sttm-community-call-talk-show/">September 7th blog post</a>.</strong></p>
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		<title>American Laboratories continues to work hard at production.</title>
		<link>http://www.stopthethyroidmadness.com/2009/09/08/american-laboratories-continues-to-work-hard/</link>
		<comments>http://www.stopthethyroidmadness.com/2009/09/08/american-laboratories-continues-to-work-hard/#comments</comments>
		<pubDate>Tue, 08 Sep 2009 20:42:25 +0000</pubDate>
		<dc:creator>Janie</dc:creator>
				<category><![CDATA[desiccated thyroid]]></category>
		<category><![CDATA[ALI]]></category>
		<category><![CDATA[American Laboratories]]></category>
		<category><![CDATA[canada]]></category>
		<category><![CDATA[canadian pharmacies]]></category>
		<category><![CDATA[Chief Operating Officer]]></category>
		<category><![CDATA[community call]]></category>
		<category><![CDATA[fda]]></category>
		<category><![CDATA[Kenny Soejoto]]></category>
		<category><![CDATA[Mary Shomon]]></category>
		<category><![CDATA[north american manufacturer]]></category>
		<category><![CDATA[thyroid patients]]></category>

		<guid isPermaLink="false">http://www.stopthethyroidmadness.com/?p=3487</guid>
		<description><![CDATA[On the August 19th blog post, you can read about the only North American manufacturer of natural porcine desiccated thyroid called American Laboratories (ALI). ALI sells to distributors who in turn pack it up in smaller quantities which go to those who create desiccated thyroid products.
I just got off the phone again from Kenny Soe­joto, [...]]]></description>
			<content:encoded><![CDATA[<p><img class="alignleft size-full wp-image-3488" title="ALI" src="http://www.stopthethyroidmadness.com/wp/../images/ALI2.jpg" alt="ALI" width="149" height="75" />On the <a href="http://www.stopthethyroidmadness.com/2009/08/19/the-only-north-american-maker-of-desiccated-porcine-thyroid-is-working-hard/">August 19th blog post</a>, you can read about the only North American manufacturer of natural porcine desiccated thyroid called American Laboratories (ALI). ALI sells to distributors who in turn pack it up in smaller quantities which go to those who create desiccated thyroid products.</p>
<p>I just got off the phone again from Kenny Soe­joto, the <span>Chief Ope­ra­ting Offi­cer at ALI.  And the news couldn&#8217;t be better.  ALI is working hard to catch up and is currently shipping to all their customers.  Yes, they are still in a backorder situation due to demand being greater than supply in 2009, but work is in progress, shipments are being made to all, and they hope to see some major catching-up in two months or so. </span></p>
<p>And his most important comment? <em>&#8220;If we had FDA issues, we wouldn&#8217;t be producing&#8221;.</em> i.e. everything is going fine. <img src='http://www.stopthethyroidmadness.com/wp/wp-includes/images/smilies/icon_smile.gif' alt=':)' class='wp-smiley' /> </p>
<p>In the meantime, there seems to be two areas of success right now with getting your desiccated thyroid prescription filled:  from <a href="/options-for-thyroid-treatment/">Canadian pharmacies</a>, and from Compounding pharmacies.  Hang in there. We&#8217;ll get past this.</p>
<p>Join us next Friday for our next thyroid patient Community Call via Talk Shoe. See the blog post right below this for information.  Below that is information about the Coalition for Natural Desiccated Thyroid, an independent group working alongside Mary Shomon&#8217;s efforts, as well.</p>
<p><em>*Want to be infor­med of these blog posts? Curious what’s on Janie’s mind? Just use the Noti­fi­ca­tions on the left below the links. </em></p>
<p><em>* <a href="/t-shirt/">STTM t-shirts</a> are half price! I love sales!</em></p>
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		<title>Join us every Friday night for a STTM Community Call Talk Show</title>
		<link>http://www.stopthethyroidmadness.com/2009/09/07/join-us-every-friday-night-for-a-sttm-community-call-talk-show/</link>
		<comments>http://www.stopthethyroidmadness.com/2009/09/07/join-us-every-friday-night-for-a-sttm-community-call-talk-show/#comments</comments>
		<pubDate>Tue, 08 Sep 2009 00:55:46 +0000</pubDate>
		<dc:creator>Janie</dc:creator>
				<category><![CDATA[Coalition for Natural Desiccated Thyroid]]></category>
		<category><![CDATA[desiccated thyroid]]></category>
		<category><![CDATA[audio]]></category>
		<category><![CDATA[coalition for desiccated thyroid]]></category>
		<category><![CDATA[community call]]></category>
		<category><![CDATA[darla]]></category>
		<category><![CDATA[diane]]></category>
		<category><![CDATA[doctor]]></category>
		<category><![CDATA[friday]]></category>
		<category><![CDATA[talk shoe]]></category>
		<category><![CDATA[talkshoe]]></category>
		<category><![CDATA[thyroid patient]]></category>
		<category><![CDATA[thyroid shortages]]></category>

		<guid isPermaLink="false">http://www.stopthethyroidmadness.com/?p=3474</guid>
		<description><![CDATA[Oh boy! You are invited to a Thyroid Patient Community Call on your computer which will be held each and every Friday night for an hour with myself, Janie, as host.  We had the first one last Friday and it was fun and informative. No, I didn&#8217;t announce it here because I wanted to work [...]]]></description>
			<content:encoded><![CDATA[<p><img class="alignleft size-full wp-image-3478" title="talkshoe" src="http://www.stopthethyroidmadness.com/wp/../images/talkshoe.jpg" alt="talkshoe" width="116" height="116" />Oh boy! You are invited to a <strong>Thyroid Patient Community Call</strong> on your computer which will be held each and every Friday night for an hour with myself, Janie, as host.  We had the first one last Friday and it was fun and informative. No, I didn&#8217;t announce it here because I wanted to work on any bugs in the system as we learned to use it.</p>
<p>Here&#8217;s a chance to ask questions about shortages of desiccated thyroid, options to talk to your doctor about to treat your hypothyroidism during this shortage period, how to find a good doctor, and more.</p>
<p>Times are 7 pm Pacific, 8 pm Mountain, 9 pm Central and 10 pm Eastern. Just go here: <a href="http://www.talkshoe.com/talkshoe/web/talkCast.jsp?masterId=62603&amp;cmd=tc">http://www.talkshoe.com/talkshoe/web/talkCast.jsp?masterId=62603&amp;cmd=tc</a></p>
<p>You can make two choices: just listen to the Audio of the podcast talk show, or call in. Phone number will be right on the bottom.  You can register with Talk Shoe and pick a user name, or come in as a Guest.</p>
<p>You&#8217;ll also note a chat box.  The handy and beautiful gals Darla and Diane will usually be there to guide you. If you want to line up to talk in the queue, you&#8217;ll be asked the topic of your conversation in the chat box.  As you wait for me to get to you, you&#8217;ll be able to hear the talk through your phone, and will need to MUTE your computer sound.</p>
<p>You&#8217;ll be seeing guests join us, as well, so watch for each Community Call announcement on the above link. And even without a scheduled guest, you just never know who is going to pop in and chat. <img src='http://www.stopthethyroidmadness.com/wp/wp-includes/images/smilies/icon_smile.gif' alt=':)' class='wp-smiley' /> </p>
<p>Come join us! And remember: we are all just patients chatting with patients. This is not to replace the relationship with your doctor in your treatment or for treatment advice. Stick with your doctor for that.</p>
<p><em>*Want to be informed of these blog posts? Curious what&#8217;s on Janie&#8217;s mind? Just use the Notifications on the left below the links. </em></p>
<p><em>* STTM t-shirts are half price! I love sales!</em></p>
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		<title>New group formed called the Coalition for Natural Desiccated Thyroid</title>
		<link>http://www.stopthethyroidmadness.com/2009/09/02/coalition-for-natural-desiccated-thyroid/</link>
		<comments>http://www.stopthethyroidmadness.com/2009/09/02/coalition-for-natural-desiccated-thyroid/#comments</comments>
		<pubDate>Thu, 03 Sep 2009 02:13:41 +0000</pubDate>
		<dc:creator>Janie</dc:creator>
				<category><![CDATA[Coalition for Natural Desiccated Thyroid]]></category>
		<category><![CDATA[Thyroid treatment]]></category>
		<category><![CDATA[desiccated thyroid]]></category>
		<category><![CDATA[fda]]></category>
		<category><![CDATA[DESI]]></category>
		<category><![CDATA[Doctors]]></category>
		<category><![CDATA[medical professionals]]></category>
		<category><![CDATA[new drug application]]></category>
		<category><![CDATA[Patients]]></category>
		<category><![CDATA[thyroid advocates]]></category>
		<category><![CDATA[thyroid patients]]></category>
		<category><![CDATA[Time Caps Labs]]></category>
		<category><![CDATA[yahoo thyroid groups]]></category>

		<guid isPermaLink="false">http://www.stopthethyroidmadness.com/?p=3446</guid>
		<description><![CDATA[Wish you could talk to others about relevant facts concerning the current shortage, the FDA&#8217;s actions with Time Caps Labs, DESI and the New Drug Application, clinical trials, and related concerns? Have important information to share?
A new group has just been created to work alongside other groups, including save natural thyroid. Smartly called the Coalition [...]]]></description>
			<content:encoded><![CDATA[<p><img class="alignleft size-full wp-image-3447" title="holdinghands2" src="http://www.stopthethyroidmadness.com/wp/../images/holdinghands2.jpg" alt="holdinghands2" width="250" height="168" />Wish you could talk to others about relevant facts concerning the current shortage, the FDA&#8217;s actions with Time Caps Labs, DESI and the New Drug Application, clinical trials, and related concerns? Have important information to share?</p>
<p>A new group has just been created to work alongside other groups, including save natural thyroid. Smartly called the <strong>Coalition for Natural Desiccated Thyroid</strong>, it  represents unity of concern and is created for patients, advocates, medical professionals, representatives of pharmaceuticals who manufacture desiccated thyroid, or anyone with an interest in the four aims of this group:</p>
<p>1) Sharing of factual information concerning natural desiccated thyroid<br />
2) Discussion of current issues related to desiccated thyroid<br />
3) Unity among all concerned<br />
4) Coordination of grassroots action where needed.</p>
<p>The discussion, support and action of this group does not limit itself to any one group, advocate, website or forum, and welcomes any mention of information from websites, advocates, medical professionals or etc. which/who post about or have the same concerns as the aims above.</p>
<p>Join the group here: <a href="http://health.groups.yahoo.com/group/CoalitionForDesiccatedThyroid">http://health.groups.yahoo.com/group/CoalitionForDesiccatedThyroid</a></p>
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