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	<title>Stop The Thyroid Madness™ &#187; Janie&#8217;s experience</title>
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	<link>http://www.stopthethyroidmadness.com</link>
	<description>Thyroid Treatment Scandal and Hypothyroid Mistreatment</description>
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		<title>A continuing MEDICAL SCANDAL which is just too close to home and I grieve. WAKE UP DOCTORS!!</title>
		<link>http://www.stopthethyroidmadness.com/2010/08/19/a-continuing-medical-scandal/</link>
		<comments>http://www.stopthethyroidmadness.com/2010/08/19/a-continuing-medical-scandal/#comments</comments>
		<pubDate>Fri, 20 Aug 2010 04:56:05 +0000</pubDate>
		<dc:creator>Janie</dc:creator>
				<category><![CDATA[+Audience]]></category>
		<category><![CDATA[Janie's experience]]></category>
		<category><![CDATA[Related conditions due to hypo]]></category>
		<category><![CDATA[Thyroid treatment]]></category>
		<category><![CDATA[desiccated thyroid]]></category>
		<category><![CDATA[t4]]></category>
		<category><![CDATA[acid reflux]]></category>
		<category><![CDATA[aerobic walking]]></category>
		<category><![CDATA[eltroxin]]></category>
		<category><![CDATA[high blood pressure]]></category>
		<category><![CDATA[hypothyroid]]></category>
		<category><![CDATA[levothyroxine]]></category>
		<category><![CDATA[levoxyl]]></category>
		<category><![CDATA[medical scandal]]></category>
		<category><![CDATA[oroxine]]></category>
		<category><![CDATA[pacemaker]]></category>
		<category><![CDATA[synthroid]]></category>
		<category><![CDATA[T4-only]]></category>
		<category><![CDATA[thyroid]]></category>
		<category><![CDATA[white fence]]></category>

		<guid isPermaLink="false">http://www.stopthethyroidmadness.com/?p=5772</guid>
		<description><![CDATA[Tonight was a beautiful night to do my aerobic walking. It had poured this afternoon for 30 minutes, so the early evening air was slightly cool and very clean.
And on the last leg of my journey, I stopped and said to Carlin as she was walking out of her front door “Where you have been [...]]]></description>
			<content:encoded><![CDATA[<p><a href="http://www.stopthethyroidmadness.com/wp/../images/WhiteFence.jpg"><img class="alignleft size-full wp-image-5783" title="WhiteFence" src="http://www.stopthethyroidmadness.com/wp/../images/WhiteFence.jpg" alt="" width="195" height="130" /></a>Tonight was a beautiful night to do my aerobic walking. It had poured this afternoon for 30 minutes, so the early evening air was slightly cool and very clean.</p>
<p>And on the last leg of my journey, I stopped and said to Carlin as she was walking out of her front door <em>“Where you have been lately? I haven’t seen you out walking with your husband.” </em></p>
<p>Carlin and her husband Clint are probably in their late 70’s–both vibrant individuals and frequent walkers in the same area.</p>
<p><em>“Well”, </em>she said wistfully as she glanced down the street I had just walked, <em> “I have to go in Monday for a Pacemaker.”</em></p>
<p>Turns out she has fibrillations and other heart issues, and even walking from her bedroom to her living room can exhaust her.  I told her how well my mother-in-law has done with her pacemaker. She told me she’d be in the hospital for at least 3–4 days for the surgery and observation.</p>
<p>And as we were chatting over the low white fence, I couldn’t help but notice the scar on her neck–the same scar my own mother had from the removal of her thyroid years ago.  And the rest of Carlin’s story, and the reality of her story, <em>made me want to punch the nearest electrical pole in disgust.</em></p>
<p>Carlin’s thyroid was removed over 40 years ago.  She remembers being on “2 grains of something”–clearly it was <a href="http://www.stopthethyroidmadness.com/natural-thyroid-101">desiccated thyroid</a>. And she says she felt really good. But she wasn’t on it long, as her doctor removed it and put her levothyroxine over 30 years ago. You know, that “new and modern” <a href="http://www.stopthethyroidmadness.com/t4-only-meds-dont-work">T4-only</a> CRAP which doctors fell for like the blind following the blind beginning in the 1960’s until today.<em> (The story behind the introduction of T4 onto patients in the early 1960’s </em><em>is in Chapter One of the STTM </em><a href="http://www.stopthethyroidmadness.com/book"><em>book</em></a><em>)</em></p>
<p>So I knew. Her heart troubles could be one of the many <a href="http://www.stopthethyroidmadness.com/long-and-pathetic">side effects</a> of the inferior treatment of T4-only medications (which also include Synthroid, Levoxyl, Eltroxin, Oroxine…all of them). My own mother suffered the same fate while on Synthroid her entire life. And patients chat about this all the time on thyroid groups–heart issues while on T4.</p>
<p>I started probing. She has had issues with high blood pressure. Another typical side effect of the crap T4-only medication, and which is removed with desiccated thyroid. She has had issues with depression–another typical side effect of the crap T4-only medication, and which is removed with desiccated thyroid. She talked bitterly about the slew of medications she’s had to be on for years to counter all her problems, and which had given her bad side effects.</p>
<p>And the next worse thing she told me? She had acid reflux so bad a few years ago that they did surgery on her stomach. <em>She had surgery for a condition which is VERY common with thyroid patients who are on T4 meds–low stomach acid from a lower metabolism, which causes acid reflux. </em>i.e. a symptom of continued hypothyroidism which is CORRECTED when on desiccated thyroid.</p>
<p>It was hard to contain myself. Here was this vibrant, life-loving, intelligent woman who has been on T4-only for over 30 years and has endured health problems, surgeries, side effects from all sorts of money-grubbing pharmaceutical pills, and now, has to go in Monday for a pacemaker. And in all probability, most of what she has gone though could have been prevented if some doctor had been WISE enough to keep this woman on desiccated thyroid.</p>
<p>I am livid and sick to my stomach.</p>
<p>****************************</p>
<ul>
<li>Are you chewing up your Armour or Naturethroid? It will make the treatment far better, as it will release the desiccated thyroid from the excess cellulose.  If you are on compounded, you need to tell the pharmacist to stop using cellulose as a filler. On Erfa? You can do it sublingually.</li>
<li>If you are reading this right on STTM’s blog, and would like to be notified of each blog post, just sign up to the left and under the links.</li>
<li>Have you done labs and found yourself with high RT3? Get off Selenium for the time being, as it can help convert T4 to the RT3 along with the other reasons you make too much.</li>
<li>Want to spread the word about far better treatment? T-shirts and bumper stickers are <a href="http://www.stopthethyroidmadness.com/t-shirt">here</a>.</li>
</ul>
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		<title>What happens to you.…just happened to me</title>
		<link>http://www.stopthethyroidmadness.com/2007/08/24/what-happens-to-youjust-happened-to-me/</link>
		<comments>http://www.stopthethyroidmadness.com/2007/08/24/what-happens-to-youjust-happened-to-me/#comments</comments>
		<pubDate>Sat, 25 Aug 2007 03:58:23 +0000</pubDate>
		<dc:creator>Janie</dc:creator>
				<category><![CDATA[Janie's experience]]></category>
		<category><![CDATA[apple cider vinegar]]></category>
		<category><![CDATA[Armour]]></category>
		<category><![CDATA[baking soda]]></category>
		<category><![CDATA[blood pressure]]></category>
		<category><![CDATA[coq10]]></category>
		<category><![CDATA[electrolytes]]></category>
		<category><![CDATA[magnesium]]></category>
		<category><![CDATA[nurse practitioner]]></category>
		<category><![CDATA[potassium]]></category>
		<category><![CDATA[thyroid]]></category>

		<guid isPermaLink="false">http://www.stopthethyroidmadness.com/blog/2007/08/24/what-happens-to-youjust-happened-to-me/</guid>
		<description><![CDATA[Last week, after hours, I called the office of the Nurse Practitioner I have used as my doctor for 5 years.  I left my message–that I have had rising blood pressure and was curious what she would recommend. (And yes, I like her.)  
I mentioned that I was slightly lowering my Armour, just [...]]]></description>
			<content:encoded><![CDATA[<p><strong>Last week, after hours, I called the office of the Nurse Practitioner I have used as my doctor for 5 years.  I left my message–that I have had rising blood pressure and was curious what she would recommend. (And yes, I like her.)  </strong></p>
<p>I mentioned that I was slightly lowering my Armour, just in case the iodine I had been giving myself for a year was now causing my Armour amount to be too much (and contributing to my BP).  I also mentioned that I had found many articles on the net about the benefit of taking CoQ10 for rising blood pressure…plus the fact that low levels of potassium and magnesium may place a role in at least 50% of those with rising blood pressure. I also asked if I could be sent lab papers so I can test my potassium and magnesium levels. I was curious.</p>
<p>Last Monday, the office called. It was the nurse under the physician that my NP works under, and whom I was FAR less impressed by. She explained that I would now be under his care, since blood pressure doesn’t fall under her specialty–female hormones. <strong>(first inner alarm)</strong>. </p>
<p>Next, she says that the doc feels there is “no strong research” that CoQ10 will help me. <strong>(second inner alarm)</strong> I replied that there’s “no strong research” that Armour turns the lives around of thyroid patients, yet it does. Cough. </p>
<p>Finally, she stated that she doubts he will feel “comfortable” with letting me test my potassium and magnesium <strong>(final alarm)</strong>.  Excuse me…HE would not feel comfortable for me to know what my levels were? HE would not feel comfortable?? WHO’S BODY ARE WE TALKING ABOUT HERE?!?</p>
<p>And today…I received the lab papers I was to use…and all he checked were electrolytes.…and TSH.  <strong>Thud.</strong> Granted, there is a relationship between electrolytes and blood pressure…but I was appalled that he gave no respect to my request to know my potassium and magnesium levels.…and wanted to test the WORST and most unreliable “thyroid” test there is. </p>
<p>I have tossed those lab papers…and I am making an appointment with a new doctor…one I have heard about from another patient.…and who has a reputation of listening, not simply dictating.</p>
<p>p.s. I’m back on my regular amount of Armour. And..my blood pressure has fallen to a respectable level: 125/74 tonite…and 105/69 the other night. What did it? Probably the release of stress from letting go of some responsibilities. I’m also making sure I take a full spectrum of minerals, CoQ10, and I’m back to walking aerobically at least 4 times a week. And finally, I’ve been using a tablespoon of apple cider vinegar (acv) daily with 1/4 tsp baking soda for over two weeks. The <a href="http://www.earthclinic.com/Remedies/acvinegar.html">acv</a> has done wonders for my husband’s FORMERLY poor digestive issues.…and there’s evidence it helps control blood pressure in two weeks!! (Remember: these blog posts are ONLY for comments. Want to talk to others? See the TALK TO OTHERS link on any STTM page.) </p>
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		<title>Beware: major hormonal changes can affect your adrenals!</title>
		<link>http://www.stopthethyroidmadness.com/2006/12/28/hormonal-changes/</link>
		<comments>http://www.stopthethyroidmadness.com/2006/12/28/hormonal-changes/#comments</comments>
		<pubDate>Fri, 29 Dec 2006 04:29:33 +0000</pubDate>
		<dc:creator>Janie</dc:creator>
				<category><![CDATA[Janie's experience]]></category>
		<category><![CDATA[98.6]]></category>
		<category><![CDATA[adrenal fatigue]]></category>
		<category><![CDATA[adrenals]]></category>
		<category><![CDATA[blood pressure]]></category>
		<category><![CDATA[cortisol]]></category>
		<category><![CDATA[dr. lam]]></category>
		<category><![CDATA[estrogen]]></category>
		<category><![CDATA[estrogen dominance]]></category>
		<category><![CDATA[female hormones]]></category>
		<category><![CDATA[ferritin]]></category>
		<category><![CDATA[hormonal changes]]></category>
		<category><![CDATA[licorice root]]></category>
		<category><![CDATA[menopause]]></category>
		<category><![CDATA[orange juice]]></category>
		<category><![CDATA[progesterone]]></category>
		<category><![CDATA[saliva test]]></category>
		<category><![CDATA[stress]]></category>

		<guid isPermaLink="false">http://www.stopthethyroidmadness.com/blog/2006/12/28/hormonal-changes/</guid>
		<description><![CDATA[I normally don’t write about me here, but more on thyroid advocacy issues. But this time…it’s going to be ME, because YOU need to be aware of what happened to me…because it can happen to you.
I appear to have adrenal fatigue.
Now understand this: I didn’t have it when I got on Armour over 4 years [...]]]></description>
			<content:encoded><![CDATA[<p>I normally don’t write about me here, but more on thyroid advocacy issues. But this time…it’s going to be ME, because YOU need to be aware of what happened to me…because it can happen to you.</p>
<p>I appear to have adrenal fatigue.</p>
<p>Now understand this: I didn’t have it when I got on Armour over 4 years ago.  I raised my Armour without a hitch, except for low Ferritin twice that I had to correct. And for approx. 3 1/2 years, I’ve been optimal with Armour with a perfect mid-afternoon temp of 98.6</p>
<p>So why adrenal fatigue now?? It helps to explain it this way: Two years ago, in Dec. of 2004, I entered serious peri-menopause. My progesterone fell rock bottom while I still had a youthfully high estrogen. And I’ve had to deal with the misery of severe estrogen dominance for two years.  I’ve used compounded progesterone cream for those two years, but it was often never enough to stop the symptoms of estrogen dominance.</p>
<p>Also, Dr. Lam states the following and it explains me to a T: <em>In early stages of adrenal fatigue, cortisol output is high as the body attempts to neutralize the stress by producing more of it. However, when too much cortisol is produced, it will have multiple undesirable effects. For example, cortisol blocks progesterone receptors, making them less responsive to progesterone.   Progesterone normally produced by the adrenals comes to a halt in favor of cortisol. Insufficient progesterone production leads to an imbalance of estrogen to progesterone…(aka estrogen dominance).</em> And voila–I did have high cortisol in the morning and noon.  I had done the saliva adrenal test just a month after my progesterone had dropped.</p>
<p>Finally, this past October, I noticed the estrogen dominance FINALLY stopped, as did my periods. A huge victory. <img src='http://www.stopthethyroidmadness.com/wp/wp-includes/images/smilies/icon_smile.gif' alt=':)' class='wp-smiley' />  But in early December, after a particularly busy day on a Saturday, I majorly crashed.….….and haven’t recovered since.</p>
<p>And ALL my symptoms point to adrenal fatigue. First, my temps fell. And they were all over the place. My highest would only be 98.3, and one night, I was 97.1. That was VERY wrong for me.</p>
<p>Next, I started waking up EVERY night between 3–5 am. A typical adrenal symptom. Also, if I felt emotional about something, my body would get VERY hot. At first I thought it was a hot flash…but it was different.</p>
<p>And I was achy for 1 1/2 weeks. That stopped when I raised my Armour and got my temps back up. But even without the achiness, I have felt fatigued all over, and just bad.</p>
<p>Also, I fail the blood pressure test in the mornings. The other day, my supine blood pressure was 135/84. Standing, it was 115/84. A good sign of adrenal fatigue.  I also have a faster and a pounding heartrate.</p>
<p>I have sent off my saliva samples…but have no doubt what the results are going to be. So.…I am going to start the very adrenal support that I have written about in so much detail here on STTM. Because there is simply too much stress in my life to think that practicing all the other adrenal support methods are going to help my adrenals recover, or even help me feel better.</p>
<p>And by the way, for the past year and more, I have always given myself 5000 mgs of Vit. C and high dose B-vitamins, plus E. I have exercised regularly by walking.  But it wasn’t enough to stop what a huge female hormonal change has done to me.  I now am using Licorice Root daily (which stops some of the breakdown of cortisol in your liver) and 1/2 tsp sea salt, stirred in orange juice and my morning yogurt. And I’ll have to start on cortisol.</p>
<p>What can you do to not find yourself in my shoes? For one, if you enter peri-meno, even without the presence of adrenal fatigue, I would start on some mild OTC adrenal support now, which I was never on. Also, do whatever you can to counter excessive emotional stress in your life during this time by finding times to laugh and doing what you enjoy. I have been stuck with a job that wore me down, and family issues that stressed me terribly, and I’m sure that played a part.</p>
<p><strong>COMMENTS TO THIS POST ARE WELCOME <img src='http://www.stopthethyroidmadness.com/wp/wp-includes/images/smilies/icon_smile.gif' alt=':)' class='wp-smiley' />  (I could use pats on the back because this makes me SICK), but if you have questions, this is not the place for them. Go to our forums here: www.stopthethyroidmadness.com/community   And by the way, I will update this particular blog post when I get my adrenal saliva test results back…and as I progress in my treatment. My fingers are crossed.</strong><br />
<a href="/janies-adrenal-fatigue/"><br />
Click here to see the continuation of my comments on my own Adrenal Fatigue.</a></p>
<p>UPDATE as of Feb. 2009: for those still reading all the way down here, I became fully meno by 2008 and remarkably, require no progesterone or estrogen to feel good.  I did start having constant nighttime waking up and probably could use a little progesterone at bedtime. I do use testosterone gel to keep my muscles healthy and stronger.  And my adrenals are still fine.  I’m on 4 grains Armour plus a slew of good supplements.</p>
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		<title>I am experimenting with adding T4 to my Armour</title>
		<link>http://www.stopthethyroidmadness.com/2006/07/14/adding-t4/</link>
		<comments>http://www.stopthethyroidmadness.com/2006/07/14/adding-t4/#comments</comments>
		<pubDate>Fri, 14 Jul 2006 20:31:11 +0000</pubDate>
		<dc:creator>Janie</dc:creator>
				<category><![CDATA[Janie's experience]]></category>

		<guid isPermaLink="false">http://www.stopthethyroidmadness.com/blog/2006/07/14/adding-t4/</guid>
		<description><![CDATA[When I switched from Levoxyl to Armour on one day in July of 2002, the difference in my well-being was so stunning that I never looked back. In fact, I was so stunned that I started an internet talk group about natural thyroid hormones in August of 2002.  I went from someone who couldn’t [...]]]></description>
			<content:encoded><![CDATA[<p><strong>When I switched from Levoxyl to Armour on one day in July of 2002, the difference in my well-being was so stunning that I never looked back. In fact, I was so stunned that I started an internet talk group about natural thyroid hormones in August of 2002.  I went from someone who couldn’t even sand a small wood project without being debilitated (Yes. Really. With a “normal” TSH and on Levoxyl).……to someone who could eventually own her own store and stand ALL day. I am now on 4 grains, multi-dosed and sublingually,  plus 1/8 grain at night. I have a free T3 at the top of the range, and a suppressed TSH.</p>
<p>Along the way, I’ve had to correct low Ferritin. Additionally, I’ve had to deal with some serious peri-meno issues caused by a plummeting progesterone level with a still high estrogen level.</p>
<p>All in all, my thyroid treatment with Armour alone has been a HUGE success story! I can work on my feet all day and wake up refreshed the next. And I haven’t needed a nap in years.  </p>
<p>But…there has been one phenomena that has made be ponder. Namely, if I do several back-to-back days of busy activity, or, if I do something of high physical intensity in one day (such as climbing up to Delicate Arch near Moab, Utah), I don’t recover as “speedily” as my friends who do the same with me. In other words, they will wake up refreshed, and I may need another day to do so. </p>
<p>And the above has made me ponder. Is it due to cellular damage from being on the lousy T4-only treatment for 17 years? Is it due to a need for adding a bit more Armour when I do excessively physical activity? Is it due to my body’s poor reaction to entering the meno-phase of my life? Or, is it due to my mid-range free T4??  I do remember that Dr. Dommisse of Arizona would seek to optimize BOTH free’s in his patients. And, I’ve heard that a doctor in California is doing the same. And I’ve wondered: does the higher free T4 provide what is needed due to conversion for recovery purposes??</p>
<p>So…I have decided to try an experiment…adding a small amount of T4 to my 4 1/8 grains of Armour. Remember: Armour as pig thyroid is approx. 80% T4/20% T3 (as compared to the human thyroid 93/7), and several patients on Armour tend to only get their free T4 to mid-range…even with an optimal high-range free T3…and I’m one.</p>
<p>I’ve been on 25 mg. thyroxine for over 6 weeks now.  After 4 weeks, I “thought” I’d noticed a difference. But alas, I am also dealing with the effects of my stressful entry into menopause. So, it’s hard for me to tell what’s going on with adding T4! I also haven’t done labs yet to SEE where I’ve gotten my free T4, but will be seeing my doc soon.</p>
<p>Bottom line: though I am reporting my experiment to the readers of this blog, I honestly can’t discern yet with clarity what positive effects it’s having because of my peri-meno issues. But that is not taking away of the possible benefits of getting BOTH your free’s towards the top of the range. Dommisse of Arizona states the following: </p>
<p><em>“The brain seems to need to receive thyroid hormone in the form of T4 as well as T3, and then converts T4 to T3 INSIDE the brain cells. e.g., Patients on the so-called Wilson’s T3-only approach get good relief of physical symptoms but retain their brain fog, memory loss, concentration problems, etc.. The other reason it is a good idea to have your “reserve” of the T4 thyroid hormone as high as possible (as long as that is without any adverse effects)- so that, if you miss a dose of T3-containing preparation, you can possibly convert T4 more readily to T3 than if the T4 level is not as optimal.“<br />
</em><br />
NOTE: if you are new to using Armour, please note that I am NOT advocating that you pressure your doc to add ANYTHING to your Armour…yet. That can only complicate your goal to find your optimal dose. If you still have problems on Armour, it’s a strong sign you simply aren’t on enough, or have low cortisol or low Ferritin.  Remember: I feel GREAT on Armour–need NO naps, have excellent energy, no weight gain issues, etc.</p>
<p>I have also noticed that some STAY on their T4 when starting Armour. That may not be a bad idea since it would help you bridge over, but it can also end up confusing the issue of where your optimal dose is down the line!! As a thyroid patient advocate, I have noted that those that use their T4 one day, and get on Armour the next WITHOUT the T4, generally have an easier time finding their optimal dose down the line without confusion. And do know that some on Armour alone obtain that high-in-the-range free T4. I am just not one of them. </strong></p>
<p><strong>UPDATE 1–22-07:</strong> I found out months later that my failure to recover well from activity was probably due to an adrenal problem, not necessarily a need for a higher T4. My adrenals were in the alarm stage–namely, I was making high levels of cortisol in response to stress in my life, so there wasn’t an adequate response for recovery after heavy activity. It wasn’t a need for more T4. I should have been supporting my adrenals with Isocort in situations like this. (If you have questions about your own treatment…i.e. more than a comment, do go to our Forums)</p>
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