Who Janie is; who she is not
When I started the Yahoo group Natural Thyroid Hormones (NTH) in 2002, and later this website, Stop the Thyroid Madness (STTM) in late 2005, plus several other social and yahoo groups since then, I was responding to my own inner calling as one who once deeply suffered from a poor thyroid treatment. You can read my story here, or with even more detail in the Introduction of the STTM book.
The NTH Yahoo group was started because desiccated thyroid, which at the time was Armour before it was reformulated, had changed my life so drastically that I wanted others to know. I also wanted to take a more activist approach about the efficacy of desiccated thyroid.
Later, I created STTM as a way to educate patients about what other patients had learned, and wanting to see this education be taken into doctor’s offices all over the world to press for change. And it’s been working, one doctor at a time.
Unfortunately, the more well-known I and STTM have become, the crazier are the comments about who I am and who I am not!
So below are the rotten tomatoes thrown at me, and you can then decide as a fellow patient, who I am and who I am not, and to help you discern that there just may be more to the story of something negative you read from anyone.
- Janie squashes dissent on patient groups and bans people for having a different opinion. Boy I sound like a real shrew. To the contrary, I wouldn’t be where I am today if I didn’t listen to differences of opinion. And sometimes, I end up agreeing with the different opinion, while others, I end up completely disagreeing…and mostly based on patient experience. And I have noted that if I disagree, I am accused of “not listening”. In fact, I listened for a long time, then came to a different opinion. As far as banning someone, I have a light hand compared to other colleagues in their own groups, and I work hard to make someone work in the group. But when a person is disruptive in behavior to the harmony of the group and health of individuals, yes, you will be removed. Of course, this kind of person is going to say they were removed because of a difference of opinion, failing to see how disruptive they are, even when everyone else sees it.
- Janie wants to ban T4 medications: Boy, wouldn’t I be one powerful chick if I was going to do that! But the truth is, there is a place for T4-only. Some just may like it, and others may want to combine it with synthetic T3, like vegetarians or those with religious reasons to prefer it. Instead, my energy focuses on informing those on T4 why they may have depression, or high cholesterol, or rising blood pressure, or symptoms related to poorly functioning adrenals, and more. My energy is also focuses on helping patients and their doctors find out about the superiority of natural desiccated thyroid, how to make it work for you.
- Janie is a mean, dishonest, in-your-face, bad-mouthing back stabber. Is that a mouthful of badness or what?! The one that is outright true is being in-your-face. I can be a bull in a china cabinet about the the efficacy of desiccated thyroid and the scandal of T4 and the TSH, and sometimes, I just have to back myself up and redo how I express myself. I also like chocolate too much, will gorge on chips and hot sauce, am “unfashionably late” when I shouldn’t be, tend to spout the worst cuss words when I’m angry, and have stupidly thought people would change if I told them their faults. Yikes. But the other adjectives? Sorry, but I am none of those when it comes to my activism, and have better personal ethics than to be like any of those.
- Janie wants to be the Queen of the Mountain in thyroid patient advocacy (stated in sarcastic tone). Ugh. I value my private life, and would lose that if I attempted to be at the top. Plus, I just am not that egoistical about it, nor care to spend the energy achieving it. All I want to do is change the thyroid patient treatment madness, one patient and one doctor at a time, so NO ONE will suffer the way I did. And it’s working, one patient, one doctor at a time, thanks to good information on STTM.
- Janie has lots of faults. Now I added this one, because in addition to what I added above, I do. I tend to say in 150 words what I could have said in 30. I’m working on that. I tend to couch my words too much, and am working on finding a middle ground–saying what needs to be said while still being tactful. I have a strong sweet tooth, and it gets me trouble when trying to maintain my weight. I’ve learned to enjoy Stevia a lot more, and I’m continually working on what I think is insulin resistance. There are more, but I think you get the gist. I’m human.
All in all, I have learned repeatedly that the more well-known a person becomes, the more there are going to be a small handful who hate my guts for all sorts of personally-driven reasons. You can fill-in-the-blank as to what may be going on inside a person to be like this. And they will deny it ten-fold, so just read between the lines.
My belief has always been “let’s work together!” And there are some great thyroid patient advocates I do with well. So, I just continue to follow my path of intention—to educate patients about worldwide successful patient experience so they can find better health and well-being. And it’s working.