levoxyl tags

With the recent blog post by health wri­ter Mary Sho­mon con­cer­ning Dr. Sid­ney Wolfe’s new 4-year term with the FDA’s Drug Safety and Risk Mana­ge­ment Advi­sory Com­mit­tee, there has been much brooha and fear-mongering on thy­roid patient groups.

Why? Well look at it this way. This is a man of sta­ture. He is an MD, an Adjunct Pro­fes­sor of Medi­cine, the direc­tor of Public Citizen’s health research group which pro­mo­tes drug safety and public health, and edi­tor of the news­let­ter Worst Pills, Best Pills, and since August of  ’08, a mem­ber of the Drug Safety Com­mit­tee.  He also has a resume a mile long.

Yet in spite of his see­mingly caring acti­vism for our health and well-being, and his immense expe­rience and edu­ca­tion, he is clearly and com­ple­tely off-base about Armour and other desic­ca­ted thy­roid presc­rip­tion drugs.

For exam­ple, as as edi­tor of the Worst Pills, Best Pills news­let­ter,  Wolfe dec­la­red Armour desic­ca­ted thy­roid as a “Do Not Use” pro­duct because it is not ade­qua­tely gua­ran­teed to pro­vide appro­priate blood levels of thy­roid hor­mone and relia­ble alter­na­ti­ves are avai­la­ble”. (Gee, funny how our expe­rien­ces are com­ple­tely other­wise.…)

Then in the May 2003 issue (of which you have to have a paid presc­rip­tion to read), he wrote an article tit­led  “Do Not Use! Natu­ral or Desic­ca­ted Thy­roid (ARMOUR THYROID) For Thy­roid Hor­mone Repla­ce­ment The­rapy.” In that article, the clue­less Wolfe sta­ted that he sup­por­ted The Ame­ri­can Thy­roid Association’s sta­te­ment “There is no evi­dence that desic­ca­ted thy­roid, a bio­lo­gi­cal pre­pa­ra­tion, has any advan­tage over synthe­tic thy­ro­xine.” (I guess millions of us and our impro­ved hear­trate, sta­mina, cho­les­te­rol, depres­sion and more…aren’t evi­dence?)

He then pro­po­ses that Armour is mostly presc­ri­bed for weight loss, is a niche mar­ket for the unsc­ru­pu­lous, and conc­lu­des with “if you are offe­red natu­ral thy­roid hor­mone repla­ce­ment treat­ment for any rea­son, this is a red flag and you should get a second opi­nion.” In a let­ter to con­su­mers, Wolfe and Public Citi­zen state that that T3 is only nee­ded from con­ver­sion and is pre­dic­tably found from con­ver­sion, that the T2 and T1 also found in desic­ca­ted thy­roid has essen­tially no acti­vity, that desic­ca­ted thy­roid is an unpre­dic­ta­ble mix­ture, that is has no pre­dic­ta­ble bio­lo­gi­cal acti­vity…plus so many more com­plete and total inac­cu­ra­cies based on “inte­llec­tual head chat­ter” not on obser­va­tion and experience.

Thud.

Mary Sho­mon, in 2003, did a bang-up job trying to com­mu­ni­cate with Wolfe, Worst Pills, Best Pills, and Public Citi­zen about the inac­cu­ra­cies of their beliefs and statements…basically to no avail. The TRUTH is here, and in more detail in Chap­ters 1 and 2 in the STTM book which are enligh­te­ning those rea­ding it all!

So we are left won­de­ring, six years later, what his four-year appoint­ment to this com­mit­tee will mean. But let’s make a few things quite clear to con­trast some of the fears going on and expres­sed on thy­roid groups:

1) Armour is not being ban­ned.
2) Wolfe is one of a current 9 mem­bers of this com­mit­tee. Wolfe is not “the com­mit­tee”.
3) Wolfe and seven others currently have voting rights. He is the only “Con­su­mer Repre­sen­ta­tive”.
4) There are still six more vacan­cies.
5) The com­mit­tee is NOT the power. They simply make recom­men­da­tions. And his­to­ri­cally, the FDA can be slow to act on their recom­men­da­tions, or doesn’t follow them at all (which is a GOOD thing when it comes to a SAFE and EFFECTIVE medi­ca­tion like desic­ca­ted thyroid).

So what can you do? I cha­llenge you to follow and act on the below, which puts our ener­gies into com­mu­ni­ca­tion, not fee­ding the ego and power of a mis­gui­ded man with our overtly expres­sed fears as if they have actually come to pass :

1) Remem­ber 1 – 5 above. Armour is fully avai­la­ble. Keep the facts straight, and fear-mongering down.

2) STTM has a power­ful and gro­wing page of tes­ti­mo­nies of those who switched to desic­ca­ted thy­roid.  Are you in there? If not, you need to be. This web­site currently has a huge audience. It’s noti­ced by doc­tors all over the world, as is the STTM book, which is YOUR book of YOUR expe­rien­ces,  which is also being orde­red by doc­tors. Use the Con­tact Me form at the bot­tom of that page.

3) Tell your expe­rience with Synth­roid or other thy­ro­xine medi­ca­tions at the follo­wing web­si­tes:  www.rateadrug.com,  www.drugs.com,  www.askapatient.com They don’t inc­lude any of the desic­ca­ted thy­roid meds yet, but you can tell of the nega­tive expe­rien­ces with all the T4-only drugs, inc­lu­ding adre­nal fati­gue if you fell into that, and all your lin­ge­ring thy­roid symp­toms.  The above links will take you to their Synth­roid page – you can search for the other T4 meds.  Remem­ber to men­tion Armour or other desic­ca­ted thy­roid meds and how they have hel­ped you!! Update: thy­roid patient Gina found the drugs.com Armour page: http://www.drugs.com/comments/thyroid-desiccated/armour-thyroid.html

4) Report your T4-only expe­rience to Med­Watch, the FDA’s  pro­gram for repor­ting pro­blems.  You will see an Online Repor­ting Form to down­load. Don’t fail to men­tion which pro­blems were remo­ved or greatly impro­ved when you switched to Armour, or the fact that you now have to deal with adre­nal fati­gue thanks to the ina­de­quacy of T4-only treat­ment. You can also call 1 – 800-FDA-1088, but remem­ber: your call is not to draw atten­tion to Wolfe’s opi­nions! It’s to draw atten­tion to how lousy a treat­ment T4 is as com­pa­red to how much bet­ter Armour has been.

5) Go to my article tit­led Synth­roid Sucks: the Rall­ying Cry of Thy­roid Patients vs. Clue­less Doc­tors and com­ment on this article, inc­lu­ding men­tio­ning what Armour, Natu­reth­roid or other desic­ca­ted thy­roid did for you. Rate it as well. Both keep this article in the media and in the eyes of others.

6) Go to www.medications.com where patients ask ques­tions and YOU can ans­wer, men­tio­ning YOUR expe­rience and how much bet­ter desic­ca­ted thy­roid has been. Clic­king on that will take you to the Synth­roid patient ques­tions. Ans­wer them. Be care­ful with links – they may not catch them at first, but will remove them if they do.  You can men­tion web­site names, tho, like Stop the Thy­roid Madness.

7) Send peo­ple here to follow all these steps. Power is in numbers!

8 ) Use the follo­wing web­site to email or write your sena­tors and repre­sen­ta­ti­ves: http://www.visi.com/juan/congress/ THEY DO READ THEM. And they will remem­ber this!  Here’s a tem­plate let­ter you can use:  www.stopthethyroidmadness.com/template-letter-to-your-senator-or-representive/

If you have other ideas and pla­ces to write or call, add your com­ment to this post. Remem­ber,  put your power in com­mu­ni­ca­tion! LOTS of communication.

P.S. Did you know that the Ame­ri­can Thy­roid Asso­cia­tion, in coo­pe­ra­tion with the Ame­ri­can Asso­cia­tion of Endoc­ri­no­lo­gists, together sup­port January as “Thy­roid Awa­re­ness Month”…which is sup­por­ted through an unres­tric­ted grant from Abbott Labo­ra­to­ries, the makers of Synth­roid?? Major UGH.

When I  was ten years old, my mother had elec­tric shock treatment.

The memory stands out in my mind like a bea­con. And when my Dad brought her home, he took me aside and explai­ned that my mama was not going to remem­ber where things are for awhile, and we’d have to help her. That was espe­cially true with the 4-legged sewing basket.

She even­tually regai­ned her memory. But she was never again the same bright and quick wit­ted mother I used to have when I was younger.

Why was shock treat­ment done?  To coun­ter her mys­te­rious ongoing and disa­bling depres­sion.  And this was her last option.

It didn’t work.

She lived on anti-depressants, spe­ci­fi­cally a high dose of Ela­vil, the rest of her com­pro­mi­sed life.

And more than 40 years later, about a year after her death, a change in my own life with Armour hel­ped me rea­lize why she had to be depen­dent on an anti-depressant for so many years:  Synth­roid.  My mother was on Synth­roid almost her entire adult life — a medi­ca­tion, along with Levoxyl, Levothy­ro­xine, Unith­roid, Eltro­xin, Leva­xin, Nor­ton, Eutro­sig  and Oro­xine, which lea­ves nearly all patients with lin­ge­ring hypothy­roid symp­toms, inc­lu­ding one of the most com­mon one:  chro­nic on-going depression.

And a large body of doc­tors all around the world just don’t get it.

What brought this memory of my mother up in my mind? Because two days ago, I chat­ted with a gal on Synth­roid.   By all appea­ran­ces, she see­med to be doing well, as some will make you think.  She said she had enough energy, wasn’t losing her hair, and felt okay. But when I pro­bed dee­per, she admit­ted that her blood pres­sure was going too high (as hap­pe­ned to my mother on a T4-only med) and she had a pro­blem with depres­sion and was on Well­bu­trin.  Bingo.

See http://biopsychiatry.com/hypothyroidism.htm which is also here: http://www.theannals.com/cgi/content/abstract/34/10/1142

Want to be infor­med of these blog posts?? Curious what’s on Janie’s mind? Use the Noti­fi­ca­tion fea­ture on the bot­tom left of the links.

Just two months ago on January 15^th, I wrote an article tit­led Ten Rea­sons You May Still Feel Bad.  Nearly every hypothy­roid patient can have some of those ten pro­blems, and if so, they need to be dis­co­ve­red and corrected.

And one of those issues was low B12. B12 is a vita­min which has a key role in cell meta­bo­lism of your entire body, giving you energy, sharp­ness in your brain, and healthy ner­vous sys­tem functioning.

And unfor­tu­na­tely, a cer­tain per­cen­tage of hypothy­roid patients have low levels of this impor­tant vita­min, lar­gely due to diges­tive issues com­mon with hypothy­roi­dism– either undiag­no­sed due to the lousy TSH lab test, or under­trea­ted on T4 meds like Synth­roid, Levoxyl, Levothy­ro­xine, Eltro­xin, etc.

Symp­toms of low B12 can vary from per­son to per­son, but can inc­lude numb­ness and tin­gling in your hands or feet,  tre­mors, poor refle­xes, ton­gue sore­ness, leg pain, or dif­fi­culty wal­king with balance.   Psycho­lo­gi­cally, you may have memory issues, con­fu­sion, or depres­sion. Young women may have dif­fi­culty get­ting preg­nant due to low B12.

When doing lab work, you want a result in the upper end of the range.  To correct ina­de­quate levels of B12, you’ll want to use high oral B12 (methyl­co­ba­la­min is the recom­men­ded form of B12), B12 cream, or injec­tions by your doc­tor (espe­cially if you have per­ni­cious ane­mia) .  It’s also recom­men­ded to inc­rease your con­sump­tion of meat and dairy pro­ducts, which can be rich in B12.

March 27, 2009 is the kick-off date to begin an awa­re­ness cam­paign of B12 health, with Sep­tem­ber 23^rd being “Vita­min B12 Awa­re­ness Day”. And I highly recom­mend the book Could It Be B12? An Epi­de­mic of Mis­diag­no­ses by Sally Pacho­lok, R.N. and Jef­frey Stuart, D.O., who are spearhea­ding this awareness.

Have you found your­self with low B12? Tell us your symp­toms, how you trea­ted it, and how long it took to stop the symptoms.

Want to be noti­fied of these blog posts? Curious what Janie is ran­ting about this time? Use the Noti­fi­ca­tion on the bot­tom left of the links.

Now being announ­ced on the Forest Pharm hot­line at 866 – 927-3260, the follo­wing strengths of Armour are now com­ple­tely avai­la­ble again:

1) 15 mg. (1/4 grain)
2) 30 mg. (1/2 grain)
3) 60 mg. (one grain)
4) 120 mg. (2 grains)
5) 180 mg. (3 grains)
6) 240 mg. (4 grains)
7) 300 mg. (5 grains)

Yes­si­ree, the above repre­sent the dif­fe­rent size and strength tablets of natu­ral desic­ca­ted thy­roid via the Armour brand, most of which had been una­vai­la­ble for quite awhile. The 90 mgs is still on backorder.

Rejoice!

P.S. And we thank RLC Labs for their con­ti­nued avai­la­bi­lity of Natu­reth­roid and Westh­roid, plus Sri­pra­sit Pharma Co., Ltd. in Thai­land for their Thyroid-S.   Because no mat­ter how hard any phar­ma­ceu­ti­cal com­pany, Endoc­ri­no­lo­gist, cer­tain hos­pi­tals,  or group of phy­si­cians (see below) tries to sing the prai­ses of T4 treat­ment with Synth­roid, Levoxyl, Levothy­ro­xine, Eltro­xin, Nor­ton for thy­roid disor­ders or hypothyroid.…WE KNOW BETTER.

(Want to be noti­fied of my blog posts? Curious what’s on my mind? Use the Noti­fi­ca­tion method to be infor­med. Look on the bot­tom left of the links where you can sign up. )

The recent press release by the UK’s Royal College of Phy­si­cians about the new gui­de­li­nes on the diag­no­sis and mana­ge­ment of pri­mary hypothy­roi­dism hit the web with a resoun­ding, stiff-necked thud.

And I have writ­ten about it in the news media here:  http://www.opednews.com/articles/The-Royal-College-of-Physi-by-Janie-Bowthorpe-090210 – 698.html

p.s.  In the 1600’s, Gali­leo was the first most pro­li­fic voice to proc­laim that the earth revol­ved around the sun (Armour), in con­trast to the firmly held posi­tion that the sun revol­ved around the earth (Thy­ro­xine).  He was denoun­ced as being dan­ge­rous and here­ti­cal. But over time, the truth won out.

Are you from the UK? Tell us what you think.