normal tags

One of many dis­co­ve­ries made by thy­roid patients is that “nor­mal” lab results don’t tell the whole story. And thy­roid and adre­nal patient advo­cate Vale­rie Tay­lor sure found out the hard way while dea­ling with wor­se­ning muscle spasms and weakness.

“I have been to at least 6 doc­tors over the past seven years and read thou­sands of web­si­tes, hun­ting for the cause of my severe muscle spasms”, explains Vale­rie. “They all ruled out potas­sium, a poten­tially likely cause,  because my serum lab result, 4.2, was right smack in the middle of the nor­mal range.”

So Vale­rie was for­ced to live with her wor­se­ning muscle issues– spasms, weak­ness and pain – because all labs were nor­mal and those that weren’t, didn’t per­tain.  Even her insulin-dependent Type 2 Dia­be­tes was well-controlled. And she knew it was all threa­te­ning to put her out of work as a pet groo­mer.  It was bleak.

But a sur­pri­sing change was to come.

“About 2 months ago,” says Vale­rie, “someone on one of my groups men­tio­ned potas­sium hel­ping with fluid reten­tion – the lat­ter I’ve had for the last 15 years and took  Dya­zide, a potas­sium spa­ring diu­re­tic.”

She also lear­ned about get­ting an RBC (red blood cell) potas­sium lab as it shows what’s inside the cells rather than in serum (as usual labs show).  And the results? It came back LOW.

Vale­rie has since wor­ked her way up to 2850 mg. Potas­sium in a combo of chlo­ride and gluconate…and below, in her own words, are the results:

• No more muscle spasms and the weak­ness and pain is lea­ving more daily!
• My IBS sud­denly STOPPED!
• My insu­lin needs are HALF what they were before this sup­ple­ment, and blood pres­sure & pulse are both down.
• ALL fluid reten­tion is gone! I drop­ped 18 pounds the first month in just fluid weight.

Vale­rie is currently wai­ting for lab results to see if she needs to adjust further.

She conc­lu­des: I have since lear­ned that being hypothy­roid cau­ses potas­sium los­ses, as does ANY ste­roid which I had been on for neces­sary adre­nal sup­port. Dia­be­tes with a low carb diet also pre­dis­po­ses us to lose intra­ce­llu­lar potas­sium into the serum which is pro­bably why my serum labs loo­ked nor­mal in the face of extreme shor­tage. I hope many will see this and at the very least get RBC potas­sium labs done and if you have high BP or fluid reten­tion, reach for potas­sium before a diuretic!

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Even without being ins­pi­red by Valerie’s dis­co­very, there is good research out there for eating potas­sium rich foods, or like Vale­rie, using sup­ple­men­ta­tion if your levels are low.  The LA Times repor­ted a study which sta­ted that con­su­ming twice as much potas­sium as sodium might halve your risk of dying from car­dio­vas­cu­lar disease,  sta­ted by epi­de­mio­lo­gist Paul Whel­ton, pre­si­dent and chief exe­cu­tive of the Loyola Uni­ver­sity Health Sys­tem in Chi­cago and one of the authors of the study.

Here’s a list of potas­sium rich foods: http://www.hoptechno.com/bookfoodsourceK.htm

Here’s a list of symp­toms of low potas­sium: http://www.buzzle.com/articles/signs-and-symptoms-of-low-potassium.html

And remem­ber: ask your doc­tor to do an Red Blood Cell Potas­sium lab rather than simply serum. And don’t go as high as Vale­rie with sup­ple­men­ta­tion unless you have proof of low potassium.

P.S. Mag­ne­sium helps pump sodium out of your cells, and potas­sium into the cells – a good rea­son to get mag­ne­sium tes­ted as well. 

*Want to be infor­med of my blog posts? Curious what’s on my mind? Use the Noti­fi­ca­tions to the left and below the links.

*What is your expe­rience with the newly for­mu­la­ted Armour? Found a way to get around the pro­blems? Express your opi­nion in the May 7^th blog post!

In honor of 2009,  a year we hope to see bold chan­ges in the medi­cal sys­tem, Stop the Thy­roid Mad­ness pre­sents the Fif­teen Most Anno­ying Phra­ses From the Mouths of Doc­tors. (Note that the word “Armour” has been used for sim­pli­city sake; any prescription-grade desic­ca­ted thy­roid pro­duct can be inser­ted there.)

Here’s rai­sing our New Year’s stem­med glas­ses to change!

15) I’ll see you in eight weeks.
14) Here’s a script for [insert any non-thyroid medi­ca­tion to ban­daid con­ti­nuing hypo symp­tom]
13) The free T3 lab test is not neces­sary.
12) Your symp­toms do not warrant a thy­roid medi­ca­tion.
11) You’re tired because you are [insert any label like “a mother” “meno­pau­sal”, etc]
10) That has nothing to do with your thy­roid.
9) I can find nothing wrong with you.
8 ) You need to eat less and exer­cise more.
7) Your TSH is too low.
6) The TSH test is [insert any posi­tive desc­rip­tion, like “a relia­ble mar­ker” or “sen­si­tive mea­sure”]
5) I do not believe in Armour.
4) Armour is [insert any nega­tive adjective/description like “uns­ta­ble” or “hard to regu­late”]
3) You’re depres­sed.
2) You are hyper.

.…and tah-dah, the #1 most anno­ying phrase that comes out of the mouth of a doctor:

1) You are normal. 

I use those phra­ses often. I can’t help it. Because it’s exactly what doc­tors are when it comes to thy­roid treat­ment. It’s APPALLING.

Yes­ter­day, I had the first of two book sig­nings. It was announ­ced in the paper, and I wasn’t sure what the tur­nout would be. I shouldn’t have won­de­red. It was a great tur­nout. Peo­ple are GETTING IT that there is SOMETHING WRONG with their treat­ment. Around me stood seve­ral women, all still on T4 (Synth­roid, Levoxyl, et al), and ALL suf­fe­ring. All but one woman had weight pro­blems. Seve­ral had rising cho­les­te­rol. Some admit­ted to being on anti-depressants. Some obviously had adre­nal fati­gue. And ALL were being told by their doc­tors that their thy­roid treat­ment was now “nor­mal”. Where can I go beat my head against the wall?????? They were eager to get the book and the know­ledge it con­tai­ned to change their lives!

So far, the book has been sent to Nor­way, Ice­land, Bel­gium, UK, Aus­tria, Swe­den, Swi­tzer­land, Ire­land, Aus­tra­lia and Canada, besi­des all over the US. The STTM web­site star­ted the wheel to turn, and the book can only move it fas­ter. And add it to other thy­roid books which had begun to men­tion the truth (Broda Bar­nes being the first) as well as other groups and web­si­tes — we’ll even­tually knock some SENSE and SIGHT in doc­tors, don’t you think?

The Stop the Thy­roid Mad­ness book, the bible of correct thy­roid and adre­nal treat­ment, by patients for patients, can be orde­red here.

P.S. I live near one town which ser­ves a popu­la­tion of nearly 35,000 peo­ple, and near another of over 4000 peo­ple, and there are plenty of doc­tors around here. Yet, there is not ONE doc­tor in this area that “gets it”. I sym­pathize with YOU if you are in the same boat. 

I have a 40-something rela­tive who I’ve been get­ting to know bet­ter lately. When she found out I had writ­ten the STTM book, she got a copy and read it. Her eyes were appa­rently wide as to what she was rea­ding, espe­cially the Thy­roid Sti­mu­la­ting Hooey chap­ter. Turns out she has had fati­gue pro­blems for at least 14 years, right after her daugh­ter was born. And it shows in her eyes and demea­nor. But that’s not all. She’s con­ti­nually gai­ned weight all these years, even though she eats like a bird, and enough depres­sion to warrant an anti-depressant. She was also get­ting worried about her cho­les­te­rol. Typi­cal hypothy­roid symptoms.

And worse (any­body iden­tify with this?), she’s been told she is NORMAL for 14 years!!! Why? Because the TSH lab result said so. Tal­king about it brings her to tears. 

I sent her to a MUCH bet­ter and hope­ful doctor. 

In 2006, the World Health Orga­ni­za­tion defi­ned health as a state of com­plete phy­si­cal, men­tal and social well-being and not merely the absence of disease or infir­mity. So…if you stuck “nor­mal” in front of that defi­ni­tion of health, as igno­rant doc­tors so rou­ti­nely tell us we are, it means that we have the symp­toms expec­ted of one who is in com­plete phy­si­cal, men­tal and social well-being. THEN WHY DON’T WE FEEL THAT WAY?????

Yes­si­rree, somewhere along the medi­cal pers­pec­tive time­line, the abi­lity to pay atten­tion to CLINICAL PRESENTATION ran right down the sewer. And with that loss has come HUNDREDS OF MILLIONS of patients world­wide with the schi­zoph­re­nic diag­no­sis of “nor­mal” with raging symp­toms thanks to ink spots on a piece of paper called the erro­neous TSH range. Exactly why this web­site is neces­sary, as is the book and YOUR demands for bet­ter treatment. 

I was schi­zoph­re­ni­cally nor­mal for over 17 years. My rela­tive has been for 14. How about YOU?

I’m sick. I’m tired. I feel awful. I’ll go the my doc’s office for help.