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	<title>Stop The Thyroid Madness &#187; thyroid</title>
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	<link>http://www.stopthethyroidmadness.com</link>
	<description>Not just another Thyroid site</description>
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		<title>How are YOU doing with the current desiccated thyroid shortages?</title>
		<link>http://www.stopthethyroidmadness.com/2009/11/06/how-are-you-doing/</link>
		<comments>http://www.stopthethyroidmadness.com/2009/11/06/how-are-you-doing/#comments</comments>
		<pubDate>Fri, 06 Nov 2009 21:02:00 +0000</pubDate>
		<dc:creator>Janie</dc:creator>
				<category><![CDATA[Armour]]></category>
		<category><![CDATA[desiccated thyroid]]></category>
		<category><![CDATA[fda]]></category>
		<category><![CDATA[shortages of desiccated thyroid]]></category>
		<category><![CDATA[1938]]></category>
		<category><![CDATA[2009]]></category>
		<category><![CDATA[acidophiles]]></category>
		<category><![CDATA[canada]]></category>
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		<category><![CDATA[clinical trials]]></category>
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		<category><![CDATA[coalition for desiccated thyroid]]></category>
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		<category><![CDATA[compounded]]></category>
		<category><![CDATA[erfa]]></category>
		<category><![CDATA[forest labs]]></category>
		<category><![CDATA[grandfatthered]]></category>
		<category><![CDATA[hypothyroid symptoms]]></category>
		<category><![CDATA[lyn]]></category>
		<category><![CDATA[methyl cellolose]]></category>
		<category><![CDATA[microcrystalline cellulose]]></category>
		<category><![CDATA[natural desiccated thyroid]]></category>
		<category><![CDATA[natural thyroid choices]]></category>
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		<category><![CDATA[sheila]]></category>
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		<category><![CDATA[stop the thyroid madness]]></category>
		<category><![CDATA[sttm]]></category>
		<category><![CDATA[sublingual]]></category>
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		<category><![CDATA[synthetic t3]]></category>
		<category><![CDATA[synthetic t4]]></category>
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		<category><![CDATA[thyroid]]></category>
		<category><![CDATA[thyroid uk]]></category>
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		<guid isPermaLink="false">http://www.stopthethyroidmadness.com/?p=3904</guid>
		<description><![CDATA[
(This post garnered a lot of attention, up to FIFTY comments just a few hours after it went up. People are very interested in sharing their experiences in coping with the shortages! See below and add your own.)
This year will go down in history as shockingly miserable for enlightened thyroid patients on natural desiccated thyroid.
First [...]]]></description>
			<content:encoded><![CDATA[<p><img class="alignleft size-full wp-image-3910" title="Pills Spilled Shortages" src="http://www.stopthethyroidmadness.com/wp/../images/Pills-Spilled-Shortages.jpg" alt="Pills Spilled Shortages" width="145" height="133" /></p>
<p><em>(This post garnered a lot of attention, up to FIFTY comments just a few hours after it went up. People are very interested in sharing their experiences in coping with the shortages! See below and add your own.)</em></p>
<p>This year will go down in history as shockingly miserable for enlightened thyroid patients on <a href="/natural-thyroid-101/">natural desiccated thyroid</a>.</p>
<p><strong><em>First</em> came a reformulation in the most popular brand&#8211;Armour by Forest Labs.</strong> Patients worldwide in groups and forums reported a serious return of their hypothyroid symptoms on this product. A huge disappointment.</p>
<p><strong><em>Second</em> came the production shutdown of the two generic makers of desiccated thyroid: Time Caps Labs and Major Pharmaceuticals.</strong> It&#8217;s the first step in the FDA&#8217;s <a href="http://www.fda.gov/ICECI/ComplianceManuals/CompliancePolicyGuidanceManual/ucm074382.htm">compliance plan</a> to corral all grandfathered-in drugs (drugs already in existence when the the FDA was created in 1938) and make them each prove the efficacy and safety of their medication via very expensive clinical trials.  <em>i.e. over 110 years of safe and effective use of desiccated thyroid is not enough for the FDA?? </em>We are still waiting to see the outcome of that plan with RLC  and Forest Labs.&#8211;the two who were actually in existence before 1938. <em><br />
</em></p>
<p><strong><em>Third</em> came demand being greater than supply and shortages. </strong> Because of informative patient websites like Stop the Thyroid Madness,  Sheila&#8217;s TPA-UK, Lyn&#8217;s ThyroidUK, Stephanie&#8217;s Natural Thyroid Choices, some areas of about.com (and other good websites I don&#8217;t mean to miss here), plus many fine <a href="/talk-to-others/">patient forums and groups</a>,  patients found out why they had <a href="/long-and-pathetic/">continuing symptoms</a> on <a href="/t4-only-meds-dont-work/">T4</a> thyroxine, and demand for natural desiccated thyroid grew exponentially.</p>
<p>STTM then created a <a href="/options-for-thyroid-treatment/">list of options</a> for all thyroid patients until the shortages resolved themselves, and also created <a href="http://health.groups.yahoo.com/group/CoalitionForDesiccatedThyroid/?yguid=402420630">CDT (Coalition for Desiccated Thyroid) </a>where patients could discuss alternatives in a supportive and factual atmosphere.</p>
<p>And we&#8217;ve seen some interesting experiences and comments:</p>
<p><strong>The new Armour: </strong>One grain tabs started to appear on some pharmacy shelves the past month.  Other pharmacies have still been waiting.  Many patients appear to have switched to other alternatives, though. One gal still on it feels she is finding success by adding T3 to the amount of new Armour she is on.  Time will tell if patients can ever find success with the newly formulated Armour, and most feel it&#8217;s a huge loss.</p>
<p><strong>Naturethroid and Westhroid: </strong>Patients reporting on their switch to either of RLC Lab&#8217;s two identical products report doing well, having to raise it slightly or lower it slightly, or just not liking them at all. Others have had a hard time finding it on their pharmacy shelves, but have been seeing some appear in the last few weeks.</p>
<p><strong>Erfa&#8217;s Thyroid from Canada: </strong>When it became clear that the FDA was allowing this excellent product to be shipped to patients, many switched and had their prescriptions faxed to a Canadian pharmacy. Prices at many of those pharmacy websites were doubled after prescriptions started to come in from the US. Most patient who stuck with it seem to love it, reporting you can do it <a href="/sublingual/">sublingually</a>, as well. A few haven&#8217;t been impressed, but were finding their former success by raising it.</p>
<p><strong>Compounded desiccated thyroid: </strong>In spite of being a more expensive option, some patients found success with this. Others learned they preferred the filler to be Acidophiles.  If not the latter, Microcrystalline Cellulose was preferred over Methyl Cellulose&#8211;the latter which appeared to lessen the effectiveness of the compounded thyroid.</p>
<p><strong>Synthetic T4 and Synthetic T3:</strong> some patients switched back to the synthetic combination, but many report that it hasn&#8217;t been as effective as desiccated thyroid was.</p>
<p><strong>Other options: </strong>Patients moved to OTC products like Nutri-Meds, etc, which can be much weaker. Others sought desiccated thyroid from other countries and have found success.</p>
<p><strong>So I&#8217;d like to hear from all of you.   Did you go back to synthetic T4?  What desiccated thyroid did you switch to? What worked and why? What didn&#8217;t work for you and why?  What product do you hope to switch to once you run out of your current meds?</strong></p>
<p><strong>**************************************<br />
</strong></p>
<p><em>*Want to be infor­med of these ‘fringe web­site’ blog posts?   <img src='http://www.stopthethyroidmadness.com/wp/wp-includes/images/smilies/icon_wink.gif' alt=';-)' class='wp-smiley' />   Curious what’s on radi­cal Janie’s mind? Just use the Noti­fi­ca­tions on the left below the links.<br />
</em></p>
<p><em> </em><em>* The extre­mely hip and sophis­ti­ca­ted <a href="../../2009/09/t-shirt/">STTM t-shirts</a> are half price! I love sales! Spread the word!<br />
</em></p>
<p><em> </em><em>* Pre­fer STTM in book form with more detail? You can read about it <a href="../../book/">here</a>.</em></p>
<p><strong><em>*Need options for thy­roid treat­ment during the current shor­ta­ges due to demand being grea­ter than supply? Go <a href="../../options-for-thyroid-treatment/">here</a>.</em></strong></p>
]]></content:encoded>
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		<slash:comments>89</slash:comments>
		</item>
		<item>
		<title>Is there a genetic reason many of us do lousy on T4?</title>
		<link>http://www.stopthethyroidmadness.com/2009/10/28/is-there-a-genetic-reason-many-of-us-do-lousy-on-t4/</link>
		<comments>http://www.stopthethyroidmadness.com/2009/10/28/is-there-a-genetic-reason-many-of-us-do-lousy-on-t4/#comments</comments>
		<pubDate>Wed, 28 Oct 2009 16:10:29 +0000</pubDate>
		<dc:creator>Janie</dc:creator>
				<category><![CDATA[Research studies]]></category>
		<category><![CDATA[desiccated thyroid]]></category>
		<category><![CDATA[endocrinology]]></category>
		<category><![CDATA[5'-deiodinase]]></category>
		<category><![CDATA[5'deiodinase]]></category>
		<category><![CDATA[alanine]]></category>
		<category><![CDATA[alteration]]></category>
		<category><![CDATA[antonio c. bianco]]></category>
		<category><![CDATA[brian w. kim]]></category>
		<category><![CDATA[bristol]]></category>
		<category><![CDATA[calcitonin]]></category>
		<category><![CDATA[cytomel]]></category>
		<category><![CDATA[d2]]></category>
		<category><![CDATA[deiodinase]]></category>
		<category><![CDATA[dna]]></category>
		<category><![CDATA[dr. gary pepper]]></category>
		<category><![CDATA[endo]]></category>
		<category><![CDATA[endocrinologist]]></category>
		<category><![CDATA[endocrinologists]]></category>
		<category><![CDATA[enzymatic activity]]></category>
		<category><![CDATA[enzyme]]></category>
		<category><![CDATA[erfa]]></category>
		<category><![CDATA[gary pepper md]]></category>
		<category><![CDATA[genetic abnormality]]></category>
		<category><![CDATA[l-thyroxine]]></category>
		<category><![CDATA[l-thyroxine replacement might not be enough: a genetic rationale]]></category>
		<category><![CDATA[levothyroxine]]></category>
		<category><![CDATA[levoxyl]]></category>
		<category><![CDATA[natural desiccated thyroid]]></category>
		<category><![CDATA[polymorphism]]></category>
		<category><![CDATA[selenium]]></category>
		<category><![CDATA[stop the thyroid madness]]></category>
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		<category><![CDATA[synthetic t4]]></category>
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		<category><![CDATA[t4-only medications]]></category>
		<category><![CDATA[threonine]]></category>
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		<category><![CDATA[Thyroid Patient Community Call]]></category>
		<category><![CDATA[tsh]]></category>
		<category><![CDATA[type 2]]></category>
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		<category><![CDATA[united kingdom]]></category>

		<guid isPermaLink="false">http://www.stopthethyroidmadness.com/?p=3825</guid>
		<description><![CDATA[Last May, a very interesting article appeared in the May 2009 issue of the Journal of Clinical Endocrinology and Metabolism, titled For Some, L-Thyroxine Replacement Might Not Be Enough: A Genetic Rationale and presented by Endocrinologists in Bristol in the UK. It&#8217;s accompanied with an editorial by Endocrinologists Brian W. Kim and Antonio C. Bianco.
This [...]]]></description>
			<content:encoded><![CDATA[<p><img class="alignleft size-full wp-image-3835" title="deiodinase2" src="http://www.stopthethyroidmadness.com/wp/../images/deiodinase2.jpg" alt="deiodinase2" width="135" height="101" />Last May, a very interesting article appeared in the May 2009 issue of the Journal of Clinical Endocrinology and Metabolism, titled <strong>For Some, L-Thyroxine Replacement Might Not Be Enough: A Genetic Rationale </strong>and presented by Endocrinologists in Bristol in the UK. It&#8217;s accompanied with an editorial by Endocrinologists Brian W. Kim and Antonio C. Bianco.</p>
<p>This is the same article referred to by Endocrinologist Dr. Gary Pepper on the last Thyroid Patient Community Call on <a href="http://www.talkshoe.com/talkshoe/web/talkCast.jsp?masterId=62603&amp;cmd=tc">Talkshoe</a>.</p>
<p><strong>Basically, the article states that a genetic variation in the enzyme that converts T4 to T3, <em>deiodinase D2</em> (also called Type 2 Deiodinase, or 5&#8242;-Deiodinase), may be responsible for why so many thyroid patients don&#8217;t do well on Synthroid, Levoxyl, levothyroxine, etc, and in turn, do so much better on <a href="/natural-thyroid-101/">natural desiccated thyroid</a> like Naturethroid, Erfa&#8217;s Thyroid, or the combined synthetic T4 and synthetic T3 (Cytomel). </strong></p>
<p>In other words, where some may have a strongly functioning deiodinase D2 enzyme which converts T4 to the active T3 well,  others may have a modified deiodinase D2 enzyme, causing less optimal conversion.</p>
<p>In the Editorial, the two Endos  Kim and  Bianco explain the reality of &#8220;polymorphism&#8221;&#8211;a condition in nature in which changes or variations occur, and in one patient from another,  a change in the DNA.  As related to conversion of T4 to T3,  some thyroid patients have a less effective deiodinase D2 enzyme in the conversion of T4 to T3.  Specifically, there is a  common variant of the gene, threonine (Thr)<sup> </sup>92 alanine (Ala), and it results in  decreased<sup> </sup>D2 enzymatic activity.</p>
<p>The study proposes that this alteration from polymorphism  occurs in 16% of those studied, and concludes that the majority don&#8217;t have this problem, and thus, &#8220;most do fine on T4-only medications&#8221;. But 16% do have this problem and need the combined therapy of T4 with T3.</p>
<p>Bristol was also mentioning this reality in 2004 <a href="http://www.endocrinology.org/education/resource/EndocrineNurseCourse/ent04/ent04_day3.htm">here</a>, even if they thought it was as low as 5%.</p>
<p><strong>As Dr. Pepper hinted, this study could do wonders to open the eyes of Endocrinologists about the use of desiccated thyroid, or at the very least, about combined hypothyroid treatment with synthetic T3 added to synthetic T4.  And I&#8217;m glad for that when so many patients have found Endocrinologists to be narrow-mindedly stuck on Synthroid or other T4-only thyroxine products.</strong></p>
<p>Of course, informed thyroid patients know this is only a baby step in the right direction, even if a good one! So we&#8217;ll rejoice for this study, and watch for more progress from the medical community and Endocrinology in general.  For example, saying that &#8220;most do fine on T4&#8243; simply because they have may a non-variation might be proven wrong as physicians take the time to really look at those &#8220;fine&#8221; patients, especially as they age and <a href="/long-and-pathetic/">symptoms of an inferior treatment</a> do pop up. And though the combination of synthetic T3 with synthetic T4 definitely gives better results, thyroid patients who then moved to desiccated thyroid with it&#8217;s T4, T3, T2, T1 and calcitonin report even better results and clinical presentation!  We&#8217;ve also learned that the TSH lab test absolutely sucks when it comes to diagnosis and treatment.  Read <a href="/tsh-why-its-useless/">TSH Why It&#8217;s Useless</a>, or see even more detail in Chapter Four of the <a href="/bookj/">STTM book</a>, titled Thyroid Stimulating Hooey.</p>
<p>And finally: do thyroid patients really believe that problems with T4-only treatment is  simply due to a genetic abnormality or variation? Maybe. But isn&#8217;t it funny that a healthy human thyroid does NOT depend solely on conversion, but also gives direct T3. hmmmmmm</p>
<p>P.S.  Patients also know that the use of the supplement Selenium helps with conversion, by the way, but has never stopped our first-hand knowledge that desiccated thyroid rocks!</p>
<p><em>*Want to be infor­med of these ‘fringe web­site’ blog posts?  <img src="../../wp-includes/images/smilies/icon_lol.gif" alt=":lol:" /> Curious what’s on radi­cal Janie’s mind? Just use the Noti­fi­ca­tions on the left below the links.<br />
</em></p>
<p><em> </em><em>* The extre­mely hip and sophis­ti­ca­ted <a href="../../2009/09/t-shirt/">STTM t-shirts</a> are half price! I love sales!<br />
</em></p>
<p><em> </em><em>* Pre­fer STTM in book form with more detail? You can read about it <a href="../../book/">here</a>.</em></p>
<p><strong><em>*Need options for thy­roid treat­ment during the current shor­ta­ges due to demand being grea­ter than supply? Go <a href="../../options-for-thyroid-treatment/">here</a>.</em></strong></p>
]]></content:encoded>
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		<slash:comments>7</slash:comments>
		</item>
		<item>
		<title>Australia is adding iodine to their bread</title>
		<link>http://www.stopthethyroidmadness.com/2009/10/11/australia-iodine-bread/</link>
		<comments>http://www.stopthethyroidmadness.com/2009/10/11/australia-iodine-bread/#comments</comments>
		<pubDate>Mon, 12 Oct 2009 00:44:31 +0000</pubDate>
		<dc:creator>Janie</dc:creator>
				<category><![CDATA[Around the world]]></category>
		<category><![CDATA[australia]]></category>
		<category><![CDATA[iodine]]></category>
		<category><![CDATA[50 mg.]]></category>
		<category><![CDATA[abraham]]></category>
		<category><![CDATA[brownstein]]></category>
		<category><![CDATA[compounded thyroid]]></category>
		<category><![CDATA[desiccated thyroid shortages]]></category>
		<category><![CDATA[detox]]></category>
		<category><![CDATA[developmental delay]]></category>
		<category><![CDATA[early childhood]]></category>
		<category><![CDATA[emergen c]]></category>
		<category><![CDATA[erfa]]></category>
		<category><![CDATA[fdanz]]></category>
		<category><![CDATA[flechas]]></category>
		<category><![CDATA[food stands authority]]></category>
		<category><![CDATA[goiter belt]]></category>
		<category><![CDATA[hashimotos]]></category>
		<category><![CDATA[immune system]]></category>
		<category><![CDATA[infant]]></category>
		<category><![CDATA[iodine4health]]></category>
		<category><![CDATA[magnesium]]></category>
		<category><![CDATA[micronutrient]]></category>
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		<category><![CDATA[new zealand]]></category>
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		<category><![CDATA[stephanie buist]]></category>
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		<category><![CDATA[yahoo group]]></category>
		<category><![CDATA[yahoo group iodine]]></category>

		<guid isPermaLink="false">http://www.stopthethyroidmadness.com/?p=3748</guid>
		<description><![CDATA[On the heels of an excellent Thyroid Patient STTM Community Call on iodine with guest Stephanie Buist (see below), it was just announced by the Food Standards Authority of Australia and New Zealand (FSANZ) that Australia will add the micronutrient iodine to bread. New Zealand already started that practice in September of last year. 
The [...]]]></description>
			<content:encoded><![CDATA[<p><strong><img class="alignleft size-full wp-image-3757" title="kangaroo" src="http://www.stopthethyroidmadness.com/wp/../images/kangaroo2.jpg" alt="kangaroo" width="127" height="116" />On the heels of an excellent Thyroid Patient STTM Community Call on iodine with guest Stephanie Buist (see below), it was just announced by the <a href="http://www.foodstandards.gov.au/newsroom/mediareleases/mediareleases2009/8october2009essentia4477.cfm">Food Standards Authority of Australia and New Zealand (FSANZ)</a> that Australia will add the micronutrient iodine to bread. New Zealand already started that practice in September of last year. </strong></p>
<p>The announcement mentions the importance of iodine to thyroid functioning, as well as for infant brain and nervous system, both during and after pregnancy.  For the latter, it states <em>&#8220;Not having enough iodine during pregnancy and early childhood can cause developmental delay and lead to reductions in mental performance. This damage prior to 2-3 years of age is irreversible.&#8221;</em></p>
<p>Apparently, the  soils of Australia and New Zealand are not too prolific in iodine, and patient levels have been revealing that fact for decades. But Stephanie Buist, the friendly and knowledgeable owner of the <a href="http://health.groups.yahoo.com/group/iodine/">yahoo group Iodine</a>, as well as a thyroid cancer survivor, states that even most US soils are becoming depleted.  It&#8217;s not just a problem of the northern US &#8220;goiter belt&#8221;, Europe or Africa anymore.</p>
<p><em>The importance of iodine goes even farther than thyroid functioning, pregnancy and infant brain development. It has a key role in breast health, your immune system, bones, estrogen metabolism, lung health, eyes, and cancer prevention. </em> The iodine4health <a href="http://iodine4health.com/body/body.htm">website</a> lists many benefits as well as areas not understood yet.</p>
<p><strong>How much do we need? </strong>Experts like Abraham, Flechas and Brownstein will emphatically state that we probably need more than is recommended.  At least 50 mg of iodine may be necessary for awhile to bring your levels back up to healthy amounts, besides stop the the side effects of iodine on hashimotos disease.  i.e. thinking you are getting enough iodine naturally from foods, or even from natural desiccated thyroid like Naturethroid, Erfa&#8217;s Thyroid, or compounded, may not be so.</p>
<p><strong>How do you find out if you are iodine deficient?</strong> Stephanie stated on the Community Call that the majority of folks probably are deficient. But if you want to be sure, you can do the <a href="http://iodine4health.com/ortho/iodine_loading_test.htm">Iodine Loading Test</a>.</p>
<p><strong>What are good iodine supplements? </strong>Lugols is an liquid variety, and my husband and I personally use it in our morning juice or Emergen C (my husband uses Emergen C in water since he&#8217;s diabetic, and it&#8217;s a good way for him to get his Vitamin C).   In pill form is Iodoral, developed by Abraham.  You can google either and find some website sources. Also good to take with iodine supplementation is magnesium, Vitamin C, and selenium, which helps with the detox effects.</p>
<p>You can listen to the recording of Stephanie&#8217;s and my conversion on iodine by going to the link below for Episode 5 of the Thyroid Patient STTM Community Call. (Yes, I will correct the skipping you hear in my voice next time.)</p>
<p>Read <a href="/stories-of-others/dianas-story/">Diana&#8217;s experience</a> with iodine helping her get off desiccated thyroid. Not something we can all do, but it happened to her!</p>
<p><em>*Want to be infor­med of these ‘fringe web­site’ blog posts?   <img src='http://www.stopthethyroidmadness.com/wp/wp-includes/images/smilies/icon_lol.gif' alt=':lol:' class='wp-smiley' />     Curious what’s on radi­cal Janie’s mind? Just use the Noti­fi­ca­tions on the left below the links.<br />
</em></p>
<p><em> </em><em>* The extre­mely hip and sophis­ti­ca­ted <a href="../../2009/09/t-shirt/">STTM t-shirts</a> are half price! I love sales!<br />
</em></p>
<p><em> </em><em>* Pre­fer STTM in book form with more detail? You can read about it <a href="../../book/">here</a>.</em></p>
<p><strong><em>*Need options for thy­roid treat­ment during the current shor­ta­ges due to demand being greater than supply? Go <a href="../../options-for-thyroid-treatment/">here</a>.</em></strong></p>
]]></content:encoded>
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		<slash:comments>5</slash:comments>
		</item>
		<item>
		<title>FDA is not requiring form when you order Erfa&#8217;s Thyroid</title>
		<link>http://www.stopthethyroidmadness.com/2009/09/29/fda-form-not-required-with-erfa/</link>
		<comments>http://www.stopthethyroidmadness.com/2009/09/29/fda-form-not-required-with-erfa/#comments</comments>
		<pubDate>Tue, 29 Sep 2009 20:22:27 +0000</pubDate>
		<dc:creator>Janie</dc:creator>
				<category><![CDATA[desiccated thyroid]]></category>
		<category><![CDATA[shortages of desiccated thyroid]]></category>
		<category><![CDATA[Armour]]></category>
		<category><![CDATA[australia]]></category>
		<category><![CDATA[australians]]></category>
		<category><![CDATA[canadian desiccated thyroid]]></category>
		<category><![CDATA[compounded]]></category>
		<category><![CDATA[erfa]]></category>
		<category><![CDATA[fda]]></category>
		<category><![CDATA[forest labs]]></category>
		<category><![CDATA[form 1572]]></category>
		<category><![CDATA[iodine]]></category>
		<category><![CDATA[levothyroxine]]></category>
		<category><![CDATA[levoxyl]]></category>
		<category><![CDATA[natural desiccated thyroid]]></category>
		<category><![CDATA[natural thyroid]]></category>
		<category><![CDATA[naturethroid]]></category>
		<category><![CDATA[prescription]]></category>
		<category><![CDATA[RLC labs]]></category>
		<category><![CDATA[sterphanie buist]]></category>
		<category><![CDATA[synthroid]]></category>
		<category><![CDATA[t4]]></category>
		<category><![CDATA[talk shoe]]></category>
		<category><![CDATA[talkshoe]]></category>
		<category><![CDATA[thyroid]]></category>
		<category><![CDATA[westhroid]]></category>

		<guid isPermaLink="false">http://www.stopthethyroidmadness.com/?p=3643</guid>
		<description><![CDATA[Sometimes there is a silver lining with the storm cloud of backordered US desiccated thyroid.
Erfa, the makers of the Canadian version of natural desiccated thyroid, simply called &#8220;Thyroid&#8221;, has recently announced that the FDA is not requiring the extensive FDA Form 1572 from US citizens and their doctors when they fill their prescriptions from Erfa [...]]]></description>
			<content:encoded><![CDATA[<p><img class="alignleft size-full wp-image-3646" title="CloudSilverLining" src="http://www.stopthethyroidmadness.com/wp/../images/CloudSilverLining.JPG" alt="CloudSilverLining" width="150" height="100" />Sometimes there is a silver lining with the storm cloud of backordered US desiccated thyroid.</p>
<p><strong>Erfa, the makers of the Canadian version of <a href="/natural-thyroid-101/">natural desiccated thyroid,</a> simply called &#8220;Thyroid&#8221;, has recently announced that the FDA is not requiring the extensive FDA Form 1572 from US citizens and their doctors when they fill their prescriptions from Erfa directly. i.e. it&#8217;s now a lot easier to get your prescription filled directly from them.</strong></p>
<p><a href="http://www.erfa-sa.com/thyroid_usa.htm">http://www.erfa-sa.com/thyroid_usa.htm</a></p>
<p>And those who have started to use Erfa&#8217;s Thyroid report being quite pleased. A cherry on top is that Thyroid has that old sweet taste we used to all like with the old Armour, and it can be done <a href="/sublingual/">sublingually</a> as well! You can see the ingredients <a href="/armour-vs-other-brands/">here</a>.</p>
<p>Also, I am continuing to get emails from patients that both Armour and Naturethroid is starting to appear on pharmacy shelves, even if in small quantities.  I&#8217;m personally not too excited about Armour reappearing if Forest continues to make the reformulated version. Just too many patients reporting a return of hypo symptoms, even when they raise it, plus new symptoms of undertreatment and/or challenged adrenals thanks to the reformulated version. Sad. Oh how we will all miss the old Armour.</p>
<p>In the meantime, here are <a href="/options-for-thyroid-treatment/">options for thyroid treatment</a> we all have until we see a good return of desiccated thyroid, including Naturethroid and Westhroid. They are all far, far better than being on T4 alone like Synthroid, Levoxyl, levothyroxine, et al. You&#8217;ll also note compounded thyroid, which can be a good option, and you can read about on a <a href="http://www.stopthethyroidmadness.com/2009/09/19/compounded-natural-desiccated-thyroid/">recent blog post</a>.  Australians happily use compounded in their own country. Any option you and <a href="/how-to-find-a-good-doc/">your doctor</a> choose may mean a readjustment by your body, by the way.</p>
<p>Want to talk to other patients on how they are dealing with the shortages? Join the <a href="http://health.groups.yahoo.com/group/CoalitionForDesiccatedThyroid/">Coalition for Desiccated Thyroid</a>.  Or if you simply need patient feedback about your hypothyroidism, go to the<a href="/talk-to-others/"> Talk to Others</a> page.  Remember that no patient group is meant to be a substitute for your relationship with your doctor.</p>
<p>**The next Thyroid Patient Community Call will be held Thursday Oct. 8th on <a href="http://www.talkshoe.com/talkshoe/web/talkCast.jsp?masterId=62603&amp;cmd=tc">TalkShoe</a>, and our topic will be iodine and your thyroid with patient expert Stephanie Buist. Come join us and listen right on your computer, or you can also talk live to Stephanie or Janie with your questions.</p>
<p><em>*Want to be infor­med of these &#8216;fringe web­site&#8217; blog posts? Curious what’s on radical Janie’s mind? Just use the Noti­fi­ca­tions on the left below the links. <img src="../wp-includes/images/smilies/icon_wink.gif" alt=":wink:" /><br />
</em></p>
<p><em>* The extre­mely hip and sophis­ti­ca­ted <a href="../../2009/09/t-shirt/">STTM t-shirts</a> are half price! I love sales!</em></p>
<p><em>* Prefer STTM in book form with more detail? You can read about it <a href="/book/">here</a>.<br />
</em></p>
]]></content:encoded>
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		<slash:comments>19</slash:comments>
		</item>
		<item>
		<title>Interesting information about Compounded Natural Desiccated Thyroid</title>
		<link>http://www.stopthethyroidmadness.com/2009/09/19/compounded-natural-desiccated-thyroid/</link>
		<comments>http://www.stopthethyroidmadness.com/2009/09/19/compounded-natural-desiccated-thyroid/#comments</comments>
		<pubDate>Sat, 19 Sep 2009 13:00:27 +0000</pubDate>
		<dc:creator>Janie</dc:creator>
				<category><![CDATA[hypothyroidism]]></category>
		<category><![CDATA[acidophiles]]></category>
		<category><![CDATA[active culture]]></category>
		<category><![CDATA[American Laboratories]]></category>
		<category><![CDATA[compounded desiccated thyroid]]></category>
		<category><![CDATA[compounding pharmacy]]></category>
		<category><![CDATA[Evansville indiana]]></category>
		<category><![CDATA[flora]]></category>
		<category><![CDATA[forest labs]]></category>
		<category><![CDATA[Hooks Apothecary]]></category>
		<category><![CDATA[john voliva]]></category>
		<category><![CDATA[one grain]]></category>
		<category><![CDATA[pcca]]></category>
		<category><![CDATA[pharmacy]]></category>
		<category><![CDATA[pharmacy compounding accreditation board]]></category>
		<category><![CDATA[professional compounding centers of america]]></category>
		<category><![CDATA[t3]]></category>
		<category><![CDATA[t4]]></category>
		<category><![CDATA[talk shoe]]></category>
		<category><![CDATA[talkshoe]]></category>
		<category><![CDATA[thyroid]]></category>
		<category><![CDATA[transdermal]]></category>
		<category><![CDATA[trouche]]></category>

		<guid isPermaLink="false">http://www.stopthethyroidmadness.com/?p=3573</guid>
		<description><![CDATA[We had a great Thyroid Patient Community Call Friday night on TalkShoe with John Voliva, RPh, the President of Hooks Apothecary in Evansville, Indiana. Hooks Apothecary is a compounding-only pharmacy that has been in existence for ten years and is a small and high quality family-owned business.
And with our current shortage of desiccated thyroid via [...]]]></description>
			<content:encoded><![CDATA[<p>We had a great Thyroid Patient Community Call Friday night on TalkShoe with <strong>John Voliva, RPh, the President of Hooks Apothecary in Evansville, Indiana</strong>. Hooks Apothecary is a compounding-only pharmacy that has been in existence for ten years and is a small and high quality family-owned business.</p>
<p>And with our current shortage of desiccated thyroid via the tablets we were used to, compounding pharmacies are a good alternative in the meantime. Here&#8217;s what we learned from Mr. Voliva:</p>
<p>1) Different compounding pharmacies will use different fillers. Hooks Apothecary, for example, uses powdered acidophiles, the &#8220;active culture&#8221; which helps replace the good flora in your gut  and improves digestion.</p>
<p>2) Compounded desiccated thyroid can be more expensive for two reasons: they acquire smaller amounts of the powder as compared to the huge amounts obtained by a pharmaceutical like Forest, and it takes time to compound it.</p>
<p>3) A good compounding pharmacy will give you the Certificate of Analysis right when you ask for it, and you should ask for it. This Certificate will tell you how much T4 and T3 is in one grain..and it&#8217;s not always simply 38/9 mcg.  It could be 35/8.6 or 39/8.5 per grain&#8230;for example.   Find out because there are allowed deviations of 10 mcg +-.  A really good pharmacy will shoot for an even better deviation and will also produce that Certificate right when you ask for it, not a day later. To not receive that documentation right when you ask implies they really weren&#8217;t paying much attention to the deviation.</p>
<p>4) A compounding pharmacy will get better deviations when they create a 65 mg grain of compounded desiccated thyroid than when they create a 60 mg grain.</p>
<p>5) Top notch Compounding Pharmacies will be accredited by, or be close to completing the steps towards,  the <a href="http://www.pcab.info/">Pharmacy Compounding Accreditation Board</a>.</p>
<p>6) Compounding pharmacies can&#8217;t make a desiccated thyroid trouche because of the problems with heat in the processing of the trouche.</p>
<p>7) Mr. Voliva feels it would be too easy to overdose with transdermal (on the skin) desiccated thyroid.</p>
<p>8 ) Compounding pharmacies, via their 5-6 distributors, get the powder from American Laboratories.  But not all compounding pharmacies will be as diligent as others to make sure the deviation is closer to 5%.</p>
<p>9) If the compounding pharmacy is getting their powder via the distributor <a href="http://www.pccarx.com/aboutus.aspx">PCCA</a> (Professional Compounding Centers of America), you can be assured you are getting a good product.  Ask the pharmacist where they are getting it.</p>
<p>10) Compounding pharmacies generally have plenty of desiccated thyroid powder.</p>
<p>My apologies to a group of callers whose chat questions I wasn&#8217;t able to see. I have sent a question about that to Talk Shoe&#8217;s Customer Support to find an answer before the next Community Call. But on the good side,  the audio worked on everyone&#8217;s computer.</p>
<p><strong>Need alternatives during this shortage time? Here are <a href="/options-for-thyroid-treatment/">options</a> you can consider. </strong></p>
<p><em>*Want to be infor­med of these fringe web­site blog posts? Curious what’s on unpro­fes­sio­nal Janie’s mind? Just use the Noti­fi­ca­tions on the left below the links. <img src='http://www.stopthethyroidmadness.com/wp/wp-includes/images/smilies/icon_wink.gif' alt=':wink:' class='wp-smiley' /><br />
</em></p>
<p><em>* The extre­mely hip and sophis­ti­ca­ted <a href="../../t-shirt/">STTM t-shirts</a> are half price! I love sales!</em></p>
]]></content:encoded>
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		<slash:comments>7</slash:comments>
		</item>
		<item>
		<title>Erfa&#8217;s Canadian &#8220;Thyroid&#8221; &#8212; more details</title>
		<link>http://www.stopthethyroidmadness.com/2009/09/02/erfas-canadian-thyroid-details/</link>
		<comments>http://www.stopthethyroidmadness.com/2009/09/02/erfas-canadian-thyroid-details/#comments</comments>
		<pubDate>Wed, 02 Sep 2009 21:03:40 +0000</pubDate>
		<dc:creator>Janie</dc:creator>
				<category><![CDATA[hypothyroidism]]></category>
		<category><![CDATA[1572]]></category>
		<category><![CDATA[belgium]]></category>
		<category><![CDATA[desiccated natural thyroid]]></category>
		<category><![CDATA[desiccated thyroid]]></category>
		<category><![CDATA[erfa]]></category>
		<category><![CDATA[fda]]></category>
		<category><![CDATA[FDA document 1572]]></category>
		<category><![CDATA[federal drug administraion]]></category>
		<category><![CDATA[henri knafo md]]></category>
		<category><![CDATA[thyroid]]></category>
		<category><![CDATA[United states Phramceopoeia]]></category>
		<category><![CDATA[usp]]></category>

		<guid isPermaLink="false">http://www.stopthethyroidmadness.com/?p=3441</guid>
		<description><![CDATA[On my August 26th blog post below, I reported good information about US patients being able to use their doctor&#8217;s prescription to order the Canadian version of natural desiccated thyroid called simply &#8220;Thyroid&#8221; by Erfa.
And here&#8217;s more:
In each Erfa 30 mg tablet embossed “ECI 30”, there is 18 mcg. of T4 and 4 mcg. of [...]]]></description>
			<content:encoded><![CDATA[<p><img class="alignleft size-full wp-image-3442" title="erfathyroid" src="http://www.stopthethyroidmadness.com/wp/../images/erfathyroid4.jpg" alt="erfathyroid" width="94" height="150" />On my <a href="http://www.stopthethyroidmadness.com/2009/08/26/more-good-info-on-erfa/">August 26th blog post</a> below, I reported good information about US patients being able to use their doctor&#8217;s prescription to order the Canadian version of natural desiccated thyroid called simply &#8220;Thyroid&#8221; by Erfa.</p>
<p>And here&#8217;s more:</p>
<p><strong>In each Erfa 30 mg tablet embossed “ECI 30”, there is 18 mcg. of T4 and 4 mcg. of T3;</strong></p>
<p><strong>In each Erfa 60 mg tablet embossed “ECI 60”, there is 35 mcg. of T4 and 8 mcg. of T3;</strong></p>
<p><strong>In each Erfa 125 mg tablet embossed “ECI 125”, there is 73 mcg. of T4 and 17 mcg. of T3.</strong></p>
<p>Erfa&#8217;s very friendly and helpful Medical Director, Henri Knafo, MD, states that they follow the USP (United States Pharmacopoeia) specifications. But  I do see some slight differences.  The USP specifications ratio for one grain that we are used to in the US is 38 mcg. T4 and 9 mcg T3, i.e <strong>38/9</strong>.  The above ratio is <strong>35/8</strong>.</p>
<p>Likewise, US patients are used to 2 grains of 120 mgs having 76 mcg of T4 and 18 mcg of T3, i.e. <strong>76/18</strong>.  In Erfa&#8217;s medication of 125 mg, you will get a ratio of <strong>73/17.</strong> I don&#8217;t know if this will make much of a difference but want you to be aware as you work to adjust Erfa&#8217;s desiccated thyroid to the treatment you were used to.</p>
<p>Knapo happily states that most all &#8220;Thyroid&#8221; is making it across the border to the states without issue.  You will need your doctor&#8217;s prescription. And by the way, Erfa&#8217;s Thyroid is manufactured in Belgium, plus they have a huge supply of desiccated powder.</p>
<p>Erfa is also working with IDIS to get Thyroid to others. You can read about them <a href="http://www.idispharma.com/">here</a>.</p>
<p>Need a doctor to work with who will provide a prescription for your needed desiccated thyroid? There are a growing body of  <a href="/how-to-find-a-good-doc/">good doctors</a> out there.  We also have a <a href="/options-for-thyroid-treatment/">good list</a> of  Canadian pharmacies you can consider using during the current shortages.</p>
<p>I have also received word from a gal that the FDA document 1572, a federal form that FDA requires for over-the-border movement, has not always been used, and Erfa&#8217;s medication is arriving fine. i.e. the FDA may be tolerating it.</p>
<div><em>*Want to be infor­med of this infor­ma­tive posts? Curious what’s on Janie’s mind? Use the Noti­fi­ca­tions on the left at the bot­tom of the links. </em></div>
<div><em><br />
</em></div>
<div><em>*The <a href="../../t-shirt/">STTM t-shirts</a> are now 50% off.  Spread the word!</em></div>
<div><em><br />
</em></div>
<div><em>*Need feed­back from other patients? Go to the <a href="../../talk-to-others/">STTM Talk to Others</a> page.<br />
</em></div>
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		<slash:comments>11</slash:comments>
		</item>
		<item>
		<title>The gnarly man and what we can do in the face of this crisis</title>
		<link>http://www.stopthethyroidmadness.com/2009/08/29/the-gnarly-man-and-what-we-can-do-in-the-face-of-this-crisis/</link>
		<comments>http://www.stopthethyroidmadness.com/2009/08/29/the-gnarly-man-and-what-we-can-do-in-the-face-of-this-crisis/#comments</comments>
		<pubDate>Sun, 30 Aug 2009 02:53:47 +0000</pubDate>
		<dc:creator>Janie</dc:creator>
				<category><![CDATA[hypothyroidism]]></category>
		<category><![CDATA[American Laboratories]]></category>
		<category><![CDATA[Armour]]></category>
		<category><![CDATA[canadian pharmacies]]></category>
		<category><![CDATA[carolyn dean]]></category>
		<category><![CDATA[congressmen]]></category>
		<category><![CDATA[congresspersons]]></category>
		<category><![CDATA[congresswomen]]></category>
		<category><![CDATA[death by medicine]]></category>
		<category><![CDATA[desiccated thyroid]]></category>
		<category><![CDATA[dorothy smith]]></category>
		<category><![CDATA[drug efficacy amendment]]></category>
		<category><![CDATA[erfa]]></category>
		<category><![CDATA[fda]]></category>
		<category><![CDATA[fda approval]]></category>
		<category><![CDATA[gary null]]></category>
		<category><![CDATA[levothyroxine]]></category>
		<category><![CDATA[levoxyl]]></category>
		<category><![CDATA[lingering symptoms]]></category>
		<category><![CDATA[martin feldman]]></category>
		<category><![CDATA[naturethroid]]></category>
		<category><![CDATA[new drug application]]></category>
		<category><![CDATA[patient groups]]></category>
		<category><![CDATA[pharmaceuticals]]></category>
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		<category><![CDATA[RLC labs]]></category>
		<category><![CDATA[senators]]></category>
		<category><![CDATA[stop the thyroid madness]]></category>
		<category><![CDATA[synthroid]]></category>
		<category><![CDATA[T4-only]]></category>
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		<category><![CDATA[thyroid medication]]></category>
		<category><![CDATA[thyroid patient groups]]></category>
		<category><![CDATA[thyroid patients]]></category>
		<category><![CDATA[Time Caps Labs]]></category>
		<category><![CDATA[US Congress]]></category>
		<category><![CDATA[westhroid]]></category>

		<guid isPermaLink="false">http://www.stopthethyroidmadness.com/?p=3317</guid>
		<description><![CDATA[
There once was a gnarly, bottom-scratching and tuna-breathed man who terrorized a neighborhood as if he was above the law. He intimidated people, used threats to stop others from telling the truth about his actions, and he mooned his hairy buttamous to anyone he didn&#8217;t like. He brought other criminals into his large house, took bribes to [...]]]></description>
			<content:encoded><![CDATA[<p><img class="alignleft size-full wp-image-3348" title="ogre" src="http://www.stopthethyroidmadness.com/wp/../images/ogre1.jpg" alt="ogre" width="123" height="135" /></p>
<p>There once was a gnarly, bottom-scratching and tuna-breathed man who terrorized a neighborhood as if he was above the law. He intimidated people, used threats to stop others from telling the truth about his actions, and he mooned his hairy buttamous to anyone he didn&#8217;t like. He brought other criminals into his large house, took bribes to do some of their own dirty work, and stole every single vegetable and fruit from all his neighbors gardens.</p>
<p>Finally, all the fearful, frustrated and hungry neighbors got angry, sick and tired of it all. So they sent him emails, letters and phone calls, asking him to stop what he was doing, and explaining how he was hurting their lives and well-being,  and speculated how he was going to do this or that.</p>
<p><em>And do you think he stopped doing what he always did?</em></p>
<p>Finally, the neighbors got wise. They reached out to the police, to local radio and TV stations, to the newspaper, and even to local political leaders.  They stated the facts as they knew them, how specific actions affected their lives, how they had speculations that they couldn&#8217;t prove but were quite uncomfortable&#8230;and they made sure everyone knew what was going on to get the help and support they needed. <span><br />
</span></p>
<p>********************************</p>
<p><strong>For over 100 years, thyroid patient lives have made a huge and positive turn-around on natural porcine desiccated thyroid, a </strong><strong>superior, safe, and effective medication as expressed by all our lives for over a century.  But today, we face a crisis.</strong></p>
<p>The most popular desiccated thyroid brand, Armour, was reformulated by 2009  and most patients reported a return of their hypothyroid symptoms. Then, the only other major pharmaceutical, RLC Labs, has their quality Naturethroid and Westhroid on backorder in August of 2009. The only North American makers of the desiccated powder, American Laboratories, is out.</p>
<p>And finally, the remaining two generic makers, Time Caps Labs and Major Pharmaceuticals, are told to cease production by the FDA.</p>
<p><strong>We are now without desiccated thyroid other than the remaining 10 tablets there, or 5 tablets here. They will all be gone soon.<br />
</strong></p>
<p><em>The facts we know are this:</em> because of the 1962 “Drug Effi­cacy Amend­ment”, the FDA is suddenly demanding phar­ma­ceu­ti­cal drug manu­fac­tu­rers (with medications which have been used successfully for 80-110 years) pro­vide proof of the effec­ti­ve­ness and safety of their drugs before they can receive true FDA appro­val, aka potential cli­ni­cal trials and the data that results. i.e. 110 years of patient success, and a website like Stop the Thyroid Madness, and testimonies all over the net and in patient groups with desiccated thyroid&#8230;is somehow&#8230;just&#8230;not&#8230;enough.  <em>What is obvious, is not enough.</em></p>
<p><strong>In other words, they want proof of efficacy and safety of desiccated thyroid&#8212;a medication which has a safe and effective track record in a huge body of patients for 110 years&#8230;in the same way they give an FDA-stamp-of-approval on a whole variety of drugs which, in 2004, killed </strong><span id="Lefplaceholder2"><strong>783,936 individuals per year </strong><em>(according to the article <a href="http://www.lef.org/magazine/mag2004/mar2004_awsi_death_01.htm">Death by Medicine</a>, co-authored by </em></span><em><span id="Lefplaceholder2">By Gary Null, PhD; Carolyn Dean MD, ND; Martin Feldman, MD; Debora Rasio, MD; and Dorothy Smith, PhD).</span></em></p>
<p><span id="Lefplaceholder2">Does THAT make any sense to you?<br />
</span></p>
<p>And now, because there is hint that they may require RLC Labs to apply for a New Drug Application&#8230;and because we <em>wonder</em> if that will mean expensive and drawn out clinical testing to provide data&#8230;and because we <em>wonder</em> if they will allow RLC to continue manufacturing our only good supply of desiccated thyroid which saves our lives in a completely healthy way&#8230;we are left with a lot of uncomfortable and unanswered questions.</p>
<p>Of course, we can admit that all the above is <em>pure speculation</em>. We don&#8217;t know what will happen until it happens. But we are strongly uncomfortable with the unknowns, frustrated by the possibilities, and scared to death we might lose the only medication which has removed our <a href="/long-and-pathetic/">lingering and debilitating symptoms</a> while we were once on synthetic T4&#8211;aka Synthroid, Levoxyl, levothyroxine, etc. <em></em></p>
<p><em>And by the way, <a href="/t4-only-meds-dont-work/">synthetic T4 </a>is an FDA-approved medication which has left most of us sick or with <a href="/long-and-pathetic/">lingering symptoms</a> to our own degree and intensity for YEARS. Perhaps THAT is what you need to write the FDA about.</em></p>
<p><strong>So do we email the FDA about this situation??</strong> I am of the belief that writing/emailing the FDA is no different than asking the neighborhood ogre to change.  I could be wrong, but it is my deep suspicion. In fact, I am suspicious that the onslaught of communication with the FDA is going to do more harm than good&#8230;if it hasn&#8217;t already&#8230;just as writing and emailing the neighborhood ogre would probably cause him to laugh and do even MORE harm.</p>
<p><strong>So what seems the best and most logical action to take with our current situation? Write/email your <em>senators</em>. Write/email your <em>representatives.</em> Write/email <em>newscasters, talk show hosts, radio personalities, newspapers of merit, and anyone who has the power to spread the word.</em> In my mind, we cannot expect to face <em>what may be</em> with power unless we inform the world of our plight ahead of time.</strong></p>
<p><strong>How to say what we need to say?</strong> I think, for our integrity in the eyes of whom we speak/email/write to, it&#8217;s important to state facts first and foremost. For me, if I need to mention speculation, I turn them into questions: <em>Will RLC be able to afford clinical trials? Will the FDA stop all desiccated thyroid? </em> You may not agree but that&#8217;s what seems wise for me. <strong><br />
</strong></p>
<p>I have compiled <strong><a href="/congresspersons/">a list of particular congresspersons</a> </strong>who just last year, made a resolution against the FDA. You will see a list of those supporters at the bottom of the page with their contact info. Email them.  You will also find links to contact each and every other political office. If I have missed something, let me know and I&#8217;ll add it.</p>
<p>I have also compiled <strong>a<a href="/template-letter/"> simple template letter</a> </strong>you can use, or change exactly as you need it changed, for these emails.  It will not fit every single individual who uses it, so change it as you may. But keep it short and succinct. Too much to read will turn off the reader.</p>
<p><em>I have tried hard in this post to communicate my thoughts and intuition. I also still have some strong hope and faith that this IS going to work out, one way or the other. I&#8217;m just not into fear-mongering based on speculation.  Some of you may not agree with my sentiment, but that&#8217;s okay. And some of you may agree that it&#8217;s time to strongly communicate with our congresspersons, and I will hope you follow through. All of us need to follow through. I need to follow through. You need to follow through.</em></p>
<blockquote><p><strong>NEED OPTIONS FOR THYROID TREATMENT during this hard time?</strong> Go <a href="http://www.stopthethyroidmadness.com/options-for-thyroid-treatment/">here</a>. You&#8217;ll also find several Canadian Pharmacies to use with a prescription, as well, that is much easier than ordering directly from Erfa.</p>
<p><strong>NEED A GOOD DOCTOR?</strong> Go <a href="/how-to-find-a-good-doc/">here</a>.</p>
<p><strong>NEW TO DESICCATED THYROID?</strong> Here&#8217;s <a href="/things-we-have-learned/">everything patients have learned</a>.</p></blockquote>
<p><em>*Want to be informed of this blog posts? Curious what&#8217;s on Janie&#8217;s mind? Use the notifications on the left below the links. </em></p>
<p><em>*Spread the word! <a href="/t-shirt/">STTM T-shirts</a> are 50% off. I love sales. </em></p>
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		<title>The FDA has spoken</title>
		<link>http://www.stopthethyroidmadness.com/2009/08/28/the-fda-has-spoken/</link>
		<comments>http://www.stopthethyroidmadness.com/2009/08/28/the-fda-has-spoken/#comments</comments>
		<pubDate>Fri, 28 Aug 2009 20:57:30 +0000</pubDate>
		<dc:creator>Janie</dc:creator>
				<category><![CDATA[Armour]]></category>
		<category><![CDATA[desiccated thyroid]]></category>
		<category><![CDATA[fda]]></category>
		<category><![CDATA[1962]]></category>
		<category><![CDATA[clinical trials]]></category>
		<category><![CDATA[diane blecha]]></category>
		<category><![CDATA[Division of Drug Information]]></category>
		<category><![CDATA[drug efficacy amendment]]></category>
		<category><![CDATA[forest labs]]></category>
		<category><![CDATA[kefauver harris amendment]]></category>
		<category><![CDATA[lena choe]]></category>
		<category><![CDATA[natural thyroid hormones]]></category>
		<category><![CDATA[naturethroid]]></category>
		<category><![CDATA[new drug application]]></category>
		<category><![CDATA[nth]]></category>
		<category><![CDATA[pharmacist]]></category>
		<category><![CDATA[RLC labs]]></category>
		<category><![CDATA[thyroid]]></category>

		<guid isPermaLink="false">http://www.stopthethyroidmadness.com/?p=3299</guid>
		<description><![CDATA[Just spoke with Diane Blecha, who serves as a moderator and patient advocate on the NTH groups.
She spoke with Lena Choe of the FDA. She is a pharmacist in the Division of Drug Information at the FDA.
Choe stated that they are not taking current action with Forest Labs and RLC Labs in regards to Armour [...]]]></description>
			<content:encoded><![CDATA[<p><img class="alignleft size-full wp-image-3306" title="fdaimage" src="http://www.stopthethyroidmadness.com/wp/../images/fdaimage1.jpg" alt="fdaimage" width="115" height="110" />Just spoke with Diane Blecha, who serves as a moderator and patient advocate on the NTH groups.</p>
<p>She spoke with Lena Choe of the FDA. She is a pharmacist in the Division of Drug Information at the FDA.</p>
<p>Choe stated that they are not taking current action with Forest Labs and RLC Labs in regards to Armour and Naturethroid. Instead, they will simply be requiring them to go through the New Drug Application process, and they will require data. Data is possibly referring to the clinical trials that both companies will have to perform to get results on the efficacy and safety of desiccated thyroid.</p>
<p>Choe stated that the FDA is very aware of problems with Armour and will be looking into that eventually. The FDA takes priority actions on medications based on consumer complaints.</p>
<p>A comment which I found hopeful from Choe was her knowledge that desiccated thyroid has already been used in humans since the 1962 amendment. That&#8217;s a good track record of 47 years, folks, that the FDA is referring to. Of course, many of us also know that Armour had a good track record since the 1890&#8217;s.</p>
<p>1962 represents the year the FDA established the &#8220;Drug Efficacy Amendment&#8221;, also called the Kefauver Harris Amendment. The amendment requires that pharmaceutical drug manufacturers provide proof of the effectiveness and safety of their drugs before they can receive FDA approval, aka clinical trials and the data that results. The amendment also requires accurate marketing information on side effects (think Bob and erectile dysfunction on those irritating, nauseating commercials).</p>
<p>And again, it still appears as I stated  below that both Major and Time Caps were told to cease production due to being &#8220;new&#8221; companies since 1962 producing desiccated thyroid. That is a different issue than RLC and Forest.</p>
<p><strong>Hang onto hope, folks. Because by the limited information everyone gets when they call the FDA, it points to a good reason to feel positive, not to think the worst&#8230;at least for me. Sure, it&#8217;s <em>maddening</em> they would shut down whatever production was left of desiccated thyroid. And it&#8217;s equally frustrating that we hang by threads as far as FDA communication. But right now, as I also thought a few days ago, I don&#8217;t think the FDA is shutting down production of RLC and Forest, or will during the NDA process. We just have to wait for supply to catch up, especially with RLC. So we&#8217;ll see what passes.<br />
</strong></p>
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		<title>More good info on Canada&#8217;s &#8220;Thyroid&#8221; by Erfa</title>
		<link>http://www.stopthethyroidmadness.com/2009/08/26/more-good-info-on-erfa/</link>
		<comments>http://www.stopthethyroidmadness.com/2009/08/26/more-good-info-on-erfa/#comments</comments>
		<pubDate>Wed, 26 Aug 2009 17:56:03 +0000</pubDate>
		<dc:creator>Janie</dc:creator>
				<category><![CDATA[hypothyroidism]]></category>
		<category><![CDATA[Armour]]></category>
		<category><![CDATA[canada]]></category>
		<category><![CDATA[canada pharmacy online]]></category>
		<category><![CDATA[desiccated thyroid]]></category>
		<category><![CDATA[director of medical affairs]]></category>
		<category><![CDATA[erfa]]></category>
		<category><![CDATA[europe]]></category>
		<category><![CDATA[fda]]></category>
		<category><![CDATA[food and drug administration]]></category>
		<category><![CDATA[health canada]]></category>
		<category><![CDATA[henri knafo]]></category>
		<category><![CDATA[raw materials]]></category>
		<category><![CDATA[thyroid]]></category>
		<category><![CDATA[US border]]></category>

		<guid isPermaLink="false">http://www.stopthethyroidmadness.com/?p=3239</guid>
		<description><![CDATA[Just had a good conversation with Dr. Henri Knafo, the Director of Medical Affairs at Erfa Canada, Inc.
On my post below from yesterday, you will see hopeful information on getting this excellent Canadian desiccated thyroid. And below is more information you have been asking for as patients who know the efficacy of desiccated thyroid.
Erfa&#8217;s &#8220;Thyroid&#8221; [...]]]></description>
			<content:encoded><![CDATA[<p><img class="alignleft size-full wp-image-3241" title="erfathyroid" src="http://www.stopthethyroidmadness.com/wp/../images/erfathyroid3.jpg" alt="erfathyroid" width="94" height="150" />Just had a good conversation with Dr. Henri Knafo, the Director of Medical Affairs at Erfa Canada, Inc.</p>
<p>On my post below from yesterday, you will see hopeful information on getting this excellent Canadian desiccated thyroid. And below is more information you have been asking for as patients who know the efficacy of desiccated thyroid.</p>
<p>Erfa&#8217;s &#8220;Thyroid&#8221; comes in three strengths: 30 mg, 60 mg, and 125 mg.  Amounts you can order, and costs, are as follows:</p>
<p>30mg             500 tablets  $52.00 US;    100 tablets $18.00 US</p>
<p>60mg             500 tablets  $70.00 US;    100 tablets   $39.00 US</p>
<p>125mg          500 tablets  $100.00 US;   100 tablets  $ 50.00  US</p>
<p>Erfa will charge a 10$ handling fee (for first time users) and shipping is around $20 US.  Knafo states the prices are equivalent to Armour.</p>
<p>Erfa&#8217;s Thyroid has been in production for 30 years and they have 5000 Canadian patients on it.</p>
<p>Erfa&#8217;s Thyroid is approved by Health Canada (their equivalent to FDA).  Erfa spoke to the FDA, and in order for their desiccated thyroid to cross the US border, you have to fill out and sign the FDA patient study form which is mentioned below.</p>
<p>Erfa&#8217;s Thyroid is made in Europe with the raw materials, and they bought an excess of it. So there will be no problem getting it and they expect no shortages the rest of the year.</p>
<p>One canadian pharmacy you can use (and is not associated with Erfa) is the <a href="http://www.canadapharmacyonline.com/">Canada Pharmacy Online</a>.</p>
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		<title>Good news! You can get good desiccated thyroid from Canada.</title>
		<link>http://www.stopthethyroidmadness.com/2009/08/25/desiccated-thyroid-from-canada/</link>
		<comments>http://www.stopthethyroidmadness.com/2009/08/25/desiccated-thyroid-from-canada/#comments</comments>
		<pubDate>Wed, 26 Aug 2009 02:31:24 +0000</pubDate>
		<dc:creator>Janie</dc:creator>
				<category><![CDATA[hypothyroidism]]></category>
		<category><![CDATA[Armour]]></category>
		<category><![CDATA[canada]]></category>
		<category><![CDATA[cornstarch]]></category>
		<category><![CDATA[desiccated thyroid]]></category>
		<category><![CDATA[doctor]]></category>
		<category><![CDATA[dried thyroid]]></category>
		<category><![CDATA[erfa]]></category>
		<category><![CDATA[magnesium stearate]]></category>
		<category><![CDATA[natural thyroid]]></category>
		<category><![CDATA[naturethroid]]></category>
		<category><![CDATA[Patients]]></category>
		<category><![CDATA[prescription]]></category>
		<category><![CDATA[stop the thyroid madness]]></category>
		<category><![CDATA[sugar]]></category>
		<category><![CDATA[talc]]></category>
		<category><![CDATA[thyroid]]></category>
		<category><![CDATA[u.s.]]></category>
		<category><![CDATA[United States]]></category>
		<category><![CDATA[westhroid]]></category>

		<guid isPermaLink="false">http://www.stopthethyroidmadness.com/?p=3204</guid>
		<description><![CDATA[
Unfortunately, patients who want to switch to desiccated thyroid from T4-only meds like Synthroid et al, or those already on desiccated thyroid who want to fill their next prescription, are going to find it difficult. There are widespread shortages in desiccated thyroid like Armour, Naturethroid and Westhroid. (see my posts below).
But there&#8217;s good news, and [...]]]></description>
			<content:encoded><![CDATA[<p><img class="alignleft size-full wp-image-3219" title="erfathyroid" src="http://www.stopthethyroidmadness.com/wp/../images/erfathyroid1.jpg" alt="erfathyroid" width="94" height="150" /></p>
<p>Unfortunately, patients who want to switch to desiccated thyroid from T4-only meds like Synthroid et al, or those already on desiccated thyroid who want to fill their next prescription, are going to find it difficult. There are widespread shortages in desiccated thyroid like Armour, Naturethroid and Westhroid. (see my posts below).</p>
<p>But there&#8217;s good news, and it comes in the form of <em>&#8220;Thyroid&#8221;</em>&nbsp; by <a href="http://thyroid.erfa.net/">Erfa</a>.</p>
<p>Erfa&#8217;s <em>&#8220;Thyroid&#8221;</em>&nbsp; is an excellent natural desiccated thyroid product according to the experience of patients who use it. It contains:</p>
<ul>
<li>Dried Thyroid</li>
<li>Mag­ne­sium Stearate</li>
<li>Corns­tarch</li>
<li>Talc</li>
<li>Sugar</li>
</ul>
<p>**Note the &#8220;sugar&#8221;. Patients also report they are able to do this brand of medication<a href="/sublingual/"> sublingually</a>! That is good news.</p>
<p>The Erfa website states you can obtain their desiccated thyroid medication outside of Canada via a special access program and <a href="http://thyroid.erfa.net/index.php/en/component/content/article/1-latest-news/7-steps-to-fill-in-a-prescription-for-thyroid-outside-of-canada.html">follow their steps</a>:</p>
<p><strong>For patients outside Canada and the US:</strong></p>
<div>1. Get a prescription from your local doctor (mention hypothyroidism on it).<br />
2. Your doctor should fill in this <a href="http://www.stopthethyroidmadness.com/erfas-document/">simple document </a>(not required for the UK)<br />
3. Fax or e-mail us the documents at 1-514-931-7330 or <em>info@ERFA.net</em></div>
<div><em><br />
</em></div>
<p><strong>For patients in the US:</strong></p>
<p>1. get a valid prescription of Thyroid from your local doctor<br />
2. your doctor has to fill FDA form 1572 (e-mail us a request at <em>info@ERFA.net</em><br />
3. Fax or e-mail us the documents at 1-514-931-7330 or <em>info@ERFA.net</em></p>
<p><strong>Thank you Erfa from Stop the Thyroid Madness and thyroid patients all over the world who KNOW what a superior treatment <a href="/natural-thyroid-101/">desiccated thyroid</a> really is!</strong> <a href="/t4-only-meds-dont-work/"></a></p>
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