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	<title>Stop The Thyroid Madness &#187; tsh</title>
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	<link>http://www.stopthethyroidmadness.com</link>
	<description>Thyroid Treatment Scandal and Hypothyroid Mistreatment</description>
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		<title>100 things to do with your bottle of Synthroid&#8230;</title>
		<link>http://www.stopthethyroidmadness.com/2010/03/10/100-things-to-do-with-your-bottle-of-synthroid/</link>
		<comments>http://www.stopthethyroidmadness.com/2010/03/10/100-things-to-do-with-your-bottle-of-synthroid/#comments</comments>
		<pubDate>Thu, 11 Mar 2010 04:14:27 +0000</pubDate>
		<dc:creator>Janie</dc:creator>
				<category><![CDATA[synthroid]]></category>
		<category><![CDATA[abbott labs]]></category>
		<category><![CDATA[big pharma]]></category>
		<category><![CDATA[john mccain]]></category>
		<category><![CDATA[McCain]]></category>
		<category><![CDATA[supplement bill]]></category>
		<category><![CDATA[T4-only]]></category>
		<category><![CDATA[tsh]]></category>

		<guid isPermaLink="false">http://www.stopthethyroidmadness.com/?p=4925</guid>
		<description><![CDATA[Well, I just can&#8217;t let this go by the wayside, says I with a cheesy grin.
When I did the lighthearted post, two posts below his one, about a woman who got filthy rich thanks to her old stock with Abbott Labs (the makers of Synthroid),  it got a humorous and creative comment from &#8220;Elizabeth&#8221;:
I have [...]]]></description>
			<content:encoded><![CDATA[<p><a href="http://www.stopthethyroidmadness.com/wp/../images/HoldingPillBottle.jpg"><img class="alignleft size-full wp-image-4929" title="HoldingPillBottle" src="http://www.stopthethyroidmadness.com/wp/../images/HoldingPillBottle.jpg" alt="" width="175" height="101" /></a>Well, I just can&#8217;t let this go by the wayside, says I with a cheesy grin.</p>
<p>When I did the lighthearted <a href="http://www.stopthethyroidmadness.com/2010/03/05/something-positive-associated-with-the-makers-of-synthroid/">post</a>, two posts below his one, about a woman who got filthy rich thanks to her old stock with Abbott Labs (the makers of Synthroid),  it got a humorous and creative comment from &#8220;Elizabeth&#8221;:</p>
<blockquote><p><em><strong>I have found a couple of uses for a bottle of Synthroid:</strong></em></p>
<p><em><strong>A. Doorstop<br />
B. Prop for DSL modem (so it won’t overheat)</strong></em></p>
<p><em><strong>However, I do not recommend it to be taken internally. Ever.</strong></em></p></blockquote>
<p>hahahaha.  You get a blue ribbon for that gem, Mz. Elizabeth.  And I think Elizabeth&#8217;s creatively-funny reply deserves expansion and a party of fun-lovin&#8217; contributors. <strong>So now it&#8217;s <em>your</em> turn, fine reader of the STTM blog,  to list your own innovative and hilarious ideas for that bottle of a T4-only medication.  Just use the Comment below this post and let &#8216;er rip.</strong></p>
<p>***********************************</p>
<p>Below this post you&#8217;ll see information on the current failure of McCain&#8217;s cockeyed anti-supplement bill, which if it had passed, would have negatively affected every single thyroid patient out there who is trying to undo the damage done by <a title="Why Synthroid or other T4 meds do NOT work" href="/t4-only-meds-dont-work/">T4 meds</a> and/or the inane<a title="Why the TSH lab test is useless" href="/tsh-why-its-useless/"> TSH</a> lab test.  So though we all won right now with this failure, you betcha we&#8217;re going to have to keep our eyes and ears open for the money-grubbing Big Pharma to influence someone else about supplements.</p>
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		<slash:comments>10</slash:comments>
		</item>
		<item>
		<title>It ain&#8217;t for sissies: getting older and hypothyroidism (plus FDA says it did NOT tell pharms to stop desiccated thyroid)</title>
		<link>http://www.stopthethyroidmadness.com/2010/03/01/getting-older-and-hypothyroidism/</link>
		<comments>http://www.stopthethyroidmadness.com/2010/03/01/getting-older-and-hypothyroidism/#comments</comments>
		<pubDate>Tue, 02 Mar 2010 06:14:52 +0000</pubDate>
		<dc:creator>Janie</dc:creator>
				<category><![CDATA[hypothyroidism]]></category>
		<category><![CDATA[aarp]]></category>
		<category><![CDATA[adrenal fatigue]]></category>
		<category><![CDATA[cholesterol]]></category>
		<category><![CDATA[depression]]></category>
		<category><![CDATA[desiccated thyroid]]></category>
		<category><![CDATA[fatigue]]></category>
		<category><![CDATA[fda]]></category>
		<category><![CDATA[hypothyroid]]></category>
		<category><![CDATA[naturethroid]]></category>
		<category><![CDATA[osteoporosis]]></category>
		<category><![CDATA[ostepenia]]></category>
		<category><![CDATA[synthroid]]></category>
		<category><![CDATA[tsh]]></category>

		<guid isPermaLink="false">http://www.stopthethyroidmadness.com/?p=4826</guid>
		<description><![CDATA[Yup, we&#8217;re all heading in the same direction&#8212;being just a tad older every single year and getting that first mailing from AARP.  Yup.
And getting older increases the incidence of thyroid disease.
Even worse, those who acquire it at an older age are probably going to go through the same bunk and bull those younger have gone [...]]]></description>
			<content:encoded><![CDATA[<p><a href="http://www.stopthethyroidmadness.com/wp/../images/OldLadyWithFist.jpg"><img class="alignleft size-full wp-image-4847" title="OldLadyWithFist" src="http://www.stopthethyroidmadness.com/wp/../images/OldLadyWithFist.jpg" alt="" width="145" height="150" /></a>Yup, we&#8217;re all heading in the same direction&#8212;being just a <em>tad</em> older every single year and getting that first mailing from AARP.  Yup.</p>
<p>And getting older increases the incidence of thyroid disease.</p>
<p>Even worse, those who acquire it at an older age are probably going to go through the same <em>bunk and bull</em> those younger have gone through&#8211;having <em>depression, rising cholesterol, osteoporosis or ostepenia, weight gain, easy fatigue, couch potato syndrome, dry skin and hair, plus <a href="/long-and-pathetic/">more</a>&#8211;</em>-all classic symptoms of undiagnosed or undertreated hypothyroidism.</p>
<p>But older folks are told it&#8217;s all just part of aging so here&#8217;s your latest tablet for your handy-dandy Wal Mart pill box.</p>
<p>I recently found a great blog by Pam whose Feb. 23rd, 2010 post is titled Older Women and Low Thyroid. She turned 65 in 2009 <em>(and she looks a lot younger)</em> and writes how she found herself with hypothyroid at a later age as well.  And Pam is WAY ahead of the game in her knowledge. She understands that most older folks are put on <a title="How Synthroid or other T4 meds don't work" href="/t4-only-meds-dont-work/">Synthroid</a> (which can be a lousy way to treat hypothyroidism for many), that getting older means conversion from T4 to T3 can be more difficult,  that being on <a title="All about natural desiccated thyroid" href="/natural-thyroid-101/">desiccated thyroid</a> or T3-only just might be the better treatment, and you can get <a title="low cortisol" href="/adrenal-info/">adrenal fatigue</a> at an older age as well (thanks to poor treatment with <a title="Why T4-only is a lousy treatment" href="/t4-only-meds-dont-work/">T4</a>, the <a title="Why the TSH lab test is useless" href="/tsh-why-its-useless/">TSH</a> lab test, or being <a title="Mistakes patients make on desiccated thyroid" href="/mistakes-patients-make/">underdosed</a> even on desiccated thyroid).</p>
<p>You can read Pam&#8217;s post <a href="http://weightvest4osteoporosis.com/blog/2010/02/older-women-and-low-thyroid/">here</a>, as well as about the phone call from her friend who is 50 lbs overweight, has brain fog, is out of work, has no energy&#8230;and voila&#8211;is on Synthroid so it can&#8217;t POSSIBLY be her thyroid. Sad. In fact, what has happened to Pam&#8217;s friend is what I keep stating to those who feel they are just doing peachy on T4: <em>watch out, because as you age, the truth about T4 will reveal itself!</em></p>
<p>Pam, I love your blog posts, and I&#8217;m going to hope to see more of those in the &#8220;venerable age range&#8221; be just as wise as you are!!</p>
<p>**********************************************</p>
<p><strong>FDA HAS MADE A STATEMENT ABOUT NATURAL DESICCATED THYROID: </strong> Just before I was going to plop into my bed for the evening, I checked my notifications to discover that right on the FDA website and their <a title="Drug Shortages, including desiccated thyroid" href="http://www.fda.gov/Drugs/DrugSafety/DrugShortages/ucm050792.htm#thyroid">2010 Drug Shortages</a> page (3rd column up from bottom), it states: <em>Forest reports manufacturing issues involving the raw material and RLC reports increased demand. FDA has not ordered Forest or RLC to remove these thyroid (desiccated) tablets from the market. </em>BINGO. I&#8217;ve been waiting for this for months, because though websites and groups were formed last year as if we needed to &#8220;rescue&#8221; desiccated thyroid from being banned, I couldn&#8217;t join the fearful rally of a few because my gut was telling me something quite different.  And a few others, I discovered, had the same feeling.  And hooray! Our guts were right on!</p>
<p>Does this mean the FDA &#8220;gets it&#8221; about desiccated thyroid? Maybe, or maybe not. Yes, their timing WAS awful last year with Time Caps Labs, right when we were starting a shortage. And there does appear to be some kind of <a title="The FDA stance from the beginning to now" href="http://www.stopthethyroidmadness.com/desiccated-thyroid-unapproved-drug/">future requirement</a> &#8220;proving&#8221; the safety and efficacy of dess. thyroid&#8211;two things we ALREADY KNOW from 110 years of safe and effective use. <em>Duhhh on the FDA.</em> But it&#8217;s FAR more hopeful now, and <em>realistic</em>, and will hopefully promote more reasonable thinking from now on.</p>
<p>Onward and upward, folks.</p>
<p>***************************************</p>
<p>Naturethroid is coming back in pharmacies all over the US! See the blog post below or <a href="http://www.stopthethyroidmadness.com/2010/02/20/heres-the-skinny-about-the-new-naturethroid/">here</a> for information about  the &#8220;new&#8221; Naturethroid.</p>
<p>(If you are reading this via the Newsletter email notification, just click on the title of this blog post to come directly to the site where you can Comment).</p>
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		<slash:comments>3</slash:comments>
		</item>
		<item>
		<title>Guess who I&#8217;m going to be talking with next week on Talkshoe??</title>
		<link>http://www.stopthethyroidmadness.com/2010/02/10/guess-who-im-going-to-be-talking-to/</link>
		<comments>http://www.stopthethyroidmadness.com/2010/02/10/guess-who-im-going-to-be-talking-to/#comments</comments>
		<pubDate>Thu, 11 Feb 2010 04:33:15 +0000</pubDate>
		<dc:creator>Janie</dc:creator>
				<category><![CDATA[hypothyroidism]]></category>
		<category><![CDATA[Dr. Kent Holtorf]]></category>
		<category><![CDATA[endocrinologist]]></category>
		<category><![CDATA[eola force]]></category>
		<category><![CDATA[hypothyroid]]></category>
		<category><![CDATA[national academy of hypothyroidism]]></category>
		<category><![CDATA[NBC]]></category>
		<category><![CDATA[sttm blog]]></category>
		<category><![CDATA[Today show]]></category>
		<category><![CDATA[tsh]]></category>
		<category><![CDATA[tsh lab test]]></category>

		<guid isPermaLink="false">http://www.stopthethyroidmadness.com/?p=4734</guid>
		<description><![CDATA[If you read my recent blog post about it (click on link below or just scroll down on the STTM blog), or if you saw NBC&#8217;s Today Show, you&#8217;ll know that Dr. Kent Holtorf correctly diagnosed a clearly-hypothyroid woman, Nurse Practitioner Eola Force, by not going just by the TSH, and changed her life. He [...]]]></description>
			<content:encoded><![CDATA[<p>If you read my recent blog post about it (click on link below or just scroll down <a href="http://www.stopthethyroidmadness.com/wp/../images/holtorf2.jpg"><img class="alignleft size-full wp-image-4737" title="holtorf2" src="http://www.stopthethyroidmadness.com/wp/../images/holtorf2.jpg" alt="" width="89" height="107" /></a>on the STTM blog), or if you saw NBC&#8217;s Today Show, you&#8217;ll know that Dr. Kent Holtorf correctly diagnosed a clearly-hypothyroid woman, Nurse Practitioner Eola Force, by not going <em>just</em> by the TSH, and changed her life. He was criticized by an Endocrinologist as having <em>“no real scientific basis”</em>&nbsp; for what he does in his practice, and it was equivalent to the <em>“laying on of hands”.</em>&nbsp; (chuckle)</p>
<p><a href="http://www.stopthethyroidmadness.com/2010/01/28/endocrinologists-tsh-lab-test/">http://www.stopthethyroidmadness.com/2010/01/28/endocrinologists-tsh-lab-test/</a></p>
<p><strong>Well, it&#8217;s time to hear what Dr. Holtorf has to say!</strong></p>
<p>Join us as I chat with him about this incident next <strong>WEDNESDAY, FEB. 17th</strong> at 6 pm Pacific, 7 pm Mountain, 8 pm Central, and 9 pm Eastern, right on your computer&#8217;s audio on STTM&#8217;s Talkshoe Call webpage (below). Call in to ask questions, too. MARK YOUR CALENDER! SET YOUR CELL PHONE ALARM! This is one introduction that I&#8217;m going to have fun with, don&#8217;t ya think??<strong><br />
</strong></p>
<p><a href="http://www.talkshoe.com/talkshoe/web/talkCast.jsp?masterId=62603&amp;cmd=tc">http://www.talkshoe.com/talkshoe/web/talkCast.jsp?masterId=62603&amp;cmd=tc</a></p>
<p>***Note that we moved it to Wednesday nights. That should help with any dropped calls that were happening on busy Thursdays.</p>
<p>By the way,  Dr. Holtorf recently launched his new <a href="http://nahypothyroidism.org/">website</a>, called <em>The Non-Profit National Academy of Hypothyroidism</em> in an attempt to reach doctors about <em>appropriate diagnosis and treatment of hypothyroidism, </em>which patients know does NOT include just the lousy <a href="/tsh-why-its-useless/">TSH lab test</a>.  Will doctors, and especially Endocrinologists, ever figure out this clear and easy truth?  Don&#8217;t we hope so.</p>
<p><strong>Have something to say? Use the Comment function at the bottom of this blog post. If you are reading this via an email notification, just click on the title of this blog post to take you directly to the actual blog post. </strong></p>
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		<slash:comments>7</slash:comments>
		</item>
		<item>
		<title>Endocrinologists and the looney tune TSH lab test</title>
		<link>http://www.stopthethyroidmadness.com/2010/01/28/endocrinologists-tsh-lab-test/</link>
		<comments>http://www.stopthethyroidmadness.com/2010/01/28/endocrinologists-tsh-lab-test/#comments</comments>
		<pubDate>Fri, 29 Jan 2010 00:00:08 +0000</pubDate>
		<dc:creator>Janie</dc:creator>
				<category><![CDATA[+Audience]]></category>
		<category><![CDATA[tsh]]></category>
		<category><![CDATA[dr. singer]]></category>
		<category><![CDATA[endocrinologist]]></category>
		<category><![CDATA[eola force]]></category>
		<category><![CDATA[gold standard]]></category>
		<category><![CDATA[hypothyroidism]]></category>
		<category><![CDATA[kent holtorf]]></category>
		<category><![CDATA[nurse practitioner]]></category>
		<category><![CDATA[spunout]]></category>
		<category><![CDATA[thyroid stimulating hormone]]></category>
		<category><![CDATA[Today show]]></category>

		<guid isPermaLink="false">http://www.stopthethyroidmadness.com/?p=4668</guid>
		<description><![CDATA[&#8220;It is far better to grasp the Universe as it really is than to persist in delusion, however satisfying and reassuring.&#8221; &#8211;Dr. Carl Sagan
You may have seen the segment on NBC&#8217;s Today Show this morning, January 29th, 2010, or you may have heard about it on the internet. But in case you didn&#8217;t, the Today [...]]]></description>
			<content:encoded><![CDATA[<p><a href="http://www.stopthethyroidmadness.com/wp/../images/trashcan1.jpg"><img class="alignleft size-full wp-image-4672" title="trashcan" src="http://www.stopthethyroidmadness.com/wp/../images/trashcan1.jpg" alt="" width="121" height="150" /></a><em>&#8220;It is far better to grasp the Universe as it really is than to persist in delusion, however satisfying and reassuring.&#8221;</em> &#8211;Dr. Carl Sagan</p>
<p>You may have seen the segment on NBC&#8217;s Today Show <a href="http://today.msnbc.msn.com/id/26184891/vp/35121450#35124268">this morning</a>, January 29th, 2010, or you may have heard about it on the internet. But in case you didn&#8217;t, the Today Show had a rare short piece about hypothyroidism and diagnosis which presented a Nurse Practitioner, Eola Force, with clear symptoms of hypo, including extreme tiredness, feeling like she&#8217;s dying, huge weight gain, depression, and brain fog, to name a few.</p>
<p>Yet, she had a so-called &#8220;normal  &#8220;TSH&#8221; lab test. The explanation for her symptoms?? She&#8217;s FAT, HORMONAL and FEMALE, of course!</p>
<p>And because she is under the care of a wise and knowledgeable doctor named <a href="http://www.holtorfmed.com/doctors/kent-holtorf-md">Dr. Kent Holtorf</a> and his clinic, which uses additional tests besides the TSH, he diagnosed her clearly, put her on thyroid hormones, and changed her life.</p>
<p>And the response by Dr. Singer, an Endocrinologist? There is<em> &#8220;no real scientific basis&#8221;</em> for what Holtorf does in his practice, and it was equivalent to the <em>&#8220;laying on of hands&#8221;</em>.</p>
<p><strong>Well my dear Dr. Singer sir, if hundreds of millions of patients all over the world waited on &#8220;science&#8221; to prove what they know by decades of miserable experience because of the TSH, we&#8217;d all still be sick as dogs. The mutually accepted delusion by the Endocrinology field about</strong><strong> the TSH lab test has left millions of thyroid patients undiagnosed and undertreated for nearly 40 years of its existence.<br />
</strong></p>
<p>Other than to potentially diagnose a pituitary problem, no, the TSH lab test is NOT the gold standard for thyroid screening anymore than reading tea leaves tells me what kind of day I&#8217;m going to have.</p>
<p><em><strong>Read more about the TSH lab test <a href="/tsh-why-its-useless/">here</a>, or find even more detail in Chapter 3 in the <a href="/book/">book</a> called TSH: THYROID STIMULATING HOOEY. </strong></em></p>
<p><em><strong>See much better labwork than simply the TSH <a href="/recommended-labwork/">here</a>.  Find what your results mean <a href="/lab-values/">here</a>. And <a href="/how-to-find-a-good-doc/">here</a>&#8217;s how to find a much better doctor.</strong></em></p>
<p><strong>P.S. Thyroid patient Lynn Dunning emailed me about talking about the craziness of current thyroid treatment at her work, and one of her colleagues put this up on the work website: </strong><br />
<a href="http://www.spunout.ie/health/Healthy-body/Thyroid-madness" target="_blank">http://www.spunout.ie/health/Healthy-body/Thyroid-madness</a> <strong>Good for Lynn and the SpunOut website!</strong></p>
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		<slash:comments>19</slash:comments>
		</item>
		<item>
		<title>Gee golly bazooka: guess who started a conversation with me?</title>
		<link>http://www.stopthethyroidmadness.com/2010/01/24/guess-who-started-a-conversation-with-me/</link>
		<comments>http://www.stopthethyroidmadness.com/2010/01/24/guess-who-started-a-conversation-with-me/#comments</comments>
		<pubDate>Sun, 24 Jan 2010 20:56:17 +0000</pubDate>
		<dc:creator>Janie</dc:creator>
				<category><![CDATA[+Audience]]></category>
		<category><![CDATA[Big Pharma Pharmaceuticals]]></category>
		<category><![CDATA[abbott labs]]></category>
		<category><![CDATA[adrenal fatigue]]></category>
		<category><![CDATA[baloney]]></category>
		<category><![CDATA[big pharma]]></category>
		<category><![CDATA[calvin sticker]]></category>
		<category><![CDATA[christmas]]></category>
		<category><![CDATA[desiccated thyroid]]></category>
		<category><![CDATA[hypothyroidism]]></category>
		<category><![CDATA[machine gun]]></category>
		<category><![CDATA[pharmaceutical rep]]></category>
		<category><![CDATA[propaganda]]></category>
		<category><![CDATA[sales associate]]></category>
		<category><![CDATA[stop the thyroid madness]]></category>
		<category><![CDATA[stop the thyroid madness book]]></category>
		<category><![CDATA[sttm]]></category>
		<category><![CDATA[sumo wrestlers]]></category>
		<category><![CDATA[synthroid]]></category>
		<category><![CDATA[t4]]></category>
		<category><![CDATA[T4-only]]></category>
		<category><![CDATA[thyroid]]></category>
		<category><![CDATA[thyroid patient activist]]></category>
		<category><![CDATA[thyroid patient advocate]]></category>
		<category><![CDATA[tsh]]></category>
		<category><![CDATA[tsh lab test]]></category>

		<guid isPermaLink="false">http://www.stopthethyroidmadness.com/?p=4596</guid>
		<description><![CDATA[Yesterday, I was meandering through a small biking/river runners store, exchanging a vest I got my son for Christmas that turned out to be too large, and looking intently for a replacement gift he&#8217;d like.
The only other shopper left&#8212;a tall, dark and handsome young man. And almost as quickly, he re-entered,  approached me, and asked [...]]]></description>
			<content:encoded><![CDATA[<p><img class="size-thumbnail wp-image-4616 alignleft" title="SumoWrestlers" src="http://www.stopthethyroidmadness.com/wp/../images/SumoWrestlers2-150x131.jpg" alt="SumoWrestlers" width="150" height="131" />Yesterday, I was meandering through a small biking/river runners store, exchanging a vest I got my son for Christmas that turned out to be too large, and looking intently for a replacement gift he&#8217;d like.</p>
<p>The only other shopper left&#8212;a tall, dark and handsome young man. And almost as quickly, he re-entered,  approached me, and asked if that was my car out there.</p>
<p><em>&#8220;My car?&#8221; </em>I replied. <em>&#8220;Yes, why?&#8221; </em></p>
<p><em>&#8220;I&#8217;m curious about the sticker you have on your back window,&#8221; </em>he stated with a friendly but curious smile.</p>
<p>The sticker is of Calvin peeing on the word of a particular T4-only medication.  I give these away free <em>if</em> someone requests it with their current <a href="http://www.laughinggrapepublishing.com/all-about-the-book/">order</a> of the STTM book.  And this was not the first time I&#8217;ve been asked about that attention-getting sticker.</p>
<p>So I proceeded to tell him that I&#8217;m a Thyroid Patient Activist, owner of Stop the Thyroid Madness, about the history of T4, how lousy many patients have reported doing on it for nearly 60 years with their own variety and intensity of lingering hypo symptoms, and how much better natural desiccated thyroid has been for patients all over the world.</p>
<p>I then innocently asked: <em>&#8220;Are you on Synthroid?&#8221; </em>I just knew I had one more victim of this treatment who needed enlightenment.</p>
<p><strong><em>&#8220;Nope&#8221;</em>,  he said with a confident and defiant air.  <em>&#8220;I have until recently been a pharmaceutical rep with Abbott Labs.&#8221; </em></strong></p>
<p>THWACK.   Standing before me stood a mighty well-trained Big Pharma champion for Synthroid who was going to reveal and defend his propaganda like a master. And that led to the most heated and piercing give-and-take I&#8217;ve ever experienced, right in front of the chagrined and wide-eyed sales person at the checkout desk. We were like sumo wrestlers butting our words against each other.</p>
<p>When I explained the slew of <a href="/long-and-pathetic/">continuing symptoms</a> reported by patients worldwide who have been on T4, and no matter how high they raised it&#8230;his response?  <em>&#8220;Those symptoms can be the result of many issues other than hypothyroidism.&#8221;<br />
</em></p>
<p>I responded: <em>&#8220;Well isn&#8217;t it odd that those who are hypo and on Synthroid, and who get on desiccated thyroid, find those symptoms completely removed.&#8221;</em></p>
<p>His reply?? <em>&#8220;Heroin can do the same thing&#8221;</em>.  Groan. I simply had to laugh at him. How many times have we heard the same kind of baloney.</p>
<p>He proceeded to tell me in great detail with each point he made that:</p>
<ol>
<li><em>He has worked with many patients and they do well on Synthroid</em> (A rep has worked with many patients? And what in the world does &#8220;well&#8221; mean?)<em><strong> </strong></em></li>
<li><em>Clinical trials have proven that Synthroid works.</em> (Ah! You mean those financed by Abbott Labs and which are contrary to the reported experience of millions of patients around the world? Those??)</li>
<li><em>The TSH lab test gives proof about the efficacy of T4 </em>(Funny how patients all over the world have proven by their continuing symptoms that the <a href="/tsh-why-its-useless/">TSH lab test</a> for the diagnosis and treatment of hypothyroidism belongs at the bottom of a trash heap)</li>
<li><em>There are many differences in the efficacy of T4 brands to explain any issues in patients</em> (Funny how not ONE brand of T4 has been exempt from leaving <a href="/long-and-pathetic/">continuing symptoms </a>according to the global rexperience of a huge body of patients) <strong> </strong></li>
<li><em>Blaming T4 for the amount of adrenal fatigue that &#8220;supposedly&#8221; some T4-treated patients find themselves with is silly since there can be other reasons for it.</em> (Another laugh on my part.  Clearly, when someone isn&#8217;t adequately treated on T4, something has to kick in to keep them going, and voila&#8211;it&#8217;s those trusty dusty adrenals which eventually just <a href="/adrenal-info/">poop out</a> thanks to T4 and the TSH.)</li>
</ol>
<p>There were much more machine gun stances between us, but that would make this blog post far too long.</p>
<p>One truth we did agree on? That &#8220;some&#8221; patients do get benefit from using T4. He specifically referred to the elderly. And my quick response? <em>Why accept &#8220;some&#8221; when patients all over the world report getting rid of that &#8220;some&#8221; with desiccated thyroid </em>(and especially for certain ones who also treat their low cortisol, low ferritin, and other issues most likely related to an inferior treatment.)</p>
<p>Clearly, we were each deadlocked in our positions.  And he concluded, looking at the sales associate, that neither of us were wrong; we just represented two sides.</p>
<p>And I turned my head, looked him straight in the eye, and said:  <em>Uhhh, no. YOU are completely and totally wrong. </em></p>
<p>P.S. After he left, the sales gal said she was totally in tune with what I was saying, and wrote down the name of this website. lol lol</p>
<p><em>*******************************************</em></p>
<p><strong>See the blog post <a href="http://www.stopthethyroidmadness.com/2010/01/20/online-canadian-pharmacies/">below</a> about favored Canadian pharmacies, plus many more comments by patients. </strong></p>
<p><strong>What the heck is going on with desiccated thyroid and current shortages? Read about it <a href="/desiccated-thyroid-unapproved-drug/">here</a>.<br />
</strong></p>
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		<item>
		<title>A guy&#8217;s story: scaring the hell out of him about being on HC cortisol!</title>
		<link>http://www.stopthethyroidmadness.com/2010/01/17/a-guys-story-scaring-the-hell-about-hc/</link>
		<comments>http://www.stopthethyroidmadness.com/2010/01/17/a-guys-story-scaring-the-hell-about-hc/#comments</comments>
		<pubDate>Sun, 17 Jan 2010 17:38:02 +0000</pubDate>
		<dc:creator>Janie</dc:creator>
				<category><![CDATA[adrenal fatigue]]></category>
		<category><![CDATA[dr. john c. lowe]]></category>
		<category><![CDATA[24 hour adrenal saliva]]></category>
		<category><![CDATA[adrenal saliva test]]></category>
		<category><![CDATA[adrenals]]></category>
		<category><![CDATA[anger]]></category>
		<category><![CDATA[anxiety]]></category>
		<category><![CDATA[blood]]></category>
		<category><![CDATA[cortisol]]></category>
		<category><![CDATA[depression]]></category>
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		<category><![CDATA[Doctors]]></category>
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		<category><![CDATA[ferritin]]></category>
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		<category><![CDATA[jeffries]]></category>
		<category><![CDATA[john c. lowe]]></category>
		<category><![CDATA[john lowe]]></category>
		<category><![CDATA[levothyroxine]]></category>
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		<guid isPermaLink="false">http://www.stopthethyroidmadness.com/?p=4345</guid>
		<description><![CDATA[Several years ago, a large percentage of thyroid patients on yahoo groups like NTH were figuring out that they had adrenal fatigue, aka low cortisol, from years of adrenals working overtime due to the inadequate TSH lab test, or being on the lousy T4-only medications like Synthroid, Levoxyl, levothyroxine, Eltroxin, etc.
Not only does low cortisol [...]]]></description>
			<content:encoded><![CDATA[<p><img class="alignright size-full wp-image-4515" title="FEAR" src="http://www.stopthethyroidmadness.com/wp/../images/FEAR.jpg" alt="FEAR" width="175" height="135" />Several years ago, a large percentage of thyroid patients on yahoo groups like <a title="List of good patient groups for feedback" href="/talk-to-others/">NTH</a> were figuring out that they had adrenal fatigue, aka low cortisol, from years of adrenals working overtime due to the inadequate <a title="Why the TSH lab test is useless" href="/tsh-why-its-useless/">TSH</a> lab test, or being on the lousy<a title="Why thyroxine doesn't work" href="/t4-only-meds-dont-work/"> T4-only</a> medications like Synthroid, Levoxyl, levothyroxine, Eltroxin, etc.</p>
<p>Not only does low cortisol keep desiccated thyroid from working well, it also causes all sorts of angst with paranoia, depression, anxiety, easy anger, sensitivity to light and/or sounds, reclusiveness, sleep issues and more.</p>
<p>First, patients discovered the importance of using the 24 hour adrenal saliva test rather than blood or urine. When low cortisol was confirmed, the treatment was using cortisol, aka hydrocortisone, to give themselves back what their adrenals were not, to allow thyroid hormones to reach the cells, and to give the pooped out adrenals a rest.</p>
<p>And success was achieved! When all other issues were discovered and treated, patients were finally able to heal their adrenals with cortisol use, wean off, and be successful in their continued treatment with desiccated thyroid! That success continues today!</p>
<p>Yet in spite of clear success in the treatment of low cortisol with supplemental cortisol in the correct amount for each individual (which can range from 15 to 40 mg generally&#8211;men often need the higher end), as well as excellent books on the subject by Wilson, Peatfield, Jeffries and the STTM book, patients like RD below still encounter doctors who fill their minds with all sorts of fear and warnings:</p>
<blockquote><p>I bought your book and later on I discovered your website which are both great. They are a superb source of information and support for thyroid and adrenal fatigue sufferers. Thank you so much!</p>
<p>Personally I got adrenal fatigue by a sustained lack of sleep for several years (crying babies).  I found a doctor who prescribed Hydrocortisone (17.5 mg/day, 5-5-5-2.5), Fludrocortisone, DHEA and Testosterone. Symptoms disappeared in about 2 weeks.</p>
<p>A first attempt to wean off after 6 months made some serious symptoms reappear very quickly, so I returned to the original dose.</p>
<p>It is very stressful that many established doctors (our family doctor, and my wife&#8217;s thyroid-endocrinologist) are scaring me like hell that I am taking HC. They are saying I am destroying my body and I will never succeed in weaning off HC.</p>
<p>My wife is a T4-only thyroid-patient with low-cortisol symptoms. She also has been scared about dessicated thyroid and HC. Reading your book I was however convinced she could benefit a lot from a better treatment&#8230;</p>
<p>Keep up the good work, as patients we are really left alone in the dark by our doctors&#8230;</p></blockquote>
<p>And unfortunately, it&#8217;s true. Thyroid and adrenal patients are left in the dark by many doctors about a variety of issues related to better thyroid treatment, adrenal issues, low ferritin, and more.  So here&#8217;s where you can read more, and in turn, take this important information into your doctors offices:</p>
<ul>
<li><a href="/adrenal-info/">All about</a> the problem of adrenal fatigue</li>
<li><a href="/adrenal-info/how-to-treat/">How to treat</a></li>
<li><a href="/adrenal-info/symptoms-low-cortisol/">Symptoms</a> of having an adrenal problem</li>
<li>The <a href="/book/">STTM book</a>, which not only has more detail, but can be taken right into the doctor&#8217;s office</li>
<li><a href="/talk-to-others/">Talk</a> to other patients, including a group targeted for adrenal fatigue</li>
</ul>
<p>*********************************************************</p>
<p><img class="alignleft size-full wp-image-4522" title="Dr.JohnCLowe" src="http://www.stopthethyroidmadness.com/wp/../images/Dr.JohnCLowe5.jpg" alt="Dr.JohnCLowe" width="44" height="50" />If you missed the excellent Part 2 with researcher Dr. John C. Lowe last Thursday evenings, you can listen to the recording, as well as sign up to be a Follower of the Thyroid Patient Community Call, <a title="STTM's Thyroid Patient Community Call on Talkshoe" href="http://www.talkshoe.com/talkshoe/web/talkCast.jsp?masterId=62603&amp;cmd=tc">here</a>.</p>
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		<title>Dr. Lowe wants to talk to you more directly this Thursday&#8211;post your questions here!</title>
		<link>http://www.stopthethyroidmadness.com/2010/01/11/dr-lowe-wants-to-talk-to-you/</link>
		<comments>http://www.stopthethyroidmadness.com/2010/01/11/dr-lowe-wants-to-talk-to-you/#comments</comments>
		<pubDate>Mon, 11 Jan 2010 20:29:43 +0000</pubDate>
		<dc:creator>Janie</dc:creator>
				<category><![CDATA[hypothyroidism]]></category>
		<category><![CDATA[autoimmune]]></category>
		<category><![CDATA[community call]]></category>
		<category><![CDATA[Dr lowe]]></category>
		<category><![CDATA[dr. john c. lowe]]></category>
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		<category><![CDATA[fibro]]></category>
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		<category><![CDATA[iodine]]></category>
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		<category><![CDATA[lab test]]></category>
		<category><![CDATA[metabolism]]></category>
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		<category><![CDATA[tsh lab test]]></category>

		<guid isPermaLink="false">http://www.stopthethyroidmadness.com/?p=4477</guid>
		<description><![CDATA[
Please note: Dr. Lowe is NOT an MD or DO who see&#8217;s patients and can prescribe. He&#8217;s a thyroid and fibro &#8220;researcher&#8221; with good knowledge about T3,  fibro, metabolism, supplements etc. Many questions have been coming in which are already answered on STTM, or are more targeted to a practicing physician, not a researcher. FYI.
 [...]]]></description>
			<content:encoded><![CDATA[<p><strong><img class="alignleft size-full wp-image-4480" title="Dr.JohnCLowe" src="http://www.stopthethyroidmadness.com/wp/../images/Dr.JohnCLowe3.jpg" alt="Dr.JohnCLowe" width="117" height="150" /></strong></p>
<address>Please note: Dr. Lowe is NOT an MD or DO who see&#8217;s patients and can prescribe. He&#8217;s a thyroid and fibro &#8220;researcher&#8221; with good knowledge about T3,  fibro, metabolism, supplements etc. Many questions have been coming in which are already answered on STTM, or are more targeted to a practicing physician, not a researcher. FYI.<br />
 <img src='http://www.stopthethyroidmadness.com/wp/wp-includes/images/smilies/icon_smile.gif' alt=':)' class='wp-smiley' /> </address>
<address> </address>
<address><strong>1-14-08: COMMENTS with your QUESTIONS ARE NOW CLOSED TO POSTING.  There are more than he can answer right now.</strong> <strong>See you tonite!</strong><br />
</address>
<p><strong>On the heels of an informative </strong><strong>and wonderful THYROID PATIENT COMMUNITY CALL on Talkshoe last week with Dr. John C. Lowe (see posts below), we&#8217;re going to do it again this coming Thursday, January 14th.  Join us for Part 2! </strong></p>
<p>Dr. Lowe is a fibromyalgia, thyroid, and metabolism researcher who has always been such a champion for better diagnosis and treatment in thyroid patients. He is Editor-in-Chief of the open access journal <a href="http://www.thyroidscience.com/">www.thyroidscience.com</a> as well as his own <a href="http://www.drlowe.com">www.drlowe.com</a></p>
<p><em>And this time, Dr. Lowe is going to spend more time answering  your specific questions.</em> Check out his websites above to get an idea what his expertise is, which includes the use of T3,  Hashimotos autoimmune thyroid disease, iodine, fibromyalgia, the tyranny of the TSH lab test, good supplements, the FDA, and more.</p>
<p>So here&#8217;s your chance: <strong><em>think of one or two questions you&#8217;d like to hear him answer.</em></strong> Please, if you have more more than two,  narrow them down to the two most important, and keep them <em>brief</em>.  No exceptions. Two max only, and brief.  Then use the Comments below to post them.  Be sure and check out if your questions have already been asked in other comments.</p>
<p>I&#8217;ll be collecting the questions ahead of time and will let him preview them. He wants to give you his best.</p>
<p><strong>TIPS ABOUT TALKSHOE:</strong> Some reported being booted off and having to quickly rejoin. One step that may help is to download the Talk Shoe Live Pro ahead of time (takes 25 minutes for some) and use that software during the call, since it gives you far more stability.  Also, make SURE you have everything else closed and/or not running on your computer at the same time you are in the Talkshoe call. I will also be chatting with Talkshoe support and will get more ideas.</p>
<p>Also, don&#8217;t wait until the call occurs to mention your question. We found it difficult to try collecting them on the Chat. Ask now!!</p>
<p>Yes, you can also call in live during the Call, but it&#8217;s good to first let me know your question here.</p>
<p>And finally, at a certain point of those who join (after 300 on chat), Talkshoe participants are automatically unable to post on the chat. You can listen, but no chatting. So if you want to chat, join as soon as the Call opens up, which is 15 minutes before the actual audio begins. Times for the audio are 9 pm Eastern, 8 pm Central, 7 Mountain, and 6 pm Pacific.</p>
<blockquote><p><strong>The Stop the Thyroid Madness Talkshoe page: <a href="http://www.talkshoe.com/talkshoe/web/talkCast.jsp?masterId=62603&amp;cmd=tc">http://www.talkshoe.com/talkshoe/web/talkCast.jsp?masterId=62603&amp;cmd=tc</a></strong></p></blockquote>
<p>********************<br />
<em><strong>See the blog post below those about Lowe for a very insightful <a href="/writing-a-guest-blog-post-on-sttm/">Guest Blog Post</a> by Amy about her role as an Undercover Thyroid Advocate. Below that, you can read how I was wrong about what it was like to be thyroidless, and several great comments. </strong></em></p>
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		<item>
		<title>Thanks to Dr. Lowe for a very valuable call last night</title>
		<link>http://www.stopthethyroidmadness.com/2010/01/08/thanks-to-dr-lowe/</link>
		<comments>http://www.stopthethyroidmadness.com/2010/01/08/thanks-to-dr-lowe/#comments</comments>
		<pubDate>Fri, 08 Jan 2010 18:45:29 +0000</pubDate>
		<dc:creator>Janie</dc:creator>
				<category><![CDATA[Thyroid Patient Community Call]]></category>
		<category><![CDATA[dr. john c. lowe]]></category>
		<category><![CDATA[aace]]></category>
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		<guid isPermaLink="false">http://www.stopthethyroidmadness.com/?p=4455</guid>
		<description><![CDATA[Anyone who listened to the Thyroid Patient Community Call last night will know that we were listening to a powerhouse of a man with an encyclopedia of valuable information: Dr. John C. Lowe.
He is the author of an exhaustive book on Fibromyalgia called The Metabolic Treatment of Fibromyalgia, which explains how the proper diagnosis and [...]]]></description>
			<content:encoded><![CDATA[<p><img class="alt" title="Dr.JohnCLowe" src="http://www.stopthethyroidmadness.com/wp/../images/Dr.JohnCLowe2.jpg" alt="Dr.JohnCLowe" width="117" height="150" />Anyone who listened to the <a href="http://www.talkshoe.com/talkshoe/web/talkCast.jsp?masterId=62603&amp;cmd=tc">Thyroid Patient Community Call</a> last night will know that we were listening to a powerhouse of a man with an encyclopedia of valuable information: <strong><a href="http://www.drlowe.com">Dr. John C. Lowe</a></strong>.</p>
<p>He is the author of an exhaustive book on Fibromyalgia called <a title="Ordering the book from the publisher" href="http://www.mcdowellpublishing.com/"><em>The Metabolic Treatment of Fibromyalgia</em></a>, which explains how the proper diagnosis and treatment of hypothyroidism is a good choice in the treatment of fibro. He also owns drlowe.com and the research website Thyroid Science.</p>
<p>I already knew he was great. He&#8217;s listed in the Acknowledgements of the Stop the Thyroid Madness <a href="/book/">book</a> as one of a handful of medical professionals who played a huge role in educating and empowering patients all these years.  He, like the others, was a springboard for patients to move forward in gaining far better information about thyroid treatment and everything else <a href="/things-we-have-learned/">we have have learned</a> over the years!</p>
<p>And he has agreed to come back, since we had many more questions to ask him! I&#8217;ll announce that when we secure a date.</p>
<p>Below are some highlights from our talk with Dr. Lowe:</p>
<ol>
<li>The use of high dose B-vitamins is very important for the thyroid patient, and even more so when you are feeling better in your treatment. Thyroid increases the production of protein, which drives energy, and you&#8217;ll need the B&#8217;s to help this higher energy production.</li>
<li>Sadly, it&#8217;s economics which dominant science and and researching, and it&#8217;s all for marketing purposes instead of the pursuit of truth and the real health of patients.</li>
<li>What drives your medical investigations? To gain wealth, or to help patients?</li>
<li>75% of the time, if a doctor uses the TSH to either diagnose hypo or treat it, he will be wrong.</li>
<li>In the 1980&#8217;s, the top of the TSH range was 7.5.</li>
<li>Abbott Labs, the makers of Synthroid, gives one million dollars in an unrestricted educational grant to the American Association of Clinical Endocrinologist (AACE) i.e. no wonder Endocrinologists have a love affair with Synthroid, a medication like other brands which has left the vast majority of us undertreated. You can read more details from Lowe on this subject <a title="What Your Hypothyroid Patients Should Know about Synthroid" href="http://www.chiroweb.com/mpacms/dc/article.php?id=18277">here</a>.</li>
<li>Isocort, an OTC treatment for low cortisol, is protected by the 1994 Dietary Supplement Health and Education Act.</li>
<li>HC, aka hydrocortisone, is water soluble. Isocort is fat soluble. People need bile so the lipase enzymes are able to work on it.</li>
<li>There are no studies to compare Isocort to HC, and should be.</li>
<li>If swallowing, take thyroid one hour before eating for best absorption. If meal will have a lot of fat, 3-4 hours before eating.</li>
<li>Elderly people have less Hydrochloric Acid and do a worse job absorbing nutrients. (And so do undertreated hypo patients, reminded Diane)  Betaine is a good supplement to help.</li>
<li>Why it can be a bad idea to swallow thyroid with meals: we never know how many compounds are in the food that will bind it, like calcium and iron.  T4 is the most badly absorbed.</li>
</ol>
<p>To hear more, just click above and listen to the recorded call. Thank you for being you, Dr. John C. Lowe.</p>
<p>***************************************</p>
<p><strong><img class="alignleft size-full wp-image-4464" title="icicles2" src="http://www.stopthethyroidmadness.com/wp/../images/icicles2.jpg" alt="icicles2" width="150" height="100" />BRRRRR. In the US and many other countries,  we are having one of the coldest winters we&#8217;ve seen in a long time. And if you are out in it alot, you may need a tad more thyroid meds to keep yourself optimal. </strong></p>
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		<slash:comments>1</slash:comments>
		</item>
		<item>
		<title>Confessions of an Undercover Thyroid Advocate</title>
		<link>http://www.stopthethyroidmadness.com/2010/01/01/confessions-of-an-undercover-thyroid-advocate/</link>
		<comments>http://www.stopthethyroidmadness.com/2010/01/01/confessions-of-an-undercover-thyroid-advocate/#comments</comments>
		<pubDate>Fri, 01 Jan 2010 23:37:13 +0000</pubDate>
		<dc:creator>Janie</dc:creator>
				<category><![CDATA[hypothyroidism]]></category>
		<category><![CDATA[2006]]></category>
		<category><![CDATA[about.com]]></category>
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		<category><![CDATA[american association of clinical endocrinologist]]></category>
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		<guid isPermaLink="false">http://www.stopthethyroidmadness.com/?p=4397</guid>
		<description><![CDATA[The following guest blog post is written by Amy McMullen, who had undiagnosed &#38; symptomatic hypothyroidism for 20 years due to the sole use of the TSH, resulting in multiple health problems. She is now treating per the guidelines on STTM including T3 for thyroid hormone resistance, adrenal support, and desiccated thyroid.
 I found her story [...]]]></description>
			<content:encoded><![CDATA[<p><em>The following guest blog post is written by Amy McMullen, who had undiagnosed &amp; symptomatic hypothyroidism for 20 years due to the sole use of the TSH, resulting in multiple health problems. She is now treating per the guidelines on STTM including T3 for thyroid hormone resistance, adrenal support, and desiccated thyroid.</em></p>
<p><em> I found her story below as an undercover advocate fascinating,  and think Amy is caring and committed,  in spite of severe restrictions!</em> <em>Bless you, Amy. </em></p>
<p>I spend an inordinate amount of time these days contributing to a well-known online thyroid disorders forum I’ll call &#8220;Thyroid Health Forum&#8221; (not its real name).</p>
<p>It’s a tricky forum with draconian rules: they don’t allow you to post any links to resources, talk about where you get your online labs done, include quotes from studies, or post any names of thyroid advocates. You can’t use a username you’ve used on any other forums and you can’t mention using their personal messaging system.</p>
<p>I’ve received a few “infractions” from the ever-vigilant board “administrators” and “moderators” (never could color inside the lines, I guess) and have been warned to never, under any circumstances, use the words “Stop the Thyroid Madness” or any references to this website or book in my posts.</p>
<p>At more than one point I was ready to walk away and just give up on it.  How can you share your experiences when there were so many rules that seemed designed to inhibit a free flow of information, to the point of not being allowed to mention the title of a good book by name or type in the word Google?</p>
<p>But I would read the following posts submitted by desperate people and this would keep me coming back to try, somehow, to help:</p>
<ul>
<li> “Hi, my doctor says my labs are all normal but I’ve got so many symptoms, I can hardly function…”</li>
<li> “My doctor says that free T3 and free T4 testing is not useful, that my TSH is normal and that unless my TSH is high he won’t order any antibody tests…”</li>
<li> “My doctor says that my TSH is too low and wants me to cut back on my thyroid hormones, but I know I will start feeling bad if I do this… Help!”</li>
<li> “I am taking Synthroid but I feel terrible and my hair is falling out and now my doc wants me to take an antidepressant…”</li>
</ul>
<p>You see, I was in this very same boat for far too many years. About 20 years back I started noticing symptoms:  fatigue, depression, menstrual irregularities, and dizzy spells. I went to see my doc who did the usual TSH test and when it came back “normal”, prescribed antidepressants. The antidepressants did help, but my menstrual problems intensified and other symptoms increased until I finally underwent a hysterectomy for dysfunctional uterine bleeding. Shortly thereafter, I collapsed with heart irregularities and autonomic nervous system dysfunction in the fall of 2006.</p>
<p>I went to over 10 different specialists spending thousands of dollars for medical bills with no real answers&#8211;just a lot of shrugged shoulders and a fibromyalgia diagnosis.</p>
<p>It wasn’t until my mother was hospitalized and routine blood testing came back with a TSH of over 6 that I looked again at my own thyroid. My TSH was never above 3. I had one free T4 test done following my initial collapse but, again, all tests were flagged “normal” and thyroid was passed over once again.</p>
<p>But a search about TSH lab ranges led me to Mary Shomon’s About.com articles, and while she seemed to be stuck on the idea that 3 was an acceptable number for the top of range for TSH, based entirely on the American Association of Clinical Endocrinologists recommendations, I finally found the Stop the Thyroid Madness site and learned otherwise.</p>
<p>It was here that I learned about other <a title="Recommended labwork" href="/recommended-labwork/">testing</a> like free T3, free T4, <a title="All about Hashimotos Disease" href="/hashimotos/">thyroid antibodies</a>, vitamin and <a title="All about Ferritin in hypothyroid patients" href="/ferritin/">ferritin</a> levels and, very importantly, that the <a title="Why the TSH lab test is useless" href="/tsh-why-its-useless/">TSH</a> should be the LAST test done for diagnosing hypothyroidism instead of the ONLY test. I finally caught on to how the medical establishment has failed miserably to adequately diagnose and treat hypothyroidism. I felt both incredibly empowered and very, very angry.</p>
<p>I quickly delved into the thyroid forums to share what I’d <a title="Important things thyroid patients have learned" href="/things-we-have-learned/">learned</a> and to learn from others. The first forum I found was the aforementioned  “Thyroid Health Forum”, and since this is one of the best-known, it is where many of the newbies, like me, find themselves. There were both natural and synthetic hormone proponents on the board and the advice ranged from very good to quite bad. I soon found there were better forums like <a href="/talk-to-others/">Realthyroidhelp</a> and the natural thyroid hormone Yahoo <a href="/talk-to-others/">groups</a> that had really smart people who were happy to share resources and information that was truly useful. I spent a lot of time on these and learned a great deal.</p>
<p>But for some reason I couldn’t seem to leave the &#8220;Thyroid Health Forum&#8221;. The people who stumbled on there seemed so lost and I felt compelled to impart what I had learned to them. I would offer alternatives to the synthetics and explain why natural desiccated thyroid (NDT) was a superior treatment option and, more importantly, that they did have an option for their treatment, despite what their doctor told them. I’d relay what I had learned from other boards about access to NDT during the shortages.</p>
<p>When I figured out I had <a href="/adrenal-info/">adrenal fatigue</a> and later thyroid hormone resistance as a result of being undiagnosed for so long, I started relaying information about these issues to the many who were having difficulties getting optimized on their hormone replacement therapy. I found it to be both rewarding and enormously educating for myself as I would spend time researching questions that were asked about supplements, lab tests, and studies. I was not allowed to post links so had to summarize things I had learned and this taught me even more. The main messages I pushed were (and are):  get the right labs done, learn how to interpret them correctly, be your own advocate, know your <a title="Important things thyroid patients have learned" href="/things-we-have-learned/">treatment options</a>, and don’t implicitly trust doctors.</p>
<p>I will continue to contribute what I’ve learned to the &#8220;Thyroid Health Forum&#8221;. So far I’ve managed to fly under the radar and play, however grudgingly, by their rules. I figure if I can get just one or two people to question the present thyroid clinical guidelines, as written by our friends at big pharma, I’ll be more than satisfied. I actually believe that by getting good information out there to as many sufferers as possible, we may create a groundswell of people who will no longer accept being dismissed as depressed complainers by their healthcare providers. And this is one more way we can help enact real change to the currently abysmal medical practice of thyroid diagnosis and treatment. Well worth it in my book!</p>
<p>*******************************</p>
<blockquote><p><strong>Latest news from RLC: </strong> Shipments of Naturethroid are beginning Monday, January 4th and the first two weeks with backorders going out ASAP.  Medco should have some by the end of January. Their <strong>Patient Information Line:</strong> Naturethroid/Westhroid: 877-600-4752</p></blockquote>
<p><strong>Thyroid  patient guest posts can be read about here:</strong> <a href="../../writing-a-guest-blog-post-on-sttm/">/writing-a-guest-blog-post-on-sttm/</a></p>
<p><strong>Want to honor someone who has helped you??</strong> See the blog post below and thank someone.</p>
<p><span>NOTE: if you were receiving email notifications about these posts,  the company doing them is out of business. Instead, use an RSS Feed. </span></p>
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		<title>The agonies of being thyroidless</title>
		<link>http://www.stopthethyroidmadness.com/2009/12/29/the-agonies-of-being-thyroidless/</link>
		<comments>http://www.stopthethyroidmadness.com/2009/12/29/the-agonies-of-being-thyroidless/#comments</comments>
		<pubDate>Tue, 29 Dec 2009 22:58:18 +0000</pubDate>
		<dc:creator>Janie</dc:creator>
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		<guid isPermaLink="false">http://www.stopthethyroidmadness.com/?p=4367</guid>
		<description><![CDATA[
There was a time when I thought being hypo without a thyroid was really no different than being hypo with one.  Hypo is hypo.
But I was wrong. There really is a difference in our journeys&#8211;even if we both end up with hypothyroidism—and four strong ones:

It&#8217;s no picnic to lose one&#8217;s thyroid. Surgical removal, called a [...]]]></description>
			<content:encoded><![CDATA[<p><img class="image" title="No Thyroid" src="http://www.stopthethyroidmadness.com/wp/../images/NoThyroid.jpg" alt="Thyroid is Missing From Human Throat" width="175" height="151" /><br />
There was a time when I thought <em>being hypo without a thyroid</em> was really no different than <em>being hypo with one</em>.  Hypo is hypo.</p>
<p>But I was wrong. There really is a difference in our journeys&#8211;even if we both end up with hypothyroidism—and four strong ones:</p>
<ol>
<li><strong>It&#8217;s no picnic to lose one&#8217;s thyroid.</strong> Surgical removal, called a thyroidectomy,  can come with neck soreness, loss of one&#8217;s voice, and other complications. including the loss of parathyroids.  Treatment with RAI, or Iodine 1-131 to kill the thyroid, has it&#8217;s own lifelong side effects, including gastrointestinal issues, parotid salivary gland problems, and more.  A good website about the controversy of RAI is <a title="Atomic Women website about RAI controversies" href="http://atomicwomen.org/">atomicwomen.org</a>.</li>
<li><strong>The stress of surgery and/or RAI can do a number on one&#8217;s adrenals.</strong> I suspect that there is a high percentage of those who had surgery and/or RAI who also have <a title="All about adrenal fatigue" href="/adrenal-info/">adrenal fatigue</a> with it&#8217;s nightmarish side effects, whether simply from the physical stress of removal and/or treatment, or having a Synthroid, T4-only obsessed doctor.  Being on T4 is the number one predictor of adrenal fatigue.</li>
<li><strong>Some have a unique anguish about their vulnerability.</strong> No one can live without a thyroid.  And that thought with the absolute lifelong dependency on thyroid meds is not a comfortable state.</li>
<li><strong>Life long regret can be huge.</strong> Many patients came to realize, after removal, that they may not have needed the removal at all if they had known about the fallacy of the TSH lab test, or the idiocy of T4-only meds, or potential benefits of iodine, or natural desiccated thyroid like Naturethroid, compounded, or Erfa Thyroid.</li>
</ol>
<blockquote><p>Read the latest personal and gut-wrenching <a href="http://ds-ladybugsandbees.blogspot.com/2009/12/approaching-10-year-mark.html">blog post</a> by thyroid cancer Stephanie Buist, who is thyroidless after treatment for thyroid cancer nearly 10 years ago.  Also see the Talk to Others link below to find the Thyroidless yahoo group.</p></blockquote>
<p>**************************</p>
<p><strong>Curious what&#8217;s going on with Naturethroid or Westhroid production and availability?</strong> RLC Labs has a Patient Information Line you can always call for the latest information on Naturethroid and Westhroid availability: 877-600-4752.</p>
<p><strong>Want to write a post for the STTM blog??</strong> Beginning in 2010, I will be reviewing and accepting &#8220;thyroid patient guest posts&#8221; on the STTM blog in between my own. You can read about it here: <a href="/writing-a-guest-blog-post-on-sttm/">www.stopthethyroidmadness.com/writing-a-guest-blog-post-on-sttm/</a></p>
<p><strong>Want to honor someone who has helped you??</strong> See the blog post below and thank someone.</p>
<p><span class="stand-out">NOTE: if you were receiving email notifications about these posts,  the company doing them is out of business. Instead, use an RSS Feed. </span></p>
]]></content:encoded>
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