Top Reasons Not To Have RAI
The following information seems to have originated from the original Atomic Women website, which is now defunct. I don’t know how accurate all this is, but it’s a bit profound otherwise. RAI is often prescribed if you are diagnosed with Graves disease, an autoimmune hyperthyroidism disease, or thyroid cancer.
PLEASE NOTE: this is not being included to tell you specifically to avoid RAI. The creator of this site, Janie, saw her mother have RAI, and Janie saw no consequences from it. But, there are other opinions about RAI, and this is one, which you might want to consider. This is just for informational purposes only and you should work with your doctor as well as talk to other patients to decide what’s best for YOU.
Top Reasons Not To Have RAI
- It’s permanent; once you swallow this there is no changing your mind and starting over. Since the science is inexact and dosage a guess at best, it may take years to be fully effective, or it may have to be repeated. (1)
- Graves disease is an auto-immune disease, not a disease of the thyroid, so killing the thyroid doesn’t stop the disease process; without adequate thyroid tissue, the antibodies that cause hyperthyroidism may go on to affect orbital or dermal tissue, causing Graves’ ophthalmopathy and pretibial myxedema.
- Results in hypothyroidism. Whoever said hypothyroidism is easy to treat, was mistaken. Because of the effects of thyroid antibodies, radiation-induced hypothyroidism is more difficult to treat than naturally occurring hypothyroidism. Hypothyroidism caused by treatment for hyperthyroidism is known to cause depression and anxiety. In one large Dutch study, “over one third of patients with a full-time job were unable to resume the same work after treatment. It appears that many of these patients are in need of psychological support. (3,4)
- Being hypothyroid is neither less debilitating nor less dangerous than hyperthyroid. With hypothyroidism one is at risk of myxedema coma which can be more deadly than thyroid storm. This results from improper monitoring and labs tests, keeping us in a hypO state. After radiation-induced hypothyroidism develops, it takes only 6 weeks without thyroid replacement hormone for patients to fall into myxedema coma.
- Increased antibody titers after RAI skew lab test results, adding to treatment difficulties. In particular, the widely-used TSH test is influenced by TSH receptor antibodies, causing falsely decreased levels.
- RAI, aka spent nuclear fuel (“nuclear waste”, in other words) is absorbed by other organs and can cause cell death or DNA mutations. RAI is absorbed, in smaller amounts, by other organs besides the thyroid, including breast tissue, the genitals, pancreas, and the gastric mucosa.
- For up to 4-8 weeks after dosage, we’re exposing those around us to radioiodine. This is demonstrated by patients registering measurable radioidine in airport and other screening devices.
- Studies show an increase in cancers, especially of the thyroid gland and small bowel, after RAI.(5)
- Possibility of damaging the parathyroid, causing hypoparathyroidism. (6)
- RAI can cause difficulty with future attempts to become pregnant and carry pregnancies to term. RAI is known to affect the ovaries, which is why patients are recommended to avoid becoming pregnany for at least 6 months after RAI. The 6 months recommendation was increased to at least one year in early 2002.
- Chance of thyroid eye disease developing increases dramatically, as RAI doesn’t stop antibody production. (7)
- Chance of significant, unhealthy weight gain is increased. Studies show that weight gain is inevitable after radioiodine-induced hypothyroidism. (8,9)
- Replacement hormone products currently on the market, both synthetic and glandular, are not comparable to our own hormone, and in some people, never feel “right”.
- Ongoing problems as the gland gradually dies, necessitating close medical surveillance and replacement hormone dosage adjustments which usually does not happen unless a patient is educated and proactive in their disease and treatment. Within one year after RAI, most patients are on a dose of replacement hormone equivalent to 0.1mg levothyroxine; 5-6 years post RAI, most patients are on 0.175 mg levothyroxine because of the progression to autoimmune thyroid failure.
- Increased risk of developing fibromyalgia like symptoms.
- For most GD patients, medication with ATD’s creates a euthyroid state similar to “normal life”, and can lead to long-term remission as well. (10)
- As modern science explores the human genome, a cure for GD could be found, but after RAI kills the thyroid, it wouldn’t work. Current research is directed at modulating the cytokines, immune system chemicals released during the immune response and necessary for autoantibody production. Treatments of this nature are already being used successfully in Crohn’s disease.
- I131 is so dangerous it’s transported in a lead container and kept at the hospital only for the briefest time before being dispensed by a doctor shielded in lead from head to toe.
- When cats are given I-131, they must be kept in a contained facility for up to 6 weeks until they no longer set off warnings on a geiger counter, yet people, especially in the U.S.A. are released with in minutes of treatment on an unsuspecting population. Germany keeps I-131 patients for several days in a contained radiation facility until their radioactive numbers are in a *safe* level. Is there REALLY anything *safe* about ingesting I-131? (11)
- Salivary and tear duct damage from I-131. (12)
* Here’s a dissertation titled Long Term Prognosis of Patients Treated with Radioactive Iodine for Hyperthyroidism. It’s conclusion: that there is an increased risk for cardiovascular issues or cancer in those who had RAI. http://tampub.uta.fi/bitstream/handle/10024/67755/978-951-44-7081-3.pdf?sequence=1
* Also see the article on STTM written by Thyroid Patient Tracy titled Why have millions of Americans been treated with Radioactive iodine?