Off and on, I hear about a par­ti­cu­lar indi­vi­dual who has cri­ti­ci­zed this site for being a “self-treatment” site. I can only chuc­kle in dis­may at that kind of hollow cri­ti­cism and misin­for­ma­tion. So I want to explain what this site is, and what it is not.

This site is here to tell the world that patients have figu­red out that T4-only treat­ment does NOT work (any­more than an ele­va­tor in a 50 story buil­ding, which only rises to the 5th floor, “works’), and neither does dosing by the TSH. It is here to tell hypothy­roid patients that they are not crazy for fee­ling awful on thy­ro­xine treat­ment – that their depres­sion, lack of sta­mina com­pa­red to others, cons­ti­pa­tion, dry skin and hair, high cholesterol.…and SO many other symp­toms, is due to a lousy medi­ca­tion and a poor adhe­rance to a bad lab called the TSH and total T4.

Addi­tio­nally, this site is here to tell patients, and hope­fully doc­tors who are willing to lis­ten, what we have lear­ned! We are pas­sing along INFORMATION, which I would say is the MAIN empha­sis of this site.

This site also makes it clear that patients here are only expres­sing opi­nions, and the infor­ma­tion pre­sen­ted is NOT inten­ded to replace the rela­tionship and per­so­nal medi­cal advice bet­ween the patient and his/her doc­tor. It is meant to coun­ter BAD infor­ma­tion out there, and to pro­vide YOU the patient with infor­ma­tion to bring to your doc­tor so you can receive BETTER care.

Addi­tio­nally, this site con­ti­nually refers to the page called HOW TO FIND A GOOD DOC. We want you to find a good doc!

And here’s what we are NOT: we are not a “self-treatment site”. Does that mean that folks who choose to self-treat can’t get good infor­ma­tion here? Nope. They can. Because this is a site of infor­ma­tion to empo­wer thy­roid patients. But this is not a site that pushes patients to self-treat. If anyone uses this infor­ma­tion to self-treat, that is THEIR choice, and is at their OWN risk.

And I will state that I totally unders­tand why some patients turn to self-treatment. They do it because they can’t find a doc­tor who will put them on Armour; or, they can’t find a doc­tor who will pay atten­tion to their screa­ming symp­toms when labs are “nor­mal”; they can’t find a doc­tor who will stop dosing them by the TSH alone: they can’t find a doc­tor who will pay atten­tion to the free T3; they can’t find a doc­tor who unders­tands about slug­gish adrenals.….….and so on. Thy­roid patients are sick and tired of being sick and tired at the hands of par­ti­cu­lar doc­tors who haven’t, and don’t unders­tand what is going on!! And I CANNOT, and WILL NOT, cri­ti­cize that. This site will sup­port those who want to find a doc­tor, and will sup­port those who make the per­so­nal choice to self treat!

So, we are doing our best here to spread the word about a MUCH bet­ter medi­ca­tion and a bet­ter treat­ment for doc­tors to use with their patients, to help patients be MUCH bet­ter infor­med when they enter the door of their doc­tors, and to help patients find a MUCH bet­ter doc­tor through the page men­tio­ned above. Here’s rai­sing my glass to PATIENTS, and to DOCTORS willing to lis­ten, because we have wal­ked a path to a much bet­ter life..and we are hoping you are LISTENING.


  • Want to keep track of these “fringe web­site” blog posts? ;-) Curious what’s on Janie’s mind? Use the noti­fi­ca­tion on the lower left of the links, called a News­let­ter, or an RSS Feed.
  • The extre­mely hip and sophis­ti­ca­ted STTM t-shirts are half price! Great BUMPER STICKERS, too. Spread the word – YOU may make a dif­fe­rence in someone’s life.
  • Check out the patient-to-patient book with even more detail (and which doc­tors seem to res­pect more than websites).
  • Need to unders­tand all your best options for thy­roid treat­ment? Go here.
  • Keep infor­med of each live Thy­roid Patient Com­mu­nity Call on Talkshoe by sig­ning up as a follo­wer.

5 Responses to “What this site is: what this site is not”

  1. Marie said:

    Sep 24, 06 at 1:53 pm

    Since when is “self-treatment” a bad thing? That is exactly what has to change. I wouldn’t let Brain­washed God/Doctor/Doctor/God old-timers who don’t have the whe­re­withall to analyze infor­ma­tion and rea­lize what they can and can­not do them­sel­ves rattle me.

    I can buy Codeine over the coun­ter in France. I can not buy mela­to­nin at all in France. Yet many French peo­ple think their rules are much wiser than anyone else’s.

    Who is making OUR rules about what we can buy and can’t buy over the coun­ter? And who is so imma­ture as to rely com­ple­tely on the govern­ment or doc­tors to make deci­sions about what is and isn’t good for them? And then to sue them if they got it wrong??????

    Peo­ple who think calling a site a “self-treatment” site need to grow up.

    Keep doing what you’re doing. The world needs it and you’re doing a great job of it! And I love your hea­der! And your color scheme!

  2. Robin said:

    Nov 01, 06 at 7:50 pm

    As an active envi­ro­men­ta­list, and someone who has suf­fe­red many of these symp­toms since moving to Elk­ton I think perch­lo­rate con­ta­mi­na­tion nedds to be loo­ked into. Who’s voting around here?! It’s great that you are bring atten­tion to this bother­some and pos­sibly lethal topic. Has anyone con­tac­ted the Sie­rra Club chap­ter in MD? I am a mem­ber and will do so… Whose with me?!!!!

  3. Cathy C said:

    Jan 14, 07 at 7:20 am

    Well, if you need to self treat due to the tun­nel vision of doc­tors, so be it! I am so tired of being tal­ked down to and con­des­cen­ded to that I could scream! Being told that Armour is infe­rior — it is $ynthc­rap that is infe­rior! If I can’t find a doc­tor who isn’t offen­ded by my research and know­ledge and who isn’t willing to work WITH me (it is MY body, after all), then I will self treat. Deal with it.

  4. Caro said:

    Mar 25, 07 at 3:38 pm

    Wow! you sound like a law­yer girl ^.^ B-E-A-U-T-I-F-U-L-! Fan of you. Caro.-

  5. Joy said:

    May 22, 07 at 6:49 pm

    Here here! I was on Synth­roid and got worse. I was told that I just nee­ded to take more! I was gai­ning weight des­pite everything I did. I was depres­sed, anxious, and angry! Armour was bet­ter, but it still wasn’t the ans­wer. Now I am 50, I’m 20 pounds over­weight, apple sha­ped, and hor­mo­nal! If I was con­fu­sed about thy­roid and adre­nal func­tion, let me tell you how con­fu­sing HORMONE infor­ma­tion is!


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