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Patients and wise doctors continue to learn in leaps and bounds

IMG_2008 Just when you think we’re full of great infor­ma­tion for bet­ter thy­roid care, there’s still more to learn and find out.  Below is infor­ma­tion that you might find inte­res­ting on STTM.

ADRENALS: For those who dis­co­ve­red via the 24 adre­nal saliva test that they nee­ded cor­ti­sol sup­port, we have come to rea­lize that some can’t do the ram­ping up sche­dule from a small amount to a lar­ger amount without having pro­blems from the feed­back loop.

Ins­tead, many simply need to “start” on the higher amount, which would range from 20 – 30 mg. You can read about that on the How to Treat page, and you’ll note that not one mor­ning amount goes higher than 10 mgs.  With the excep­tion of men, higher than 10 mg seems to sup­press the ACTH and adre­nals too much.

A NEW LOOK: To make the STTM home page more unders­tan­da­ble to new­co­mers, the home page has bro­ken down the infor­ma­tion bet­ter into sepa­rate pages, and also has a new inte­res­ting way of using it.

LISTEN TO THIS INFORMATION: STTM has short audio clips you can lis­ten to, or send someone else to, to help unders­tand what this is all about.

STORIES OF OTHERS: Indi­vi­dual real-life sto­ries con­ti­nue to come in, pro­ving over and over that this revo­lu­tion for far bet­ter care really does work.

FEEDBACK and MORE FEEDBACK: I get emails daily about lives chan­ged thanks to this patient revo­lu­tion. It’s won­der­ful to see peo­ple fin­ding out WHY they have depres­sion, less sta­mina than others, rising cho­les­te­rol and blood pres­sure, hair loss plus other lin­ge­ring symp­toms of  hypothy­roi­dism left untrea­ted because of the lousy TSH, or under­trea­ted because of the equally-lousy T4-only treat­ment like Synth­roid. I can’t begin to post them all, but STTM does con­tain a sam­pling of this feed­back.

DESICCATED THYROID BRANDS: Wow, the list is gro­wing for desic­ca­ted thy­roid brands around the world! We now have lis­tings for Den­mark, Ger­many, Italy and New Zea­land, as well as more detai­led infor­ma­tion on com­poun­ded thy­roid in Aus­tra­lia. Thanks to all who contributed.

KEEPING UP WITH ADDITIONS TO STTM: In case you didn’t know, there’s a page meant to inform you of what’s added to STTM. I may neglect to list a few addi­tions occa­sio­nally, but think I’m pretty close to get­ting most of them up there.

MEDICAL RESEARCH TO PROVE WHAT WE ALREADY KNOW: Did you know that STTM has a page which com­pi­les research and stu­dies which prove what we as patients already know? It’s not loa­ded with research yet, but it’s gro­wing. And if you have found more to con­tri­bute to that page, use the Con­tact Me form.

SITE MAP: And bot­tom line, you can always go to the Site Map, or review the infor­ma­tion more com­pactly in the book, which patients are taking into their doc­tors offices.

*Want to be infor­med of these blog posts? Curious what’s on Janie’s mind? Use the Noti­fi­ca­tions on the left at the bot­tom of the links.

*Stop the Thy­roid Mad­ness T-shirts are now 50% off! I like sales, don’t you? And by wea­ring these shirts, you’ll never know what seed you put in the mind of someone wal­king past you who’s still on Synth­roid or any other T4 meds, and doesn’t know WHY they have depres­sion, rising cho­les­te­rol, easy weight gain, the need for naps, etc. You”ll also find humo­rous bum­per stic­kers which defi­ni­tely spread the word.

Doctor questions if adrenal fatigue is real

Louis Nei­pris, M.D., a staff wri­ter who has writ­ten many fine artic­les for myOptumHealth.com, recently wrote one article tit­led Adre­nal Fati­gue: Is it for real? It appea­red on Upper Michi­gan News, TV 6 web­site on July 16th and is making the rounds on other sites. His ans­wer to his own ques­tion?  “Not really”. He adds  it’s not an accep­ted medi­cal diagnosis.”

Oops.

Dr. Nei­pris, thy­roid patients all over the world beg to dif­fer, as do a gro­wing body of collea­gues in your pro­fes­sion. Adre­nal fati­gue, aka low cor­ti­sol, has been dis­co­ve­red on the back of a huge body of thy­roid patients, wea­ring them down with  irri­ta­bi­lity, anxiety, sha­ki­ness, fee­ling dizzy or lighthea­ded­ness, sleep issues, swea­ting, salt cra­ving, nau­sea in the face of stress, and a host of other symp­toms uni­que to each indi­vi­dual with adre­nal fati­gue. My per­so­nal obser­va­tion, as a thy­roid patient acti­vist, is that up to 50% of millions of thy­roid patients all over the world, may have adre­nal fati­gue, or at the very least, a slug­gish feed­back loop.

Even worse, the wides­pread occu­rrence of adre­nal fati­gue, espe­cially in thy­roid patients, has cau­sed pro­blems when they try rai­sing a far supe­rior thy­roid medi­ca­tion called desic­ca­ted thy­roid. Because cor­ti­sol is nee­ded to faci­li­tate the move of thy­roid hor­mo­nes from the blood to the cells, the direct T3 in desic­ca­ted thy­roid pools in the blood, cau­sing low-cortisol-induced hyper symp­toms like a poun­ding hear­trate and irri­ta­bi­lity. The first-pass treat­ment then has to start with hydro­cor­ti­sone like presc­rip­tion Cor­tef from their doctors.

Why have such a large body of thy­roid patients found them­sel­ves with adre­nal fati­gue and its low cor­ti­sol? It’s clear. The TSH lab test sucks, giving one a “nor­mal” rea­ding for years in spite of obvious cli­ni­cal pre­sen­ta­tion of hypothy­roid symp­toms, and pushing one’s adre­nals into over­drive with high cor­ti­sol and adre­na­line to keep the patient going, and ulti­ma­tely lea­ding to adre­nal fati­gue.  On page 65 of the Stop the Thy­roid Mad­ness book, you’ll read about a 44 year old woman who went 15 years with a “nor­mal” TSH result, in spite of obvious cli­ni­cal pre­sen­ta­tion of hypothy­roi­dism, and which led to her own low cor­ti­sol. This is not uncommon.

Second, the risk of adre­nal fati­gue is high due to the ina­de­quate treat­ment of T4 medi­ca­tions like Synth­roid, Levoxyl, levothy­ro­xine, Eltro­xin and other T4-only meds. They all leave patients with their own brand and inten­sity of lin­ge­ring symp­toms of a poor treat­ment, for­cing the adre­nals to kick in too long for many.

Even William Mck. Jef­fries MD., who wrote the medi­cal clas­sic Safe Uses of Cor­ti­sol around 1984, unders­tood the pre­pon­de­rance of adre­nal fati­gue even without the diag­no­sis of Addison’s, and the need for phy­sio­lo­gic doses of cor­ti­sol treat­ment, or the amount nee­ded by each indi­vi­dual.  And he would cer­tainly be ama­zed by the explo­sion of adre­nal fati­gue that has occu­rred since then in thy­roid patients thanks to the lousy TSH and synthe­tic T4-only ‘affaire de coeur’ with doctors. 

Adre­nal fati­gue may not be an “accep­ted diag­no­sis” by many.  But medi­cal pro­fes­sio­nals and doc­tors who think it’s not real or an accep­ta­ble diag­no­sis will have to face a huge body of patients glo­bally who DO have real live adre­nal fati­gue. And adrenally-fatigued patients can get realllllly hos­tile and angry because of low cor­ti­sol, and be very impa­tient when you deny their rea­lity.  (You’re going to see a lot of com­ments to this post which I highly sug­gest reading.)

P.S. Even desic­ca­ted thy­roid like Natu­reth­roid and the pre-reformulated Armour are not con­si­de­red to be the stan­dard of prac­tice for trea­ting hypothy­roi­dism, yet thy­roid patients all over the world are having lives CHANGED thanks to it.

***Want to be infor­med of my blog posts? Curious what’s on my mind? Use the Noti­fi­ca­tions to the left and right below the links.

***Read below why thy­roid patients are not happy with Armour and switching to brand names like Naturethroid. 

How’s your weight?? 6 Holiday Facts for Thyroid Treatment from STTM.

With recent news of Oprah’s con­ti­nuous weight gain (currently par­tially due to her fai­lure to pro­perly treat her hypothy­roi­dism and pro­bably Hashi­mo­tos (see post below this), it can make us all shud­der as we deal with the holi­days and all that great food!

I admit it: At Christ­mas­time, I LOVE the easy Gin­ger­bread Boy Coo­kies recipe I used when the boys were little, the Mic­ro­wave Fudge recipe to die for, my world famous Cho­co­late Chip Merin­gue Coo­kies which I color red and green, my mother’s won­der­ful Pra­li­nes which I occa­sio­nally try to make myself,  and Grandma’s Fruit Cake–yeah an actual fruit cake I LOVE, which I order EVERY SINGLE YEAR at this time.

And it’s hard not to gain weight! Is that you, too?? So let’s go over 6 HOLIDAY FACTS about thy­roid treat­ment with desic­ca­ted thyroid:

1) Armour, Natu­rethy­roid, Westh­roid, or any other desic­ca­ted thy­roid medi­ca­tion is not meant to be a Christ­mas weight loss pill. Desic­ca­ted thy­roid medi­ca­tions con­sist of thy­roid hor­mo­nes: T4, T3, T2, T1 and cal­ci­to­nin. They simply give you back what your own thy­roid is not giving you…the same five hor­mo­nes which give you back a stron­ger immune sys­tem, a nor­mal body tem­pe­ra­ture & impro­ved meta­bo­lism, bet­ter energy, healthier hair and skin, less aches & pains, emo­tio­nal hap­pi­ness, bet­ter lipid pro­fi­les like cho­les­te­rol, stron­ger bones…and on and on.  But even with all that bene­fit, and even though it does improve your meta­bo­lism, desic­ca­ted thy­roid is not meant to be a weight loss pill.

2) Armour et. al. can only do its holi­day job if you have strong adre­nals or ade­quate cor­ti­sol treat­ment. Because cor­ti­sol is nee­ded for thy­roid hor­mo­nes to move from your blood to your cells, you can only bene­fit opti­mally from desic­ca­ted thy­roid during the holi­days if you are lucky enough to have strong adre­nals, or if you are giving your­self back the cor­ti­sol you need based on sta­ble temps, blood pres­sure, and remo­val of most low cor­ti­sol symp­toms.  So don’t for­get that cor­ti­sol right now, and defi­ni­tely con­si­der adding a stress dose of cor­ti­sol if things get rough with the in-laws. (See Chap­ter 6 in the STTM book for even more details about sta­ble temps, blood pres­sure, and stress dosing)

3) Don’t drink that Armour down with Egg Nog! Cal­cium is a known bin­der of thy­roid hor­mo­nes in your sto­mach, kee­ping you from bene­fi­ting from some of those health-giving thy­roid hor­mo­nes.  So if you swa­llow your desic­ca­ted thy­roid, get the water.  Or even bet­ter, do it sublin­gually.

4) Don’t expect Armour to keep you from loo­king like Santa Claus: you still gotta exer­cise & watch what you eat! It’s true: the opti­mal use of desic­ca­ted thy­roid does raise your meta­bo­lism and eats those extra calo­ries up like Pac­Man.  But if you’re like me, you can still have a ten­dency to put on those love handle but­ter pounds if you eat your fill of holi­day foods.  ho ho ho. To cur­tail the gain, add exer­cise to your holi­day regime, or inc­rease what you already do. I try to aero­bi­cally walk a LOT during the holi­days. And when I’ve eaten a Christ­mas stoc­king full of goo­dies, my next meal will be nothing but high pro­tein, like  tur­key, chee­ses and nuts. Or, you can also balance your intake by choo­sing one meal a day to be low gly­ce­mic to somewhat balance out the high gly­ce­mics you know you are going to eat later. For exam­ple, I make my break­fasts only eggs and nitrate-free bacon, or plain yogurt with berries, nuts, and Stevia.

5) Buil­ding a holi­day snow­man outside?  Con­si­der an extra 1/4 grain of Armour. It’s a fact that pro­lon­ged expo­sure to cold inc­rea­ses your demand for energy, which in turn can inc­rease your demand for more thy­roid hor­mo­nes. As a result, many patients find that adding an extra 1/4 grain of desic­ca­ted thy­roid to one’s daily amount helps meet the demands of Frosty the Snow­man or that holi­day sprin­kling of lights all over your house in the cold air.  Talk to your doctor.

6) Give a gift of the STTM book to a loved one. There are other good thy­roid books on the mar­ket, but unlike all of them, this is the bible of patient expe­rience on suc­cess­ful thy­roid treat­ment. You’ll find volu­mes of infor­ma­tion that patients all around the world have lear­ned. A true patient-to-patient guide to fee­ling won­der­ful again.  Go here to order.  And the publishing com­pany is exten­ding the time you can order a book to be sent DIRECTLY to your loved one.

Oprah still doesn’t get it!! Let me come on your show, Oprah!

SECOND UPDATE as of Dec. 10th: WHOOPI GOLDBERG has it RIGHT! Today on The View, she sta­ted that Oprah needs to take her thy­roid pro­blem SERIOUSLY!! Con­tact the View about STTM and the seriously correct treat­ment here.

UPDATE as of Dec. 10: Gail King, Oprah’s best friend, was on the Good Mor­ning Ame­rica show this mor­ning tal­king about Oprah’s weight gain and thy­roid pro­blem. She also tal­ked about how depres­sed she loo­ked.  Oprah, a huge and gro­wing body of thy­roid patients are all around the world, wai­ting to tell you what the ans­wer is.  Lis­ten to us.  We have been emai­ling you for years, and you’re going to see more of those emails. Con­tact Good Mor­ning Ame­rica here. (Then con­tact Oprah below)

Just on the stands, Oprah’s January issue of “O” maga­zine has an eye-opener: Oprah Win­frey admits that she’s now back up to 200 lbs, a con­di­tion that puts her at higher risk of seve­ral chro­nic con­di­tions, inc­lu­ding dia­be­tes and heart disease.  She sta­tes “When it comes to main­tai­ning my health I didn’t just fall off the wagon. I let the wagon fall on me.” 

But what Oprah, a won­der­ful talk show host and chair­man of  Harpo, Inc, doesn’t seem to get is that the “wagon” is pro­bably a “poorly trea­ted” hypothy­roid con­di­tion, which cau­ses a lower meta­bo­lism and easy weight gain.  She even admits in the article that she deals with an out-of-balance thy­roid con­di­tion which has made her deve­lop a “fear of wor­king out.”

A fear of wor­king out?? Oprah, do you get exhaus­ted from wor­king out? Because there is NOTHING to fear with wor­king out if you are opti­mally trea­ted with natu­ral desic­ca­ted thy­roid in the pre­sence of strong adre­nals or ade­quate treatment.

Are you on desic­ca­ted thy­roid, Oprah?? Are you dosing high enough to remove all symp­toms?? Have you lear­ned what patients have lear­ned? And what con­di­tion are your adre­nals in, Oprah?? Because it’s all too com­mon for thy­roid patients to have deve­lo­ped adre­nal fati­gue from being poorly trea­ted for so long.

And Oprah, when you state that you don’t need to be thin, but do want to be “strong, healthy and fit”…the way to do that is opti­mally treat your thy­roid! We are a large and gro­wing body of patients world­wide who have done just that, and now live “strong, healthy and fit”.

IT IS TIME FOR JANIE TO BE ON YOUR SHOW, OPRAH. (Thy­roid patients even have a book you can recom­mend to others.)

Because in all due res­pect to your per­so­nal trai­ner Bob Greene and Dr. Meh­met Oz…you have YET got­ten someone on your show who can give you GOLD about the right thy­roid treat­ment.  Call me, Oprah.  Email me, Oprah.  I am wai­ting to tell you how to stop your yo-yo weight pro­blems and fear of wor­king out!  We and I have a LOT to tell you, Oprah, to stop your own per­so­nal thy­roid mad­ness. Con­tact Oprah here.

Send a mes­sage to Oprah’s best friend, Gayle King, here.  Tell her about desic­ca­ted thy­roid and YOUR story. Send Gayle to this web­site so she can unders­tand all this.

Doctors who want to ban the availability of saliva testing

Oh jolly.

Diane, a thy­roid and adre­nal patient, infor­med me of a recent visit to a local Endoc­ri­no­lo­gist.  The doc sta­ted that she was on a com­mit­tee that is wor­king with the FDA to do away with saliva tes­ting, strongly pro­po­sing that it’s not accu­rate tes­ting and is “har­ming” people.

Well, let’s see. For a cou­ple of years now, thy­roid patients who strongly sus­pect they have adre­nal fati­gue by the reac­tions they have to desic­ca­ted thy­roid have been using saliva testing…and lo and behold,  the results they receive nearly com­ple­tely con­form with how they feel! i.e. saliva tes­ting, which tests one’s cor­ti­sol levels at four key times during a 24 hour period,  has wor­ked beau­ti­fully in hel­ping thy­roid patients with adre­nal fati­gue iden­tify their pro­blem, in hel­ping these patients doc­tors have a bet­ter unders­tan­ding of their pro­blem, and kno­wing bet­ter what might be their best treat­ment, which can range from using lico­rice root, to over-the-counter adre­nal sup­port, to hydro­cor­ti­sone (HC).

Harm­ful?? Give me a break. (And why are we not sur­pri­sed this is coming out of the mouth of an Endocrinologist.)

Could it be that medi­cal school trai­ned doc­tors just hate and des­pise any method which a patient might bene­fit from WITHOUT going to the doc­tor and paying big bucks??  hmmmm.  And once again, could it be that a method NOT taught in medi­cal school just MIGHT be a good one (just as desic­ca­ted thy­roid like Armour, Natu­reth­roid, etc. is far, far bet­ter than Synth­roid or Levoxyl, which ARE taught in medi­cal school)?

The FDA appro­ved saliva tes­ting for AIDS in 2005. They appro­ved saliva tes­ting for ovu­la­tion in 2003. They appro­ved saliva tes­ting to detect if a woman is going into pre­ma­ture labor in 1998. And there’s many more they have appro­ved.  So…perhaps this is all a gasp of a com­mit­tee who hates to see patients have some con­trol over their health (terri­ble, awful thing, isn’t it?) or the cry of a com­mit­tee that only reveals its ignorance.

p.s. Dr. Best of San Anto­nio recently pos­ted the follo­wing exce­llent article on saliva tes­ting: http://besthealthandwellnessinfo.com/hormone-testing-i-spit-on-your-blood-test/

HO! HO! HO! Laughing Grape Publishing will send the STTM book for you to a loved one or friend for the holidays!