desiccated thyroid tags

Once again, I just approved one more comment of someone who has had it with Armour, and is switching.   On the new Armour, she states she has a return of her former hypo symptoms: hair loss, joint pain, fatigue, heart palpitations, low body temps are back, etc.

And you see it happening all over thyroid patient groups on the net.  Many folks are done with Armour.

It’s too chalky. It tastes terrible.  It doesn’t break into smaller pieces well anymore.  It’s lost the ability to be done sublingually. And even worse, it has caused a return of symptoms.

In case you are wondering what this is all about, read the 40 current comments attached to the June 2nd post Trying the Newly Formulated Armour? Before that, you can read my May 7th post Why the party is over with Forest Pharmaceuticals and the current 37 comments.  And especially powerful is the April 28th post Patients say PHOOEY to new Armour formulation and Forest Pharmaceuticals with a current 57 posts.

So what’s their next step?

Right now, doctors of patients on Armour on being asked for a prescription for Naturethroid. Many report it working wonderfully; some state they need a little more to be as optimal as Armour. A small minority aren’t sure about it yet. But overall, the majority are happy.

So let’s get an update of those who have switched: what product did you move to? Is the same amount giving you the same results? Did you have to more to a slightlyl higher amount, or lower amount? Was your pharmacy cooperative for a different brand?  Did you have to explain to your pharmacy that Naturethroid can be drop-shipped directly to them?

P.S. Thyroid patient Cheryl emailed me and said she is sending the above posts about Armour’s problems to practically everyone on her email list, hoping they in turn will send it to their friends, and the word will get out.  If you want to do the same, this post is the most updated, and includes the links to the former posts.

*Want to be informed of my blog posts? Curious what’s on my mind? Use the Notifications on the lower left of the links.

*Have depression and you are on a T4 med like Synthroid, Levoxyl, levothyroxine, Eltroxin, etc?? Read the blog post below.

A thyroid patient and mother of two just informed me that her daughter’s psoriasis on her body completely went away thanks to being on desiccated thyroid, and all that’s left is some on her head. And, her son’s psoriasis completely went away thanks to desiccated thyroid.

Connection? Pretty obvious, isn’t it.

Psoriasis is an autoimmune skin disease that appears on the skin chronically due to an immune system going awry. It results in red scaly patches with a white dead-cell buildup. You can often see it hand-in-hand with Hashimotos. And Rosacea is another skin problem, though not autoimmune, that causes a redness of the skin, including the cheeks and nose, or the forehead and chin.

I personally had rosacea on my nose for years—my romantic “clown nose”.  But just like the mother’s son and daughter with psoriasis, my rosacea eventually went away, as well, after I had started on desiccated thyroid and raised it high enough to remove my hypo symptoms.

Chronic skin disease is just another reason to be adequately treated with desiccated thyroid.

*Below, you’ll find a post about T4 and depression–a very common connection with poorly treated or undiagnosed hypothyroidism, as well. Under that is information on how to do desiccated thyroid sublingually. And on June 2nd, comments continue to come in about the newly formulated Armour.

*Prefer having all this website in book form with more info? Many do, and you can decide by going here.

I’ve been perusing comments in response to the UK’s Royal College of Physicians blundering and dark-age-constructed Diagnosis and treatment of primary hypothyroidism.  And though all comments are quite good and worth your read, I was struck by the comment titled May Reality Intrude? by a man named Charles.

Charles explains that in 1999, his 67-year-old wife had RAI (radioactive iodine) and was then put on levothyroxine, a T4-only medication (aka Synthroid, Levoxyl, Eltroxin, Oroxine, levothyroxine, et al).  And not long after, she complained of having depression.

He had an idea why after reading the New England Journal of Medicine about T3, and proceeded to buy her Armour off the internet.  Without her knowing, he switched medications. Lo and behold, he states “she promptly returned to her usual sunny disposition”. Her physician knew nothing of the switch either, and found nothing to be concerned about in her.

Charles then explained how, at age 74 in 2007, she was near death thanks to an ulcer bleed.  And to continue treating her hypothyroidism, the hospital gave her levothyroxine all over again.  Back came her depression and a feeling of wanting to go home and die.

So Charles brought her Armour to the hospital, and though her physical state was depressing enough, her sunny disposition returned.  And that happy spirit while still on Armour continues today after a full recovery.

And Charles pondered. If his wife had been in a NHS (National Health Service) hospital under the care of a so-called thyroid specialist of the NHS, would she have failed to obtain T3 and instead, sent to a psychiatrist as if her depression had nothing to do with her levothyroxine treated hypothyroidism–the very treatment that the Royal College of Physicians has a dogmatic love affair with?

He then concludes: My wife’s depression was obvious. Since she is equipped with much the same assortment of body parts and associated physiology as others, is it not likely that many levothyroxine-treated patients suffer from less-noticeable depression?

Well Charles, most any thyroid patient who decides to respond to this will tell you unequivacably YES, YES, YES.  Because there’s no research, study or directive that is more profound and telling than the actual EXPERIENCE of patients all over the world with T4 treatment and depression…besides a slew of other side effects of continuing hypothyroidism on T4-only meds.

Did you have depression on a T4 med? Tell us about your experience in the Comments section of this post.

*Want to be informed of these blogs? Curious what’s on Janie’s mind? Use the Notifications on the lower left of the links.

*Scroll down to the June 2nd post and report your experience on the newly formulated Armour. It’s not a happy picture.

Armour desiccated thyroid by Forest Pharmaceuticals used to be easy to do sublingually, even if the official line was they didn’t make it that way.

And patients liked that sublingual ability with Armour.  It allowed them to work around the problem of swallowing desiccated thyroid several hours from having swallowed iron, estrogen or calcium–all which can bind some of the thyroid hormones in your stomach.

It also helped those with digestive issues, gluten intolerance or Celiac (a common problem for some hypothyroid patients) by bypassing the stomach.

But with the newly formulated Armour in 2009, it became difficult. The pill is harder with less dextrose and more cellulose.  It now fell into the ranks of all other desiccated thyroid pills, including Naturethroid and other good brands, as a more dense tablet.

But no matter what brand you use (especially the growing group of patients who are having their doctors switch them to Naturethroid), below are tips from patients on how to continue doing your desiccated thyroid sublingually. Let your doc know, too.

1) Try adding a touch of the contents of a Pixie Stix under your tongue. It’s flavored sugar in a straw, and the sugar seems to help the tablet dissolve sublingually through tissues under the tongue.

2) If you are using sublingual B12 lonzenges to treat low B12, try adding it under the tongue with your desiccated thyroid. The action of the sublingual lozenge seems to move over to the thyroid tablet.

3) Swish warm water in your mouth before you place the tablet under your tongue.

4) Crunch up the desiccated thyroid tablet before any of the above and before placing it all under your tongue.

Also note that you can swallow your desiccated thyroid. You’ll just have to make sure you don’t also have a stomach full of iron rich foods or calcium, or estrogen. Generally, it’s best to take your tablet 4 hours from any of the former. P.S. See comments below on the newly formulated Armour, and farther down, a post on Naturethroid.

*Have more sublingual ideas or experiences? Share it in the Comments section.

*Want to be informed of my blog posts? Curious what’s on my mind? Just use the Notifications to the bottom left of the links.

I recently discovered a very humorous and appropo medical blog on the net, written by a United Kingdom General Practitioner who wisely stays incognito. His blog is called The Jobbing Doctor.

And his most recent and humorously brilliant post is titled Hairy legs are better than blood tests! He describes his occasional confusion when blood tests don’t agree with the patients symptoms.

Says the UK doc: “The textbooks teach that the level of circulating thyroid hormones (which are called T3 and T4) are inversely related to the Thyroid Stimulating Hormone (TSH). If your T3 and T4 are low, your TSH will be high: this suggests an underactive thyroid gland. If the T3 and T4 are high and the TSH is low, then you have an overactive thyroid gland. That’s easy, huh!”

But his confusion sprang forth when a patient’s labs showed “a highish TSH, T4, and a normal T3.” Yet apparently her symptoms didn’t imply there was any problem, so he chose to do nothing as far as changing her treatment.

A month later at her next appointment, this patient expressed her approval that he didn’t change anything…because her leg hair and eyebrows were coming back.

And his conclusion?  “Pah! Who needs blood tests!”

Jobbing Doctor, you are discovering what thyroid patients have been learning over and over for years: it’s SYMPTOMS (or lack up) which need to pull the cart, NOT labwork. Sure, we love our labwork. They can give clues to areas where our bodies are screaming for help.  But they definitely do NOT tell the whole story.

Look at the ignoramus TSH lab test. Countless patients have walked into their doctors offices with clear and obvious hypothyroid symptoms–and desperate for a diagnosis–yet the ink spot on the office piece of paper called the TSH lab result proclaims they are “normal”. And that dubious “normal” diagnosis can go on for years before it rises high enough to reveal what was already there by SYMPTOMS.

Or, while on thyroid medication, patients will have a lamebrain “normal” TSH lab result, yet will continue to have their own brand and degree of continuing hypothyroid symptoms which the clueless doctor dismisses as an hysteric female interpretation, motherhood, stress, a need for psychological help….or just “something else”. Uh huh.

In fact, Jobber Doctor, patients have learned that when they are optimal (on desiccated thyroid), along with optimal ferritin and cortisol), they will generally have a free T3 in the upper part of the range, and a SUPPRESSED TSH, with no symptoms of hyperthyroidism.  That is general, and there can be some exceptions, but overall, it has spoken volumes to patients on how inadequate thyroid lab tests can be.  i.e. being in the “normal” range—anywhere in the normal range–can be mean squat.

Thanks for a great post,  UK Jobber Doc. And P.S.  Desiccated thyroid is an even better treatment than thyroxine.

*Want to be informed of these blog posts? Curious what’s on my mind? Just use the Notifications at the bottom left of the links.

I’ve been sitting back silently, reading all the backlash that started with Newsweek’s Best Life or Risky Advice May 30th article, a critical analysis of Oprah’s multiple program topics of Wish Away Cancer! Get A Lunchtime Face-Lift! Eradicate Autism! Turn Back The Clock! Thin Your Thighs! Cure Menopause! Harness Positive Energy! Erase Wrinkles! Banish Obesity! Live Your Best Life Ever!

And granted, some of the criticism seems justified.

Even thyroid patients winced and squirmed when Oprah stated that a month long Hawaiian vacation and eating fresh foods with soy milk were a great way to treat her thyroid condition.  Uh huh.   Patients equally gagged at her support of Dr. Christiane Northrup who made the the nutty insensitive comment that our thyroid problems were due to an “energy blockage in the throat region, the result of a lifetime of ’swallowing’ words one is aching to say.”

But the ensuing array of blog posts and articles following in the footsteps of the Newsweek criticism of Oprah has presented quite an irony for thyroid patients whose lives have been changed thanks to natural desiccated thyroid. Adjectives and/or descriptions of Oprah in these blogs and articles have included:

* dangerous

* peddling alternative treatments that are ineffective

* failing to present scientific evidence

* failing to listen to bona fide, medical school trained,  medical professionals

* being too gullible about the so-called wisdom and knowledge of certain patients (ala Suzanne Somers)

* failing to give more attention to science-based, status quo, mainstream medicine

Any of the above sound familiar? Yup, it sure does.

How many times have thyroid patients been told that desiccated thyroid like Armour or Naturethroid was dangerous, or raising it by symptoms rather than the TSH was dangerous. Or it’s dangerous to use because you’ll get heart problems and osteroporosis. Yet thyroid patients on desiccated thyroid have their lives CHANGED, with stronger hearts and increased bone density.

How many patients have had their doctors tell them that desiccated was ineffective as an alternative out-dated product, yet these same patients started to LIVE again with relief from old symptoms from this ineffective “alternative” medication that grandma once used.

How many articles by medical professionals are there who claim that there’s no scientific evidence to prove that desiccated thyroid is effective, in spite of CLEAR observation and reports of a huge and growing body of thyroid patients and certain doctors around the world about relief from depression, lowered cholesterol, better blood pressure, weight maintenance, hair regrowth, better stamina, less sickness and a myriad of other improvements!

How many bona fide, medical school trained,  medical professionals told us ad nauseum that our symptoms were not thyroid related (when they were), that we are “normal” because the TSH lab test says so (when we were far from it), that desiccated thyroid is outdated, unreliable, ineffective, and a ten ton load of other ridiculous comments from bona fide, medical school trained,  medical professionals.

How many doctors have told patients that they should NOT listen to other patients on the internet or Stop the Thyroid Madness because patients can’t possibly have any wisdom or know what they are talking about. Yet, lo and behold, it’s been patients and what they have learned who have started a wide-reaching revolution for better thyroid treatment that works, and a growing body of doctors are listening!

And how many times has science-based, status quo, mainstream medicine completely ruined the lives of thyroid patients because many doctors are too lazy to dare question or think outside the pharmaceutical, medical school box.

Yup, Oprah has made some blunders, gaffes and misjudgments as outlined in the Newsweek article.  She has gushed too quickly when Northrup opens her mouth or Oz walks in with his surgical garb.  But isn’t it a bit ironic that some of the criticism by others towards Oprah are the same blunders, gaffes and misjudgments which most any thyroid patient has heard about their use of desiccated thyroid, and which has all been COMPLETELY wrong.

Bottom line, for every mistake and misjudgment Oprah has made–and CLEARLY she has done so in her understanding of thyroid treatment—she just might be opening the doors to medical truth, somewhere, somehow, between it all.

Janie

If  you are, check out the comments on the May 7th post or the April 28th post, and add your own comment about the newly formulated Armour desiccated thyroid by Forest Pharmaceuticals.  Let’s keep a running tab on experiences.

The below link is about desiccated thyroid shortages, and I find it interesting that both Qualitest and Time Cap generics are now discontinued…..

http://www.ashp.org/Import/PRACTICEANDPOLICY/PracticeResourceCenters/DrugShortages/GettingStarted/CurrentShortages/Bulletin.aspx?id=459

Thanks to thyroid patient Kathryn for alerting me to this by posting on another post below. And by the way, I wouldn’t rush to the conclusion that any of this means desiccated thyroid is slowly being phased out.   Shortages are probably more a reflection of the demand for desiccated thyroid by an ever-growing population finding out about it and being prescribed it…thanks to a resounding patient movement where patients found out how miserable they’ve really been on T4.  And the generics weren’t very popular in the first place due to being less strong.

*See today’s first post below.

Thyroid problems have become rampant.

And it’s not just in the US with individuals like Oprah, fitness guru Jillian Michaels, Sex and the City’s Kim Cattrall, George and Barbara Bush, Kelly Osbourne and others.  A recent article in the Daily Mail-UK highlights the saga of  Clare Balding, the BBC TV sports presenter in the UK whose thyroid was gladly removed due to a malignant tumor.

Even the gal who wrote the well-written article about Clare, Pippa Jolly, reports having gone through the same removal 13 years previous due to an extreme case of Hashimotos and a nodule pressing against her trachea.

But within the informative and hopeful tone of the article are a few Rodney Dangerfield thuds of the continuing SCANDAL and idiocy of a particular thyroid treatment which even the most innocent of article writers can be fooled.

Thud #1: The very first sentence of the article says: Some good news for Clare Balding, the BBC TV sports presenter, is that her recent operation to remove her cancerous thyroid gland - a thyroidectomy - should be the end of the matter.

End of the matter? Only if she had been put on desiccated thyroid like Naturethroid, et al. Because it appears she’s on the delightfully enchanting synthetic “thyroxine“, the darling of most UK doctors and which serves to leave almost everyone with their own brand and intensity of continuing hypothyroid symptoms.  You can listen to my audio here about T4.

Thud #2: Diagnostic rates are on the increase, says Professor Monson, as thyroid tests are now done routinely at GP surgeries. ‘As a result there is a higher detection rate and the disease can be tackled earlier and if necessary followed up by surgery.

Right. Those increasing diagnostic rates, some which are based on the lousy TSH lab test, are overridingly catching someone’s hypothyroid state years after it started, which leaves a certain percentage with the misery of adrenal insufficiency and host of other problems from being undiagnosed so long.  And if one is treated after surgery based on the same holy TSH, you will only continue to have your brand of continuing symptoms. You can listen to my audio on the TSH here.

Thud #3: If the thyroid is removed or not functioning properly, thyroxine will need to be taken in drug form for life.

You and millions of others have been hoodwinked into thinking it’s thyroxine you will need the rest of your life, aka Eltroxine, Synthroid, or levothyroxine,  et al.  But those T4 meds force you to depend on conversion alone, a process not well done in many, and you miss out on what natural desiccated thyroid would be giving you as a much wiser treatment–exactly what your own thyroid gives: direct T4, T3, T2, T1 and calcitonin. Or even at the VERY least, giving yourself synthetic T4 with synthetic T3.

Thud #4: Now I have to have my hormone levels checked every three months and make sure I take my medication, but otherwise I feel fine.

I completely believe Pippa when she says she feels fine. But I want to warn her:  some CAN feel fine on a T4-only medication, but eventually and especially as she ages,  she’s going to have to watch out for those pesky little demons of being on an inferior, inadequate medication, which can include rising cholesterol, chronic low-grade depression, rising high blood pressure, or a host of other symptoms which are individual to each person on thyroxine.

Here’s hoping Clare and Pippa join the growing body of patients all over the world whose lives are being changed thanks to natural desiccated thyroid.

*Want to be informed of these blog posts? Curious what I’m ranting about now? Use the Notifications on the lower left of the links.

Because you requested it….now you can listen to me explaining certain subjects here: http://www.stopthethyroidmadness.com/audio-shorts/ For slower connections, it may take up to 3 minutes to download each short.  For faster connections, it’s a breeze.

Know someone who you think has hypothyroidism but they have a “normal” diagnosis? Send them to the above page.

Know someone who’s on T4 who might listen to a new idea? Send them to the above link.

Know someone who has had problems with desiccated thyroid and threw in the towel? Send them to the above link.

*If you’re afraid of the newly formulated Armour, check out the post below about Naturethroid.  Below that, read about the Royal College of Physicians in the UK, desiccated thyroid in Denmark, Germany and Italy, and why you may need Potassium.

*Want to be informed of my blog posts? Curious what’s on my mind? Use the Notifications on the bottom left of the links.

*Have you read the STTM book?? It can be much easier to refer to than this website!

With so many folks reporting problems with the newly-formulated Armour, there is a growing body of individuals stating they are switching to Naturethroid by RLC Labs (formerly Western Research), another prescription brand of desiccated thyroid.  Here is info to carry with you if you switch:

1) Naturethroid has a coating on the outside, and some patients state they bite on the pill to remove the coating, and still try to do it sublingually. No sugar, but some are determined.

2) One grain of Naturethroid is 65 mg rather than the 60 mg that Armour users have been used to. Two grains are 130 mgs, etc. (One grain is actually 64.8 but it’s easier to round it up). Strengths are 1/4, 1/2, one grain, two grains, three grains.

3) The makers of Naturethroid will be creating a 1 1/2 grain tablet by next year to add to the sizes they currently have. Other sizes are in the works, as well.

4) Ingredients are:

• Porcine Thyroid Powder, U.S. Pharmacopeia
• Microcrystalline Cellulose
• Dicalcium Phosphate
• Sodium Starch Glycolate
• Magnesium Stearate
• Hydroxypropyl Methylcellulose
• Stearic Acid
• Carnauba Wax
• Polyethylene Glycol

5) Naturethroid uses the same USP thyroid powder as any good desiccated thyroid product—it “adheres to full pharmaceutical purity and standardization on the consistency of the hormones along with full pre-and-post testing procedures associated with quality prescription products.”

6) RLC Labs is a small and friendly pharmaceutical company, and you are going to see improvements to their website coming.

7) Twitter has a new Nature Throid website.

8 ) RLC labs also distributes Westhroid, which is identical and mostly used by veterinarians.  There won’t be newly-created strengths for Westhroid as there will be for Naturethroid.

9) When switching, you will have to figure out if you need to be on a similar amount as before, or a different amount, according to symptoms.

10) And finally, it’s been around since the 1930’s–another tried and true desiccated thyroid product!

*From the UK? The Royal College of Physicians isn’t too smart.  See below.  And for other still-very-relevant posts, scroll down.

*Want to be informed of my blog posts? Curious what’s on my mind? Use the Notifications on the lower left of the links.

Funny how things work.

I had been wondering what the heck was going on with thyroid patients in the UK after the Royal College of Physicians (RCP) came out with their dim-witted, cuckoo’s- nest February 6th guideline stating that 1) thyroxine was the only medication needed for hypothyroidism, 2) “natural” medications were dangerous and 3) the only labs needed are the TSH and T4.

Equally a part of this B-grade horror movie is the three-stooges stand taken by the British Thyroid Association (BTA).

And UK-TPA thyroid patient advocate Sheila Turner began to go through her own hell when her Armour was taken away, which you can read about in the February 20th blog post here.

And suddenly, I get an email from Sheila, informing me that the RCP is as stupid as they were three months ago.

Sheila states: This is absolutely unbelievable that out of the hundreds of references we sent to the Royal College of Physicians to show their guideline to be flawed, they have taken no account of one single one of them. They are publishing their previous guidance without one since change. The world has gone mad.

Dear Sheila,

Further to my email of 6 April, the comments and materials received by the College have been reviewed. This position statement or guidance (not a guideline) was produced on behalf of the Royal College of Physicians, in particular its Patient and Carer Network and the Joint Specialty Committee for Endocrinology and Diabetes; the Association for Clinical Biochemistry; the Society for Endocrinology; the British Thyroid Association; the British Thyroid Foundation Patient Support Group and the British Society of Paediatric Endocrinology and Diabetes and is endorsed by The Royal College of General Practitioners.

The President has asked me to let you know that this review has not resulted in any changes to that statement.  It should be noted that it is about the treatment of primary hypothyroidism and does not preclude other treatments for exceptional cases by specialist endocrinologists who can make clear to patients any associated risks.

References supporting the statement are listed below.

Yours sincerely,

Catharine Perry
Administrator

•   Diagnosis and treatment of primary hypothyroidism. BMJ 2009;338:b725
•   Vaidya B, Pearce S. A Clinical Review of the management of hypothyroidism in adults. BMJ 2008;337:a801. This contains references for 35 articles and states that Armour thyroid is of no proved additional benefit to levothyroxine.
• The Lancet Volume 363, Issue 9411, Pages 793 - 803, 6 March 2004.  This covers the history, epidemiology, pathophysiology, and clinical diagnosis and management of hypothyroidism and is written by Caroline GP Roberts and Paul Ladenson of Johns Hopkins University School of Medicine, Baltimore, USA.  This review, which references 164 clinical articles, states that the treatment of choice for hypothyroidism is levothyroxine sodium (thyroxine) and does not refer to Armour thyroid.
•  Baloch Z, Carayon P, Conte-Devolx B, et al. Laboratory medicine practice guidelines. Laboratory support for the diagnosis and monitoring of thyroid disease.Thyroid 2003;13:3-126.
•  Association of Clinical Biochemists BTA, British Thyroid Foundation. UK Guidelines for the use of thyroid function tests. http://acb.org.uk/docs/tftguidelinefinal.pdf
•  Surks MI. Ortiz E, Daniels GH, et al. Subclinical thyroid disease: scientific review and guidelines for diagnosis and management. 2004;291:228-238.

And as your peruse the six references above which they use to defend their tunnel-visioned, moronic position, you realize that YOU, YOUR WORDS, AND YOUR POSITIVE-OUTCOME EXPERIENCE ON DESICCATED THYROID IS ABOUT AS IMPORTANT TO MOST PHYSICIANS & ORGANIZATIONS IN THE UK AS IS DIRT ON THE BOTTOM OF A RUSTED BUCKET IN THE MIDDLE OF A EMPTY FIELD IN NOWHERE. Yup.

Or as Harold Shipman stated about the RCP’s guidelines: What a brilliant wheeze.

*See below on the potential importance of potassium in your health and well-being. And on the May 7th post about the party being over with Forest Pharmaceuticals, comments continue to come in about experiences with the “new” Armour. Have you read the STTM book? Patients are stating they like it even better than this HUGE website. lol.

*Want to be informed of my blog posts? Curious what’s on my mind? Use the Notification on the lower left of the links.

STTM’s Armour-vs-other-brands page now has information on desiccated thyroid in Denmark, Germany and Italy: www.stopthethyroidmadness.com/armour-vs-other-brands Thanks go to Julia Hendryx for alerting me about the brand in Denmark!

If I need to add more info or corrections, please use the Contact Me form at the bottom of any page on Stop the Thyroid Madness.

THIS PATIENT REVOLUTION for a better hypothyroid treatment is working! Desiccated thyroid brands which were almost extinct from low use are now seeing a comeback. Another comeback?? PATIENT HEALTH!! T4-only meds do NOT work, unless an elevator which only goes to the 5th floor of a 50 story building….works. My quote; my words.

p.s. See the post below about the importance of your potassium levels, and below that, how being hypothyroid can affect your liver, and my opinion of that fact with T4 meds vs. desiccated thyroid, which one comment disagrees with.  For the May 7th post, comments are still coming in about the “New” Armour. Express yours, and let’s hope that just raising it will do the trick, in spite of the loss of being able to do it sublingually as easy as before–a sad loss.

*Want to be informed of my blog posts? Curious what’s on my mind? Use the Notifications on the bottom left of the links.

In 2002, when I first got on desiccated thyroid and it absolutely changed my life, it happened to be the brand name called Armour by Forest Pharmaceuticals.  And I swooned.  You could do it sublingually (even if it wasn’t made that way), and I praised Armour for that. So did other patients after we spread the word on patient groups, on the STTM website and in the Stop the Thyroid Madness book.

My fondness for Armour did not take away my praises for other prescription brands, though, including Naturethroid or Westhroid by RLC Labs.  I simply made a doe-eyed commitment to Armour for my personal treatment because you could do it sublingually. I have also used the name “Armour” interchangeably to represent all good desiccated thyroid products.

But because of a succession of three events, I think it’s time to give back my going-steady ring.

The first blow to my romance with Armour centered around the extreme tight-lipped secrecy from Forest when the reformulation of Armour began. We can surmise the trouble begin in 2007 when patients were finding Armour in the larger sizes to be suddenly ineffective.  For the entire year of 2008, supplies were extremely limited and only the one grain size or lower could be found, if at all.  Patients were worried and unhappy.  I even supported Forest in my blog posts, assuring patients that everything would be fine.  But Forest said practically nothing. Why was and is Forest mum about why this was happening ?

The second blow to our courtship was the change to the “reformulated” Armour. Suddenly, patients find that doing Armour sublingually was a thing of the past. Now all we get is a never-ending chalky pasty residue.  Additionally, many patients have been reporting that the amount of Armour that once removed all symptoms, was now bringing them back.  Huh?? In spite of an apparent drawback in some batches in 2007, why would Forest take an effective product and change it?

And the third and final straw to my affair of the heart? I made a phone call to Forest using the same 800 number you all can use. That was Tuesday, May 5th. My intent was to ask about the word anhydrous which is now after the ingredient dextrose in the Armour ingredients listing. (It means that all moisture has been withdrawn, but I wanted to confirm the details for the brands page.)  When I reached the representative for Forest, and after she asked my name and I gave it (oops),  the tune of the conversation changed.  She said she could not answer my question since I own a public website, and would have to inform the “Media group” from Forest, and they would call me back. When I asked when, the answer was a vague as Synthroid is in treating hypothyroidism i.e. she didn’t know. I even called back the next day to get the same dribble.   Why have representatives on the Forest hotline been instructed not to answer a simple question from someone like myself,  and I still have not received a phone call from Forest?

Sob.  Yup, breaking up is hard to do, but a gal can only take so much strange betrayal, tight-lipped silence…and ignoring a simple question from someone who has done a LOT to put money in their pockets out of extreme gratitude. Besides, there’s another pharmaceutical courting me at my door:  RLC Labs. Thank goodness there are other fish in the sea.

As the “newly” formulated Armour desiccated thyroid pills, made by Forest Pharmaceuticals/Laboratories, have been hitting the market, so are comments coming out from some thyroid patients…and they are not in the least complimentary.

The reason that Armour had been favored by so many thyroid patients among all the desiccated thyroid brands is the ability to take it sublingually.  Sure, Armour was never officially made to be taken sublingually, but it worked.

Sublingual refers to the administration of a medication via the millions of tiny capillaries that line your mouth and mucous membrane. The pill was placed under the tongue and allowed to dissolve–most of it entering the body directly via your sublingual glands, and only a small amount swallowed.

Some patients who switched from swallowing to sublingual noticed the difference, too.

But the beauty of sublingual has gone even farther than noticing anything different. First, it was always a known “baddy” to swallow any pills that might contain iron, estrogen or calcium at the same time we swallowed Armour or any other desiccated thyroid brand. Why? All three interfere with and bind a certain percentage of the thyroid hormones in our stomachs.  We were forced to take any of those hours apart from swallowing our pill. So doing the Armour sublingually allowed us to swallow the above pills, or drink milk, or eat high iron foods, at our own timing and not hours away.

Second, the old formula was usually gone in our mouths within 30 minutes give or take. Now, patients who take their newly formulated pills sublingually (which now has less dextrose and more cellulose) despise the “chalky, pasty, gritty residue” left in one’s mouth.  It also results in Armour taking far too long to be properly absorbed.

Third, those with adrenal fatigue can find themselves waking up with nausea due to the morning low cortisol. And being able to take Armour sublingually bypassed the need to swallow a liquid to take a pill and promote more nausea.

Fourth, those with Celiac disease, and even those with standard low thyroid digestive issues, found sublingual administration to help their absorption of what desiccated thyroid offers, which they didn’t get well if they swallowed the pill.

All in all, the buzz around patient groups or on comments here  about the newly formulated Armour is not complimentary.  It doesn’t work well sublingually. It’s too chalky. It leaves a gritty paste in your mouth.  And patients are highly disappointed.  Let’s hope that one of the pharmaceuticals takes the ball and runs to create a sublingual desiccated thyroid.

What is your experience with the new formulation? Are you still trying to do it sublingually?  Have you found doing Naturethroid sublingually works? Are you switching to Naturethroid or Westhroid out of principal, as many are stating they are doing? Use the comment section and let’s talk.

*Express your opinion to Forest here: 1-800-678-1605, ext. 66297.

*Want to know what’s on Janie’s mind? Want to read the latest about desiccated thyroid and better treatment? Use the Notifications on the left at the bottom of the links.

With the recent March outbreak of swine flu in a few humans, I want to speak of facts.  This would involve all of you who use  desiccated porcine products, including Armour, Naturethroid, Westhroid, Thyroid-S, etc.

Recent cases: As of April 26th in the US, there are only 21 human cases of “swine flu” this year reported by the CDC (Centers for Disease Control and Prevention):  California 7 cases;  Kansas 2 cases;   New York City 9 cases;  Ohio 1 case;  and Texas 2 cases. There have also been outbreaks in Mexico which may be related.  No one has died and none of the cases have been severe.  The current outbreak is a combination of swine, bird, and human influenza viruses.

What is the Swine flu? Swine flu is a type A influenza and has been in existence with pigs for a long time.  Many pigs will get sick when it does go around; very few will die.

Why are humans getting it? The real irony is that humans can be ones who give it to pigs in the first place!  But in turn, new human infection from infected pigs is actually quite rare. In most all cases, a healthy human will get it from contact with a live pig, such as at a livestock show. Then, the infected human will spread it to other humans.  So, when you see that “21″ people have gotten it,  some may have gotten it from “one” person–i.e. a human-to-human contact.

The CDC also states that in a particular study, 76% of swine exhibitors tested had antibody evidence of swine flu infection but no serious illnesses were detected among this group. In other words, the majority of those exposed don’t even get the illness. If they do, it’s mild for most and only serious for a very small minority.

How common is swine flu among pigs? Swine flu is common in groups of pigs all across the world, especially during the winter months.  Anywhere from 25-50% show evidence of having been infected.  But many pigs are vaccinated against it.

Can I get it from the use of Armour or other desiccated thyroid products? The standards in the making of desiccated thyroid powder as set by the U.S. Pharmacopoeia is extremely rigorous.  So, it is important to understand that your chances of getting swine flu from taking a US Pharmacopoeia-approved product is remarkably low, low, low. You have a much greater chance of injury from riding in your car.

So, for me, with all the above facts, I’m going to take my Armour with ease and peace, because using desiccated thyroid to treat my hypothyroid is FAR FAR better than any other treatment. Perhaps you will decide to do the same.  If you stay worried about it, you might also want to avoid using your car, stop using stairs, and avoid most people at all costs. :)  P.S. Check out the comments to this post. Will also help put you at ease.

* Here’s John Lowe’s rebuttal to the scare of swine flu: http://www.thyroidscience.com/index.htm It confirms everything I’ve said plus a whole lot more. i.e. take your desiccated thyroid!

* Want to know what’s on my mind? Interested in the latest information on desiccated thyroid? Just use the Notifications on the left at the bottom of the links.

*If you find the website to be too enormous for your brain fog, or want better ease of getting the facts, the patient-to-patient STTM book is proving to be a good choice, say many who write me.  Just make sure you have a yellow highlighter. haha

I can remember a few people the past year who proclaimed fervently that Armour was being discontinued because of the shortage.  And I chuckle about it.  Hopefully, my previous posts helped calm that fear.

But in case you haven’t heard, those larger sizes are back!  And you can keep track of what’s going via the Forest Pharmaceuticals customer product availability hotline: 1-866-927-3260  As of today, April 19, they state that the one grain tabs (60 mg) and 1 1/2 grains tabs (90 mg) are on backorder, and will catch up with production on April 20th, tomorrow as I am writing this.  We’ll see.

Unfortunately, the new formulation has made Armour lacking in sweetness, and it’s almost impossible to do it sublingually.  Sad. Maybe another pharmaceutical will get the hint. In the meantime, if you swallow your desiccated thyroid, make sure to avoid calcium, iron and estrogen at the same time. And if you’ve been doing it sublingually, and have to switch to swallowing, you may need a tad more.

Remember: if you have any issues with natural Armour desiccated thyroid in the treatment of your hypothyroidism, you can always ask your doctor for a prescription switch to Naturethroid or Westthroid, both fine FDA-approved, US Pharmacopeia standard prescription desiccated thyroid.

Janie

Want to be informed of my posts? Curious what I am raving about as a Thyroid Patient Activist? You can sign up for a Notification at the bottom of the links to your left.

P.S. If you haven’t bought the Stop the Thyroid Madness book yet, wanted to tell you that numerous patients are emailing me, stating they find the book even easier to refer to than this vast website (plus it has more details and information).  So if you want the ease of referral, the book may be the way to go.

Before my thyroid disease of hypothyroidism was discovered, I had horrific and debilitating consequences from exercise or any activity.  You can read about it all here or even more detail in the Introduction of the patients-to-patients Stop the Thyroid Madness book.

When my so-called “borderline hypothyroid” was discovered by age 30, I thought whoo-hooo, I’ll finally get rid of this strange nightmare whenever I tried to do ANYTHING.  I was put on Synthroid and my anticipation for a better life was profound.

But my hope was dashed. Not only did my body continue to overreact to activity, it got worse over time.  Horribly worse.  Nearly twenty years after I had started on a T4-only medication, and was told by one doctor after another that my problem was not my thyroid, I was going to apply for social security disability.

But they were all dead wrong. Sure, turns out I have a form of Dysautonomia, a malfunction and overreaction of my autonomic nervous system, causing my body to far overreact to stress. But remaining hypothyroid, as we all do on the sucky t4-only medications, had made it far worse. And I proved it. When I switched to Armour desiccated thyroid in 2002 and raised it according to what patients have learned, a miracle occurred.  My severe autonomic reactions made an almost complete turnaround.

And my experience of change or improvement when it comes to other diseases or conditions has been shared by others.

Last week, I received an email from a man whose brother has MS–Multiple Sclerosis.  And though Armour has not taken his MS away, it allowed him to move from this wheelchair to a walker! That is impressive.

So I am left wondering:  what other conditions or diseases, which are unique in themselves, are worsened being undiagnosed thanks to the lousy TSH lab test or the inadequate treatment of Synthroid, Levoxyl, levothyroxine, Eltroxin and all other T4-only medications? It’s awful to think about it.

Want to be informed of my blog posts? Curious what’s on my nind? Just use the Notification on the bottom of the links to the left.

Update to the below: it was brought to my attention that taking a second BP reading is usually always lower anyway. Ah, I thought, that’s correct! So to test this information based on research, I went back last night before bedtime. First took my BP with my arm in the upper correct position. Then the second time, took it with my arm down.

138/89 (up perpendicular to body; level with heart) pulse 80
146/100 (arm down) pulse 82

The second did NOT go down. It went UP! Interesting.

************************************

Last week, I had found my blood pressure quite high for me! Upper 140’s and some 150’s for my Systolic, and upper 90’s and lower 100’s for my Diastolic.   Stage One hypertension!  I was pretty sure my 4 grains may suddenly be a tad too high since entering meno.  My temps and heartrate implied that, too.

I got off Armour for two days to use up some excess, got back on one, then on 2 grains multi-dosed.  My plan is to make my way back up to 3 1/2 grains by a week or slightly more…and see.

In the meantime, I have been using some blood pressure lowering supplements (high dose potassium, grape seed extract, Braggs Apple Cider Vinegar in juice, more CoQ10 than normal, plus my regular supplements).  I was more faithful to my treadmill walking (thanks to an April that still thinks it’s winter), and meditating. The latter two definitely helped lower both the Systolic and Diastolic, even if not low enough for my ideal.

For the last five days, my BP readings have still been too high. All those days, I had been seated on our couch. I put a pillow in my lap, laying my arm on that pillow, which meant my arm was slightly downward.  Sometimes my wrist would hang off the pillow.

Today, I decided I wanted to test something I have read. Namely, it’s actually quite important how you place your arm. The recommended way is placing your arm perpendicular to your body and at the height of your heart or a tad higher, all while comfortable resting on something.  Elbow can be flexed, but your arm must still be perpendicular to your body and about heart height or slightly higher.

Below are four of my most recent afternoon BP readings with pulse: two with the Left arm, then two with the Right arm.

L:  139/106   98  (arm hanging down and resting on seated leg)
L:  122/88 89  (arm up, perpendicular to my body, supported by pillows)
R:  141/87     92  (arm hanging down and resting on pillow)
R:  123/85 89 (arm up, perpendicular to my body, supported by pillows)

What you should note is that the first L reading, and the first R reading, were with the arm relaxed on a pillow but lower than my heart.  The second of each is with the arm on two pillows, putting it perpendicular to my heart,  with elbow flexed, and all of arm completely supported.

I was shocked! Putting my arms in what research is saying is the CORRECT position gave me much better readings. I am VERY pleased with the 122 and 123.  Much better. And though the 88 and 83 Diastolics are not to my liking yet, and tell me I need more work, the difference between the arm positions was stunning….as is the difference in what I’ve been getting for five days.

*Want to be informed of the STTM blog postings?? Curious what’s on my mind? Just use the Notifications to the left at the bottom of the links.

**Are you in the US and want to help make sure we don’t end up like the UK, having our Armour taken away?? In the post below, I have given you SEVEN STEPS that I hope you will follow through on!  YOU can make a difference.

With the recent blog post by health writer Mary Shomon concerning Dr. Sidney Wolfe’s new 4-year term with the FDA’s Drug Safety and Risk Management Advisory Committee, there has been much brooha and fear-mongering on thyroid patient groups.

Why? Well look at it this way. This is a man of stature. He is an MD, an Adjunct Professor of Medicine, the director of Public Citizen’s health research group which promotes drug safety and public health, and editor of the newsletter Worst Pills, Best Pills, and since August of  ‘08, a member of the Drug Safety Committee.  He also has a resume a mile long.

Yet in spite of his seemingly caring activism for our health and well-being, and his immense experience and education, he is clearly and completely off-base about Armour and other desiccated thyroid prescription drugs.

For example, as as editor of the Worst Pills, Best Pills newsletter,  Wolfe declared Armour desiccated thyroid as a “Do Not Use” product because it is not adequately guaranteed to provide appropriate blood levels of thyroid hormone and reliable alternatives are available”. (Gee, funny how our experiences are completely otherwise….)

Then in the May 2003 issue (of which you have to have a paid prescription to read), he wrote an article titled  “Do Not Use! Natural or Desiccated Thyroid (ARMOUR THYROID) For Thyroid Hormone Replacement Therapy.”   In that article, the clueless Wolfe stated that he supported The American Thyroid Association’s statement “There is no evidence that desiccated thyroid, a biological preparation, has any advantage over synthetic thyroxine.” (I guess millions of us and our improved heartrate, stamina, cholesterol, depression and more…aren’t evidence?)

He then proposes that Armour is mostly prescribed for weight loss, is a niche market for the unscrupulous, and concludes with “if you are offered natural thyroid hormone replacement treatment for any reason, this is a red flag and you should get a second opinion.”   In a letter to consumers, Wolfe and Public Citizen state that that T3 is only needed from conversion and is predictably found from conversion, that the T2 and T1 also found in desiccated thyroid has essentially no activity, that desiccated thyroid is an unpredictable mixture, that is has no predictable biological activity…plus so many more complete and total inaccuracies based on “intellectual head chatter” not on observation and experience.

Thud.

Mary Shomon, in 2003, did a bang-up job trying to communicate with Wolfe, Worst Pills, Best Pills, and Public Citizen about the inaccuracies of their beliefs and statements…basically to no avail. The TRUTH is here, and in more detail in Chapters 1 and 2 in the STTM book which are enlightening those reading it all!

So we are left wondering, six years later, what his four-year appointment to this committee will mean. But let’s make a few things quite clear to contrast some of the fears going on and expressed on thyroid groups:

1) Armour is not being banned.
2) Wolfe is one of a current 9 members of this committee. Wolfe is not “the committee”.
3) Wolfe and seven others currently have voting rights. He is the only “Consumer Representative”.
4) There are still six more vacancies.
5) The committee is NOT the power. They simply make recommendations. And historically, the FDA can be slow to act on their recommendations, or doesn’t follow them at all (which is a GOOD thing when it comes to a SAFE and EFFECTIVE medication like desiccated thyroid).

So what can you do? I challenge you to follow and act on the below, which puts our energies into communication, not feeding the ego and power of a misguided man with our overtly expressed fears as if they have actually come to pass :

1) Remember 1-5 above. Armour is fully available. Keep the facts straight, and fear-mongering down.

2) STTM has a powerful and growing page of testimonies of those who switched to desiccated thyroid.  Are you in there? If not, you need to be. This website currently has a huge audience. It’s noticed by doctors all over the world, as is the STTM book, which is YOUR book of YOUR experiences,  which is also being ordered by doctors. Use the Contact Me form at the bottom of that page.

3) Tell your experience with Synthroid or other thyroxine medications at the following websites:  www.rateadrug.com,  www.drugs.com,  www.askapatient.com They don’t include any of the desiccated thyroid meds yet, but you can tell of the negative experiences with all the T4-only drugs, including adrenal fatigue if you fell into that, and all your lingering thyroid symptoms.  The above links will take you to their Synthroid page–you can search for the other T4 meds.  Remember to mention Armour or other desiccated thyroid meds and how they have helped you!! Update: thyroid patient Gina found the drugs.com Armour page: http://www.drugs.com/comments/thyroid-desiccated/armour-thyroid.html

4) Report your T4-only experience to MedWatch, the FDA’s  program for reporting problems.  You will see an Online Reporting Form to download. Don’t fail to mention which problems were removed or greatly improved when you switched to Armour, or the fact that you now have to deal with adrenal fatigue thanks to the inadequacy of T4-only treatment. You can also call 1-800-FDA-1088, but remember: your call is not to draw attention to Wolfe’s opinions! It’s to draw attention to how lousy a treatment T4 is as compared to how much better Armour has been.

5) Go to my article titled Synthroid Sucks: the Rallying Cry of Thyroid Patients vs. Clueless Doctors and comment on this article, including mentioning what Armour, Naturethroid or other desiccated thyroid did for you. Rate it as well. Both keep this article in the media and in the eyes of others.

6) Go to www.medications.com where patients ask questions and YOU can answer, mentioning YOUR experience and how much better desiccated thyroid has been. Clicking on that will take you to the Synthroid patient questions. Answer them. Be careful with links–they may not catch them at first, but will remove them if they do.  You can mention website names, tho, like Stop the Thyroid Madness.

7) Send people here to follow all these steps. Power is in numbers!

8 ) Use the following website to email or write your senators and representatives: http://www.visi.com/juan/congress/ THEY DO READ THEM. And they will remember this!  Here’s a template letter you can use:  www.stopthethyroidmadness.com/template-letter-to-your-senator-or-representive/

If you have other ideas and places to write or call, add your comment to this post. Remember,  put your power in communication! LOTS of communication.

P.S. Did you know that the American Thyroid Association, in cooperation with the American Association of Endocrinologists, together support January as “Thyroid Awareness Month”…which is supported through an unrestricted grant from Abbott Laboratories, the makers of Synthroid?? Major UGH.

Ever heard of perchlorate?? It’s a salt taken from perchloric acid, and it’s used in rocket fuel and explosives.  It was also once used in a medication to treat hyperthyroidism.

And guess where residues of it are hiding? In our drinking water and in infant formula. (EPA map shows where perchlorate is manufactured just in the US—nearly every state)

In a recent article by the Environmental Working Group,  it’s estimated that 15 brands of infant formula are contaminated with it, and two of the most contaminated brands of those 15 made up 87% of powdered formula used in 2000…all according to the CDC (Centers for Disease Control and Prevention).

As bad as that is, this goes beyond infant formula. It’s estimated that the drinking water of 28 states is contaminated by perchlorate, and other estimates are 35.  In addition,  the majority of women who breastfeed have it in their milk.  And you can find it in water-rich foods such as tomatoes and melons, or carrots and spinach.  It could even be found in milk.  Ouch.

So we not only have millions of US babies being exposed to a toxin which can diminish thyroid health, but adults who can be drinking their water and eating their food.

But guess what can counter the toxic effect of perchlorate? Iodine supplementation, if you take enough. In spite of some controversy with the use of iodine supplementation, this gives one pause in favor of it.

Luckily for all of us who know that desiccated thyroid like Armour is a better thyroid treatment, it also contains iodine. And some go beyond that, adding iodine to their supplements via Lugols or Iodoral.  It might be worth looking into.

P.S. The buck doesn’t stop with perchlorates in our water. We could also be exposed to a variety of pesticides, chemicals from deposed prescription drugs, and even mercury in our water.  Sad.  Our poor thyroids are assaulted.

The British Medical Journal (BMJ) recently came out with yet another thyroid article, benignly titled Diagnosis and treatment of primary hypothyroidism and authored by the British Thyroid Association (BTA),  that at first blush, looks so caring.

Namely, they express deep concern that that since hypothyroid symptoms can mimic other conditions, patients may be getting an incorrect diagnosis which could expose some patients to the harmful effects of excess thyroid hormones, while other serious conditions may go undiagnosed.

And they add: In other patients, adequate replacement with levothyroxine does not resolve symptoms, which are attributed to hypothyroidism rather than other conditions that may coexist, such as depression.

The article continues with:  Normalisation of thyroid stimulating hormone means a return to normal health in most patients with primary hypothyroidism.

In other words, what you have above are the Three Stooges of the stated beliefs of the British Thyroid Association.

Stooge stated-belief #1: “Incorrect diagnosis allow other conditions go undiagnosed” What is inferred is that there are a host of diagnoses of hypothyroidism that are incorrect. Why? Because a wise physician dared to listen to clear symptoms of hypothyroidism or use the free T3, in spite of a so-called “normal” TSH–a lab test which measures a pituitary hormone, not the cells ability to receive enough thyroid hormones.

Stooge stated-belief #2: “If adequate doses of levothyroxine do not resolve symptoms, those symptoms are due to something else.” That is akin to saying if eating 100 calories a day results in malnutrition and starvation, your malnutrition and starvation is due to something else. And one particular symptom they are referring to is depression–a classic symptom of undiagnosed and undertreated hypothyroidism in MILLIONS of individuals around the world.  And isn’t it just odd how that depression resolves itself when the patient is put on Armour and allowed to dose by the elimination of symptoms.

Stooge stated-belief #3: “A normal TSH lab result equals normal health in those treated for hypothyroidism”. Gee, funny how millions of thyroid patients around the world have had a so-called “normal” TSH lab result along with a diverse blend of continuing and CLEAR hypothyroid symptoms.  Additionally, we have a large and growing body of patients who, when they switched to Armour desiccated thyroid or other fine desiccated thyroid prescription meds,  had those symptoms resolved when they were dosed according to the free T3, improved blood pressure, strong heart beat, lowered cholesterol, and complete elimination of symptoms. Patients have learned what works!

When you understand the British Thyroid Association’s hell-bent and rigid stands against Armour desiccated thyroid, their promotion of one of the worst labs ever created to diagnose and dose by, their love affair with the most inadequate thyroid medication ever thrust onto the market by money-grubbing pharmaceuticals (levothyroxine), and their complete failure to listen to patients and recognize continuing symptoms of hypothyroidism while on synthetic T4, you come to realize how meaningful any article on hypothyroidism will be by the British Thyroid Association.

P.S.  Do ya wonder if the British Broadcasting Corporation (BBC) has the smarts to report the other side of the story??

*Want to be informed of these blog posts? Curious what’s on Janie’s mind? Just use the Notification feature on the bottom  of the links to your left.

Just when we, as thyroid patients, are not only proving the superiority of desiccated thyroid treatment by our changed lives, but are making good tiny steps in educating our doctors, comes a complete nation taking Armour away. Yup, the medical-Brit-authorities-that-be, in all their brilliant ludicrous wisdom, did just that last month, explained here.

And then it was experienced personally by a thyroid patient in the UK on Feb. 20th when her Armour was in fact, taken away.

Below is the heading to the petition, and don’t ya love the final sentence. GOOD FOR TPA-UK!

To:  UK Government Office of Fair Trading We the undersigned petition the Government’s Office of Fair Trading and the European Commission for medical justice in the diagnosis and treatment of patients suffering from the symptoms of hypothyroidism, in spite of current medical practices. The petition is supported by the fact that medical science shows that through a proper application of modern medical and scientific knowledge those responsible for our well-being should be capable of restoring us back to optimal health.

Because of substantial confusion in the endocrinology specialty, patients continue to suffer, and the following lament by Doctors Anthony Toft and Geoffrey Beckett must, once and for all, be put to rest.

It is extraordinary that more than 100 years since the first description of the treatment of hypothyroidism and the current availability of refined diagnostic tests, debate is continuing about its diagnosis and management.

http://www.petitiononline.com/tpauk123/petition.html

**Want to be informed of these blog posts when they appear? Curious what’s on Janie’s mind in her activism for better thyroid treatment? Just go to the Notification on the left and at the bottom of the links.

Right on the heels of the insane recommendation by the UK’s Royal College of Physicians and the British Thyroid Association (that thyroxine be the ONLY treatment for hypothyroidism–see Feb. 14th below) came an EXCELLENT and THOROUGH rebuttal by Dr. John C. Lowe titled Stability, Effectiveness, and Safety of Desiccated Thyroid vs Levothyroxine: A Rebuttal to the British Thyroid Association. WAY TO GO, John!!

p.s. Also see Sheila’s experience on the Feb. 20th post. Awful

Want to be informed of these blog posts? Curious what’s on Janie’s mind? Just go to the notification on the left and bottom of the links.

Ever heard of Henry R. Harrower?

He came to the US from England in 1903 at age 20, and with great fortitude and drive, became an MD and Endocrinologist. He had influence in the creation of today’s  professional Endocrine Society.   He also believed (to the consternation of many of his colleagues) in the use of organs to treat conditions, such as Armour desiccated thyroid.

And in 1931, he made the following incredible statement:

“A good laboratory report is cold comfort to a patient whose symptoms remain unchanged, and the doctor can repeat such reports until he is blue in the face, but they will not help his patient much if unaccompanied by controlled symptoms and changed feelings.”

He also stated:

“Are not the feelings of the patients often as clinically valuable as the other findings? In no case can we wholly discount them.”

BRILLIANT!!  BRAVO!! “Cold comfort” couldn’t describe our reaction better when a slew of your modern colleagues have habitually discounted thyroid patient symptoms for decades in favor of ink spots on a piece of paper called “lab results” with dubious “normal ranges”. And we give the same “Bravo” to a growing body of doctors who are making a courageous change in their relationship with patients the last few years by LISTENING to the patient first and foremost.

p.s. Thanks to Stephanie Buist, working to become a naturopath, who posted the first quote above to the Facebook of a mutual friend of ours. You can read more about Harrower here.

How do you feel about what Dr. Harrower said over 100 years ago? How would you rate the Endocrinologists you’ve seen the past few decades as compared to Harrower? Have you had no more than “cold comfort”?

Michelle, 40-or-50-something, came over to my house today to go over some paperwork. I hadn’t taken my Armour yet, and I said “Excuse me, I need to pop my thyroid meds under my tongue.”

“Oh, I take thyroid meds, too.  Synthroid” she explained as she was writing on the papers with her pencil.

Now when I hear something like that, being who I am, I’m like a bear in a china cabinet who suddenly smells honey.  So as not to overwhelm,  I casually say “Oh, I used be on Synthroid.” And after a long pause while we are going over the paperwork, I say “Did you know there’s a worldwide patient revolution going on against medications like Synthroid?”

At the point, she raises her head in curiosity.

I then stick my paw in the honey: “You and I and millions have been put on meds like Synthroid and then told we are “normal” because the TSH says so. But all of us have continuing symptoms of hypothyroidism.  It’s a lousy medication. “

And when I laid out what those continuing symptoms were, her eyes got as big as saucers and she was shaking her head up and down in recognition. “Depression, rising cholesterol and blood pressure, easy weight gain, fatigue, less stamina than others, dry hair and skin, feeling cold, etc”, I told her.

And the most profound aspect of Michelle? She lives her life like the Energizer Bunny, going and going and going. She told me she often doesn’t get home until 6 pm doing her job, and she clearly has a lot of professional responsibilities.

But does an active Michelle mean that Synthroid works and is just as good a thyroid treatment as desiccated thyroid? You know the answer. She revealed that she’s quite tired when she comes home, wishes she had more energy, and still has issues with her weight, even though she lost some when she got on Synthroid.

And reading between the lines, it was clear that Michelle is probably on an anti-depressant, a statin, and a blood pressure medication.  And…she clearly has an adrenal problem that’s only going to get worse. She has a terrible time falling asleep at night (high cortisol), and is very sensitive to light and noise (high or low cortisol).

Suddenly it dawned on me. I am sitting across hundreds of millions of women, and some men. I am listening to how millions live their lives–making a living, maintaining a home, loving their spouses and children, interacting with people.  But underneath it all, it’s not a pretty picture. They cope, and they cope again.  And they dish out their money for more medications to treat the very symptoms caused by an inferior medication. And as they age, they’ll pay each of their millions of prices, just as my mother did, and as I was headed.  Energizer bunnies with faulty batteries.

P.S. Barack Obama has a health care reform plan. Will it change the lives of those 50 million with thyroid disease in the US, or will it only continue this T4-only travesty and health care scandal?  Are we headed in the same insane direction as the UK when it comes to T4-only?  Express your opinion.

And again, on the heels of my post below about Sheila Turner of the UK’s TPA (be sure and read it–good comments, too) comes a blog post by Dr. Richard B. Gutler of California, an Endocrinologist (why are we not surprised).  And his message?

1) That the NHS is correct to ban Armour

2) That Armour is a “second drug” that causes harm.

3) That it’s only “fringe” patients who don’t do well on T4

4) That none of the above patients are hypothyroid

5) That they don’t feel well on T4 because of other reasons

6) Therapy is not needed if the TSH is below 10

You know what patients have a fantasy about, Dr. Gutler?? That folks like YOU become hypothyroid and are put on T4. You’ll then have to eat dirt as you see your blood pressure rising, or your cholesterol doing the same, or depression and fatigue setting in, or your adrenals overworking, or weight gain and a host of other continuing symptoms of hypothyroid while on T4. OH WAIT. Those are all due to something else. Gee, let’s put you on anti-depressants, statins, blood pressure meds, pain meds, anti-anxiety meds since those “other” reasons never seem to be fixed.  OH WAIT. They DO get fixed when these same patients are switched to Armour or any other desiccated thyroid, and have addressed their low cortisol or low ferritin thanks to years of undiagnosis or undertreatment with T4.

SHAME ON YOU.

p.s. It’s because of opinions like yours that the Stop the Thyroid Madness book has been sent to patients in over 16 countries, so far. People want to find out the TRUTH.

Update: you can read Sheila’s and UK-TPA’s response here: http://www.stopthethyroidmadness.com/uk-tpas-response-to-the-rcp/

See more from Sheila that gives UK patients hope: http://www.stopthethyroidmadness.com/relationship-between-the-RCP-and-MHRA/

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The recent press release by the UK’s Royal College of Physicians about the new guidelines on the diagnosis and management of primary hypothyroidism hit the web with a resounding, stiff-necked thud.

And I have written about it in the news media here:  http://www.opednews.com/articles/The-Royal-College-of-Physi-by-Janie-Bowthorpe-090210-698.html

p.s.  In the 1600’s, Galileo was the first most prolific voice to proclaim that the earth revolved around the sun (Armour), in contrast to the firmly held position that the sun revolved around the earth (Thyroxine).  He was denounced as being dangerous and heretical. But over time, the truth won out.

Are you from the UK? Tell us what you think.

Even 1 1/2 years ago, over 2000 professionals from a variety of disciplines called the US Congress to end Fluoridation of water, citing it’s toxicity and the deception of putting it in our water. You can read their call to action here.

The importance of this call lies in each of us with thyroid disease, since fluoride is a KNOWN inhibitor of our thyroid function.

As of Feb. 9th, 2009, the Courier Post Online of South Jersey has an excellent article on the problem of our extreme exposure to fluoride.  This article cites the following facts:

1) 53 US cities rejected fluoridation during our last November election
2) Ingested fluoride can damage kidney patients, bones, the thyroid gland, high water drinkers, and children’s teeth
3) Studies linking fluoride to cancer and lowered IQ are plausible.
4) In 2007, the British Medical Journal indicated that fluoridation never was proven safe or effective and may be unethical.
5) Health Canada says the government should cut the recommended amount in drinking water, encourage the use of low-fluoride toothpaste by children and have makers of infant formula reduce levels.

I personally made a point to stop using any toothpaste with Fluoride a few years ago.  I also supplement with iodine, since fluoride displaces iodine levels. Sadly, I still love iced tea, which contains fluoride.  But YOU can avoid more fluoride exposure by finding a way to get off anti-depressants and osteoporosis medications which contain fluoride, and that is especially possible when you are optimal with Armour desiccated thyroid in presence of strong adrenals or optimal cortisol supplementation.

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Recently, after we watched a semi-scary movie about being suckered, a friend brought up my blog post of last July where I described a terrifyingly-real horror movie.

The plot: stunningly convince hundreds of millions of individuals worldwide that what is obvious, isn’t. i.e. it’s all in your head, you are adequately treated on Synthroid, Levoxyl, Eltroxin, Norton, et al,  and not only that, we’ll bandaid your continuing problems with more medications.

A second plot: also completely hoodwink those with top notch higher medical educations and experience by churning out the the exact same poppycock, and reward their stupidity with gifts.

The central villian: Big Pharma, followed by the doctors who bought the lie

Exactly a year ago this month, Science Daily came out with an article, citing two York University researchers who estimated that the U.S. pharmaceutical industry spends almost twice as much on promotion as it does on research and development, contrary to the industry’s claim. In other words, the researchers estimated that $57.5 billion in US dollars was spent on pharmaceutical promotion in 2004–the year they were studying. Yes, I said BILLION.

Breaking that down, Big Pharma spent approximately $61,000 per physician in promotion of their products.  And they concluded that both figures were UNDERestimates.  In other words, they concluded that the US pharmaceutical industry is marketing-driven rather than “life-saving”.

And adding fuel to the fire: most doctors believe every thrust of that marketing. I recently participated in comments with other wonderful patients in response to a DO/Endocrinologist, Dr. Thomas Repas, who has clearly bought the Big Pharma marketing when it comes to levothyroxine. You can read his posts and our comments here, here, and here.   Dr. Repas is exactly the kind of doctor who has  starred in our horror movie, and the kind of doctor that patients have lamented about for years.  Read the  Give Me a Break list of comments made by doctors, as well as further comments on the January 1st blog.

But Dr. Repas is in good company. Doctors have believed the Big Pharma lie about T4-only medications, and against desiccated thyroid like Armour, Naturethroid, etc. for 50 years.  In the patient-to-patient  Stop the Thyroid Madness book, you can read about the first tableting of Synthroid in 1955 and the strategic and successful promotion of T4-only, in spite of the fact that T4 was known to be unstable for decades.

And today, more than 50 years later, very few of us have been untouched by the Big Pharma push for levothyroxine T4-only treatment.  My own mother was suckered, and I was suckered.  And until patients started to make a huge push for desiccated thyroid treatment the last few years, nearly every single doctor around the world had been suckered.

We still have a way to go. But we’ll get there, bit by bit.