shakinghands1Let me tell you, there are a LOT of indi­vi­duals — those I know and those I don’t — who give their blood, sweat and tears to help thy­roid patients with feed­back and infor­ma­tion to help them feel bet­ter in their treat­ment, and with no noto­riety that I or a few others get.   i.e they do what they do without a huge or far-reaching web­site like STTM, or a well-known blog, or a popu­lar book, or other ways a few of us get well-known.

And in my mind, these indi­vi­duals deserve praise and recog­ni­tion. They are just as impor­tant in their direct one-on-one influence and help­ful­ness as those of us who gai­ned public recog­ni­tion.

Where are these peo­ple? They are those who own and/or mode­rate and/or con­tri­bute often to thy­roid forums, such as Debo­rah and her mods on Real Thy­roid Help, and Pam and others on Low Carb Friends.

For help­ful Yahoo groups, there is Linda aka Top­per of The Thy­roid Sup­port GroupSam and her mod Darla of the Thy­roid­less group, Vale­rie Tay­lor and her exce­llent and patient mods Diane and birrdyy of NTH Adre­nals and RT3/T3 group,  Darla, Linda, Meleese and Pat of NTHJan Nathan with her Texas group plus other state groups.

There are many who volun­ta­rily hel­ped others in the last few years who aren’t as active any­more, but still deserve praise.

And there are many other indi­vi­duals who own, mode­rate, or give help­ful feed­back to patients on forums and yahoo groups I could men­tion, but I don’t know their names or am just dra­wing a dis­trac­ted holi­day blank.  I also noti­ced seve­ral thy­roid can­cer groups.

So, if you want to recog­nize an indi­vi­dual who has hel­ped you and others but is less publicly well known, use the Com­ments below and give 1) their name, 2) what group or forum if appli­ca­ble, and 3) spe­ci­fi­cally how they hel­ped you on your path in fin­ding a much bet­ter thy­roid treat­ment pro­to­col and good health.


  • Want to keep track of these “fringe web­site” blog posts? ;-) Curious what’s on Janie’s mind? Use the noti­fi­ca­tion on the lower left of the links, called a News­let­ter, or an RSS Feed.
  • The extre­mely hip and sophis­ti­ca­ted STTM t-shirts are half price! Great BUMPER STICKERS, too. Spread the word – YOU may make a dif­fe­rence in someone’s life.
  • Check out the patient-to-patient book with even more detail (and which doc­tors seem to res­pect more than websites).
  • Need to unders­tand all your best options for thy­roid treat­ment? Go here.
  • Keep infor­med of each live Thy­roid Patient Com­mu­nity Call on Talkshoe by sig­ning up as a follo­wer.

15 Responses to “The unsung heroes of this thyroid patient movement”

  1. D Wood said:

    Dec 19, 09 at 11:55 am

    I give my kudos to Nick from the RT3 forum. He is very know­led­gea­ble and he always ans­wers me in a timely man­ner. I have a lot of res­pect for him and his opi­nions. Thank you Nick. D

  2. Lynn said:

    Dec 19, 09 at 2:32 pm

    Thanks to Vale­rie for her sha­ring of hard won infor­ma­tion. It has made a big dif­fe­rence in many. Gra­te­ful to her for the time and knowledge.

  3. Dallas said:

    Dec 19, 09 at 2:38 pm

    Jus­taus­tin from realthyroidhelp.com — has been the dea­rest and most help­ful per­son to me. A truly remar­ka­ble spit­fire of a lady, mad <3 for her!

  4. jeangfl said:

    Dec 19, 09 at 7:15 pm

    Top­per (Linda) who owns the site: Thy­roPhoe­nix http://www.thyrophoenix.com/ and the Yahoo Group :http://health.groups.yahoo.com/group/The_Thyroid_Support_Group/ has been a God­send for me and I am sure many others. Her unen­ding sup­port and advice has given me the know­ledge and strength keep on going.

  5. Michele West said:

    Dec 20, 09 at 6:24 am

    Some of us not only have to deal with no-thyroid but also no-para– thy­roid func­tion, which com­pli­ca­tes mat­ters even more. I want to ack­now­ledge Linda for her inc­re­di­ble gene­ro­sity and sup­port for me and the rest of the HPTH group. I would say she has been lite­rally a “life-saver” for me this year as I have all of a sud­den had to deal with both pro­blems. Thanks dear Linda!

  6. Judy said:

    Dec 20, 09 at 10:03 am

    Thank you to Karen, who is giving me her time and efforts to help me find ans­wers to the issues I am having. I hope she is bles­sed 100 times for what she is so gene­rously doing for me.

  7. Susan said:

    Dec 22, 09 at 7:28 am

    So glad to find this infor­ma­tion. My doc­tor, who was trea­ting my FM and low thy­roid con­di­tions aggres­si­vely with Armour Thy­roid, has been shut down by the state medi­cal board for not follo­wing strict TSH gui­de­li­nes. Your site is a won­der­ful source for alter­na­tive solutions.

  8. Sherry said:

    Dec 24, 09 at 8:20 am

    Kudos indeed to Val! I’ve been on straight Cyto­mel since July and have felt much improved!!

  9. Lynn Dunning said:

    Dec 27, 09 at 12:27 pm

    Thanks to Siobhan over at RTH for all of her wri­ting on celiac disease and its con­nec­tion to Hashi­mo­tos. Siobhan’s sup­port and help­ful­ness knows no bounds. If I had not met her, I would still be suf­fe­ring as an undiag­no­sed celiac.

  10. Teri said:

    Dec 27, 09 at 2:37 pm

    Spe­cial thanks to David Law­son for hel­ping me out through my thy­roid battle. He has been VERY help­ful in ans­we­ring my ques­tions on “What do I do now” and “Why do I still feel like crap”. Your the BEST David…Thank You!!

  11. Julie said:

    Dec 29, 09 at 7:42 am

    I would like to thank Stepha­nie. She runs the Iodine Yahoo group and has 3 web­si­tes: Natu­ral thy­roid choi­ces, her jour­ney through Thy­roid can­cer and glu­ten­free site. She has been very help­ful to me and I know many others. Thank you so much for all you do!!

  12. Alexia said:

    Dec 30, 09 at 6:05 am

    Thanks to my doc­tor who argues with me yet will write a script to my specs (thank you Janie for that help on your blog) so I can obtain natu­ral desic­ca­ted thy­roid meds whether com­poun­ded or through Erfa.

  13. Catherine Boyle said:

    Dec 30, 09 at 7:03 am

    David Law­son on sttm forum has been a fabu­lous help to to me and lot’s of other peo­ple. Although I’m only sup­po­sed to men­tion one per­son. Gui­ber Mec­kler Gar­cia gave me the wake up call I nee­ded, to bring my appoint­ment for­ward with Dr Skin­ner and insist on Armour, I was on thy­ro­xine at the time and felt dread­ful. I am now on thy­roid S since Armour was refor­mu­la­ted and feel like a dif­fe­rent person.

  14. Jane said:

    Dec 30, 09 at 3:04 pm

    Sheila Tur­ner and ever­yone at Thy­roid Patient Advo­cacy, espe­cially con­tri­bu­tors to the TPA forum http://health.groups.yahoo.com/group/thyroidpatientadvocacy

  15. betsy said:

    Jan 24, 10 at 1:39 pm

    have a ques­tion, am new to this site-I had gra­ves for years had par­tial thy­roi­dec­tomy 30 years ago, about 10 years ago had I131 treat­ment. have never felt the same since am on levoxyl 137mcg now, am won­de­ring about T3 & T4 how can I con­vert T4 w/o any thy­roid gland? have been to endos & pri­mary care DR says my blood tests are w/i nor­mal ran­ges. I have many of sym­toms lis­ted on stop the mad­ness site. I have read so much & don’t really unders­tand alot of it, can’t really get ANY ans­wers from Drs & have seen can anyone help me?


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