shakinghands1Let me tell you, there are a LOT of individuals—those I know and those I don’t—who give their blood, sweat and tears to help thyroid patients with feedback and information to help them feel better in their treatment, and with no notoriety that I or a few others get.   i.e they do what they do without a huge or far-reaching website like STTM, or a well-known blog, or a popular book, or other ways a few of us get well-known.

And in my mind, these individuals deserve praise and recognition. They are just as important in their direct one-on-one influence and helpfulness as those of us who gained public recognition.

Where are these people? They are those who own and/or moderate and/or contribute often to thyroid forums, such as Deborah and her mods on Real Thyroid Help, and Pam and others on Low Carb Friends.

For helpful Yahoo groups, there is Linda aka Topper of The Thyroid Support GroupSam and her mod Darla of the Thyroidless group, Valerie Taylor and her excellent and patient mods Diane and birrdyy of NTH Adrenals and RT3/T3 group,  Darla, Linda, Meleese and Pat of NTHJan Nathan with her Texas group plus other state groups.

There are many who voluntarily helped others in the last few years who aren’t as active anymore, but still deserve praise.

And there are many other individuals who own, moderate, or give helpful feedback to patients on forums and yahoo groups I could mention, but I don’t know their names or am just drawing a distracted holiday blank.  I also noticed several thyroid cancer groups.

So, if you want to recognize an individual who has helped you and others but is less publicly well known, use the Comments below and give 1) their name, 2) what group or forum if applicable, and 3) specifically how they helped you on your path in finding a much better thyroid treatment protocol and good health.


  • Want to keep track of these ‘fringe web­site’ blog posts? ;-) Curious what’s on radi­cal Janie’s mind? Use the notification on the lower left of the links, called a Newsletter, or an RSS Feed.
  • Keep informed of each live Thyroid Patient Community Call on Talkshoe by signing up as a follower.
  • The extre­mely hip and sophis­ti­ca­ted STTM t-shirts are half price! Great BUMPER STICKERS, too. Spread the word--YOU may make a difference in someone’s life.
  • Check out the patient-to-patient book with even more detail (and which doctors seem to respect more than websites).
  • Need options for thy­roid treat­ment during the current shor­ta­ges due to demand being grea­ter than supply? Go here.

15 Responses to “The unsung heroes of this thyroid patient movement”

  1. D Wood said:

    Dec 19, 09 at 11:55 am

    I give my kudos to Nick from the RT3 forum. He is very knowledgeable and he always answers me in a timely manner. I have a lot of respect for him and his opinions. Thank you Nick. D

  2. Lynn said:

    Dec 19, 09 at 2:32 pm

    Thanks to Valerie for her sharing of hard won information. It has made a big difference in many. Grateful to her for the time and knowledge.

  3. Dallas said:

    Dec 19, 09 at 2:38 pm

    Justaustin from realthyroidhelp.com – has been the dearest and most helpful person to me. A truly remarkable spitfire of a lady, mad <3 for her!

  4. jeangfl said:

    Dec 19, 09 at 7:15 pm

    Topper (Linda) who owns the site: ThyroPhoenix http://www.thyrophoenix.com/ and the Yahoo Group :http://health.groups.yahoo.com/group/The_Thyroid_Support_Group/ has been a Godsend for me and I am sure many others. Her unending support and advice has given me the knowledge and strength keep on going.

  5. Michele West said:

    Dec 20, 09 at 6:24 am

    Some of us not only have to deal with no-thyroid but also no-para- thyroid function, which complicates matters even more. I want to acknowledge Linda for her incredible generosity and support for me and the rest of the HPTH group. I would say she has been literally a “life-saver” for me this year as I have all of a sudden had to deal with both problems. Thanks dear Linda!

  6. Judy said:

    Dec 20, 09 at 10:03 am

    Thank you to Karen, who is giving me her time and efforts to help me find answers to the issues I am having. I hope she is blessed 100 times for what she is so generously doing for me.

  7. Susan said:

    Dec 22, 09 at 7:28 am

    So glad to find this information. My doctor, who was treating my FM and low thyroid conditions aggressively with Armour Thyroid, has been shut down by the state medical board for not following strict TSH guidelines. Your site is a wonderful source for alternative solutions.

  8. Sherry said:

    Dec 24, 09 at 8:20 am

    Kudos indeed to Val! I’ve been on straight Cytomel since July and have felt much improved!!

  9. Lynn Dunning said:

    Dec 27, 09 at 12:27 pm

    Thanks to Siobhan over at RTH for all of her writing on celiac disease and its connection to Hashimotos. Siobhan’s support and helpfulness knows no bounds. If I had not met her, I would still be suffering as an undiagnosed celiac.

  10. Teri said:

    Dec 27, 09 at 2:37 pm

    Special thanks to David Lawson for helping me out through my thyroid battle. He has been VERY helpful in answering my questions on “What do I do now” and “Why do I still feel like crap”. Your the BEST David…Thank You!!

  11. Julie said:

    Dec 29, 09 at 7:42 am

    I would like to thank Stephanie. She runs the Iodine Yahoo group and has 3 websites: Natural thyroid choices, her journey through Thyroid cancer and glutenfree site. She has been very helpful to me and I know many others. Thank you so much for all you do!!

  12. Alexia said:

    Dec 30, 09 at 6:05 am

    Thanks to my doctor who argues with me yet will write a script to my specs (thank you Janie for that help on your blog) so I can obtain natural desiccated thyroid meds whether compounded or through Erfa.

  13. Catherine Boyle said:

    Dec 30, 09 at 7:03 am

    David Lawson on sttm forum has been a fabulous help to to me and lot’s of other people. Although I’m only supposed to mention one person. Guiber Meckler Garcia gave me the wake up call I needed, to bring my appointment forward with Dr Skinner and insist on Armour, I was on thyroxine at the time and felt dreadful. I am now on thyroid S since Armour was reformulated and feel like a different person.

  14. Jane said:

    Dec 30, 09 at 3:04 pm

    Sheila Turner and everyone at Thyroid Patient Advocacy, especially contributors to the TPA forum http://health.groups.yahoo.com/group/thyroidpatientadvocacy

  15. betsy said:

    Jan 24, 10 at 1:39 pm

    have a question, am new to this site-I had graves for years had partial thyroidectomy 30 years ago, about 10 years ago had I131 treatment. have never felt the same since am on levoxyl 137mcg now, am wondering about T3 & T4 how can I convert T4 w/o any thyroid gland? have been to endos & primary care DR says my blood tests are w/i normal ranges. I have many of symtoms listed on stop the madness site. I have read so much & don’t really understand alot of it, can’t really get ANY answers from Drs & have seen can anyone help me?


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