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Thyroid Patients sending a big KISS to this British Doctor!

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I recently discovered a very humorous and appropo medical blog on the net, written by a United Kingdom General Practitioner who wisely stays incognito. His blog is called The Jobbing Doctor.

And his most recent and humorously brilliant post is titled Hairy legs are better than blood tests! He describes his occasional confusion when blood tests don’t agree with the patients symptoms.

Says the UK doc: “The textbooks teach that the level of circulating thyroid hormones (which are called T3 and T4) are inversely related to the Thyroid Stimulating Hormone (TSH). If your T3 and T4 are low, your TSH will be high: this suggests an underactive thyroid gland. If the T3 and T4 are high and the TSH is low, then you have an overactive thyroid gland. That’s easy, huh!”

But his confusion sprang forth when a patient’s labs showed “a highish TSH, T4, and a normal T3.” Yet apparently her symptoms didn’t imply there was any problem, so he chose to do nothing as far as changing her treatment.

A month later at her next appointment, this patient expressed her approval that he didn’t change anything…because her leg hair and eyebrows were coming back.

And his conclusion?  “Pah! Who needs blood tests!”

Jobbing Doctor, you are discovering what thyroid patients have been learning over and over for years: it’s SYMPTOMS (or lack up) which need to pull the cart, NOT labwork. Sure, we love our labwork. They can give clues to areas where our bodies are screaming for help.  But they definitely do NOT tell the whole story.

Look at the ignoramus TSH lab test. Countless patients have walked into their doctors offices with clear and obvious hypothyroid symptoms–and desperate for a diagnosis–yet the ink spot on the office piece of paper called the TSH lab result proclaims they are “normal”. And that dubious “normal” diagnosis can go on for years before it rises high enough to reveal what was already there by SYMPTOMS.

Or, while on thyroid medication, patients will have a lamebrain “normal” TSH lab result, yet will continue to have their own brand and degree of continuing hypothyroid symptoms which the clueless doctor dismisses as an hysteric female interpretation, motherhood, stress, a need for psychological help….or just “something else”. Uh huh.

In fact, Jobber Doctor, patients have learned that when they are optimal (on desiccated thyroid), along with optimal ferritin and cortisol), they will generally have a free T3 in the upper part of the range, and a SUPPRESSED TSH, with no symptoms of hyperthyroidism.  That is general, and there can be some exceptions, but overall, it has spoken volumes to patients on how inadequate thyroid lab tests can be.  i.e. being in the “normal” range—anywhere in the normal range–can be mean squat.

Thanks for a great post,  UK Jobber Doc. And P.S.  Desiccated thyroid is an even better treatment than thyroxine. :)

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POTASSIUM supplementation–do you need to consider it?

One of many discoveries made by thyroid patients is that “normal” lab results don’t tell the whole story. And thyroid and adrenal patient advocate Valerie Taylor sure found out the hard way while dealing with worsening muscle spasms and weakness.

“I have been to at least 6 doctors over the past seven years and read thousands of websites, hunting for the cause of my severe muscle spasms”, explains Valerie. “They all ruled out potassium, a potentially likely cause,  because my serum lab result, 4.2, was right smack in the middle of the normal range.”

So Valerie was forced to live with her worsening muscle issues– spasms, weakness and pain–because all labs were normal and those that weren’t, didn’t pertain.  Even her insulin-dependent Type 2 Diabetes was well-controlled. And she knew it was all threatening to put her out of work as a pet groomer.  It was bleak.

But a surprising change was to come.

“About 2 months ago,” says Valerie, “someone on one of my groups mentioned potassium helping with fluid retention–the latter I’ve had for the last 15 years and took  Dyazide, a potassium sparing diuretic.

She also learned about getting an RBC (red blood cell) potassium lab as it shows what’s inside the cells rather than in serum (as usual labs show).  And the results? It came back LOW.

Valerie has since worked her way up to 2850 mg. Potassium in a combo of chloride and gluconate…and below, in her own words, are the results:

  • No more muscle spasms and the weakness and pain is leaving more daily!
  • My IBS suddenly STOPPED!
  • My insulin needs are HALF what they were before this supplement, and blood pressure & pulse are both down.
  • ALL fluid retention is gone! I dropped 18 pounds the first month in just fluid weight.

Valerie is currently waiting for lab results to see if she needs to adjust further.

She concludes: I have since learned that being hypothyroid causes potassium losses, as does ANY steroid which I had been on for necessary adrenal support. Diabetes with a low carb diet also predisposes us to lose intracellular potassium into the serum which is probably why my serum labs looked normal in the face of extreme shortage. I hope many will see this and at the very least get RBC potassium labs done and if you have high BP or fluid retention, reach for potassium before a diuretic!

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Even without being inspired by Valerie’s discovery, there is good research out there for eating potassium rich foods, or like Valerie, using supplementation if your levels are low.  The LA Times reported a study which stated that consuming twice as much potassium as sodium might halve your risk of dying from cardiovascular disease,  stated by epidemiologist Paul Whelton, president and chief executive of the Loyola University Health System in Chicago and one of the authors of the study.

Here’s a list of potassium rich foods: http://www.hoptechno.com/bookfoodsourceK.htm

Here’s a list of symptoms of low potassium: http://www.buzzle.com/articles/signs-and-symptoms-of-low-potassium.html

And remember: ask your doctor to do an Red Blood Cell Potassium lab rather than simply serum. And don’t go as high as Valerie with supplementation unless you have proof of low potassium.

P.S. Magnesium helps pump sodium out of your cells, and potassium into the cells–a good reason to get magnesium tested as well.

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*What is your experience with the newly formulated Armour? Found a way to get around the problems? Express your opinion in the May 7th blog post!

Let’s set the record straight about “swine flu” and Armour desiccated thyroid!

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With the recent March outbreak of swine flu in a few humans, I want to speak of facts.  This would involve all of you who use  desiccated porcine products, including Armour, Naturethroid, Westhroid, Thyroid-S, etc.

Recent cases: As of April 26th in the US, there are only 21 human cases of “swine flu” this year reported by the CDC (Centers for Disease Control and Prevention):  California 7 cases;  Kansas 2 cases;   New York City 9 cases;  Ohio 1 case;  and Texas 2 cases. There have also been outbreaks in Mexico which may be related.  No one has died and none of the cases have been severe.  The current outbreak is a combination of swine, bird, and human influenza viruses.

What is the Swine flu? Swine flu is a type A influenza and has been in existence with pigs for a long time.  Many pigs will get sick when it does go around; very few will die.

Why are humans getting it? The real irony is that humans can be ones who give it to pigs in the first place!  But in turn, new human infection from infected pigs is actually quite rare. In most all cases, a healthy human will get it from contact with a live pig, such as at a livestock show. Then, the infected human will spread it to other humans.  So, when you see that “21″ people have gotten it,  some may have gotten it from “one” person–i.e. a human-to-human contact.

The CDC also states that in a particular study, 76% of swine exhibitors tested had antibody evidence of swine flu infection but no serious illnesses were detected among this group. In other words, the majority of those exposed don’t even get the illness. If they do, it’s mild for most and only serious for a very small minority.

How common is swine flu among pigs? Swine flu is common in groups of pigs all across the world, especially during the winter months.  Anywhere from 25-50% show evidence of having been infected.  But many pigs are vaccinated against it.

Can I get it from the use of Armour or other desiccated thyroid products? The standards in the making of desiccated thyroid powder as set by the U.S. Pharmacopoeia is extremely rigorous.  So, it is important to understand that your chances of getting swine flu from taking a US Pharmacopoeia-approved product is remarkably low, low, low. You have a much greater chance of injury from riding in your car.

So, for me, with all the above facts, I’m going to take my Armour with ease and peace, because using desiccated thyroid to treat my hypothyroid is FAR FAR better than any other treatment. Perhaps you will decide to do the same.  If you stay worried about it, you might also want to avoid using your car, stop using stairs, and avoid most people at all costs. :)   P.S. Check out the comments to this post. Will also help put you at ease.

* Here’s John Lowe’s rebuttal to the scare of swine flu: http://www.thyroidscience.com/index.htm It confirms everything I’ve said plus a whole lot more. i.e. take your desiccated thyroid!

* Want to know what’s on my mind? Interested in the latest information on desiccated thyroid? Just use the Notifications on the left at the bottom of the links.

*If you find the website to be too enormous for your brain fog, or want better ease of getting the facts, the patient-to-patient STTM book is proving to be a good choice, say many who write me.  Just make sure you have a yellow highlighter. haha

Thyroid Tidbit: Did ya notice that various Armour sizes are back??

armour-tabletsI can remember a few people the past year who proclaimed fervently that Armour was being discontinued because of the shortage.  And I chuckle about it.  Hopefully, my previous posts helped calm that fear.

But in case you haven’t heard, those larger sizes are back!  And you can keep track of what’s going via the Forest Pharmaceuticals customer product availability hotline: 1-866-927-3260  As of today, April 19, they state that the one grain tabs (60 mg) and 1 1/2 grains tabs (90 mg) are on backorder, and will catch up with production on April 20th, tomorrow as I am writing this.  We’ll see.

Unfortunately, the new formulation has made Armour lacking in sweetness, and it’s almost impossible to do it sublingually.  Sad. Maybe another pharmaceutical will get the hint. In the meantime, if you swallow your desiccated thyroid, make sure to avoid calcium, iron and estrogen at the same time. And if you’ve been doing it sublingually, and have to switch to swallowing, you may need a tad more.

Remember: if you have any issues with natural Armour desiccated thyroid in the treatment of your hypothyroidism, you can always ask your doctor for a prescription switch to Naturethroid or Westthroid, both fine FDA-approved, US Pharmacopeia standard prescription desiccated thyroid.

Janie

Want to be informed of my posts? Curious what I am raving about as a Thyroid Patient Activist? You can sign up for a Notification at the bottom of the links to your left.

P.S. If you haven’t bought the Stop the Thyroid Madness book yet, wanted to tell you that numerous patients are emailing me, stating they find the book even easier to refer to than this vast website (plus it has more details and information).  So if you want the ease of referral, the book may be the way to go.

I just proved an incredibly important way to measure your blood pressure!

bloodpressure Update to the below: it was brought to my attention that taking a second BP reading is usually always lower anyway. Ah, I thought, that’s correct! So to test this information based on research, I went back last night before bedtime. First took my BP with my arm in the upper correct position. Then the second time, took it with my arm down.

138/89 (up perpendicular to body; level with heart) pulse 80
146/100 (arm down) pulse 82

The second did NOT go down. It went UP! Interesting.

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Last week, I had found my blood pressure quite high for me! Upper 140’s and some 150’s for my Systolic, and upper 90’s and lower 100’s for my Diastolic.   Stage One hypertension!  I was pretty sure my 4 grains may suddenly be a tad too high since entering meno.  My temps and heartrate implied that, too.

I got off Armour for two days to use up some excess, got back on one, then on 2 grains multi-dosed.  My plan is to make my way back up to 3 1/2 grains by a week or slightly more…and see.

In the meantime, I have been using some blood pressure lowering supplements (high dose potassium, grape seed extract, Braggs Apple Cider Vinegar in juice, more CoQ10 than normal, plus my regular supplements).  I was more faithful to my treadmill walking (thanks to an April that still thinks it’s winter), and meditating. The latter two definitely helped lower both the Systolic and Diastolic, even if not low enough for my ideal.

For the last five days, my BP readings have still been too high. All those days, I had been seated on our couch. I put a pillow in my lap, laying my arm on that pillow, which meant my arm was slightly downward.  Sometimes my wrist would hang off the pillow.

Today, I decided I wanted to test something I have read. Namely, it’s actually quite important how you place your arm. The recommended way is placing your arm perpendicular to your body and at the height of your heart or a tad higher, all while comfortable resting on something.  Elbow can be flexed, but your arm must still be perpendicular to your body and about heart height or slightly higher.

Below are four of my most recent afternoon BP readings with pulse: two with the Left arm, then two with the Right arm.

L:  139/106   98  (arm hanging down and resting on seated leg)
L:  122/88 89  (arm up, perpendicular to my body, supported by pillows)
R:  141/87     92  (arm hanging down and resting on pillow)
R:  123/85 89 (arm up, perpendicular to my body, supported by pillows)

What you should note is that the first L reading, and the first R reading, were with the arm relaxed on a pillow but lower than my heart.  The second of each is with the arm on two pillows, putting it perpendicular to my heart,  with elbow flexed, and all of arm completely supported.

I was shocked! Putting my arms in what research is saying is the CORRECT position gave me much better readings. I am VERY pleased with the 122 and 123.  Much better. And though the 88 and 83 Diastolics are not to my liking yet, and tell me I need more work, the difference between the arm positions was stunning….as is the difference in what I’ve been getting for five days.

*Want to be informed of the STTM blog postings?? Curious what’s on my mind? Just use the Notifications to the left at the bottom of the links.

**Are you in the US and want to help make sure we don’t end up like the UK, having our Armour taken away?? In the post below, I have given you SEVEN STEPS that I hope you will follow through on!  YOU can make a difference.