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As a hypothy­roid patient, think you are fine drin­king that purely fine mine­ral water from a plas­tic bottle? Think that fluo­ride and chlo­rine are the only subs­tan­ces we need to worry about when it comes to our thy­roid health?? Think again.

Thy­roid patient Amy McMu­llen, who has con­tri­bu­ted before on STTM’s blog as a GUEST POSTER (Con­fes­sions of a Under­co­ver Thy­roid Advo­cate) and has a pas­sion about human rights, has writ­ten another impor­tant article below which should be of keen inte­rest to all of you.

BPA — A POWERFUL ENDOCRINE DISRUPTER THAT AFFECTS YOUR THYROID

Perhaps you have read recently about how the che­mi­cal Bisphe­nol A (BPA) is found to be pre­va­lent in our food and water. As a hypothy­roid patient, I was sur­pri­sed to see that not all artic­les about this harm­ful subs­tance ade­qua­tely desc­ribe the con­nec­tion bet­ween thy­roid func­tion and BPA. This is an over­sight that should be addres­sed since hypothy­roi­dism is esti­ma­ted to affect over ten million peo­ple in the US and this num­ber is gro­wing. It makes per­fect sense to look to envi­ron­men­tal toxins as a likely cul­prit in this serious health epidemic.

BPA is a synthe­tic estro­gen and an endoc­rine dis­rup­ter that cau­ses mul­ti­ple health pro­blems. There are over 200 stu­dies lin­king it to breast can­cer, obe­sity, atten­tion defi­cit disor­der, early puberty in girls, geni­tal abnor­ma­li­ties in boys and girls alike, polycys­tic ovary disease and infer­ti­lity in women and pros­tate can­cer in men. Stu­dies indi­cate that up to 92% of Ame­ri­cans have BPA in their urine. Also BPA doesn’t leave the body quickly; fas­ting adults still had BPA levels in their bodies after 24 hours.

BPA comes from many plas­tic sour­ces. It’s used as a har­de­ner in plas­tic manu­fac­tu­ring. Many tin cans have plas­tic linings that con­tain BPA inc­lu­ding soup and toma­toes, and it’s also in plas­tic water bott­les, some infant for­mu­las and can­ned jui­ces. BPA is also found in PVC water supply piping.

How does BPA relate to thy­roid disease? Accor­ding to a seve­ral good stu­dies, BPA is a thy­roid recep­tor anta­go­nist. This means that BPA will inter­fere with the bin­ding of the thy­roid hor­mone T3 with cell recep­tor sites. This will cause hypothy­roi­dism, not only with peo­ple with under-functioning thy­roids but also for those who are currently taking medi­ca­tions for hypothy­roi­dism or even those who have nor­mally func­tio­ning thy­roids. BPA was found to accu­mu­late in many organs when injec­ted into rats inc­lu­ding the lung, kid­neys, thy­roid, sto­mach, heart, spleen, tes­tes, liver, and brain. In this way, BPA has the poten­tial to inter­fere with thy­roid hor­mo­nes in each organ that has accu­mu­la­ted the subs­tance. A study also indi­ca­tes that the levels of BPA that are con­si­de­red safe (upper limit of emis­sion is set to 2.5 ppm [µg/liter], which is more than 90 µM) are high enough to inhi­bit thy­roid hor­mone recep­tors. Yet another study shows that BPA appears to accu­mu­late in rat fetu­ses in sig­ni­fi­cantly high levels and dis­rupts thy­roid func­tion in baby rats.

There’s also evi­dence that BPA may influence the meta­bo­lism of endo­ge­nous ste­roids, which may be a fac­tor in adre­nal fati­gue and its treat­ment, as well as and its treat­ment, as well as dysau­to­no­mia stem­ming from adre­nal pro­blems. Many with hypothy­roi­dism also suf­fer from co-morbid adre­nal fati­gue and BPA may be a con­tri­bu­ting fac­tor in this.

What this means for ever­yone, but espe­cially for thy­roid patients, is every effort should be made to remove BPA from food and water sup­plies. For those who are not able to get pro­perly opti­mi­zed on their thy­roid meds or who are fin­ding they are suf­fe­ring from hypothy­roid symp­toms des­pite nor­mal levels of TSH, free T3 and free T4, con­si­der BPA as a pos­si­ble source of the problem.

Steps you can take to mini­mize you expo­sure include:

• Avoid all can­ned foods with plas­tic liners and avoid bott­led water. Buy your can­ned toma­toes in glass jars, not metal cans or stick to using fresh ingre­dients. Most other can­ned foods use BPA as well, espe­cially green beans (Here is a list of BPA-free can­ned foods).
• Drink water out of glass or stain­less steel con­tai­ners (and make sure there’s no plas­tic liner or lids that have BPA) or BPA-free plas­tic. Low den­sity pol­yethy­lene bike bott­les con­tain BPA.
• Do not mic­ro­wave foods in plas­tics or use plas­tic wraps when mic­ro­wa­ving. Avoid poly­car­bo­nate (“PC” or #7 and #3) plas­tic food con­tai­ners altogether.
• Since most muni­ci­pal water piping is PVC and some hou­ses have it as water supply lines, con­si­der ins­ta­lling a reverse osmo­sis sys­tem for your drin­king water. This will also remove fluo­ride and chlo­rine (other thy­roid dis­rup­ters) and many other harm­ful subs­tan­ces from drin­king water.

Most impor­tantly we need to make our voi­ces heard that BPA is not an accep­ta­ble subs­tance and that its use in our food and water supply must cease. Recently Sena­tor Feins­tein intro­du­ced a ban on BPA to the Food Safety Moder­ni­za­tion Act but this was modi­fied to remove the ban due to pres­sure by industry groups. Sena­tor Feins­tein still has an effort under­way to ban BPA from child drink bott­les and toys and seve­ral sta­tes have enac­ted such bans but this does not go far enough.

Con­tact your repre­sen­ta­ti­ves today and let them know that a natio­nal ban on BPA must be enac­ted. If they don’t lis­ten then I sug­gest you make your­self heard at the ballot box this November.

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• Have you cut down on your expo­sure to Fluo­ride? Buy non-fluoridated tooth­paste as a first step.
• Cut down on more che­mi­cals by using baking soda under your arms rather than commercially-made unde­rarm deo­do­rants. Note that the baking soda may at first cause red­ness, but it will go away within days and is a great way to kill odors.
• Have a poun­ding hear­trate that you can’t explain? You may be making too much RT3.
• Check out typi­cal Ques­tions and Ans­wers about thy­roid treat­ment and rela­ted issues.
• Want to write a GUEST BLOG POST on STTM? Go here.

With the recent blog post by health wri­ter Mary Sho­mon con­cer­ning Dr. Sid­ney Wolfe’s new 4-year term with the FDA’s Drug Safety and Risk Mana­ge­ment Advi­sory Com­mit­tee, there has been much brooha and fear-mongering on thy­roid patient groups.

Why? Well look at it this way. This is a man of sta­ture. He is an MD, an Adjunct Pro­fes­sor of Medi­cine, the direc­tor of Public Citizen’s health research group which pro­mo­tes drug safety and public health, and edi­tor of the news­let­ter Worst Pills, Best Pills, and since August of  ’08, a mem­ber of the Drug Safety Com­mit­tee.  He also has a resume a mile long.

Yet in spite of his see­mingly caring acti­vism for our health and well-being, and his immense expe­rience and edu­ca­tion, he is clearly and com­ple­tely off-base about Armour and other desic­ca­ted thy­roid presc­rip­tion drugs.

For exam­ple, as as edi­tor of the Worst Pills, Best Pills news­let­ter,  Wolfe dec­la­red Armour desic­ca­ted thy­roid as a “Do Not Use” pro­duct because it is not ade­qua­tely gua­ran­teed to pro­vide appro­priate blood levels of thy­roid hor­mone and relia­ble alter­na­ti­ves are avai­la­ble”. (Gee, funny how our expe­rien­ces are com­ple­tely other­wise.…)

Then in the May 2003 issue (of which you have to have a paid presc­rip­tion to read), he wrote an article tit­led  “Do Not Use! Natu­ral or Desic­ca­ted Thy­roid (ARMOUR THYROID) For Thy­roid Hor­mone Repla­ce­ment The­rapy.” In that article, the clue­less Wolfe sta­ted that he sup­por­ted The Ame­ri­can Thy­roid Association’s sta­te­ment “There is no evi­dence that desic­ca­ted thy­roid, a bio­lo­gi­cal pre­pa­ra­tion, has any advan­tage over synthe­tic thy­ro­xine.” (I guess millions of us and our impro­ved hear­trate, sta­mina, cho­les­te­rol, depres­sion and more…aren’t evi­dence?)

He then pro­po­ses that Armour is mostly presc­ri­bed for weight loss, is a niche mar­ket for the unsc­ru­pu­lous, and conc­lu­des with “if you are offe­red natu­ral thy­roid hor­mone repla­ce­ment treat­ment for any rea­son, this is a red flag and you should get a second opi­nion.” In a let­ter to con­su­mers, Wolfe and Public Citi­zen state that that T3 is only nee­ded from con­ver­sion and is pre­dic­tably found from con­ver­sion, that the T2 and T1 also found in desic­ca­ted thy­roid has essen­tially no acti­vity, that desic­ca­ted thy­roid is an unpre­dic­ta­ble mix­ture, that is has no pre­dic­ta­ble bio­lo­gi­cal acti­vity…plus so many more com­plete and total inac­cu­ra­cies based on “inte­llec­tual head chat­ter” not on obser­va­tion and experience.

Thud.

Mary Sho­mon, in 2003, did a bang-up job trying to com­mu­ni­cate with Wolfe, Worst Pills, Best Pills, and Public Citi­zen about the inac­cu­ra­cies of their beliefs and statements…basically to no avail. The TRUTH is here, and in more detail in Chap­ters 1 and 2 in the STTM book which are enligh­te­ning those rea­ding it all!

So we are left won­de­ring, six years later, what his four-year appoint­ment to this com­mit­tee will mean. But let’s make a few things quite clear to con­trast some of the fears going on and expres­sed on thy­roid groups:

1) Armour is not being ban­ned.
2) Wolfe is one of a current 9 mem­bers of this com­mit­tee. Wolfe is not “the com­mit­tee”.
3) Wolfe and seven others currently have voting rights. He is the only “Con­su­mer Repre­sen­ta­tive”.
4) There are still six more vacan­cies.
5) The com­mit­tee is NOT the power. They simply make recom­men­da­tions. And his­to­ri­cally, the FDA can be slow to act on their recom­men­da­tions, or doesn’t follow them at all (which is a GOOD thing when it comes to a SAFE and EFFECTIVE medi­ca­tion like desic­ca­ted thyroid).

So what can you do? I cha­llenge you to follow and act on the below, which puts our ener­gies into com­mu­ni­ca­tion, not fee­ding the ego and power of a mis­gui­ded man with our overtly expres­sed fears as if they have actually come to pass :

1) Remem­ber 1 – 5 above. Armour is fully avai­la­ble. Keep the facts straight, and fear-mongering down.

2) STTM has a power­ful and gro­wing page of tes­ti­mo­nies of those who switched to desic­ca­ted thy­roid.  Are you in there? If not, you need to be. This web­site currently has a huge audience. It’s noti­ced by doc­tors all over the world, as is the STTM book, which is YOUR book of YOUR expe­rien­ces,  which is also being orde­red by doc­tors. Use the Con­tact Me form at the bot­tom of that page.

3) Tell your expe­rience with Synth­roid or other thy­ro­xine medi­ca­tions at the follo­wing web­si­tes:  www.rateadrug.com,  www.drugs.com,  www.askapatient.com They don’t inc­lude any of the desic­ca­ted thy­roid meds yet, but you can tell of the nega­tive expe­rien­ces with all the T4-only drugs, inc­lu­ding adre­nal fati­gue if you fell into that, and all your lin­ge­ring thy­roid symp­toms.  The above links will take you to their Synth­roid page – you can search for the other T4 meds.  Remem­ber to men­tion Armour or other desic­ca­ted thy­roid meds and how they have hel­ped you!! Update: thy­roid patient Gina found the drugs.com Armour page: http://www.drugs.com/comments/thyroid-desiccated/armour-thyroid.html

4) Report your T4-only expe­rience to Med­Watch, the FDA’s  pro­gram for repor­ting pro­blems.  You will see an Online Repor­ting Form to down­load. Don’t fail to men­tion which pro­blems were remo­ved or greatly impro­ved when you switched to Armour, or the fact that you now have to deal with adre­nal fati­gue thanks to the ina­de­quacy of T4-only treat­ment. You can also call 1 – 800-FDA-1088, but remem­ber: your call is not to draw atten­tion to Wolfe’s opi­nions! It’s to draw atten­tion to how lousy a treat­ment T4 is as com­pa­red to how much bet­ter Armour has been.

5) Go to my article tit­led Synth­roid Sucks: the Rall­ying Cry of Thy­roid Patients vs. Clue­less Doc­tors and com­ment on this article, inc­lu­ding men­tio­ning what Armour, Natu­reth­roid or other desic­ca­ted thy­roid did for you. Rate it as well. Both keep this article in the media and in the eyes of others.

6) Go to www.medications.com where patients ask ques­tions and YOU can ans­wer, men­tio­ning YOUR expe­rience and how much bet­ter desic­ca­ted thy­roid has been. Clic­king on that will take you to the Synth­roid patient ques­tions. Ans­wer them. Be care­ful with links – they may not catch them at first, but will remove them if they do.  You can men­tion web­site names, tho, like Stop the Thy­roid Madness.

7) Send peo­ple here to follow all these steps. Power is in numbers!

8 ) Use the follo­wing web­site to email or write your sena­tors and repre­sen­ta­ti­ves: http://www.visi.com/juan/congress/ THEY DO READ THEM. And they will remem­ber this!  Here’s a tem­plate let­ter you can use:  www.stopthethyroidmadness.com/template-letter-to-your-senator-or-representive/

If you have other ideas and pla­ces to write or call, add your com­ment to this post. Remem­ber,  put your power in com­mu­ni­ca­tion! LOTS of communication.

P.S. Did you know that the Ame­ri­can Thy­roid Asso­cia­tion, in coo­pe­ra­tion with the Ame­ri­can Asso­cia­tion of Endoc­ri­no­lo­gists, together sup­port January as “Thy­roid Awa­re­ness Month”…which is sup­por­ted through an unres­tric­ted grant from Abbott Labo­ra­to­ries, the makers of Synth­roid?? Major UGH.

Just two months ago on January 15^th, I wrote an article tit­led Ten Rea­sons You May Still Feel Bad.  Nearly every hypothy­roid patient can have some of those ten pro­blems, and if so, they need to be dis­co­ve­red and corrected.

And one of those issues was low B12. B12 is a vita­min which has a key role in cell meta­bo­lism of your entire body, giving you energy, sharp­ness in your brain, and healthy ner­vous sys­tem functioning.

And unfor­tu­na­tely, a cer­tain per­cen­tage of hypothy­roid patients have low levels of this impor­tant vita­min, lar­gely due to diges­tive issues com­mon with hypothy­roi­dism– either undiag­no­sed due to the lousy TSH lab test, or under­trea­ted on T4 meds like Synth­roid, Levoxyl, Levothy­ro­xine, Eltro­xin, etc.

Symp­toms of low B12 can vary from per­son to per­son, but can inc­lude numb­ness and tin­gling in your hands or feet,  tre­mors, poor refle­xes, ton­gue sore­ness, leg pain, or dif­fi­culty wal­king with balance.   Psycho­lo­gi­cally, you may have memory issues, con­fu­sion, or depres­sion. Young women may have dif­fi­culty get­ting preg­nant due to low B12.

When doing lab work, you want a result in the upper end of the range.  To correct ina­de­quate levels of B12, you’ll want to use high oral B12 (methyl­co­ba­la­min is the recom­men­ded form of B12), B12 cream, or injec­tions by your doc­tor (espe­cially if you have per­ni­cious ane­mia) .  It’s also recom­men­ded to inc­rease your con­sump­tion of meat and dairy pro­ducts, which can be rich in B12.

March 27, 2009 is the kick-off date to begin an awa­re­ness cam­paign of B12 health, with Sep­tem­ber 23^rd being “Vita­min B12 Awa­re­ness Day”. And I highly recom­mend the book Could It Be B12? An Epi­de­mic of Mis­diag­no­ses by Sally Pacho­lok, R.N. and Jef­frey Stuart, D.O., who are spearhea­ding this awareness.

Have you found your­self with low B12? Tell us your symp­toms, how you trea­ted it, and how long it took to stop the symptoms.

Want to be noti­fied of these blog posts? Curious what Janie is ran­ting about this time? Use the Noti­fi­ca­tion on the bot­tom left of the links.

Ever heard of Henry R. Harrower?

He came to the US from England in 1903 at age 20, and with great for­ti­tude and drive, became an MD and Endoc­ri­no­lo­gist. He had influence in the crea­tion of today’s  pro­fes­sio­nal Endoc­rine Society.   He also belie­ved (to the cons­ter­na­tion of many of his collea­gues) in the use of organs to treat con­di­tions, such as Armour desic­ca­ted thyroid.

And in 1931, he made the follo­wing inc­re­di­ble statement:

“A good labo­ra­tory report is cold com­fort to a patient whose symp­toms remain unchan­ged, and the doc­tor can repeat such reports until he is blue in the face, but they will not help his patient much if unac­com­pa­nied by con­tro­lled symp­toms and chan­ged feelings.”

He also stated:

“Are not the fee­lings of the patients often as cli­ni­cally valua­ble as the other fin­dings? In no case can we wholly dis­count them.”

BRILLIANT!!  BRAVO!! “Cold com­fort” couldn’t desc­ribe our reac­tion bet­ter when a slew of your modern collea­gues have habi­tually dis­coun­ted thy­roid patient symp­toms for deca­des in favor of ink spots on a piece of paper called “lab results” with dubious “nor­mal ran­ges”. And we give the same “Bravo” to a gro­wing body of doc­tors who are making a cou­ra­geous change in their rela­tionship with patients the last few years by LISTENING to the patient first and foremost.

p.s. Thanks to Stepha­nie Buist, wor­king to become a natu­ro­path, who pos­ted the first quote above to the Face­book of a mutual friend of ours. You can read more about Harro­wer here.

How do you feel about what Dr. Harro­wer said over 100 years ago? How would you rate the Endoc­ri­no­lo­gists you’ve seen the past few deca­des as com­pa­red to Harro­wer? Have you had no more than “cold comfort”?

An intri­guing thought: what if there were lab pac­ka­ges spe­ci­fi­cally desig­ned by Stop the Thy­roid Mad­ness and all its patient-to-patient wis­dom.  Well, there are!

STTM has crea­ted lab pro­fi­les in part­nership with MyMed­Lab, a direct-to-consumer lab faci­lity which has expan­ded to pro­vide ser­vi­ces to nearly the entire Uni­ted States

This lab faci­lity pro­mo­tes the empo­wer­ment of patients in their own care, simi­lar to STTM’s focus on edu­ca­ting the patient and expec­ting a part­nership when you walk into the doctor’s office. Empowerment!

You will find a com­bi­na­tion of both in-home collec­ted tests (saliva cor­ti­sol) and those per­for­med at Lab­Corp collec­tion sites across the US.   Take a Peak: STTM Lab pac­ka­ges (be sure and click on the green What’s Inc­lu­ded icon on the lower right. You get a lot!)