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With the recent blog post by health writer Mary Shomon concerning Dr. Sidney Wolfe’s new 4-year term with the FDA’s Drug Safety and Risk Management Advisory Committee, there has been much brooha and fear-mongering on thyroid patient groups.

Why? Well look at it this way. This is a man of stature. He is an MD, an Adjunct Professor of Medicine, the director of Public Citizen’s health research group which promotes drug safety and public health, and editor of the newsletter Worst Pills, Best Pills, and since August of  ‘08, a member of the Drug Safety Committee.  He also has a resume a mile long.

Yet in spite of his seemingly caring activism for our health and well-being, and his immense experience and education, he is clearly and completely off-base about Armour and other desiccated thyroid prescription drugs.

For example, as as editor of the Worst Pills, Best Pills newsletter,  Wolfe declared Armour desiccated thyroid as a “Do Not Use” product because it is not adequately guaranteed to provide appropriate blood levels of thyroid hormone and reliable alternatives are available”. (Gee, funny how our experiences are completely otherwise….)

Then in the May 2003 issue (of which you have to have a paid prescription to read), he wrote an article titled  “Do Not Use! Natural or Desiccated Thyroid (ARMOUR THYROID) For Thyroid Hormone Replacement Therapy.”   In that article, the clueless Wolfe stated that he supported The American Thyroid Association’s statement “There is no evidence that desiccated thyroid, a biological preparation, has any advantage over synthetic thyroxine.” (I guess millions of us and our improved heartrate, stamina, cholesterol, depression and more…aren’t evidence?)

He then proposes that Armour is mostly prescribed for weight loss, is a niche market for the unscrupulous, and concludes with “if you are offered natural thyroid hormone replacement treatment for any reason, this is a red flag and you should get a second opinion.”   In a letter to consumers, Wolfe and Public Citizen state that that T3 is only needed from conversion and is predictably found from conversion, that the T2 and T1 also found in desiccated thyroid has essentially no activity, that desiccated thyroid is an unpredictable mixture, that is has no predictable biological activity…plus so many more complete and total inaccuracies based on “intellectual head chatter” not on observation and experience.

Thud.

Mary Shomon, in 2003, did a bang-up job trying to communicate with Wolfe, Worst Pills, Best Pills, and Public Citizen about the inaccuracies of their beliefs and statements…basically to no avail. The TRUTH is here, and in more detail in Chapters 1 and 2 in the STTM book which are enlightening those reading it all!

So we are left wondering, six years later, what his four-year appointment to this committee will mean. But let’s make a few things quite clear to contrast some of the fears going on and expressed on thyroid groups:

1) Armour is not being banned.
2) Wolfe is one of a current 9 members of this committee. Wolfe is not “the committee”.
3) Wolfe and seven others currently have voting rights. He is the only “Consumer Representative”.
4) There are still six more vacancies.
5) The committee is NOT the power. They simply make recommendations. And historically, the FDA can be slow to act on their recommendations, or doesn’t follow them at all (which is a GOOD thing when it comes to a SAFE and EFFECTIVE medication like desiccated thyroid).

So what can you do? I challenge you to follow and act on the below, which puts our energies into communication, not feeding the ego and power of a misguided man with our overtly expressed fears as if they have actually come to pass :

1) Remember 1-5 above. Armour is fully available. Keep the facts straight, and fear-mongering down.

2) STTM has a powerful and growing page of testimonies of those who switched to desiccated thyroid.  Are you in there? If not, you need to be. This website currently has a huge audience. It’s noticed by doctors all over the world, as is the STTM book, which is YOUR book of YOUR experiences,  which is also being ordered by doctors. Use the Contact Me form at the bottom of that page.

3) Tell your experience with Synthroid or other thyroxine medications at the following websites:  www.rateadrug.com,  www.drugs.com,  www.askapatient.com They don’t include any of the desiccated thyroid meds yet, but you can tell of the negative experiences with all the T4-only drugs, including adrenal fatigue if you fell into that, and all your lingering thyroid symptoms.  The above links will take you to their Synthroid page–you can search for the other T4 meds.  Remember to mention Armour or other desiccated thyroid meds and how they have helped you!! Update: thyroid patient Gina found the drugs.com Armour page: http://www.drugs.com/comments/thyroid-desiccated/armour-thyroid.html

4) Report your T4-only experience to MedWatch, the FDA’s  program for reporting problems.  You will see an Online Reporting Form to download. Don’t fail to mention which problems were removed or greatly improved when you switched to Armour, or the fact that you now have to deal with adrenal fatigue thanks to the inadequacy of T4-only treatment. You can also call 1-800-FDA-1088, but remember: your call is not to draw attention to Wolfe’s opinions! It’s to draw attention to how lousy a treatment T4 is as compared to how much better Armour has been.

5) Go to my article titled Synthroid Sucks: the Rallying Cry of Thyroid Patients vs. Clueless Doctors and comment on this article, including mentioning what Armour, Naturethroid or other desiccated thyroid did for you. Rate it as well. Both keep this article in the media and in the eyes of others.

6) Go to www.medications.com where patients ask questions and YOU can answer, mentioning YOUR experience and how much better desiccated thyroid has been. Clicking on that will take you to the Synthroid patient questions. Answer them. Be careful with links–they may not catch them at first, but will remove them if they do.  You can mention website names, tho, like Stop the Thyroid Madness.

7) Send people here to follow all these steps. Power is in numbers!

8 ) Use the following website to email or write your senators and representatives: http://www.visi.com/juan/congress/ THEY DO READ THEM. And they will remember this!  Here’s a template letter you can use:  www.stopthethyroidmadness.com/template-letter-to-your-senator-or-representive/

If you have other ideas and places to write or call, add your comment to this post. Remember,  put your power in communication! LOTS of communication.

P.S. Did you know that the American Thyroid Association, in cooperation with the American Association of Endocrinologists, together support January as “Thyroid Awareness Month”…which is supported through an unrestricted grant from Abbott Laboratories, the makers of Synthroid?? Major UGH.

Who, as a smoker, hasn’t heard how deleterious tobacco smoking is for your health. Not only will you acquire health problems directly related to smoking, but your life is shortened by 10-15 years average according to statistics. My own father died at age 63 directly related to his smoking.

But in spite of strong reasons to quit, most smokers will tell you it’s NOT easy. Why? Because the nicotine in tobacco is the addictive bogeyman. Nicotine stimulates those pleasure centers in your brain, besides being a substance which “gets you going” by releasing both blood sugar and adrenaline. The American Heart Association states that “Nicotine addiction has historically been one of the hardest addictions to break.”

But for hypothyroid patients, tobacco smoking presents another whammy. Namely, it stresses your adrenals over and over. And with adrenal fatigue being a common side effect of treating hypo with T4 meds like Synthroid, Levoxyl, Eltroxin, et all, as well as being dosed by the lousy TSH, you’ve got a third reason to fall into adrenal fatigue if you are a smoker.

Additionally, another factor in the difficulty of quitting is that cortisol decreases when you try to quit. A 2006 research report found that the lowered cortisol after quitting is associated with smoking relapse and with reports of increased withdrawal severity and distress. So, when you already have adrenal fatigue, and you quit smoking–a double whammy against being successful.

What’s the solution? If you don’t have adrenal fatigue and want to quit, it may be wise to have a good adrenal support on hand, such as Isocort or any quality OTC adrenal product at your health food store. If you DO have adrenal fatigue, staying away from cigs may require adding additional cortisol to your daily amount. Chapters 5 and 6 in the STTM book have good information to help you with cortisol support.

Are you a smoker with hypo? Don’t hesitate to respond to this post with your experience. (Please note that replies are not for questions.)

READ DEBORAH’S STORY ABOUT HER ATTEMPT to STOP SMOKING.

I called Rhea on the phone today.

Earlier today, Rhea was in the one-operator beauty salon at the same time as my 90 year old mother-in-law: one getting her gray hair dried while the other got her grayer tresses rolled. And as conversations go in beauty salons, it turned to personal topics (which can range from one’s marital happiness to whether Mrytle’s boobs are real or expanded.) And one of those topics was about Rhea’s hypothyroidism as well as her daughter’s.

And of course, my very doting mother-in-law mentions the STTM book written by her daughter-in-law, Janie, and hands her a copy from the car. Long story short…Rhea wants me to call her.

The phone conversation went into the fact that she used to be on Armour, but then listened to a local doctor several years later who switched her to Synthroid–”a far more stable medication”. (not) Since she switched, she says she’s felt terrible for years, and has recently returned to Armour, and with the vast information in the book, understood now how she needed to raise.

And then came the shocker: THE DOCTOR WHO PUT HER ON ARMOUR WAS BRODA BARNES.

My eyes got as big as fiesta dinner plates and I exclaimed “THE Broda Barnes??” “Yes,” she replied. “I saw him in Loveland, Colorado and he was a darling man.” She proceeded to tell me that when doctors entered the room back then, you stood. And she remembers his wife being there, and being just as sweet as he. She recalled him saying that when he was in medical school, he was disappointed when the professor assigned him to study the thyroid gland. “Such a little puny gland”, he thought. “But today, 50 years later, I still have so much to learn about that little gland.”

For those who don’t know the name of Broda Barnes, he was the father of the desiccated thyroid movement and an authority on the thyroid. Even back then, he knew of the superiority of desiccated thyroid treatment like Armour, and prescribed it. He also wrote the classic Hypothyroidism: The Unsuspected Illness. His book and legacy kept the idea of Armour and desiccated thyroid alive all these years later when we, as patients, were paying attention.

Rhea is now up to 4 grains Armour and feeling much better, and may have to go a little higher before she’s optimal. Thank you, Rhea, for giving me and anyone reading this a little peek into the wonderful Broda Barnes.

I often wonder how many celebrities MUST have hypothyroidism, yet we don’t know it. Tonite, I just found out that Jillian Michaels, the tough and muscular fitness buff on the TV show Biggest Loser, has hypothyroidism.

And you’re left to wonder: is she, and are others, on Armour, Naturethroid, Westhroid?? Have they found out about the superior treatment of desiccated thyroid over a T4-only treatment with Synthroid, Levoxyl, et al?

Other celebrities with hypo include Kim Alexis, Linda Ronstadt, Kim Cattrall, Kelly Osbourne, Oprah Winfrey and others. We can only hope that one day, someone will figure out that desiccated thyroid is a superior treatment, and help us spread the word. So far, Oprah has let us down. Maybe…maybe…someone with the ability to spread the word will step up to the plate.

p.s. Prefer a book to a website? STTM is now in book form, with even more information than you can find on this site, and waiting to be in your hands.

Started with a new doc. He prescribes Armour and is reading the STTM book. That latter in itself is an eye-popping miracle.

And…as we were going over my extensive labwork, which he does for new patients, and as I was lamenting the way too many doctors put their patients on the lousy statins (when all they need to do is treat hypo CORRECTLY), he stated, with a sigh of dismay and humility, something to the effect of: We doctors are simply too busy to keep up with the latest good information that patients are finding out far ahead of us.

I nearly fell off my chair!! He was honestly and humbling admitting that patients are finding out good information far ahead of doctors! i.e. he was NOT dissing the internet; he was NOT dissing that a patient could actually be more informed than him; he was not dissing information that goes against the Big Pharma Con Job .

This doc is a keeper.

p.s. Think your doc is open-minded enough to read the STTM book?? You can have the publishing company send one directly to your doctor. Click on the SEND A BOOK TO YOUR DOCTOR.