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I have a dream

As Susan Boyle of the UK had a dream which came true, I too wish from the deepest place in my heart that someday soon, SOMEONE from the mass media will FINALLY get smart and do a wide-reaching story for the hundreds of millions who are still on T4 meds like Sythroid, Levoxyl, Levothyroxine, Eltroxin, Oroxine…and who have depression or a myriad of other lingering symptoms of a sucky, laughable and shameful treatment.  This video inspires me today just as it did a few weeks ago.  Enjoy and dream with me. http://www.youtube.com/watch?v=bFzS0wgwyW4&annotation_id=annotation_179773&feature=iv :)

Janie

*Want to be informed of my blog posts? Curious what’s on my mind? Just use the Notification on the left at the bottom of the links.

*See below on how being on T4 meds can affect your liver. And below that–why I’m handing my promise ring back to Forest Pharmaceuticals.


  • Hip hip!! STTM has new products to help spread the word, here. Great BUMPER STICKERS, too, here. Spread the word--YOU may make a difference in someone’s life.
  • Check out the NEW REVISED patient-to-patient book with even more detail (and which doctors seem to respect more than websites).
  • Need to understand all your best options for thy­roid treat­ment? Go here.
  • Want to keep track of these "fringe website" blog posts? ;-) Curious what’s on Janie’s mind? Use the Blog Notification on the lower left of the links. or use an RSS Feed.

Thyroid Tidbit: Did ya notice that various Armour sizes are back??

armour-tabletsI can remember a few people the past year who proclaimed fervently that Armour was being discontinued because of the shortage.  And I chuckle about it.  Hopefully, my previous posts helped calm that fear.

But in case you haven’t heard, those larger sizes are back!  And you can keep track of what’s going via the Forest Pharmaceuticals customer product availability hotline: 1-866-927-3260  As of today, April 19, they state that the one grain tabs (60 mg) and 1 1/2 grains tabs (90 mg) are on backorder, and will catch up with production on April 20th, tomorrow as I am writing this.  We’ll see.

Unfortunately, the new formulation has made Armour lacking in sweetness, and it’s almost impossible to do it sublingually.  Sad. Maybe another pharmaceutical will get the hint. In the meantime, if you swallow your desiccated thyroid, make sure to avoid calcium, iron and estrogen at the same time. And if you’ve been doing it sublingually, and have to switch to swallowing, you may need a tad more.

Remember: if you have any issues with natural Armour desiccated thyroid in the treatment of your hypothyroidism, you can always ask your doctor for a prescription switch to Naturethroid or Westthroid, both fine FDA-approved, US Pharmacopeia standard prescription desiccated thyroid.

Janie

Want to be informed of my posts? Curious what I am raving about as a Thyroid Patient Activist? You can sign up for a Notification at the bottom of the links to your left.

P.S. If you haven’t bought the Stop the Thyroid Madness book yet, wanted to tell you that numerous patients are emailing me, stating they find the book even easier to refer to than this vast website (plus it has more details and information).  So if you want the ease of referral, the book may be the way to go.


  • Hip hip!! STTM has new products to help spread the word, here. Great BUMPER STICKERS, too, here. Spread the word--YOU may make a difference in someone’s life.
  • Check out the NEW REVISED patient-to-patient book with even more detail (and which doctors seem to respect more than websites).
  • Need to understand all your best options for thy­roid treat­ment? Go here.
  • Want to keep track of these "fringe website" blog posts? ;-) Curious what’s on Janie’s mind? Use the Blog Notification on the lower left of the links. or use an RSS Feed.

Multiple sclerosis, Dysautonomia, you name it…ALL made worse from hypothyroidism or being on a T4 med

waterripples Before my thyroid disease of hypothyroidism was discovered, I had horrific and debilitating consequences from exercise or any activity.  You can read about it all here or even more detail in the Introduction of the patients-to-patients Stop the Thyroid Madness book.

When my so-called “borderline hypothyroid” was discovered by age 30, I thought whoo-hooo, I’ll finally get rid of this strange nightmare whenever I tried to do ANYTHING.  I was put on Synthroid and my anticipation for a better life was profound.

But my hope was dashed. Not only did my body continue to overreact to activity, it got worse over time.  Horribly worse.  Nearly twenty years after I had started on a T4-only medication, and was told by one doctor after another that my problem was not my thyroid, I was going to apply for social security disability.

But they were all dead wrong. Sure, turns out I have a form of Dysautonomia, a malfunction and overreaction of my autonomic nervous system, causing my body to far overreact to stress. But remaining hypothyroid, as we all do on the sucky t4-only medications, had made it far worse. And I proved it. When I switched to Armour desiccated thyroid in 2002 and raised it according to what patients have learned, a miracle occurred.  My severe autonomic reactions made an almost complete turnaround.

And my experience of change or improvement when it comes to other diseases or conditions has been shared by others.

Last week, I received an email from a man whose brother has MS–Multiple Sclerosis.  And though Armour has not taken his MS away, it allowed him to move from this wheelchair to a walker! That is impressive.

So I am left wondering:  what other conditions or diseases, which are unique in themselves, are worsened being undiagnosed thanks to the lousy TSH lab test or the inadequate treatment of Synthroid, Levoxyl, levothyroxine, Eltroxin and all other T4-only medications? It’s awful to think about it.

Want to be informed of my blog posts? Curious what’s on my nind? Just use the Notification on the bottom of the links to the left.


  • Hip hip!! STTM has new products to help spread the word, here. Great BUMPER STICKERS, too, here. Spread the word--YOU may make a difference in someone’s life.
  • Check out the NEW REVISED patient-to-patient book with even more detail (and which doctors seem to respect more than websites).
  • Need to understand all your best options for thy­roid treat­ment? Go here.
  • Want to keep track of these "fringe website" blog posts? ;-) Curious what’s on Janie’s mind? Use the Blog Notification on the lower left of the links. or use an RSS Feed.

A toxin which could explain why SO many of us have thyroid disease

perchlorate_manuf_users_mapEver heard of perchlorate?? It’s a salt taken from perchloric acid, and it’s used in rocket fuel and explosives.  It was also once used in a medication to treat hyperthyroidism.

And guess where residues of it are hiding? In our drinking water and in infant formula. (EPA map shows where perchlorate is manufactured just in the US—nearly every state)

In a recent article by the Environmental Working Group,  it’s estimated that 15 brands of infant formula are contaminated with it, and two of the most contaminated brands of those 15 made up 87% of powdered formula used in 2000…all according to the CDC (Centers for Disease Control and Prevention).

As bad as that is, this goes beyond infant formula. It’s estimated that the drinking water of 28 states is contaminated by perchlorate, and other estimates are 35.  In addition,  the majority of women who breastfeed have it in their milk.  And you can find it in water-rich foods such as tomatoes and melons, or carrots and spinach.  It could even be found in milk.  Ouch.

So we not only have millions of US babies being exposed to a toxin which can diminish thyroid health, but adults who can be drinking their water and eating their food.

But guess what can counter the toxic effect of perchlorate? Iodine supplementation, if you take enough. In spite of some controversy with the use of iodine supplementation, this gives one pause in favor of it.

Luckily for all of us who know that desiccated thyroid like Armour is a better thyroid treatment, it also contains iodine. And some go beyond that, adding iodine to their supplements via Lugols or Iodoral.  It might be worth looking into.

P.S. The buck doesn’t stop with perchlorates in our water. We could also be exposed to a variety of pesticides, chemicals from deposed prescription drugs, and even mercury in our water.  Sad.  Our poor thyroids are assaulted.


  • Hip hip!! STTM has new products to help spread the word, here. Great BUMPER STICKERS, too, here. Spread the word--YOU may make a difference in someone’s life.
  • Check out the NEW REVISED patient-to-patient book with even more detail (and which doctors seem to respect more than websites).
  • Need to understand all your best options for thy­roid treat­ment? Go here.
  • Want to keep track of these "fringe website" blog posts? ;-) Curious what’s on Janie’s mind? Use the Blog Notification on the lower left of the links. or use an RSS Feed.

My mother had serious long-term depression. Can you guess why?

depression1 When I  was ten years old, my mother had electric shock treatment.

The memory stands out in my mind like a beacon. And when my Dad brought her home, he took me aside and explained that my mama was not going to remember where things are for awhile, and we’d have to help her. That was especially true with the 4-legged sewing basket.

She eventually regained her memory. But she was never again the same bright and quick witted mother I used to have when I was younger.

Why was shock treatment done?  To counter her mysterious ongoing and disabling depression.  And this was her last option.

It didn’t work.

She lived on anti-depressants, specifically a high dose of Elavil, the rest of her compromised life.

And more than 40 years later, about a year after her death, a change in my own life with Armour helped me realize why she had to be dependent on an anti-depressant for so many years:  Synthroid.  My mother was on Synthroid almost her entire adult life—a medication, along with Levoxyl, Levothyroxine, Unithroid, Eltroxin, Levaxin, Norton, Eutrosig  and Oroxine, which leaves nearly all patients with lingering hypothyroid symptoms, including one of the most common one:  chronic on-going depression.

And a large body of doctors all around the world just don’t get it.

What brought this memory of my mother up in my mind? Because two days ago, I chatted with a gal on Synthroid.   By all appearances, she seemed to be doing well, as some will make you think.  She said she had enough energy, wasn’t losing her hair, and felt okay. But when I probed deeper, she admitted that her blood pressure was going too high (as happened to my mother on a T4-only med) and she had a problem with depression and was on Wellbutrin.  Bingo.

See http://biopsychiatry.com/hypothyroidism.htm which is also here: http://www.theannals.com/cgi/content/abstract/34/10/1142

Want to be informed of these blog posts?? Curious what’s on Janie’s mind? Use the Notification feature on the bottom left of the links.


  • Hip hip!! STTM has new products to help spread the word, here. Great BUMPER STICKERS, too, here. Spread the word--YOU may make a difference in someone’s life.
  • Check out the NEW REVISED patient-to-patient book with even more detail (and which doctors seem to respect more than websites).
  • Need to understand all your best options for thy­roid treat­ment? Go here.
  • Want to keep track of these "fringe website" blog posts? ;-) Curious what’s on Janie’s mind? Use the Blog Notification on the lower left of the links. or use an RSS Feed.