blood pressure tags

I’ve been sitting back silently, reading all the backlash that started with Newsweek’s Best Life or Risky Advice May 30th article, a critical analysis of Oprah’s multiple program topics of Wish Away Cancer! Get A Lunchtime Face-Lift! Eradicate Autism! Turn Back The Clock! Thin Your Thighs! Cure Menopause! Harness Positive Energy! Erase Wrinkles! Banish Obesity! Live Your Best Life Ever!

And granted, some of the criticism seems justified.

Even thyroid patients winced and squirmed when Oprah stated that a month long Hawaiian vacation and eating fresh foods with soy milk were a great way to treat her thyroid condition.  Uh huh.   Patients equally gagged at her support of Dr. Christiane Northrup who made the the nutty insensitive comment that our thyroid problems were due to an “energy blockage in the throat region, the result of a lifetime of ’swallowing’ words one is aching to say.”

But the ensuing array of blog posts and articles following in the footsteps of the Newsweek criticism of Oprah has presented quite an irony for thyroid patients whose lives have been changed thanks to natural desiccated thyroid. Adjectives and/or descriptions of Oprah in these blogs and articles have included:

* dangerous

* peddling alternative treatments that are ineffective

* failing to present scientific evidence

* failing to listen to bona fide, medical school trained,  medical professionals

* being too gullible about the so-called wisdom and knowledge of certain patients (ala Suzanne Somers)

* failing to give more attention to science-based, status quo, mainstream medicine

Any of the above sound familiar? Yup, it sure does.

How many times have thyroid patients been told that desiccated thyroid like Armour or Naturethroid was dangerous, or raising it by symptoms rather than the TSH was dangerous. Or it’s dangerous to use because you’ll get heart problems and osteroporosis. Yet thyroid patients on desiccated thyroid have their lives CHANGED, with stronger hearts and increased bone density.

How many patients have had their doctors tell them that desiccated was ineffective as an alternative out-dated product, yet these same patients started to LIVE again with relief from old symptoms from this ineffective “alternative” medication that grandma once used.

How many articles by medical professionals are there who claim that there’s no scientific evidence to prove that desiccated thyroid is effective, in spite of CLEAR observation and reports of a huge and growing body of thyroid patients and certain doctors around the world about relief from depression, lowered cholesterol, better blood pressure, weight maintenance, hair regrowth, better stamina, less sickness and a myriad of other improvements!

How many bona fide, medical school trained,  medical professionals told us ad nauseum that our symptoms were not thyroid related (when they were), that we are “normal” because the TSH lab test says so (when we were far from it), that desiccated thyroid is outdated, unreliable, ineffective, and a ten ton load of other ridiculous comments from bona fide, medical school trained,  medical professionals.

How many doctors have told patients that they should NOT listen to other patients on the internet or Stop the Thyroid Madness because patients can’t possibly have any wisdom or know what they are talking about. Yet, lo and behold, it’s been patients and what they have learned who have started a wide-reaching revolution for better thyroid treatment that works, and a growing body of doctors are listening!

And how many times has science-based, status quo, mainstream medicine completely ruined the lives of thyroid patients because many doctors are too lazy to dare question or think outside the pharmaceutical, medical school box.

Yup, Oprah has made some blunders, gaffes and misjudgments as outlined in the Newsweek article.  She has gushed too quickly when Northrup opens her mouth or Oz walks in with his surgical garb.  But isn’t it a bit ironic that some of the criticism by others towards Oprah are the same blunders, gaffes and misjudgments which most any thyroid patient has heard about their use of desiccated thyroid, and which has all been COMPLETELY wrong.

Bottom line, for every mistake and misjudgment Oprah has made–and CLEARLY she has done so in her understanding of thyroid treatment—she just might be opening the doors to medical truth, somewhere, somehow, between it all.

Janie

One of many discoveries made by thyroid patients is that “normal” lab results don’t tell the whole story. And thyroid and adrenal patient advocate Valerie Taylor sure found out the hard way while dealing with worsening muscle spasms and weakness.

“I have been to at least 6 doctors over the past seven years and read thousands of websites, hunting for the cause of my severe muscle spasms”, explains Valerie. “They all ruled out potassium, a potentially likely cause,  because my serum lab result, 4.2, was right smack in the middle of the normal range.”

So Valerie was forced to live with her worsening muscle issues– spasms, weakness and pain–because all labs were normal and those that weren’t, didn’t pertain.  Even her insulin-dependent Type 2 Diabetes was well-controlled. And she knew it was all threatening to put her out of work as a pet groomer.  It was bleak.

But a surprising change was to come.

“About 2 months ago,” says Valerie, “someone on one of my groups mentioned potassium helping with fluid retention–the latter I’ve had for the last 15 years and took  Dyazide, a potassium sparing diuretic.”

She also learned about getting an RBC (red blood cell) potassium lab as it shows what’s inside the cells rather than in serum (as usual labs show).  And the results? It came back LOW.

Valerie has since worked her way up to 2850 mg. Potassium in a combo of chloride and gluconate…and below, in her own words, are the results:

• No more muscle spasms and the weakness and pain is leaving more daily!
• My IBS suddenly STOPPED!
• My insulin needs are HALF what they were before this supplement, and blood pressure & pulse are both down.
• ALL fluid retention is gone! I dropped 18 pounds the first month in just fluid weight.

Valerie is currently waiting for lab results to see if she needs to adjust further.

She concludes: I have since learned that being hypothyroid causes potassium losses, as does ANY steroid which I had been on for necessary adrenal support. Diabetes with a low carb diet also predisposes us to lose intracellular potassium into the serum which is probably why my serum labs looked normal in the face of extreme shortage. I hope many will see this and at the very least get RBC potassium labs done and if you have high BP or fluid retention, reach for potassium before a diuretic!

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Even without being inspired by Valerie’s discovery, there is good research out there for eating potassium rich foods, or like Valerie, using supplementation if your levels are low.  The LA Times reported a study which stated that consuming twice as much potassium as sodium might halve your risk of dying from cardiovascular disease,  stated by epidemiologist Paul Whelton, president and chief executive of the Loyola University Health System in Chicago and one of the authors of the study.

Here’s a list of potassium rich foods: http://www.hoptechno.com/bookfoodsourceK.htm

Here’s a list of symptoms of low potassium: http://www.buzzle.com/articles/signs-and-symptoms-of-low-potassium.html

And remember: ask your doctor to do an Red Blood Cell Potassium lab rather than simply serum. And don’t go as high as Valerie with supplementation unless you have proof of low potassium.

P.S. Magnesium helps pump sodium out of your cells, and potassium into the cells–a good reason to get magnesium tested as well.

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*What is your experience with the newly formulated Armour? Found a way to get around the problems? Express your opinion in the May 7th blog post!

Update to the below: it was brought to my attention that taking a second BP reading is usually always lower anyway. Ah, I thought, that’s correct! So to test this information based on research, I went back last night before bedtime. First took my BP with my arm in the upper correct position. Then the second time, took it with my arm down.

138/89 (up perpendicular to body; level with heart) pulse 80
146/100 (arm down) pulse 82

The second did NOT go down. It went UP! Interesting.

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Last week, I had found my blood pressure quite high for me! Upper 140’s and some 150’s for my Systolic, and upper 90’s and lower 100’s for my Diastolic.   Stage One hypertension!  I was pretty sure my 4 grains may suddenly be a tad too high since entering meno.  My temps and heartrate implied that, too.

I got off Armour for two days to use up some excess, got back on one, then on 2 grains multi-dosed.  My plan is to make my way back up to 3 1/2 grains by a week or slightly more…and see.

In the meantime, I have been using some blood pressure lowering supplements (high dose potassium, grape seed extract, Braggs Apple Cider Vinegar in juice, more CoQ10 than normal, plus my regular supplements).  I was more faithful to my treadmill walking (thanks to an April that still thinks it’s winter), and meditating. The latter two definitely helped lower both the Systolic and Diastolic, even if not low enough for my ideal.

For the last five days, my BP readings have still been too high. All those days, I had been seated on our couch. I put a pillow in my lap, laying my arm on that pillow, which meant my arm was slightly downward.  Sometimes my wrist would hang off the pillow.

Today, I decided I wanted to test something I have read. Namely, it’s actually quite important how you place your arm. The recommended way is placing your arm perpendicular to your body and at the height of your heart or a tad higher, all while comfortable resting on something.  Elbow can be flexed, but your arm must still be perpendicular to your body and about heart height or slightly higher.

Below are four of my most recent afternoon BP readings with pulse: two with the Left arm, then two with the Right arm.

L:  139/106   98  (arm hanging down and resting on seated leg)
L:  122/88 89  (arm up, perpendicular to my body, supported by pillows)
R:  141/87     92  (arm hanging down and resting on pillow)
R:  123/85 89 (arm up, perpendicular to my body, supported by pillows)

What you should note is that the first L reading, and the first R reading, were with the arm relaxed on a pillow but lower than my heart.  The second of each is with the arm on two pillows, putting it perpendicular to my heart,  with elbow flexed, and all of arm completely supported.

I was shocked! Putting my arms in what research is saying is the CORRECT position gave me much better readings. I am VERY pleased with the 122 and 123.  Much better. And though the 88 and 83 Diastolics are not to my liking yet, and tell me I need more work, the difference between the arm positions was stunning….as is the difference in what I’ve been getting for five days.

*Want to be informed of the STTM blog postings?? Curious what’s on my mind? Just use the Notifications to the left at the bottom of the links.

**Are you in the US and want to help make sure we don’t end up like the UK, having our Armour taken away?? In the post below, I have given you SEVEN STEPS that I hope you will follow through on!  YOU can make a difference.

The British Medical Journal (BMJ) recently came out with yet another thyroid article, benignly titled Diagnosis and treatment of primary hypothyroidism and authored by the British Thyroid Association (BTA),  that at first blush, looks so caring.

Namely, they express deep concern that that since hypothyroid symptoms can mimic other conditions, patients may be getting an incorrect diagnosis which could expose some patients to the harmful effects of excess thyroid hormones, while other serious conditions may go undiagnosed.

And they add: In other patients, adequate replacement with levothyroxine does not resolve symptoms, which are attributed to hypothyroidism rather than other conditions that may coexist, such as depression.

The article continues with:  Normalisation of thyroid stimulating hormone means a return to normal health in most patients with primary hypothyroidism.

In other words, what you have above are the Three Stooges of the stated beliefs of the British Thyroid Association.

Stooge stated-belief #1: “Incorrect diagnosis allow other conditions go undiagnosed” What is inferred is that there are a host of diagnoses of hypothyroidism that are incorrect. Why? Because a wise physician dared to listen to clear symptoms of hypothyroidism or use the free T3, in spite of a so-called “normal” TSH–a lab test which measures a pituitary hormone, not the cells ability to receive enough thyroid hormones.

Stooge stated-belief #2: “If adequate doses of levothyroxine do not resolve symptoms, those symptoms are due to something else.” That is akin to saying if eating 100 calories a day results in malnutrition and starvation, your malnutrition and starvation is due to something else. And one particular symptom they are referring to is depression–a classic symptom of undiagnosed and undertreated hypothyroidism in MILLIONS of individuals around the world.  And isn’t it just odd how that depression resolves itself when the patient is put on Armour and allowed to dose by the elimination of symptoms.

Stooge stated-belief #3: “A normal TSH lab result equals normal health in those treated for hypothyroidism”. Gee, funny how millions of thyroid patients around the world have had a so-called “normal” TSH lab result along with a diverse blend of continuing and CLEAR hypothyroid symptoms.  Additionally, we have a large and growing body of patients who, when they switched to Armour desiccated thyroid or other fine desiccated thyroid prescription meds,  had those symptoms resolved when they were dosed according to the free T3, improved blood pressure, strong heart beat, lowered cholesterol, and complete elimination of symptoms. Patients have learned what works!

When you understand the British Thyroid Association’s hell-bent and rigid stands against Armour desiccated thyroid, their promotion of one of the worst labs ever created to diagnose and dose by, their love affair with the most inadequate thyroid medication ever thrust onto the market by money-grubbing pharmaceuticals (levothyroxine), and their complete failure to listen to patients and recognize continuing symptoms of hypothyroidism while on synthetic T4, you come to realize how meaningful any article on hypothyroidism will be by the British Thyroid Association.

P.S.  Do ya wonder if the British Broadcasting Corporation (BBC) has the smarts to report the other side of the story??

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Michelle, 40-or-50-something, came over to my house today to go over some paperwork. I hadn’t taken my Armour yet, and I said “Excuse me, I need to pop my thyroid meds under my tongue.”

“Oh, I take thyroid meds, too.  Synthroid” she explained as she was writing on the papers with her pencil.

Now when I hear something like that, being who I am, I’m like a bear in a china cabinet who suddenly smells honey.  So as not to overwhelm,  I casually say “Oh, I used be on Synthroid.” And after a long pause while we are going over the paperwork, I say “Did you know there’s a worldwide patient revolution going on against medications like Synthroid?”

At the point, she raises her head in curiosity.

I then stick my paw in the honey: “You and I and millions have been put on meds like Synthroid and then told we are “normal” because the TSH says so. But all of us have continuing symptoms of hypothyroidism.  It’s a lousy medication. “

And when I laid out what those continuing symptoms were, her eyes got as big as saucers and she was shaking her head up and down in recognition. “Depression, rising cholesterol and blood pressure, easy weight gain, fatigue, less stamina than others, dry hair and skin, feeling cold, etc”, I told her.

And the most profound aspect of Michelle? She lives her life like the Energizer Bunny, going and going and going. She told me she often doesn’t get home until 6 pm doing her job, and she clearly has a lot of professional responsibilities.

But does an active Michelle mean that Synthroid works and is just as good a thyroid treatment as desiccated thyroid? You know the answer. She revealed that she’s quite tired when she comes home, wishes she had more energy, and still has issues with her weight, even though she lost some when she got on Synthroid.

And reading between the lines, it was clear that Michelle is probably on an anti-depressant, a statin, and a blood pressure medication.  And…she clearly has an adrenal problem that’s only going to get worse. She has a terrible time falling asleep at night (high cortisol), and is very sensitive to light and noise (high or low cortisol).

Suddenly it dawned on me. I am sitting across hundreds of millions of women, and some men. I am listening to how millions live their lives–making a living, maintaining a home, loving their spouses and children, interacting with people.  But underneath it all, it’s not a pretty picture. They cope, and they cope again.  And they dish out their money for more medications to treat the very symptoms caused by an inferior medication. And as they age, they’ll pay each of their millions of prices, just as my mother did, and as I was headed.  Energizer bunnies with faulty batteries.

P.S. Barack Obama has a health care reform plan. Will it change the lives of those 50 million with thyroid disease in the US, or will it only continue this T4-only travesty and health care scandal?  Are we headed in the same insane direction as the UK when it comes to T4-only?  Express your opinion.