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Doctors still have a long way to go a.k.a. Those symptoms might just be the thyroid!

Just as I was finishing up the post below about a short summary on the Endocrinology Today website, I saw a link at the bottom of the page that interested me.  It took me to a blog post on the same site from December 10th titled “Why can’t it be my thyroid?”.

And a slew of thyroid patients around the world, as well as a growing body of doctors,  would completely disagree with this post.

Namely, a DO explains the problem of patients arriving in doctors offices with “innumerable possible symptoms of hypothyroidism” including “fatigue, cold intolerance, decreased energy, weight gain, depression, hair loss, low libido, menstrual irregularity and others.”

Yet, he bemoans, these patients have a “normal TSH” which is “well within the normal laboratory reference range.” He also refers to their normal free T3 and free T4, and states there is no history to suggest pituitary dysfunction or that the TSH is unreliable.”

He then proceeds to pat himself on the back because he 1) will treat some patients with a high-normal TSH and other clinical features,  2) he will treat to a low-normal TSH of less than 2.0, but like the good-boy-doctor, “still within the normal laboratory reference range” and 3) he will not induce iatrogenic hyperthyroidism, even if symptoms persist. (yikes)

“Iatrogenic hyperthyroidism”??  Since “iatrogenesis” refers to harmful medical procedures, he’s probably referring to a TSH below the range, which in his mind, equates to hyperthyroidism.

***Then comes the observation that has made many thyroid patients shiver, since so many doctors have said it: because he feels that adding T3 to T4 has more negative results than positive, he explains to his patients that there may be causes of their symptoms besides the thyroid.”

THUD.

So here is my 6-point response to any doctor who might share these beliefs:

1) There’s hardly a thyroid patient around who hasn’t had a so-called “normal” TSH in spite of clear and obvious hypothyroidism.  The TSH lab test frequently lags behind what is reality in the body, and has been doing so since it’s creation in the early 1970’s (see Chapter 4 in the Stop the Thyroid Madness book for history).

2) Having a “normal” free T3 and free T4 means nothing. It’s “where” the result falls in that range that means something. i.e. patients all around the world are noticing that having a free T3 mid-range or lower in the presence of hypothyroid symptoms is usually a BINGO lab result pointing to hypothyroidism.

3) Exactly because doctors tend to dismiss clear hypothyroid symptoms as “something else” thanks to a lousy TSH reference range, a burgeoning number of thyroid patients are falling into adrenal fatigue with its low cortisol, which serves to mess them up even more.

4) A huge body of thyroid patients who are on desiccated thyroid hormones (aka Armour, Naturethroid, etc), and who finally have a complete removal of symptoms with a normal temperature and heartrate, also have a suppressed TSH lab result, and not one iota of “iatrogenic hyperthyroidism.”

5) When it appears that adding T3 to T4 is having negative effects, the problem is most likely adrenal fatigue that needs correction, and/or low ferritin, NOT deciding that the symptoms must be from another cause or T3 doesn’t work.

6) “Fatigue, cold intolerance, decreased energy, weight gain, depression, hair loss, low libido, menstrual irregularity and others” may be shared in other conditions, but you are most likely missing CLEAR symptoms of hypothyroidism, both in the undiagnosed patient with a so-called normal TSH, or with a patient treated with the lousy thyroxine, which leaves most everyone with continuing hypothyroid symptoms.

“I’m sorry. It IS your thyroid” is exactly what patients need to hear.


  • Want to keep track of these ‘fringe web­site’ blog posts? ;-) Curious what’s on radi­cal Janie’s mind? Use the notification on the lower left of the links, called a Newsletter, or an RSS Feed.
  • Keep informed of each live Thyroid Patient Community Call on Talkshoe by signing up as a follower.
  • The extre­mely hip and sophis­ti­ca­ted STTM t-shirts are half price! Great BUMPER STICKERS, too. Spread the word--YOU may make a difference in someone’s life.
  • Check out the patient-to-patient book with even more detail (and which doctors seem to respect more than websites).
  • Need options for thy­roid treat­ment during the current shor­ta­ges due to demand being grea­ter than supply? Go here.

Puff. Puff. Puff. If you are a cigarette smoker & hypothyroid, you might want to read this!

Who, as a smoker, hasn’t heard how deleterious tobacco smoking is for your health. Not only will you acquire health problems directly related to smoking, but your life is shortened by 10-15 years average according to statistics. My own father died at age 63 directly related to his smoking.

But in spite of strong reasons to quit, most smokers will tell you it’s NOT easy. Why? Because the nicotine in tobacco is the addictive bogeyman. Nicotine stimulates those pleasure centers in your brain, besides being a substance which “gets you going” by releasing both blood sugar and adrenaline. The American Heart Association states that “Nicotine addiction has historically been one of the hardest addictions to break.”

But for hypothyroid patients, tobacco smoking presents another whammy.
Namely, it stresses your adrenals over and over. And with adrenal fatigue being a common side effect of treating hypo with T4 meds like Synthroid, Levoxyl, Eltroxin, et all, as well as being dosed by the lousy TSH, you’ve got a third reason to fall into adrenal fatigue if you are a smoker.

Additionally, another factor in the difficulty of quitting is that cortisol decreases when you try to quit. A 2006 research report found that the lowered cortisol after quitting is associated with smoking relapse and with reports of increased withdrawal severity and distress. So, when you already have adrenal fatigue, and you quit smoking–a double whammy against being successful.

What’s the solution? If you don’t have adrenal fatigue and want to quit, it may be wise to have a good adrenal support on hand, such as Isocort or any quality OTC adrenal product at your health food store. If you DO have adrenal fatigue, staying away from cigs may require adding additional cortisol to your daily amount. Chapters 5 and 6 in the STTM book have good information to help you with cortisol support.

Are you a smoker with hypo? Don’t hesitate to respond to this post with your experience. (Please note that replies are not for questions.)

READ DEBORAH’S STORY ABOUT HER ATTEMPT to STOP SMOKING.


  • Want to keep track of these ‘fringe web­site’ blog posts? ;-) Curious what’s on radi­cal Janie’s mind? Use the notification on the lower left of the links, called a Newsletter, or an RSS Feed.
  • Keep informed of each live Thyroid Patient Community Call on Talkshoe by signing up as a follower.
  • The extre­mely hip and sophis­ti­ca­ted STTM t-shirts are half price! Great BUMPER STICKERS, too. Spread the word--YOU may make a difference in someone’s life.
  • Check out the patient-to-patient book with even more detail (and which doctors seem to respect more than websites).
  • Need options for thy­roid treat­ment during the current shor­ta­ges due to demand being grea­ter than supply? Go here.

The tortoise and the hare: the STTM movement is the tortoise, but we’re winning!!

Hardly a person hasn’t heard Aesop’s fable of the tortoise and the all-too-confident hare, running their I’ll-prove-to-you-who’s-boss race. The hare was FAST and certain to win the run. But the ever-so-committed tortoise, even if slow, slower and slowest…was steady…and won the race.

Until recently, I thought our thrust and determination to change the Big Pharma, zombie-doctoring medical system in the treatment of hypothyroid would be like the hare. We’d get the attention of the mass media through our great determination, shout the message of a FAR better thyroid treatment, and create huge change.

But I think I was wrong. Change has occurred, but we have been doing it like the tortoise…slow and steady.

Slowly but steadily, we are seeing more and more doctors starting to “get it”, even if they still have a way to go. Slowly but steadily, folks are finding out why they have less stamina than others, or depression, or rising cholesterol, or fibromyalgia, or thinning hair in the face of the dogged “normal” diagnosis…all due to an inadequate medication called T4, aka Synthroid, Levoxyl, Eltroxin, et. al. and a lousy lab called the TSH.

Slowly but steadily, folks are finding out about desiccated thyroid to treat their hypothyroid, and cortisol to treat their adrenal fatigue.

Even the STTM book has been like the tortoise. Literary agents didn’t get it, nor did huge publishing companies. I finally stopped counting, but I bet I had over 200 rejections. They all thought it was simply “another” thyroid book. So the fruition of the STTM book came out of true sweat and tears, and a lot of cuss words as I squirmed through my frustrations. Yet, the STTM book–a PATIENT-TO-PATIENT book of which I was only the messenger, is not only a steady seller like the tortoise was steady, but sales keep growing every month, reviews are excellent, and lives ARE changing. How can you criticize a message, whether the STTM site or the book, that is based on the positive and critical experience of thousands of patients around the world!!

Change IS happening! Like the tortoise, we’re winning the race and creating change, bit by bit, whether it’s via STTM, various internet thyroid groups, other good books, or just word of mouth. We’re all a part of it. But we can’t be complacent, because it’s truly obvious by blogs and websites I read that there’s still a huge body of hypothyroid patients still suffering on T4 who need to find out what WE have found out. But it will happen, bit by bit. :)


  • Want to keep track of these ‘fringe web­site’ blog posts? ;-) Curious what’s on radi­cal Janie’s mind? Use the notification on the lower left of the links, called a Newsletter, or an RSS Feed.
  • Keep informed of each live Thyroid Patient Community Call on Talkshoe by signing up as a follower.
  • The extre­mely hip and sophis­ti­ca­ted STTM t-shirts are half price! Great BUMPER STICKERS, too. Spread the word--YOU may make a difference in someone’s life.
  • Check out the patient-to-patient book with even more detail (and which doctors seem to respect more than websites).
  • Need options for thy­roid treat­ment during the current shor­ta­ges due to demand being grea­ter than supply? Go here.

Thank you to my doctor–what a BREATH OF FRESH AIR

Started with a new doc. He prescribes Armour and is reading the STTM book. That latter in itself is an eye-popping miracle.

And…as we were going over my extensive labwork, which he does for new patients, and as I was lamenting the way too many doctors put their patients on the lousy statins (when all they need to do is treat hypo CORRECTLY), he stated, with a sigh of dismay and humility, something to the effect of: We doctors are simply too busy to keep up with the latest good information that patients are finding out far ahead of us.

I nearly fell off my chair!! He was honestly and humbling admitting that patients are finding out good information far ahead of doctors! i.e. he was NOT dissing the internet; he was NOT dissing that a patient could actually be more informed than him; he was not dissing information that goes against the Big Pharma Con Job .

This doc is a keeper.

p.s. Think your doc is open-minded enough to read the STTM book?? You can have the publishing company send one directly to your doctor. Click on the SEND A BOOK TO YOUR DOCTOR.


  • Want to keep track of these ‘fringe web­site’ blog posts? ;-) Curious what’s on radi­cal Janie’s mind? Use the notification on the lower left of the links, called a Newsletter, or an RSS Feed.
  • Keep informed of each live Thyroid Patient Community Call on Talkshoe by signing up as a follower.
  • The extre­mely hip and sophis­ti­ca­ted STTM t-shirts are half price! Great BUMPER STICKERS, too. Spread the word--YOU may make a difference in someone’s life.
  • Check out the patient-to-patient book with even more detail (and which doctors seem to respect more than websites).
  • Need options for thy­roid treat­ment during the current shor­ta­ges due to demand being grea­ter than supply? Go here.

I think I need to start a DUHH hypothyroid reference page on STTM

Look at my blog post below and you’ll see the latest duhhh entry–i.e Endocrinologists finally reported that T3 was an effective treatment in place of T4. Finally!! Of course, patients know that desiccated thyroid is an even BETTER treatment, and that has been underscored by those that tried T3 with their T4 (without having a reverse T3 issue), then switched to desiccated thyroid like Armour, and noted they felt much better. But it’s still an announcement in the right direction.

But we now have another duhhh entry: The Journal of Clinical Endocrinology & Metabolism has reported that long-term levothyroxine replacement therapy in young adults is associated with cardiovascular abnormalities. Another finally. We as patients have already known that for years! We’ve experienced what Synthroid, Levoxyl and all other T4-only medications have done to our hearts! I watched my own mother have to have an angioplasty because of her long-term use of Synthroid…and we have NO heart disease or problems like this in our family history!

So yes, you will see the announcement that a new page is going to be created here on STTM which will highlight journal entries and medical announcements which only support what patients have been experiencing and trying to tell their doctors for a longgggg time. lol. And your contributions to this new page will be welcomed.

********************

The new page is here: www.stopthethyroidmadness.com/medical-research Check this page often, either to send me new research which supports what we already know, or to find meat to give your rigid doctor.

***You can order the STTM book here, which is a complete patient-to-patient book on far better thyroid treatment. It’s YOUR book!


  • Want to keep track of these ‘fringe web­site’ blog posts? ;-) Curious what’s on radi­cal Janie’s mind? Use the notification on the lower left of the links, called a Newsletter, or an RSS Feed.
  • Keep informed of each live Thyroid Patient Community Call on Talkshoe by signing up as a follower.
  • The extre­mely hip and sophis­ti­ca­ted STTM t-shirts are half price! Great BUMPER STICKERS, too. Spread the word--YOU may make a difference in someone’s life.
  • Check out the patient-to-patient book with even more detail (and which doctors seem to respect more than websites).
  • Need options for thy­roid treat­ment during the current shor­ta­ges due to demand being grea­ter than supply? Go here.
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