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How’s your weight?? 6 Holiday Facts for Thyroid Treatment from STTM.

With recent news of Oprah’s continuous weight gain (currently partially due to her failure to properly treat her hypothyroidism and probably Hashimotos (see post below this), it can make us all shudder as we deal with the holidays and all that great food!

I admit it: At Christmastime, I LOVE the easy Gingerbread Boy Cookies recipe I used when the boys were little, the Microwave Fudge recipe to die for, my world famous Chocolate Chip Meringue Cookies which I color red and green, my mother’s wonderful Pralines which I occasionally try to make myself,  and Grandma’s Fruit Cake–yeah an actual fruit cake I LOVE, which I order EVERY SINGLE YEAR at this time.

And it’s hard not to gain weight! Is that you, too?? So let’s go over 6 HOLIDAY FACTS about thyroid treatment with desiccated thyroid:

1) Armour, Naturethyroid, Westhroid, or any other desiccated thyroid medication is not meant to be a Christmas weight loss pill. Desiccated thyroid medications consist of thyroid hormones: T4, T3, T2, T1 and calcitonin. They simply give you back what your own thyroid is not giving you…the same five hormones which give you back a stronger immune system, a normal body temperature & improved metabolism, better energy, healthier hair and skin, less aches & pains, emotional happiness, better lipid profiles like cholesterol, stronger bones…and on and on.  But even with all that benefit, and even though it does improve your metabolism, desiccated thyroid is not meant to be a weight loss pill.

2) Armour et. al. can only do its holiday job if you have strong adrenals or adequate cortisol treatment. Because cortisol is needed for thyroid hormones to move from your blood to your cells, you can only benefit optimally from desiccated thyroid during the holidays if you are lucky enough to have strong adrenals, or if you are giving yourself back the cortisol you need based on stable temps, blood pressure, and removal of most low cortisol symptoms.  So don’t forget that cortisol right now, and definitely consider adding a stress dose of cortisol if things get rough with the in-laws. (See Chapter 6 in the STTM book for even more details about stable temps, blood pressure, and stress dosing)

3) Don’t drink that Armour down with Egg Nog! Calcium is a known binder of thyroid hormones in your stomach, keeping you from benefiting from some of those health-giving thyroid hormones.  So if you swallow your desiccated thyroid, get the water.  Or even better, do it sublingually.

4) Don’t expect Armour to keep you from looking like Santa Claus: you still gotta exercise & watch what you eat! It’s true: the optimal use of desiccated thyroid does raise your metabolism and eats those extra calories up like PacMan.  But if you’re like me, you can still have a tendency to put on those love handle butter pounds if you eat your fill of holiday foods.  ho ho ho. To curtail the gain, add exercise to your holiday regime, or increase what you already do. I try to aerobically walk a LOT during the holidays. And when I’ve eaten a Christmas stocking full of goodies, my next meal will be nothing but high protein, like  turkey, cheeses and nuts. Or, you can also balance your intake by choosing one meal a day to be low glycemic to somewhat balance out the high glycemics you know you are going to eat later. For example, I make my breakfasts only eggs and nitrate-free bacon, or plain yogurt with berries, nuts, and Stevia.

5) Building a holiday snowman outside?  Consider an extra 1/4 grain of Armour. It’s a fact that prolonged exposure to cold increases your demand for energy, which in turn can increase your demand for more thyroid hormones. As a result, many patients find that adding an extra 1/4 grain of desiccated thyroid to one’s daily amount helps meet the demands of Frosty the Snowman or that holiday sprinkling of lights all over your house in the cold air.  Talk to your doctor.

6) Give a gift of the STTM book to a loved one. There are other good thyroid books on the market, but unlike all of them, this is the bible of patient experience on successful thyroid treatment. You’ll find volumes of information that patients all around the world have learned. A true patient-to-patient guide to feeling wonderful again.  Go here to order.  And the publishing company is extending the time you can order a book to be sent DIRECTLY to your loved one.

What is going on with the Texas Medical Board?? Potentially worrisome.

I was informed today that a very popular and well-liked doctor in Texas, who treats many hypothyroid patients, was disciplined recently.  And for what?  Under the column titled NONTHERAPEUTIC PRESCRIBING, it states:  The action was based on Dr. Launius’ prescribing Adipex, Adderal and Armour Thyroid to patients when such medications were not indicated. www.tmb.state.tx.us/news/press/2008/101608a.php

Adipex and Adderol are both central nervous system stimulants, and I can’t comment one way or the other. But the mention of Armour thyroid as “not indicated” is potentially worrisome, especially with similar disciplinary actions brought upon well-liked and wise doctors like Peatfield and Skinner of the UK, Derry of Canada, and  Springer in the US–all who dared to make obvious symptoms more important than ink spots on a piece of paper.

Take Kymm, a 45 year old woman.  She has manifested hypothyroid symptoms for 15 years since the birth of her daughter.  Yet during those entire 15 years, her TSH lab result has been completely “normal”…i.e. hypothyroidism has never been “indicated” based on the typical and widespread gold standard of diagnosis: the TSH.  But she has never, ever been normal with 15 years of easy weight gain, chronic depression, thinning hair, rising cholesterol, and other clear hypothyroid symptoms. And she has in fact started on Armour…and is soaring.

Kymm is not an oddity.  Thyroid patients on internet groups report going years with a normal TSH, no diagnosis, yet clear symptoms which are ignored by their TSH-obsessed doctors.   So their doctors may have avoided disciplinary action, but did they truly practise the art and science of healing??

Addressing folks who do well on T4 aka Synthyroid, Levoxyl, etc.

I received a reply to a post below that I was unable to approve because it mentioned someone by name. And the reply was not particularly friendly, and definitely not accurate. lol. But the reply brought up some good issues, which I have no problem addressing.

Namely, can I agree that there are some people who do well on T4-only treatment such as Synthroid or Levoxyl??
I can…sorta. I have a friend whose husband is one of those seemingly lucky individuals on T4, with no thyroid, who leads a fairly active and happy life. Considering how lousy I did, he amazes me. But I did notice something else about him: he has high and rising cholesterol and is on statins. That’s a classic symptom of a poor treatment and continuing hypothyroid, even if he does have much better energy that I ever did.

And by observing him, and knowing a few others who subjectively feel they do well on T4, I came to the following conclusion: though some may do better than others on T4, I have yet to find anyone on T4 who doesn’t have some kind of side-effect of a poor treatment, whether they are treating it with statins, treating it with antidepressants, or not treating it at all & denying it. Sure, some may do better than others, but the proof is in the pudding if you look deep enough. And, at the very least, I’m just plain suspicious that ANYONE on T4, even doing subjectively well, is going to have symptoms of a poor treatment creep up on them as they age. The body was not designed to live on conversion alone.

Can I agree that some people just canNOT tolerate desiccated thyroid like Armour and need to be on T4?
Initially, that may be. The gal that wrote me stated she felt a lot better on T4, and that no matter what she did, she couldn’t tolerate Armour. I believe her. If Armour was that miserable, she should be on T4 for the time being, or even better, a synthetic T4/T3 combination. But I also believe that even if she feels she did everything to a “t” and still couldn’t tolerate it, there was more for her to learn that she didn’t get the first time around when it came to her adrenal fatigue treatment. I see it too many times. And perhaps, over time, it will become more clear.

Do some proponents of desiccated thyroid go overboard in their fervor? I don’t doubt it one bit. We’re human. And we hope you are forgiving. But once you get past however you view are communication shortcoming, do know that our fervor is based on the fact that a huge volume of individuals are having lives changed due to desiccated thyroid (and/or treatment of low ferritin, and/or treatment of adrenal fatigue). And it’s too widespread and global not to have fervor, besides common sense that a treatment that gives us back what our own thyroids would be giving us is just plain remarkable.

So, do know that if you are on T4, and feel well, I’m behind you. It’s your life, not mine, and I believe you. But neither can I stop my belief and too many observations that if you are truly hypothyroid and need treatment, desiccated thyroid is a superior choice, now or later, whether you are lucky enough to have escaped adrenal fatigue, or whether you have a challenging case of adrenal fatigue that can be adequately treated!

The tortoise and the hare: the STTM movement is the tortoise, but we’re winning!!

Hardly a person hasn’t heard Aesop’s fable of the tortoise and the all-too-confident hare, running their I’ll-prove-to-you-who’s-boss race. The hare was FAST and certain to win the run. But the ever-so-committed tortoise, even if slow, slower and slowest…was steady…and won the race.

Until recently, I thought our thrust and determination to change the Big Pharma, zombie-doctoring medical system in the treatment of hypothyroid would be like the hare. We’d get the attention of the mass media through our great determination, shout the message of a FAR better thyroid treatment, and create huge change.

But I think I was wrong. Change has occurred, but we have been doing it like the tortoise…slow and steady.

Slowly but steadily, we are seeing more and more doctors starting to “get it”, even if they still have a way to go. Slowly but steadily, folks are finding out why they have less stamina than others, or depression, or rising cholesterol, or fibromyalgia, or thinning hair in the face of the dogged “normal” diagnosis…all due to an inadequate medication called T4, aka Synthroid, Levoxyl, Eltroxin, et. al. and a lousy lab called the TSH.

Slowly but steadily, folks are finding out about desiccated thyroid to treat their hypothyroid, and cortisol to treat their adrenal fatigue.

Even the STTM book has been like the tortoise. Literary agents didn’t get it, nor did huge publishing companies. I finally stopped counting, but I bet I had over 200 rejections. They all thought it was simply “another” thyroid book. So the fruition of the STTM book came out of true sweat and tears, and a lot of cuss words as I squirmed through my frustrations. Yet, the STTM book–a PATIENT-TO-PATIENT book of which I was only the messenger, is not only a steady seller like the tortoise was steady, but sales keep growing every month, reviews are excellent, and lives ARE changing. How can you criticize a message, whether the STTM site or the book, that is based on the positive and critical experience of thousands of patients around the world!!

Change IS happening! Like the tortoise, we’re winning the race and creating change, bit by bit, whether it’s via STTM, various internet thyroid groups, other good books, or just word of mouth. We’re all a part of it. But we can’t be complacent, because it’s truly obvious by blogs and websites I read that there’s still a huge body of hypothyroid patients still suffering on T4 who need to find out what WE have found out. But it will happen, bit by bit. :)

The walking SILENT SUCKERS of Synthroid, Levoxyl & Levothyroxine treatment

It would make an incredible horror movie. The plot: stunningly convince at least hundreds of millions of individuals worldwide that what has always been obvious, isn’t. That leaves only look green because of alien filters in your eyes. That ripe apples fall because water pulls them down. That fire doesn’t really burn your skin; it’s just your imagination.

And about hundred more schizophrenic ying yangs. Because if those in authority say so, it must be so.

But the horror movie is a reality, and I see it EVERY TIME I come into contact with people and the subject of my thyroid advocacy comes up.

Like today. A couple saw my book and struck up a conversation. She was on Synthroid; he was on Levoxyl. They had each been on their T4-only treatment for 12 and 14 years respectively, felt their hypo was perfectly treated, believed their doctors…and were now dealing with other problems: his rising cholesterol, her depression, his fatigue, and her weight gain. BUT OF COURSE, THOSE HAVE NOTHING TO DO WITH THEIR T4-ONLY TREATED HYPOTHYROID AND SOME OF IT IS THEIR OWN FAULT…leaves aren’t really green, water makes ripe apples fall, and fire doesn’t really burn.

It just struck me. And it’s struck me before. There’s just a LOT of SILENT SUCKERS walking around. I was one; my mother was one; and there are obviously millions out there, still walking around trying to live with the side effects of a treatment that their doctors say are NOT caused by their thyroid.

Sad.

(Has your cholesterol and other lipids improved since you switched to Armour and raised without using the TSH? Your story of success is welcome on the blog post below!)

My cholesterol is 167…thanks to my thyroid treatment.

I was lucky.

My cholesterol hadn’t started to raise yet when I was on Synthroid and later Levoxy. But it was going to, because nearly everyone on a T4-only medication has a climbing cholesterol number, sooner or later, along with heart problems and/or elevated CRP. And what do their doctors do next? Put them on statins with all the lovely side effects: muscle aches & pains, memory loss, and peripheral neuropathy. (See the Yahoo Stopped My Statins group here.)

My mother is the classic example. We have absolutely no heart problems in our family history that I know of. Yet, here was my mother who, in her 60’s, was suddenly in the hospital having a balloon procedure on her heart, called an Angioplasty, done to open up a clogged artery to her heart. Huh??

It was only years later, when I become a thyroid patient advocate, that I could look back and see why that happened to her. She had been on a T4 medication for the majority of her adult life!

Today, as patients are switching to natural desiccated thyroid like Armour, Naturethroid and Westhroid and others, and as they are allowed by their informed doctors to raise NOT according to the TSH but by the complete elimination of symptoms…VOILA…. their once-high cholesterol….FALLS!!

But guess what else falls? Your CRP.

CRP stands for C-Reactive Protein, and it becomes elevated in response to an inflammation. With that elevation comes the heightened risk of heart attacks and strokes. And guess what: continued hypothyroid (as found with T4-only treatment) results in an increased CRP level.

On an optimal amount of Armour, which for me is 4 grains, my CRP is 0.9. Ideal is less than one. Bingo.

***Have a story to share about your improved lipid or CRP levels since you became optimal on Armour? Let us know.

YEEHAW! Check out this study done in 2007–the higher the TSH, the worse your lipids. Ironically, even a TSH IN RANGE does this, according to the experience of MILLIONS of patients!! Thanks Nita for bringing this to my attention!

Dumb as boards; blind as bats

I use those phrases often. I can’t help it. Because it’s exactly what doctors are when it comes to thyroid treatment. It’s APPALLING.

Yesterday, I had the first of two book signings. It was announced in the paper, and I wasn’t sure what the turnout would be. I shouldn’t have wondered. It was a great turnout. People are GETTING IT that there is SOMETHING WRONG with their treatment. Around me stood several women, all still on T4 (Synthroid, Levoxyl, et al), and ALL suffering. All but one woman had weight problems. Several had rising cholesterol. Some admitted to being on anti-depressants. Some obviously had adrenal fatigue. And ALL were being told by their doctors that their thyroid treatment was now “normal”. Where can I go beat my head against the wall?????? They were eager to get the book and the knowledge it contained to change their lives!

So far, the book has been sent to Norway, Iceland, Belgium, UK, Austria, Sweden, Switzerland, Ireland, Australia and Canada, besides all over the US. The STTM website started the wheel to turn, and the book can only move it faster. And add it to other thyroid books which had begun to mention the truth (Broda Barnes being the first) as well as other groups and websites—we’ll eventually knock some SENSE and SIGHT in doctors, don’t you think?

The Stop the Thyroid Madness book, the bible of correct thyroid and adrenal treatment, by patients for patients, can be ordered here.

P.S. I live near one town which serves a population of nearly 35,000 people, and near another of over 4000 people, and there are plenty of doctors around here. Yet, there is not ONE doctor in this area that “gets it”. I sympathize with YOU if you are in the same boat.

If this is normal, I’m not impressed

I have a 40-something relative who I’ve been getting to know better lately. When she found out I had written the STTM book, she got a copy and read it. Her eyes were apparently wide as to what she was reading, especially the Thyroid Stimulating Hooey chapter. Turns out she has had fatigue problems for at least 14 years, right after her daughter was born. And it shows in her eyes and demeanor. But that’s not all. She’s continually gained weight all these years, even though she eats like a bird, and enough depression to warrant an anti-depressant. She was also getting worried about her cholesterol. Typical hypothyroid symptoms.

And worse (anybody identify with this?), she’s been told she is NORMAL for 14 years!!! Why? Because the TSH lab result said so. Talking about it brings her to tears.

I sent her to a MUCH better and hopeful doctor.

In 2006, the World Health Organization defined health as a state of complete physical, mental and social well-being and not merely the absence of disease or infirmity. So…if you stuck “normal” in front of that definition of health, as ignorant doctors so routinely tell us we are, it means that we have the symptoms expected of one who is in complete physical, mental and social well-being. THEN WHY DON’T WE FEEL THAT WAY?????

Yessirree, somewhere along the medical perspective timeline, the ability to pay attention to CLINICAL PRESENTATION ran right down the sewer. And with that loss has come HUNDREDS OF MILLIONS of patients worldwide with the schizophrenic diagnosis of “normal” with raging symptoms thanks to ink spots on a piece of paper called the erroneous TSH range. Exactly why this website is necessary, as is the book and YOUR demands for better treatment.

I was schizophrenically normal for over 17 years. My relative has been for 14. How about YOU?

Count on it: your doctor is going to ignore your symptoms

At the heel of Oprah’s revelation that she has a thyroid condition (see my blog post below) comes this article on September 13: Statins: Doctors ignore patients’ complaints of reactions to drugs

Boy howdy, doesn’t THAT sound familiar!

Sure, it’s about a non-thyroid drug called a statin, which has an advertised purpose of lowering your high cholesterol. But the information MIRRORS the experience of ALL thyroid patients!! Namely, the article shows that doctors rarely believe that the pill you are on is to blame for your “real - or imagined reactions”.

The article outlines a study that involved 650 patients who had complained of particular reactions after taking their statin. And the problems these patients observed are COMMON to being on statins - muscle problems, cognitive loss, and nerve pain called peripheral neuropathy (and my dear mother-in-law, who is on a statin, has all three). And what they got across the board is that their doctors either denied or barely considered that the statin could be causing the problems which the patient complained about!

And there’s a huge double whammy irony here. Namely, not only do thyroid patients have this exact experience when we are on T4-only meds and continue to have hypo symptoms that our doctors dismiss, but WE ARE A CERTAIN BODY OF THOSE ON STATINS because of one of the key continuing hypo symptoms that our doctors dismiss–high cholesterol.

Clinical presentation has gone by the wayside in favor of a lazy worship of the infallibility of pills.