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The irony of the Oprah debacle for thyroid patients

opraharmsupI’ve been sit­ting back silently, rea­ding all the bac­klash that star­ted with Newsweek’s Best Life or Risky Advice May 30th article, a cri­ti­cal analy­sis of Oprah’s mul­ti­ple pro­gram topics of Wish Away Can­cer! Get A Lunch­time Face-Lift! Era­di­cate Autism! Turn Back The Clock! Thin Your Thighs! Cure Meno­pause! Har­ness Posi­tive Energy! Erase Wrin­kles! Banish Obe­sity! Live Your Best Life Ever!

And gran­ted, some of the cri­ti­cism seems jus­ti­fied.

Even thy­roid patients win­ced and squir­med when Oprah sta­ted that a month long Hawaiian vaca­tion and eating fresh foods with soy milk were a great way to treat her thy­roid con­di­tion.  Uh huh.   Patients equally gag­ged at her sup­port of Dr. Chris­tiane North­rup who made the the nutty insen­si­tive com­ment that our thy­roid pro­blems were due to an “energy bloc­kage in the throat region, the result of a life­time of ‘swa­llo­wing’ words one is aching to say.”

But the ensuing array of blog posts and artic­les follo­wing in the foots­teps of the News­week cri­ti­cism of Oprah has pre­sen­ted quite an irony for thy­roid patients whose lives have been chan­ged thanks to natu­ral desic­ca­ted thy­roid. Adjec­ti­ves and/or desc­rip­tions of Oprah in these blogs and artic­les have included:

* dan­ge­rous

* pedd­ling alter­na­tive treat­ments that are ineffective

* fai­ling to pre­sent scien­ti­fic evidence

* fai­ling to lis­ten to bona fide, medi­cal school trai­ned,  medi­cal professionals

* being too gulli­ble about the so-called wis­dom and know­ledge of cer­tain patients (ala Suzanne Somers)

* fai­ling to give more atten­tion to science-based, sta­tus quo, mains­tream medicine

Any of the above sound fami­liar? Yup, it sure does.

How many times have thy­roid patients been told that desic­ca­ted thy­roid like Armour or Natu­reth­roid was dan­ge­rous, or rai­sing it by symp­toms rather than the TSH was dan­ge­rous. Or it’s dan­ge­rous to use because you’ll get heart pro­blems and oste­ro­po­ro­sis. Yet thy­roid patients on desic­ca­ted thy­roid have their lives CHANGED, with stron­ger hearts and inc­rea­sed bone density.

How many patients have had their doc­tors tell them that desic­ca­ted was inef­fec­tive as an alter­na­tive out-dated pro­duct, yet these same patients star­ted to LIVE again with relief from old symp­toms from this inef­fec­tive “alter­na­tive” medi­ca­tion that grandma once used.

How many artic­les by medi­cal pro­fes­sio­nals are there who claim that there’s no scien­ti­fic evi­dence to prove that desic­ca­ted thy­roid is effec­tive, in spite of CLEAR obser­va­tion and reports of a huge and gro­wing body of thy­roid patients and cer­tain doc­tors around the world about relief from depres­sion, lowe­red cho­les­te­rol, bet­ter blood pres­sure, weight main­te­nance, hair regrowth, bet­ter sta­mina, less sick­ness and a myriad of other improvements!

How many bona fide, medi­cal school trai­ned,  medi­cal pro­fes­sio­nals told us ad nau­seum that our symp­toms were not thy­roid rela­ted (when they were), that we are “nor­mal” because the TSH lab test says so (when we were far from it), that desic­ca­ted thy­roid is out­da­ted, unre­lia­ble, inef­fec­tive, and a ten ton load of other ridi­cu­lous com­ments from bona fide, medi­cal school trai­ned,  medi­cal professionals. 

How many doc­tors have told patients that they should NOT lis­ten to other patients on the inter­net or Stop the Thy­roid Mad­ness because patients can’t pos­sibly have any wis­dom or know what they are tal­king about. Yet, lo and behold, it’s been patients and what they have lear­ned who have star­ted a wide-reaching revo­lu­tion for bet­ter thy­roid treat­ment that works, and a gro­wing body of doc­tors are listening!

And how many times has science-based, sta­tus quo, mains­tream medi­cine com­ple­tely rui­ned the lives of thy­roid patients because many doc­tors are too lazy to dare ques­tion or think outside the phar­ma­ceu­ti­cal, medi­cal school box.

Yup, Oprah has made some blun­ders, gaf­fes and mis­judg­ments as out­li­ned in the News­week article.  She has gushed too quickly when North­rup opens her mouth or Oz walks in with his sur­gi­cal garb.  But isn’t it a bit iro­nic that some of the cri­ti­cism by others towards Oprah are the same blun­ders, gaf­fes and mis­judg­ments which most any thy­roid patient has heard about their use of desic­ca­ted thy­roid, and which has all been COMPLETELY wrong.

Bot­tom line, for every mis­take and mis­judg­ment Oprah has made – and CLEARLY she has done so in her unders­tan­ding of thy­roid treat­ment — she just might be ope­ning the doors to medi­cal truth, somewhere, somehow, bet­ween it all.

Janie

UK celebrities with thyroid cancer or disease

clareblading1Thy­roid pro­blems have become rampant.

And it’s not just in the US with indi­vi­duals like Oprah, fit­ness guru Jillian Michaels, Sex and the City’s Kim Cat­trall, George and Bar­bara Bush, Kelly Osbourne and others.  A recent article in the Daily Mail-UK high­lights the saga of  Clare Bal­ding, the BBC TV sports pre­sen­ter in the UK whose thy­roid was gladly remo­ved due to a malig­nant tumor.

Even the gal who wrote the well-written article about Clare, Pippa Jolly, reports having gone through the same remo­val 13 years pre­vious due to an extreme case of Hashi­mo­tos and a nodule pres­sing against her trachea.

But within the infor­ma­tive and hope­ful tone of the article are a few Rod­ney Dan­ger­field thuds of the con­ti­nuing SCANDAL and idiocy of a par­ti­cu­lar thy­roid treat­ment which even the most inno­cent of article wri­ters can be fooled.

Thud #1: The very first sen­tence of the article says: Some good news for Clare Bal­ding, the BBC TV sports pre­sen­ter, is that her recent ope­ra­tion to remove her can­ce­rous thy­roid gland — a thy­roi­dec­tomy — should be the end of the matter.

End of the mat­ter? Only if she had been put on desic­ca­ted thy­roid like Natu­reth­roid, et al. Because it appears she’s on the delight­fully enchan­ting synthe­tic “thy­ro­xine”, the dar­ling of most UK doc­tors and which ser­ves to leave almost ever­yone with their own brand and inten­sity of con­ti­nuing hypothy­roid symp­toms.  You can lis­ten to my audio here about T4.

Thud #2: Diag­nos­tic rates are on the inc­rease, says Pro­fes­sor Mon­son, as thy­roid tests are now done rou­ti­nely at GP sur­ge­ries. ‘As a result there is a higher detec­tion rate and the disease can be tac­kled ear­lier and if neces­sary follo­wed up by surgery.

Right. Those inc­rea­sing diag­nos­tic rates, some which are based on the lousy TSH lab test, are ove­rri­dingly catching someone’s hypothy­roid state years after it star­ted, which lea­ves a cer­tain per­cen­tage with the misery of adre­nal insuf­fi­ciency and host of other pro­blems from being undiag­no­sed so long.  And if one is trea­ted after sur­gery based on the same holy TSH, you will only con­ti­nue to have your brand of con­ti­nuing symp­toms. You can lis­ten to my audio on the TSH here.

Thud #3: If the thy­roid is remo­ved or not func­tio­ning pro­perly, thy­ro­xine will need to be taken in drug form for life. 

You and millions of others have been hood­win­ked into thin­king it’s thy­ro­xine you will need the rest of your life, aka Eltro­xine, Synth­roid, or levothy­ro­xine,  et al.  But those T4 meds force you to depend on con­ver­sion alone, a pro­cess not well done in many, and you miss out on what natu­ral desic­ca­ted thy­roid would be giving you as a much wiser treat­ment–exactly what your own thy­roid gives: direct T4, T3, T2, T1 and cal­ci­to­nin. Or even at the VERY least, giving your­self synthe­tic T4 with synthe­tic T3.

Thud #4: Now I have to have my hor­mone levels chec­ked every three months and make sure I take my medi­ca­tion, but other­wise I feel fine. 

I com­ple­tely believe Pippa when she says she feels fine. But I want to warn her:  some CAN feel fine on a T4-only medi­ca­tion, but even­tually and espe­cially as she ages,  she’s going to have to watch out for those pesky little demons of being on an infe­rior, ina­de­quate medi­ca­tion, which can inc­lude rising cho­les­te­rol, chro­nic low-grade depres­sion, rising high blood pres­sure, or a host of other symp­toms which are indi­vi­dual to each per­son on thyroxine.

Here’s hoping Clare and Pippa join the gro­wing body of patients all over the world whose lives are being chan­ged thanks to natu­ral desic­ca­ted thyroid.

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Thyroid Tidbit: Oprah was on Methimazole

Oprah admit­ted tonite on her Best Life Web­case that she was on Methi­ma­zole (Tapa­zole) when trea­ting her thy­roid pro­blem.  Methi­ma­zole is an anti-thyroid drug.  So it appears that Oprah had Hashimoto’s Toxi­co­sis – an autoim­mune com­bi­na­tion of Hashi­mo­tos and Gra­ves.  Treat­ment with Tapa­zole can be com­mon in trea­ting Hashimoto’s Toxi­co­sis.  But you are left won­de­ring about the weight gain and depres­sion — com­mon symp­toms of hypothy­roi­dism.  Wha­te­ver hap­pe­ned. Oprah will need to be pre­pa­red, because hypothy­roi­dism is a good pos­si­bi­lity for the near future.  So we’ll keep our fin­gers cros­sed that she’ll become infor­med about desic­ca­ted thyroid.

Any­body had Hashi’s Toxi­co­sis and trea­ted with Tapazole?

(Want to receive noti­fi­ca­tion of each blog post that comes up here? Just go to the Noti­fi­ca­tion on the left of this page below the links and sign in with Notifixious).

Oprah is spelled D*e*n*i*a*l; the hamster wheel of her life

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Well, here we go again. 

As this first week of Oprah’s “Best Life Week” series ends, we all know that Oprah has announ­ced she is going on a weight loss and exer­cise plan once again (hams­ter wheel tur­ning, tur­ning…).   Oh…and did I men­tion that she said her hypothy­roid was cured?

(Wait. Do I hear a collec­tive and world­wide SIGHHHHHHH among thy­roid patients??)

Thy­roid patient Mary Sho­mon now sha­res my own long-held con­cerns in an exce­llent sum­mary per­tai­ning to Oprah’s thy­roid and weight saga.  Oprah has been remar­kably unin­for­ma­tive about her diag­no­sis and details, and leads those unin­for­med to believe they can stop taking their medi­ca­tion and be cured.  And Oprah appears to have igno­red a slew of emails over the years from all camps of thy­roid advocacy!

Just as bad is a visit in the pages of O Maga­zine. On page 151 of the January issue, and right next to the article about Oprah’s weight gain, is a side article tit­led The Truth About the Thy­roid.  And the lon­gest para­graph is about the use of the TSH lab test and its so-called nor­mal range – one of the worst tests ever crea­ted to diag­nose and treat hypothy­roi­dism. Addi­tio­nally, the article ends with the men­tion of a presc­rip­tion of synthe­tic thy­ro­xine–a medi­ca­tion which lea­ves nearly ever­yone with linge­ring hypothy­roid symp­toms.

But the disap­point­ment in Oprah has to go farther than a gene­ral call to be edu­ca­ted about thy­roid disease. There is a need to be spe­ci­fi­cally edu­ca­ted about the scan­dal of thy­ro­xine treat­ment, about the fallacy of the TSH lab test which lea­ves patients undiag­no­sed for years or under­trea­ted when on meds, about the ram­pant pro­blem with adre­nal fati­gue in thy­roid patients on thy­ro­xine or those left undiag­no­sed (and where Oprah may be hea­ded), and about a far bet­ter treat­ment with desic­ca­ted thy­roid like Armour, and opti­mi­zing other areas, inc­lu­ding ferri­tin, B12, and our ove­rall health.

Let’s not give up. 

Suc­cess is like lot­tery tic­kets: you have to make seve­ral attempts before that magic one makes it. Even­tually, your email can be the one that finally stops her hams­ter wheel of “eat less, be hungry, exer­cise more, it’s not my thy­roid” men­ta­lity.  Tell Oprah about your suc­cess, others suc­cess, the patient-to-patient site www.stopthethyroidmadness, and more.  And don’t hesi­tate to share your email below.

How’s your weight?? 6 Holiday Facts for Thyroid Treatment from STTM.

With recent news of Oprah’s con­ti­nuous weight gain (currently par­tially due to her fai­lure to pro­perly treat her hypothy­roi­dism and pro­bably Hashi­mo­tos (see post below this), it can make us all shud­der as we deal with the holi­days and all that great food!

I admit it: At Christ­mas­time, I LOVE the easy Gin­ger­bread Boy Coo­kies recipe I used when the boys were little, the Mic­ro­wave Fudge recipe to die for, my world famous Cho­co­late Chip Merin­gue Coo­kies which I color red and green, my mother’s won­der­ful Pra­li­nes which I occa­sio­nally try to make myself,  and Grandma’s Fruit Cake–yeah an actual fruit cake I LOVE, which I order EVERY SINGLE YEAR at this time.

And it’s hard not to gain weight! Is that you, too?? So let’s go over 6 HOLIDAY FACTS about thy­roid treat­ment with desic­ca­ted thyroid:

1) Armour, Natu­rethy­roid, Westh­roid, or any other desic­ca­ted thy­roid medi­ca­tion is not meant to be a Christ­mas weight loss pill. Desic­ca­ted thy­roid medi­ca­tions con­sist of thy­roid hor­mo­nes: T4, T3, T2, T1 and cal­ci­to­nin. They simply give you back what your own thy­roid is not giving you…the same five hor­mo­nes which give you back a stron­ger immune sys­tem, a nor­mal body tem­pe­ra­ture & impro­ved meta­bo­lism, bet­ter energy, healthier hair and skin, less aches & pains, emo­tio­nal hap­pi­ness, bet­ter lipid pro­fi­les like cho­les­te­rol, stron­ger bones…and on and on.  But even with all that bene­fit, and even though it does improve your meta­bo­lism, desic­ca­ted thy­roid is not meant to be a weight loss pill.

2) Armour et. al. can only do its holi­day job if you have strong adre­nals or ade­quate cor­ti­sol treat­ment. Because cor­ti­sol is nee­ded for thy­roid hor­mo­nes to move from your blood to your cells, you can only bene­fit opti­mally from desic­ca­ted thy­roid during the holi­days if you are lucky enough to have strong adre­nals, or if you are giving your­self back the cor­ti­sol you need based on sta­ble temps, blood pres­sure, and remo­val of most low cor­ti­sol symp­toms.  So don’t for­get that cor­ti­sol right now, and defi­ni­tely con­si­der adding a stress dose of cor­ti­sol if things get rough with the in-laws. (See Chap­ter 6 in the STTM book for even more details about sta­ble temps, blood pres­sure, and stress dosing)

3) Don’t drink that Armour down with Egg Nog! Cal­cium is a known bin­der of thy­roid hor­mo­nes in your sto­mach, kee­ping you from bene­fi­ting from some of those health-giving thy­roid hor­mo­nes.  So if you swa­llow your desic­ca­ted thy­roid, get the water.  Or even bet­ter, do it sublin­gually.

4) Don’t expect Armour to keep you from loo­king like Santa Claus: you still gotta exer­cise & watch what you eat! It’s true: the opti­mal use of desic­ca­ted thy­roid does raise your meta­bo­lism and eats those extra calo­ries up like Pac­Man.  But if you’re like me, you can still have a ten­dency to put on those love handle but­ter pounds if you eat your fill of holi­day foods.  ho ho ho. To cur­tail the gain, add exer­cise to your holi­day regime, or inc­rease what you already do. I try to aero­bi­cally walk a LOT during the holi­days. And when I’ve eaten a Christ­mas stoc­king full of goo­dies, my next meal will be nothing but high pro­tein, like  tur­key, chee­ses and nuts. Or, you can also balance your intake by choo­sing one meal a day to be low gly­ce­mic to somewhat balance out the high gly­ce­mics you know you are going to eat later. For exam­ple, I make my break­fasts only eggs and nitrate-free bacon, or plain yogurt with berries, nuts, and Stevia.

5) Buil­ding a holi­day snow­man outside?  Con­si­der an extra 1/4 grain of Armour. It’s a fact that pro­lon­ged expo­sure to cold inc­rea­ses your demand for energy, which in turn can inc­rease your demand for more thy­roid hor­mo­nes. As a result, many patients find that adding an extra 1/4 grain of desic­ca­ted thy­roid to one’s daily amount helps meet the demands of Frosty the Snow­man or that holi­day sprin­kling of lights all over your house in the cold air.  Talk to your doctor.

6) Give a gift of the STTM book to a loved one. There are other good thy­roid books on the mar­ket, but unlike all of them, this is the bible of patient expe­rience on suc­cess­ful thy­roid treat­ment. You’ll find volu­mes of infor­ma­tion that patients all around the world have lear­ned. A true patient-to-patient guide to fee­ling won­der­ful again.  Go here to order.  And the publishing com­pany is exten­ding the time you can order a book to be sent DIRECTLY to your loved one.