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As a hypothyroid patient, you might want to think twice about drinking water out of plastic bottles

As a hypothy­roid patient, think you are fine drin­king that purely fine mine­ral water from a plas­tic bottle? Think that fluo­ride and chlo­rine are the only subs­tan­ces we need to worry about when it comes to our thy­roid health?? Think again.

Thy­roid patient Amy McMu­llen, who has con­tri­bu­ted before on STTM’s blog as a GUEST POSTER (Con­fes­sions of a Under­co­ver Thy­roid Advo­cate) and has a pas­sion about human rights, has writ­ten another impor­tant article below which should be of keen inte­rest to all of you.

BPA — A POWERFUL ENDOCRINE DISRUPTER THAT AFFECTS YOUR THYROID

Perhaps you have read recently about how the che­mi­cal Bisphe­nol A (BPA) is found to be pre­va­lent in our food and water. As a hypothy­roid patient, I was sur­pri­sed to see that not all artic­les about this harm­ful subs­tance ade­qua­tely desc­ribe the con­nec­tion bet­ween thy­roid func­tion and BPA. This is an over­sight that should be addres­sed since hypothy­roi­dism is esti­ma­ted to affect over ten million peo­ple in the US and this num­ber is gro­wing. It makes per­fect sense to look to envi­ron­men­tal toxins as a likely cul­prit in this serious health epidemic.

BPA is a synthe­tic estro­gen and an endoc­rine dis­rup­ter that cau­ses mul­ti­ple health pro­blems. There are over 200 stu­dies lin­king it to breast can­cer, obe­sity, atten­tion defi­cit disor­der, early puberty in girls, geni­tal abnor­ma­li­ties in boys and girls alike, polycys­tic ovary disease and infer­ti­lity in women and pros­tate can­cer in men. Stu­dies indi­cate that up to 92% of Ame­ri­cans have BPA in their urine. Also BPA doesn’t leave the body quickly; fas­ting adults still had BPA levels in their bodies after 24 hours.

BPA comes from many plas­tic sour­ces. It’s used as a har­de­ner in plas­tic manu­fac­tu­ring. Many tin cans have plas­tic linings that con­tain BPA inc­lu­ding soup and toma­toes, and it’s also in plas­tic water bott­les, some infant for­mu­las and can­ned jui­ces. BPA is also found in PVC water supply piping.

How does BPA relate to thy­roid disease? Accor­ding to a seve­ral good stu­dies, BPA is a thy­roid recep­tor anta­go­nist. This means that BPA will inter­fere with the bin­ding of the thy­roid hor­mone T3 with cell recep­tor sites. This will cause hypothy­roi­dism, not only with peo­ple with under-functioning thy­roids but also for those who are currently taking medi­ca­tions for hypothy­roi­dism or even those who have nor­mally func­tio­ning thy­roids. BPA was found to accu­mu­late in many organs when injec­ted into rats inc­lu­ding the lung, kid­neys, thy­roid, sto­mach, heart, spleen, tes­tes, liver, and brain. In this way, BPA has the poten­tial to inter­fere with thy­roid hor­mo­nes in each organ that has accu­mu­la­ted the subs­tance. A study also indi­ca­tes that the levels of BPA that are con­si­de­red safe (upper limit of emis­sion is set to 2.5 ppm [µg/liter], which is more than 90 µM) are high enough to inhi­bit thy­roid hor­mone recep­tors. Yet another study shows that BPA appears to accu­mu­late in rat fetu­ses in sig­ni­fi­cantly high levels and dis­rupts thy­roid func­tion in baby rats.

There’s also evi­dence that BPA may influence the meta­bo­lism of endo­ge­nous ste­roids, which may be a fac­tor in adre­nal fati­gue and its treat­ment, as well as and its treat­ment, as well as dysau­to­no­mia stem­ming from adre­nal pro­blems. Many with hypothy­roi­dism also suf­fer from co-morbid adre­nal fati­gue and BPA may be a con­tri­bu­ting fac­tor in this.

What this means for ever­yone, but espe­cially for thy­roid patients, is every effort should be made to remove BPA from food and water sup­plies. For those who are not able to get pro­perly opti­mi­zed on their thy­roid meds or who are fin­ding they are suf­fe­ring from hypothy­roid symp­toms des­pite nor­mal levels of TSH, free T3 and free T4, con­si­der BPA as a pos­si­ble source of the problem.

Steps you can take to mini­mize you expo­sure include:

  • Avoid all can­ned foods with plas­tic liners and avoid bott­led water. Buy your can­ned toma­toes in glass jars, not metal cans or stick to using fresh ingre­dients. Most other can­ned foods use BPA as well, espe­cially green beans (Here is a list of BPA-free can­ned foods).
  • Drink water out of glass or stain­less steel con­tai­ners (and make sure there’s no plas­tic liner or lids that have BPA) or BPA-free plas­tic. Low den­sity pol­yethy­lene bike bott­les con­tain BPA.
  • Do not mic­ro­wave foods in plas­tics or use plas­tic wraps when mic­ro­wa­ving. Avoid poly­car­bo­nate (“PC” or #7 and #3) plas­tic food con­tai­ners altogether.
  • Since most muni­ci­pal water piping is PVC and some hou­ses have it as water supply lines, con­si­der ins­ta­lling a reverse osmo­sis sys­tem for your drin­king water. This will also remove fluo­ride and chlo­rine (other thy­roid dis­rup­ters) and many other harm­ful subs­tan­ces from drin­king water.

Most impor­tantly we need to make our voi­ces heard that BPA is not an accep­ta­ble subs­tance and that its use in our food and water supply must cease. Recently Sena­tor Feins­tein intro­du­ced a ban on BPA to the Food Safety Moder­ni­za­tion Act but this was modi­fied to remove the ban due to pres­sure by industry groups. Sena­tor Feins­tein still has an effort under­way to ban BPA from child drink bott­les and toys and seve­ral sta­tes have enac­ted such bans but this does not go far enough.

Con­tact your repre­sen­ta­ti­ves today and let them know that a natio­nal ban on BPA must be enac­ted. If they don’t lis­ten then I sug­gest you make your­self heard at the ballot box this November.

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  • Have you cut down on your expo­sure to Fluo­ride? Buy non-fluoridated tooth­paste as a first step.
  • Cut down on more che­mi­cals by using baking soda under your arms rather than commercially-made unde­rarm deo­do­rants. Note that the baking soda may at first cause red­ness, but it will go away within days and is a great way to kill odors.
  • Have a poun­ding hear­trate that you can’t explain? You may be making too much RT3.
  • Check out typi­cal Ques­tions and Ans­wers about thy­roid treat­ment and rela­ted issues.
  • Want to write a GUEST BLOG POST on STTM? Go here.

  • Want to keep track of these “fringe web­site” blog posts? ;-) Curious what’s on Janie’s mind? Use the noti­fi­ca­tion on the lower left of the links, called a News­let­ter, or an RSS Feed.
  • The extre­mely hip and sophis­ti­ca­ted STTM t-shirts are half price! Great BUMPER STICKERS, too. Spread the word – YOU may make a dif­fe­rence in someone’s life.
  • Check out the patient-to-patient book with even more detail (and which doc­tors seem to res­pect more than websites).
  • Need to unders­tand all your best options for thy­roid treat­ment? Go here.
  • Keep infor­med of each live Thy­roid Patient Com­mu­nity Call on Talkshoe by sig­ning up as a follo­wer.

God bless an electrical engineer: why the TSH lab test needs to be suppressed!

I always know that when I get an email from Dr. John C. Lowe, it’s going to con­tain exce­llent infor­ma­tion. And he didn’t let me down.

Dr. Lowe is Editor-in-Chief of Thy­roid Science, an “open-access jour­nal for truth in thy­roid science and and thy­roid cli­ni­cal prac­tice”.  And in the recent issue, there is a remar­ka­ble and pre­cise TSH (Thy­roid Sti­mu­la­ting Hor­mone) hypothe­sis by none other than a bri­lliant UK  elec­tri­cal and elec­tro­nics engi­neer, Mr. Peter War­mingham.  In fact, his hypothe­sis about the TSH lab result when trea­ting one’s hypothy­roi­dism exactly corres­ponds to the suc­cess­ful expe­rience of thy­roid patients all over the world.

To quote Dr. Lowe in his intro­duc­tion about Warmingham’s paper (FYI: “exo­ge­nous” refers to the thy­roid hor­mone you give your­self;  “endo­ge­nous” refers to what hap­pens natu­rally in your body):

Mr. Warmingham’s hypothe­sis is straight­for­ward: When a hypothy­roid patient (whose cir­cu­la­ting pool of thy­roid hor­mone is too low) begins taking exo­ge­nous thy­roid hor­mone, a nega­tive feed­back sys­tem redu­ces the pitui­tary gland’s out­put of TSH. This dec­rea­ses the thy­roid gland’s out­put of endo­ge­nous thy­roid hor­mone, and des­pite the patient’s exo­ge­nous thy­roid hormone’s con­tri­bu­tion to his or her total cir­cu­la­ting thy­roid pool, that pool does not inc­rease — not until the TSH is sup­pres­sed and the thy­roid gland is con­tri­bu­ting no more thy­roid hor­mone to the total cir­cu­la­ting pool. At that point, adding more exo­ge­nous thy­roid hor­mone will finally inc­rease the cir­cu­la­ting pool of thy­roid hor­mone. The inc­rease must occur for thy­roid hor­mone the­rapy to be effec­tive. The patient’s sup­pres­sed TSH, then, does not indi­cate that the patient is over-treated with thy­roid hor­mone; ins­tead, it indi­ca­tes that the patient’s low total thy­roid hor­mone pool will finally rise to poten­tially ade­quate levels.

In other words, when your doc­tor says no to an inc­rease in your desic­ca­ted thy­roid simply because your TSH lab result is, or would become, below the so-called nor­mal range (and in the pre­sence of con­ti­nuing symp­toms or a low tem­pe­ra­ture), he will usually end up kee­ping you hypothy­roid! i.e. making an ink spot on a piece of paper more impor­tant than cli­ni­cal pre­sen­ta­tion is just one rea­son why the current thy­roid patient revo­lu­tion repre­sen­ted by Stop the Thy­roid Mad­ness exists!

You can read Warmington’s entire paper here on Dr. Lowe’s site. For further infor­ma­tion on the fallacy of the TSH lab test, go here or read Chap­ter 4, aka Thy­roid Sti­mu­la­ting Hooey, in your copy of the STTM book for more detail.

P.S. Dr. Lowe is pro­bably right on when he says he expects cri­ti­cism to flow for the fact that War­ming­ton is not an Endoc­ri­no­lo­gist and “how in the world can any­body but an Endo make a logi­cal hypothe­sis about the TSH lab test”. Read more on Lowe’s thoughts about this here.   But enligh­te­ned thy­roid patients around the world are collec­ti­vely shou­ting “GOD BLESS AN ELECTRICAL ENGINEER!”


  • Want to keep track of these “fringe web­site” blog posts? ;-) Curious what’s on Janie’s mind? Use the noti­fi­ca­tion on the lower left of the links, called a News­let­ter, or an RSS Feed.
  • The extre­mely hip and sophis­ti­ca­ted STTM t-shirts are half price! Great BUMPER STICKERS, too. Spread the word – YOU may make a dif­fe­rence in someone’s life.
  • Check out the patient-to-patient book with even more detail (and which doc­tors seem to res­pect more than websites).
  • Need to unders­tand all your best options for thy­roid treat­ment? Go here.
  • Keep infor­med of each live Thy­roid Patient Com­mu­nity Call on Talkshoe by sig­ning up as a follo­wer.

The shackling and gagging of Dr. Sarah Myhill of the UK

(4 – 30: Paula has infor­med me that you can down­load Dr. Myhill’s com­plete web­site to your com­pu­ter via this zip file: www.drmyhill.co.uk.zip — Win­dows Live )

Today, it has been announ­ced by the GMC (Gene­ral Medi­cal Coun­cil) of the UK that Dr. Sarah Myhill is now strait­jac­ke­ted. She is for­bid­den to presc­ribe medi­ca­tions, is bound by other medi­cal prac­tice res­tric­tions (see the details on the Sup­port Dr. Myhill Face­book page), and most egre­giously, has been orde­red to remove parts of her web­site (thanks to Lethal Lee for poin­ting this out), some of which you will not see two weeks after I have pos­ted this.

Why remove parts of her web­site? Because by daring to edu­cate the public, espe­cially if that edu­ca­tion goes against “stan­dard medi­cal prac­tice”, it seems to be dee­med “harm­ful”. In other words, you as a patient are not allo­wed to dis­co­ver, or are too “vul­ne­ra­ble to get it,  that there just might be a TOTALLY dif­fe­rent story to the medi­cal prac­tice you are sub­jec­ted to.

For exam­ple, here is part of a page on Dr. Myhill’s web­site which is com­ple­tely correct, infor­ma­tive, and wise, and I want to see her words stay sharp and vie­wa­ble, espe­cially for thy­roid patients. It fits our expe­rience. The page is tit­led “Test results and what they mean”. If you want to be infor­med, read all the below.

http://www.drmyhill.co.uk/wiki/Category:Test_results_and_what_they_mean

Only too often peo­ple come to me with tests results which have not been pro­perly inter­pre­ted. The rea­sons why this hap­pens are as follows:

  • Test results are flag­ged up and con­si­de­red to be abnor­mal if they are outside the refe­rence range, but one’s indi­vi­dual nor­mal range is not the same as the popu­la­tion refe­rence range. This is a par­ti­cu­lar pro­blem in the inter­pre­ta­tion of thy­roid tests.
  • Refe­rence ran­ges for tests change. Refe­rence ran­ges are based on ran­dom bloods from the popu­la­tion. The trou­ble is anyone follo­wing a Wes­tern lifestyle is not evo­lu­tio­na­rily correct and many not nor­mal! So labs change their refe­rence ran­ges to adjust for this. So, for exam­ple, the nor­mal range of a gamma GT used to be up to 36, it is now up to 70. This enzyme is indu­ced by alcohol and presc­rip­tion drugs and because so many peo­ple drink alcohol it is con­si­de­red nor­mal to run a high gamma GT! The lab I use has a nor­mal refe­rence range for thy­roid hor­mone T4 of 12-22pmol/l but some labs give ran­ges of 5.6-17pmol/l!
  • Tests are often incom­plete. So someone with a thy­roid sti­mu­la­ting hor­mone (TSH) within refe­rence range will be told they have no thy­roid pro­blem, when in fact one also needs a free T4 and a free T3 together with a cli­ni­cal his­tory to assess if there is a thy­roid problem.
  • Drug com­pa­nies influence nor­mal ran­ges. The nor­mal range for cho­les­te­rol has come down stea­dily since sta­tins have been such big money ear­ners for Big Pharma.
  • Inco­rrect break­down of test results. Many peo­ple are presc­ri­bed sta­tins on the basis of a sin­gle cho­les­te­rol level. This is faulty for many reas ons — firstly one needs a break­down of good (HDL) and bad (LDL) cho­les­te­rol to get the ratio. If the ratio is not favou­ra­ble then this is likely to be a symp­tom of arte­rial disease. Cho­les­te­rol lowe­ring drugs are often irre­le­vant. See Cho­les­te­rol —  the com­mon cau­ses of rai­sed levels
  • Results close to the limits of nor­mal may be abnor­mal for that per­son. For exam­ple, a high nor­mal bili­ru­bin may mean Gilbert’s syn­drome — this means someone is a poor deto­xi­fier. A high mean cor­pus­cu­lar volume (MCV) could point to hypothy­roi­dism, B12 or folic acid deficiency.
  • Nor­mal tests do not mean no patho­logy. A nor­mal ECG at rest does not mean there is no heart disease, yet many peo­ple are told this is the case.
  • Tests may ask the wrong ques­tion. So many peo­ple come to me with severe fati­gue syn­dro­mes having been told nothing is wrong because all the tests are nor­mal! But ask the right ques­tion and do Mitochon­drial Func­tion Pro­file and you find gross abnor­ma­li­ties with res­pect to energy supply at the cellu­lar level.
  • Tests for poi­so­nings are par­ti­cu­larly mis­lea­ding. For years doc­tors have pro­mo­ted levels of cho­li­nes­te­rase as a good test for orga­nophosphate poi­so­ning. It is a rot­ten test and mis­ses the majo­rity of cases! Much bet­ter would be Fat biopsy for pes­ti­ci­des or Vola­tile Orga­nic Compounds

GOOD FOR YOU, Dr. Sarah Myhill!

I and many other thy­roid patients, strug­gling to fight the inane thy­roid treat­ment pro­to­cols, have a strong fee­ling that though this pro­gres­sive doc­tor may be res­tric­ted as a phy­si­cian, we’re going to hear a lot more good infor­ma­tion from the cou­ra­geous and wise Sarah Myhill.


  • Want to keep track of these “fringe web­site” blog posts? ;-) Curious what’s on Janie’s mind? Use the noti­fi­ca­tion on the lower left of the links, called a News­let­ter, or an RSS Feed.
  • The extre­mely hip and sophis­ti­ca­ted STTM t-shirts are half price! Great BUMPER STICKERS, too. Spread the word – YOU may make a dif­fe­rence in someone’s life.
  • Check out the patient-to-patient book with even more detail (and which doc­tors seem to res­pect more than websites).
  • Need to unders­tand all your best options for thy­roid treat­ment? Go here.
  • Keep infor­med of each live Thy­roid Patient Com­mu­nity Call on Talkshoe by sig­ning up as a follo­wer.

An editorial response from Thyroid Patient Activist Janie Bowthorpe

I am plea­sed to note that Mary Sho­mon of about.com,  who in her blog post on Thurs­day, April 22, 2010, has not only sof­te­ned her wor­ding about self-treatment by hypothy­roid patients, but has also writ­ten expres­si­vely con­cer­ning surroun­ding issues. These are also issues which I pre­sen­ted in two blog posts ear­lier this week con­cer­ning the immense pro­blem with doc­tors as expres­sed by patients, and self-treatment.

Good for Mary!

As wit­nes­sed by Sheila Turner’s exce­llent edi­to­rial towards those who cri­ti­cize self-treatment, as well as angst expres­sed by many patients toward those who cri­ti­cize,  self-treatment is an impor­tant issue and can’t be dilu­ted down as simply “self-destructive” in our current medi­cal climate.

The follo­wing are dif­fe­ren­ces in how this is vie­wed, though, with one com­mon thought:

  • Is self-treatment one  of the “most con­tro­ver­sial” issues with thy­roid patients? The ans­wer is “only to those who make it so”. Far more trou­bling to thy­roid patients is a medi­cal esta­blish­ment which worships a medi­ca­tion which has left millions under­trea­ted, and which makes a pitui­tary hor­mone lab called the TSH as if it’s from God Almighty. Equally as trou­bling to patients are doc­tors whom they report as con­des­cen­ding, close-minded, robo­tic, and/or igno­rant about issues that keep thy­roid patients sick – low ferri­tin, adre­nal fati­gue, and more. Self-treatment is only the symp­tom of a much lar­ger, more con­tro­ver­sial problem.
  • Does self-treatment have “obvious draw­backs” for thy­roid patients who feel for­ced to do it? The ans­wer is “yes”, but no dif­fe­rent and pro­bably far less than the “obvious draw­backs” patients face with clue­less doc­tors.  The com­ments on my blog posts are bloa­ted with patients who have been left sick, or made sic­ker, by one doc­tor, after another doc­tor, after one more.  It’s not a pretty picture.
  • Is there a “risk of under­treat­ment” for thy­roid patients who self-treat? Yes, but pro­bably far less  than the huge num­ber of patients who report being left “under­trea­ted” by doc­tors who are blind to the pro­blems of T4, or doc­tors who remain clue­less about the ina­de­quacy of trea­ting by the TSH.
  • Is the “grea­test con­cern” about self-treatment the pro­blem of being “over-medicated”? You betcha. But in the vast majo­rity of these unfor­tu­nate cases with patients who choose to self-treat, the pro­blem is undiag­no­sed or under­trea­ted low cor­ti­sol and/or low ferri­tin, which results in thy­roid hor­mo­nes poo­ling in the blood and crea­ting hyper-like symp­toms.  This is a risk for self-treatment.
  • Have “dozens of thy­roid patients” ended up in emer­gency rooms due to over-medication? “Dozens” is spe­cu­la­tion.  It may be more rea­lis­tic to state that “some”, yes, have sta­ted this unfor­tu­nate out­come when they made the choice.  But research and com­ment all over the inter­net shows anyone that hun­dreds of thou­sands of all patients can end up in the emer­gency room due to poor doc­to­ral deci­sions, or bad reac­tions to phar­ma­ceu­ti­cal medi­ca­tions which doc­tors love to presc­ribe. Ending up in an emer­gency room is not solely con­nec­ted to self-treatment.
  • Do “patients face many major obs­tac­les that pre­vent them from get­ting accu­rate and effec­tive thy­roid diag­no­sis and treat­ment?” Yes! That is where Mary is in agree­ment with me with her six exce­llent  points, inc­lu­ding the tra­gic situa­tion in the UK. And here are 10 rea­sons patients are frus­tra­ted, angry and sick.
  • Has one nega­tive jour­nal article about someone who self-treated “resul­ted in desic­ca­ted thy­roid  get­ting grea­ter scru­tiny by the FDA?” The ans­wer can easily be:  no worse than the body of patients who were made fear­ful that the FDA was ban­ning desic­ca­ted thy­roid, and who follo­wed a strong cam­paign to con­tact the FDA about desic­ca­ted thy­roid. I was also per­so­nally told by two phar­ma­ceu­ti­cal repre­sen­ta­ti­ves that this action to con­tact the FDA made the pharms very uncom­for­ta­ble and put too much atten­tion on desic­ca­ted thy­roid. Time will tell, but it’s not help­ful to blame anything.
  • Does “acti­vely pro­mo­ting self-medication” with natu­ral desic­ca­ted thy­roid “work against thy­roid patient inte­rests”. The ans­wer to this loa­ded ques­tion resi­des in who you ask. Whether “acti­vely pro­mo­ted” or simply “read about”, there seems to be a body of patients who report that fin­ding out about desic­ca­ted thy­roid, and fee­ling for­ced to self-treat because of not fin­ding any doc­tor to help them, was one of the best deci­sions they ever made.

And to the last com­ment above, and since there have been “impli­ca­tions”, I want to unders­core (and ad nau­seum) that the patient-to-patient Stop the Thy­roid Mad­ness was not crea­ted as a self-treatment site, nor does it “acti­vely pro­mote” it.  STTM is a site with a goal to edu­cate patients who can, in turn, take that infor­ma­tion into their doc­tors offi­ces and push for change. And it’s been wor­king, one doc­tor at a time, as wit­nes­sed by patients who report those doc­tors on patient groups, and by emails I get from some of those doctors.

But it’s also clear that those who self-medicate may be using STTM, as well as many other web­si­tes and books out there by doc­tors, advo­ca­tes and non-professionals alike, to help them. So at least there is edu­ca­tion out there to help those who choose this, even if none was crea­ted for that purpose.

Sum­mary

There are impor­tant dif­fe­ren­ces in opi­nion, and much more to the story as I out­li­ned above.

But the bot­tom line is this: for up to 60 years, hun­dreds of millions of thy­roid patients around the world have been sub­jec­ted to

  1. a medi­ca­tion called thy­ro­xine which has left a heap of lin­ge­ring hypothy­roid symp­toms,
  2. a new debi­li­ta­ting con­di­tion like adre­nal fati­gue,
  3. a lab test (TSH) which has dela­yed diag­no­sis for years or kept patients under­trea­ted, and
  4. too many doc­tors who aren’t up to speed about most any of this, and have left patients frus­tra­ted, angry and still sick.

And all the above is a far worse sce­na­rio which only pushes some patients to self-treat as a side-effect. But if  you aren’t totally wiped out finan­cially and emo­tio­nally in trying to find an infor­med doc, two sug­ges­tions: http://www.stopthethyroidmadness.com/how-to-find-a-good-doc as well as pos­ting your city/state in the sub­ject line of patient groups here: http://www.stopthethyroidmadness.com/talk-to-others

P.S. Please note that you will never see this blog, or this web­site, kno­wingly allow non-professional,  nega­tive, nasty, false, abu­sive and/or pro­found slan­der about a collea­gue, as has been done elsewhere. :(



  • Want to keep track of these “fringe web­site” blog posts? ;-) Curious what’s on Janie’s mind? Use the noti­fi­ca­tion on the lower left of the links, called a News­let­ter, or an RSS Feed.
  • The extre­mely hip and sophis­ti­ca­ted STTM t-shirts are half price! Great BUMPER STICKERS, too. Spread the word – YOU may make a dif­fe­rence in someone’s life.
  • Check out the patient-to-patient book with even more detail (and which doc­tors seem to res­pect more than websites).
  • Need to unders­tand all your best options for thy­roid treat­ment? Go here.
  • Keep infor­med of each live Thy­roid Patient Com­mu­nity Call on Talkshoe by sig­ning up as a follo­wer.

Survey on patient experience on the NEW Armour – not a pretty picture

It’s been about a year since Armour desic­ca­ted thy­roid, a very popu­lar presc­rip­tion natu­ral thy­roid pro­duct on the mar­ket for deca­des, was refor­mu­la­ted. Forest Labs sta­ted there were two chan­ges: the rai­sing of cellu­lose, and the lowe­ring of sucrose.

Why did they do this? It could be strongly rela­ted to the fact that in late 2007 through 2008, patients who used the 3 grain tablets repor­ted they were sud­denly and enti­rely inef­fec­tive. So, many of us sur­mise that Forest was attemp­ting to “improve” (cough) their product.

Says one of those patients:  I had switched to the 3 grain tablet months before to save money and I used my pill cut­ter to cut it in half.  Then around Novem­ber, my work pants were get­ting tight and I would come home tired, achy and weak. It didn’t take me long to figure out that Armour in the 3 grain was now like a sugar pill!

In the mean­time, Forest brought out the newly for­mu­la­ted Armour, & patients who finished their old batch star­ted the new batch. And since then, it appears a large body of patients have run as fast as they could to Natu­reth­roid, or com­poun­ded, or T4/T3 or Erfa. The rea­son: a return of for­mer hypo symp­toms on the “new” Armour.

I have com­ple­ted an infor­mal sur­vey with 24 indi­vi­duals res­pon­ding, and asked the follo­wing ques­tions. After each ques­tion, I give a sum­mary of the answers.

  1. How long of doing well occu­rred on the newly refor­mu­la­ted Armour before you star­ted to notice that you weren’t doing well?
  2. Most ans­wers are in the area of 2 – 3 months, with three saying a month, one 4 months, and three sta­ting a few weeks. And com­pa­ring this to com­ments we’ve been seeing for the past year on patient groups, it’s com­mon to feel good at first, but to crash within that 2 – 3 months.

  3. What clued you in that you weren’t doing well on the new Armour?
  4. The ans­wers are all over the map: fati­gue and exhaus­tion, hair loss, brain fog, weight gain, slee­ping pro­blems, cons­ti­pa­tion, achi­ness, depres­sion, hor­mo­nal pro­blems, moo­di­ness, dry skin/elbows/thumbs and crac­king skin, fla­king fin­ger­nails, heart irre­gu­la­rity, for­get­ful­ness. Five report skin brea­kouts simi­lar to poi­son ivy.  Fati­gue and hair loss were the most com­mon answers.

  5. Did you try rai­sing it? What were the results?
  6. The majo­rity tried rai­sing it, and results were: no results; barely made any dif­fe­rence: more energy but skin was a mess. The majo­rity said nothing hap­pe­ned. Two dou­bled it with no sig­ni­fi­cant results.  Two deve­lo­ped fast heart rate with no impro­ve­ments elsewhere. One had to lower it because of a very low TSH. One sta­ted she rai­sed it to get her labs back up to where they were before…with little impro­ve­ments.  And one said it made her too hot to con­ti­nue rai­sing it.

  7. Did you try adding T3 to it? What were the results?
  8. All said no. One said she tes­ted here RT3 ratio and it was 11, which is bad.  One sta­ted she asked her doc­tor for T3; he said no. I’d sure like to find someone who did add T3 who could tell us the results.

  9. Did you do anything else to try and make the refor­mu­la­ted Armour work, and did it help?
  10. All repor­ted nothing hel­ped enough.  Many sta­ted their doc­tors tes­ted for other pro­blems, ran­ging from heavy metals, low iodine, B12 – the lat­ter hel­ped one gal’s tin­gling. One sta­ted her doc put her on Apro­to­col for the diges­tive tract which hel­ped the cons­ti­pa­tion but nothing else chan­ged. One added com­poun­ded desic­ca­ted thy­roid to her Armour — it didn’t help. One gal tried Thyro-care, which hel­ped. But she and two others report get­ting a poison-ivy like skin rash on the new Armour.

Currently, we see newly diag­no­sed patients put on the new Armour, and vete­rans can’t help but won­der what will hap­pen to them.

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On my April 17th blog post, read 10 rea­sons thy­roid patients are still frus­tra­ted, angry and sick. That is follo­wed by the April 19th blog post Should thy­roid patients avoid self-treatment at all costs, with an inte­res­ting and strong Guest Post by Sheila Tur­ner of TPA-UK and a good follo­wup to the for­mer 10 rea­sons post.

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