Patients tags

Armour desiccated thyroid by Forest Pharmaceuticals used to be easy to do sublingually, even if the official line was they didn’t make it that way.

And patients liked that sublingual ability with Armour.  It allowed them to work around the problem of swallowing desiccated thyroid several hours from having swallowed iron, estrogen or calcium–all which can bind some of the thyroid hormones in your stomach.

It also helped those with digestive issues, gluten intolerance or Celiac (a common problem for some hypothyroid patients) by bypassing the stomach.

But with the newly formulated Armour in 2009, it became difficult. The pill is harder with less dextrose and more cellulose.  It now fell into the ranks of all other desiccated thyroid pills, including Naturethroid and other good brands, as a more dense tablet.

But no matter what brand you use (especially the growing group of patients who are having their doctors switch them to Naturethroid), below are tips from patients on how to continue doing your desiccated thyroid sublingually. Let your doc know, too.

1) Try adding a touch of the contents of a Pixie Stix under your tongue. It’s flavored sugar in a straw, and the sugar seems to help the tablet dissolve sublingually through tissues under the tongue.

2) If you are using sublingual B12 lonzenges to treat low B12, try adding it under the tongue with your desiccated thyroid. The action of the sublingual lozenge seems to move over to the thyroid tablet.

3) Swish warm water in your mouth before you place the tablet under your tongue.

4) Crunch up the desiccated thyroid tablet before any of the above and before placing it all under your tongue.

Also note that you can swallow your desiccated thyroid. You’ll just have to make sure you don’t also have a stomach full of iron rich foods or calcium, or estrogen. Generally, it’s best to take your tablet 4 hours from any of the former. P.S. See comments below on the newly formulated Armour, and farther down, a post on Naturethroid.

*Have more sublingual ideas or experiences? Share it in the Comments section.

*Want to be informed of my blog posts? Curious what’s on my mind? Just use the Notifications to the bottom left of the links.

I’ve been sitting back silently, reading all the backlash that started with Newsweek’s Best Life or Risky Advice May 30th article, a critical analysis of Oprah’s multiple program topics of Wish Away Cancer! Get A Lunchtime Face-Lift! Eradicate Autism! Turn Back The Clock! Thin Your Thighs! Cure Menopause! Harness Positive Energy! Erase Wrinkles! Banish Obesity! Live Your Best Life Ever!

And granted, some of the criticism seems justified.

Even thyroid patients winced and squirmed when Oprah stated that a month long Hawaiian vacation and eating fresh foods with soy milk were a great way to treat her thyroid condition.  Uh huh.   Patients equally gagged at her support of Dr. Christiane Northrup who made the the nutty insensitive comment that our thyroid problems were due to an “energy blockage in the throat region, the result of a lifetime of ’swallowing’ words one is aching to say.”

But the ensuing array of blog posts and articles following in the footsteps of the Newsweek criticism of Oprah has presented quite an irony for thyroid patients whose lives have been changed thanks to natural desiccated thyroid. Adjectives and/or descriptions of Oprah in these blogs and articles have included:

* dangerous

* peddling alternative treatments that are ineffective

* failing to present scientific evidence

* failing to listen to bona fide, medical school trained,  medical professionals

* being too gullible about the so-called wisdom and knowledge of certain patients (ala Suzanne Somers)

* failing to give more attention to science-based, status quo, mainstream medicine

Any of the above sound familiar? Yup, it sure does.

How many times have thyroid patients been told that desiccated thyroid like Armour or Naturethroid was dangerous, or raising it by symptoms rather than the TSH was dangerous. Or it’s dangerous to use because you’ll get heart problems and osteroporosis. Yet thyroid patients on desiccated thyroid have their lives CHANGED, with stronger hearts and increased bone density.

How many patients have had their doctors tell them that desiccated was ineffective as an alternative out-dated product, yet these same patients started to LIVE again with relief from old symptoms from this ineffective “alternative” medication that grandma once used.

How many articles by medical professionals are there who claim that there’s no scientific evidence to prove that desiccated thyroid is effective, in spite of CLEAR observation and reports of a huge and growing body of thyroid patients and certain doctors around the world about relief from depression, lowered cholesterol, better blood pressure, weight maintenance, hair regrowth, better stamina, less sickness and a myriad of other improvements!

How many bona fide, medical school trained,  medical professionals told us ad nauseum that our symptoms were not thyroid related (when they were), that we are “normal” because the TSH lab test says so (when we were far from it), that desiccated thyroid is outdated, unreliable, ineffective, and a ten ton load of other ridiculous comments from bona fide, medical school trained,  medical professionals.

How many doctors have told patients that they should NOT listen to other patients on the internet or Stop the Thyroid Madness because patients can’t possibly have any wisdom or know what they are talking about. Yet, lo and behold, it’s been patients and what they have learned who have started a wide-reaching revolution for better thyroid treatment that works, and a growing body of doctors are listening!

And how many times has science-based, status quo, mainstream medicine completely ruined the lives of thyroid patients because many doctors are too lazy to dare question or think outside the pharmaceutical, medical school box.

Yup, Oprah has made some blunders, gaffes and misjudgments as outlined in the Newsweek article.  She has gushed too quickly when Northrup opens her mouth or Oz walks in with his surgical garb.  But isn’t it a bit ironic that some of the criticism by others towards Oprah are the same blunders, gaffes and misjudgments which most any thyroid patient has heard about their use of desiccated thyroid, and which has all been COMPLETELY wrong.

Bottom line, for every mistake and misjudgment Oprah has made–and CLEARLY she has done so in her understanding of thyroid treatment—she just might be opening the doors to medical truth, somewhere, somehow, between it all.

Janie

Funny how things work.

I had been wondering what the heck was going on with thyroid patients in the UK after the Royal College of Physicians (RCP) came out with their dim-witted, cuckoo’s- nest February 6th guideline stating that 1) thyroxine was the only medication needed for hypothyroidism, 2) “natural” medications were dangerous and 3) the only labs needed are the TSH and T4.

Equally a part of this B-grade horror movie is the three-stooges stand taken by the British Thyroid Association (BTA).

And UK-TPA thyroid patient advocate Sheila Turner began to go through her own hell when her Armour was taken away, which you can read about in the February 20th blog post here.

And suddenly, I get an email from Sheila, informing me that the RCP is as stupid as they were three months ago.

Sheila states: This is absolutely unbelievable that out of the hundreds of references we sent to the Royal College of Physicians to show their guideline to be flawed, they have taken no account of one single one of them. They are publishing their previous guidance without one since change. The world has gone mad.

Dear Sheila,

Further to my email of 6 April, the comments and materials received by the College have been reviewed. This position statement or guidance (not a guideline) was produced on behalf of the Royal College of Physicians, in particular its Patient and Carer Network and the Joint Specialty Committee for Endocrinology and Diabetes; the Association for Clinical Biochemistry; the Society for Endocrinology; the British Thyroid Association; the British Thyroid Foundation Patient Support Group and the British Society of Paediatric Endocrinology and Diabetes and is endorsed by The Royal College of General Practitioners.

The President has asked me to let you know that this review has not resulted in any changes to that statement.  It should be noted that it is about the treatment of primary hypothyroidism and does not preclude other treatments for exceptional cases by specialist endocrinologists who can make clear to patients any associated risks.

References supporting the statement are listed below.

Yours sincerely,

Catharine Perry
Administrator

•   Diagnosis and treatment of primary hypothyroidism. BMJ 2009;338:b725
•   Vaidya B, Pearce S. A Clinical Review of the management of hypothyroidism in adults. BMJ 2008;337:a801. This contains references for 35 articles and states that Armour thyroid is of no proved additional benefit to levothyroxine.
• The Lancet Volume 363, Issue 9411, Pages 793 - 803, 6 March 2004.  This covers the history, epidemiology, pathophysiology, and clinical diagnosis and management of hypothyroidism and is written by Caroline GP Roberts and Paul Ladenson of Johns Hopkins University School of Medicine, Baltimore, USA.  This review, which references 164 clinical articles, states that the treatment of choice for hypothyroidism is levothyroxine sodium (thyroxine) and does not refer to Armour thyroid.
•  Baloch Z, Carayon P, Conte-Devolx B, et al. Laboratory medicine practice guidelines. Laboratory support for the diagnosis and monitoring of thyroid disease.Thyroid 2003;13:3-126.
•  Association of Clinical Biochemists BTA, British Thyroid Foundation. UK Guidelines for the use of thyroid function tests. http://acb.org.uk/docs/tftguidelinefinal.pdf
•  Surks MI. Ortiz E, Daniels GH, et al. Subclinical thyroid disease: scientific review and guidelines for diagnosis and management. 2004;291:228-238.

And as your peruse the six references above which they use to defend their tunnel-visioned, moronic position, you realize that YOU, YOUR WORDS, AND YOUR POSITIVE-OUTCOME EXPERIENCE ON DESICCATED THYROID IS ABOUT AS IMPORTANT TO MOST PHYSICIANS & ORGANIZATIONS IN THE UK AS IS DIRT ON THE BOTTOM OF A RUSTED BUCKET IN THE MIDDLE OF A EMPTY FIELD IN NOWHERE. Yup.

Or as Harold Shipman stated about the RCP’s guidelines: What a brilliant wheeze.

*See below on the potential importance of potassium in your health and well-being. And on the May 7th post about the party being over with Forest Pharmaceuticals, comments continue to come in about experiences with the “new” Armour. Have you read the STTM book? Patients are stating they like it even better than this HUGE website. lol.

*Want to be informed of my blog posts? Curious what’s on my mind? Use the Notification on the lower left of the links.

With the recent blog post by health writer Mary Shomon concerning Dr. Sidney Wolfe’s new 4-year term with the FDA’s Drug Safety and Risk Management Advisory Committee, there has been much brooha and fear-mongering on thyroid patient groups.

Why? Well look at it this way. This is a man of stature. He is an MD, an Adjunct Professor of Medicine, the director of Public Citizen’s health research group which promotes drug safety and public health, and editor of the newsletter Worst Pills, Best Pills, and since August of  ‘08, a member of the Drug Safety Committee.  He also has a resume a mile long.

Yet in spite of his seemingly caring activism for our health and well-being, and his immense experience and education, he is clearly and completely off-base about Armour and other desiccated thyroid prescription drugs.

For example, as as editor of the Worst Pills, Best Pills newsletter,  Wolfe declared Armour desiccated thyroid as a “Do Not Use” product because it is not adequately guaranteed to provide appropriate blood levels of thyroid hormone and reliable alternatives are available”. (Gee, funny how our experiences are completely otherwise….)

Then in the May 2003 issue (of which you have to have a paid prescription to read), he wrote an article titled  “Do Not Use! Natural or Desiccated Thyroid (ARMOUR THYROID) For Thyroid Hormone Replacement Therapy.”   In that article, the clueless Wolfe stated that he supported The American Thyroid Association’s statement “There is no evidence that desiccated thyroid, a biological preparation, has any advantage over synthetic thyroxine.” (I guess millions of us and our improved heartrate, stamina, cholesterol, depression and more…aren’t evidence?)

He then proposes that Armour is mostly prescribed for weight loss, is a niche market for the unscrupulous, and concludes with “if you are offered natural thyroid hormone replacement treatment for any reason, this is a red flag and you should get a second opinion.”   In a letter to consumers, Wolfe and Public Citizen state that that T3 is only needed from conversion and is predictably found from conversion, that the T2 and T1 also found in desiccated thyroid has essentially no activity, that desiccated thyroid is an unpredictable mixture, that is has no predictable biological activity…plus so many more complete and total inaccuracies based on “intellectual head chatter” not on observation and experience.

Thud.

Mary Shomon, in 2003, did a bang-up job trying to communicate with Wolfe, Worst Pills, Best Pills, and Public Citizen about the inaccuracies of their beliefs and statements…basically to no avail. The TRUTH is here, and in more detail in Chapters 1 and 2 in the STTM book which are enlightening those reading it all!

So we are left wondering, six years later, what his four-year appointment to this committee will mean. But let’s make a few things quite clear to contrast some of the fears going on and expressed on thyroid groups:

1) Armour is not being banned.
2) Wolfe is one of a current 9 members of this committee. Wolfe is not “the committee”.
3) Wolfe and seven others currently have voting rights. He is the only “Consumer Representative”.
4) There are still six more vacancies.
5) The committee is NOT the power. They simply make recommendations. And historically, the FDA can be slow to act on their recommendations, or doesn’t follow them at all (which is a GOOD thing when it comes to a SAFE and EFFECTIVE medication like desiccated thyroid).

So what can you do? I challenge you to follow and act on the below, which puts our energies into communication, not feeding the ego and power of a misguided man with our overtly expressed fears as if they have actually come to pass :

1) Remember 1-5 above. Armour is fully available. Keep the facts straight, and fear-mongering down.

2) STTM has a powerful and growing page of testimonies of those who switched to desiccated thyroid.  Are you in there? If not, you need to be. This website currently has a huge audience. It’s noticed by doctors all over the world, as is the STTM book, which is YOUR book of YOUR experiences,  which is also being ordered by doctors. Use the Contact Me form at the bottom of that page.

3) Tell your experience with Synthroid or other thyroxine medications at the following websites:  www.rateadrug.com,  www.drugs.com,  www.askapatient.com They don’t include any of the desiccated thyroid meds yet, but you can tell of the negative experiences with all the T4-only drugs, including adrenal fatigue if you fell into that, and all your lingering thyroid symptoms.  The above links will take you to their Synthroid page–you can search for the other T4 meds.  Remember to mention Armour or other desiccated thyroid meds and how they have helped you!! Update: thyroid patient Gina found the drugs.com Armour page: http://www.drugs.com/comments/thyroid-desiccated/armour-thyroid.html

4) Report your T4-only experience to MedWatch, the FDA’s  program for reporting problems.  You will see an Online Reporting Form to download. Don’t fail to mention which problems were removed or greatly improved when you switched to Armour, or the fact that you now have to deal with adrenal fatigue thanks to the inadequacy of T4-only treatment. You can also call 1-800-FDA-1088, but remember: your call is not to draw attention to Wolfe’s opinions! It’s to draw attention to how lousy a treatment T4 is as compared to how much better Armour has been.

5) Go to my article titled Synthroid Sucks: the Rallying Cry of Thyroid Patients vs. Clueless Doctors and comment on this article, including mentioning what Armour, Naturethroid or other desiccated thyroid did for you. Rate it as well. Both keep this article in the media and in the eyes of others.

6) Go to www.medications.com where patients ask questions and YOU can answer, mentioning YOUR experience and how much better desiccated thyroid has been. Clicking on that will take you to the Synthroid patient questions. Answer them. Be careful with links–they may not catch them at first, but will remove them if they do.  You can mention website names, tho, like Stop the Thyroid Madness.

7) Send people here to follow all these steps. Power is in numbers!

8 ) Use the following website to email or write your senators and representatives: http://www.visi.com/juan/congress/ THEY DO READ THEM. And they will remember this!  Here’s a template letter you can use:  www.stopthethyroidmadness.com/template-letter-to-your-senator-or-representive/

If you have other ideas and places to write or call, add your comment to this post. Remember,  put your power in communication! LOTS of communication.

P.S. Did you know that the American Thyroid Association, in cooperation with the American Association of Endocrinologists, together support January as “Thyroid Awareness Month”…which is supported through an unrestricted grant from Abbott Laboratories, the makers of Synthroid?? Major UGH.

Just when we, as thyroid patients, are not only proving the superiority of desiccated thyroid treatment by our changed lives, but are making good tiny steps in educating our doctors, comes a complete nation taking Armour away. Yup, the medical-Brit-authorities-that-be, in all their brilliant ludicrous wisdom, did just that last month, explained here.

And then it was experienced personally by a thyroid patient in the UK on Feb. 20th when her Armour was in fact, taken away.

Below is the heading to the petition, and don’t ya love the final sentence. GOOD FOR TPA-UK!

To:  UK Government Office of Fair Trading We the undersigned petition the Government’s Office of Fair Trading and the European Commission for medical justice in the diagnosis and treatment of patients suffering from the symptoms of hypothyroidism, in spite of current medical practices. The petition is supported by the fact that medical science shows that through a proper application of modern medical and scientific knowledge those responsible for our well-being should be capable of restoring us back to optimal health.

Because of substantial confusion in the endocrinology specialty, patients continue to suffer, and the following lament by Doctors Anthony Toft and Geoffrey Beckett must, once and for all, be put to rest.

It is extraordinary that more than 100 years since the first description of the treatment of hypothyroidism and the current availability of refined diagnostic tests, debate is continuing about its diagnosis and management.

http://www.petitiononline.com/tpauk123/petition.html

**Want to be informed of these blog posts when they appear? Curious what’s on Janie’s mind in her activism for better thyroid treatment? Just go to the Notification on the left and at the bottom of the links.

Just two months ago on January 15th, I wrote an article titled Ten Reasons You May Still Feel Bad.  Nearly every hypothyroid patient can have some of those ten problems, and if so, they need to be discovered and corrected.

And one of those issues was low B12. B12 is a vitamin which has a key role in cell metabolism of your entire body, giving you energy, sharpness in your brain, and healthy nervous system functioning.

And unfortunately, a certain percentage of hypothyroid patients have low levels of this important vitamin, largely due to digestive issues common with hypothyroidism– either undiagnosed due to the lousy TSH lab test, or undertreated on T4 meds like Synthroid, Levoxyl, Levothyroxine, Eltroxin, etc.

Symptoms of low B12 can vary from person to person, but can include numbness and tingling in your hands or feet,  tremors, poor reflexes, tongue soreness, leg pain, or difficulty walking with balance.   Psychologically, you may have memory issues, confusion, or depression. Young women may have difficulty getting pregnant due to low B12.

When doing lab work, you want a result in the upper end of the range.  To correct inadequate levels of B12, you’ll want to use high oral B12 (methylcobalamin is the recommended form of B12), B12 cream, or injections by your doctor (especially if you have pernicious anemia) .  It’s also recommended to increase your consumption of meat and dairy products, which can be rich in B12.

March 27, 2009 is the kick-off date to begin an awareness campaign of B12 health, with September 23rd being “Vitamin B12 Awareness Day”. And I highly recommend the book Could It Be B12? An Epidemic of Misdiagnoses by Sally Pacholok, R.N. and Jeffrey Stuart, D.O., who are spearheading this awareness.

Have you found yourself with low B12? Tell us your symptoms, how you treated it, and how long it took to stop the symptoms.

Want to be notified of these blog posts? Curious what Janie is ranting about this time? Use the Notification on the bottom left of the links.

Ever heard of Henry R. Harrower?

He came to the US from England in 1903 at age 20, and with great fortitude and drive, became an MD and Endocrinologist. He had influence in the creation of today’s  professional Endocrine Society.   He also believed (to the consternation of many of his colleagues) in the use of organs to treat conditions, such as Armour desiccated thyroid.

And in 1931, he made the following incredible statement:

“A good laboratory report is cold comfort to a patient whose symptoms remain unchanged, and the doctor can repeat such reports until he is blue in the face, but they will not help his patient much if unaccompanied by controlled symptoms and changed feelings.”

He also stated:

“Are not the feelings of the patients often as clinically valuable as the other findings? In no case can we wholly discount them.”

BRILLIANT!!  BRAVO!! “Cold comfort” couldn’t describe our reaction better when a slew of your modern colleagues have habitually discounted thyroid patient symptoms for decades in favor of ink spots on a piece of paper called “lab results” with dubious “normal ranges”. And we give the same “Bravo” to a growing body of doctors who are making a courageous change in their relationship with patients the last few years by LISTENING to the patient first and foremost.

p.s. Thanks to Stephanie Buist, working to become a naturopath, who posted the first quote above to the Facebook of a mutual friend of ours. You can read more about Harrower here.

How do you feel about what Dr. Harrower said over 100 years ago? How would you rate the Endocrinologists you’ve seen the past few decades as compared to Harrower? Have you had no more than “cold comfort”?

The recent press release by the UK’s Royal College of Physicians about the new guidelines on the diagnosis and management of primary hypothyroidism hit the web with a resounding, stiff-necked thud.

And I have written about it in the news media here:  http://www.opednews.com/articles/The-Royal-College-of-Physi-by-Janie-Bowthorpe-090210-698.html

p.s.  In the 1600’s, Galileo was the first most prolific voice to proclaim that the earth revolved around the sun (Armour), in contrast to the firmly held position that the sun revolved around the earth (Thyroxine).  He was denounced as being dangerous and heretical. But over time, the truth won out.

Are you from the UK? Tell us what you think.

Most of us are in our prime when our health is slaughtered thanks to the lousy TSH lab result–a result which can be normal for years before it rises high enough to reveal our hypothyroidism, or a range which keeps us with lingering hypo symptoms.

But the elderly are also wide open targets of the scandal of  the use of the TSH test to diagnose hypothyroidism.

My father-in-law was stout, tall and healthy as an ox his entire life.  For the first eighty-eight years of his life, life was active and grand. Oh did I love him.

Yet as he was nearing ninety, fate became fickle. He became like a Rip Van Winkle,  sleeping more than being awake the final three years of his life.  He slept in the mornings, he slept after lunch, he slept before dinner, and he went to bed early.  And he seemed depressed.

Family concern (mine) prompted his doctor to test his TSH,  widely used by clueless doctors to ascertain thyroid function. The family doc proclaimed “Normal”

Sad. Because I had to watch him waste away in his fatigue until he died.

Hypothyroidism increases with age,  and many of our elderly fall victim to it. Using most any search engine on the net, you’ll find numerous articles on thyroid and the aged. But I suspect it’s an even greater problem that most any article can relay, since most of them are talking about the TSH and thyroxine. So the elderly, just like us,  suffer due to the infinitely lousy TSH lab, just like my dear father-in-law.

Read my latest article on OpEdNews titled “TSH: Thyroid Stimulating Hooey and the Loss of Wisdom” (Yup, the first part is the same title of Chapter 4 in the STTM book) : http://www.opednews.com/articles/TSH-Thyroid-Stimulating-H-by-Janie-Bowthorpe-090205-60.html

Have you noticed suspicious hypothyroid symptoms in your grandma or grandpa, or your own elderly patients? Tell your story by commenting on this blog post.

Want to be notified of my blog posts? Curious what’s on my mind? Use Notifixious to be informed. Look on the bottom left of the links where you can sign up. )

Today I baked a chocolate cake for my son’s birthday. It was excellent. Why? Because it was the result of several important ingredients. Leaving any of them out would have resulted in a cake less than great.

And your health and feel-goods as a thyroid/adrenal patient, including your ability to successfully get off HC,  is like my son’s cake: a combination of ingredients that you have to get right. Below are ten “ingredients” to investigate and find out which may not be right in you for good health and feel-goods.

1) The right amount of cortisol: Too little cortisol or too much cortisol has its consequences. Too little results in thyroid hormone still pooling, continued hypo symptoms, plus hyper in some. Too much can mean easy bruising, rising blood pressure, fluid retention, a round face, etc.  And both can increase anxiety, feeling poorly, etc.  Watch for symptoms and compare your daily averaged temperatures. Also, have you checked your aldosterone?

2) The right amount of desiccated thyroid: I have a friend who was stuck on 3 grains Armour out of habit. But she continued to have hypothyroid symptoms out of habit. I finally convinced her to talk to her doctor. Labs showed her free T3 was just a few points over mid-range, and having a free T3 towards the top seems to work better for most. So she did raise, and it finally did the trick.

3) Optimal B12 levels: Since hypothyroid patients can have digestive/absorption issues, B12 levels can be lower than optimal. Symptoms include fatigue, weakness, feeling faint, breathless, bruising, heart palps or others. Don’t take a chance. Get a B12 test. You want the result to be at the top of the range.

4) Plenty of Ferritin (storage iron): Low ferritin means you have no iron in storage to draw upon. And it also means you are probably anemic.  Additionally, low ferritin adversely affects the conversion of T4 to T3. Symptoms include fatigue, depression, weakness, achiness, breathlessness or others.  Have a ferritin test.  Optimal is 70-90.

5) Good digestion: Hypothyroid patients can have low hydrochloric (HCL) stomach acid levels. That not only contributes to acid reflux because of the overgrowth of bad bacteria, it means you don’t absorb nutrients well (including low B12 mentioned above). As a result, it’s crucial to give that acid back to yourself.  A tablespoon of Apple Cider Vinegar mixed in water and taken twice day helps many. Or try taking Betaine, which is HCL in pill form, or any other quality HCL or digestive product.

6) Recognition and treatment of Gluten intolerance: Some thyroid patients lack a particular digestive enzyme, intestinal glutaminase, that helps digest gluten in various food products. As a result, they don’t absorb nutrients well. Symptoms include bloating & gas, aches, stiffness, fatigue, burning or numbness in arms or legs, rashs or hives, worsened allergies & others. Your chance of have a gluten problem is higher if you have Hashimotos disease. If you suspect a possible problem, eliminate all gluten from your diet. Also consider having your doctor run a Celiac antibodies blood test.

7) Controlled EBV: At least 90% of adults have the Epstein Barr Virus (EBV) sitting dormant in their bodies. EBV is what causes mononucleosis, but you don’t have to have had mono to carry the virus.  Because hypothyroidism lowers your immune system, it’s not uncommon for thyroid patients to have activated EBV. I did, and my symptoms included extreme easy fatigue, ringing in my ears, achiness and some swelling of my lymph glands. Some may have a sore throat return and other symptoms.  Ask your doctor to test EBV. You’ll then need to ask about treatment options, which include beefing up your immune system.

8 ) Sex hormone balance: When your thyroid or adrenals get out of balance, your sex hormones can follow suit, from estrogen dominance to low testosterone.  When estrogen dominance occurs, you can feel depression, fatigue, and sore breasts.  Low testosterone can equal lower energy and mood. Ask your doctor to test all your sex hormones.

9) Taking plenty of supplements: There are a variety of good supplements everyone with thyroid or adrenal issues should take for good health. They include high potency B-vitamins, Vit. C (1000-3000 mg. or to tolerance), Selenium (around 200 mcg), minerals including magnesium, probiotics, Vitamin D (1000 iu), iodine, and others.  In addition to these, I also take CoQ10 (for heart and blood pressure health), and my favorite: a green powder which I stir in my orange juice.

10) Exercise: If you are a couch potato, you’re going to feel like one. Instead, do what it takes to get moving, which promotes all sorts of good health. If you have adrenal fatigue, keep it very light and easy.  If you just have hypothyroidism, get out and walk.

P.S. My chocolate cake: I think cake mixes are just as good as homemade. I use Devils Food Cake. But the icing is ALWAYS homemade: cream one stick butter, add about 4 cups powdered sugar, 1/2 cup cocoa, then cream or half-n-half.  Shake some sea salt in. Add two tsp. vanilla.  Beat, beat.  Taste. Modify as needed. YUM.

An intriguing thought: what if there were lab packages specifically designed by Stop the Thyroid Madness and all its patient-to-patient wisdom.  Well, there are!

STTM has created lab profiles in partnership with MyMedLab, a direct-to-consumer lab facility which has expanded to provide services to nearly the entire United States

This lab facility promotes the empowerment of patients in their own care, similar to STTM’s focus on educating the patient and expecting a partnership when you walk into the doctor’s office. Empowerment!

You will find a combination of both in-home collected tests (saliva cortisol) and those performed at LabCorp collection sites across the US.   Take a Peak: STTM Lab packages (be sure and click on the green What’s Included icon on the lower right. You get a lot!)

Today, I came across a short summary on recent study findings presented at the 79th Annual Meeting of the American Thyroid Association in November, 2008.

It states that in a study with thyroid patients 65 and older, there was no improvement in cognitive function when a patient is optimally treated on thyroxine, aka Synthroid, Levoxyl, Levothyroxine, Eltroxin, et al.

Gee golly.  What breaking and cutting-edge news!

NOT.

Too bad it takes the results of a research study to reveal what has been blatantly obvious in patients of all ages for 50 years: thyroxine overall does not work and leaves patients with a variety of NON-improvements, as well as worsening symptoms of lingering hypothyroidism as they age.  Duhhhh.

With recent news of Oprah’s continuous weight gain (currently partially due to her failure to properly treat her hypothyroidism and probably Hashimotos (see post below this), it can make us all shudder as we deal with the holidays and all that great food!

I admit it: At Christmastime, I LOVE the easy Gingerbread Boy Cookies recipe I used when the boys were little, the Microwave Fudge recipe to die for, my world famous Chocolate Chip Meringue Cookies which I color red and green, my mother’s wonderful Pralines which I occasionally try to make myself,  and Grandma’s Fruit Cake–yeah an actual fruit cake I LOVE, which I order EVERY SINGLE YEAR at this time.

And it’s hard not to gain weight! Is that you, too?? So let’s go over 6 HOLIDAY FACTS about thyroid treatment with desiccated thyroid:

1) Armour, Naturethyroid, Westhroid, or any other desiccated thyroid medication is not meant to be a Christmas weight loss pill. Desiccated thyroid medications consist of thyroid hormones: T4, T3, T2, T1 and calcitonin. They simply give you back what your own thyroid is not giving you…the same five hormones which give you back a stronger immune system, a normal body temperature & improved metabolism, better energy, healthier hair and skin, less aches & pains, emotional happiness, better lipid profiles like cholesterol, stronger bones…and on and on.  But even with all that benefit, and even though it does improve your metabolism, desiccated thyroid is not meant to be a weight loss pill.

2) Armour et. al. can only do its holiday job if you have strong adrenals or adequate cortisol treatment. Because cortisol is needed for thyroid hormones to move from your blood to your cells, you can only benefit optimally from desiccated thyroid during the holidays if you are lucky enough to have strong adrenals, or if you are giving yourself back the cortisol you need based on stable temps, blood pressure, and removal of most low cortisol symptoms.  So don’t forget that cortisol right now, and definitely consider adding a stress dose of cortisol if things get rough with the in-laws. (See Chapter 6 in the STTM book for even more details about stable temps, blood pressure, and stress dosing)

3) Don’t drink that Armour down with Egg Nog! Calcium is a known binder of thyroid hormones in your stomach, keeping you from benefiting from some of those health-giving thyroid hormones.  So if you swallow your desiccated thyroid, get the water.  Or even better, do it sublingually.

4) Don’t expect Armour to keep you from looking like Santa Claus: you still gotta exercise & watch what you eat! It’s true: the optimal use of desiccated thyroid does raise your metabolism and eats those extra calories up like PacMan.  But if you’re like me, you can still have a tendency to put on those love handle butter pounds if you eat your fill of holiday foods.  ho ho ho. To curtail the gain, add exercise to your holiday regime, or increase what you already do. I try to aerobically walk a LOT during the holidays. And when I’ve eaten a Christmas stocking full of goodies, my next meal will be nothing but high protein, like  turkey, cheeses and nuts. Or, you can also balance your intake by choosing one meal a day to be low glycemic to somewhat balance out the high glycemics you know you are going to eat later. For example, I make my breakfasts only eggs and nitrate-free bacon, or plain yogurt with berries, nuts, and Stevia.

5) Building a holiday snowman outside?  Consider an extra 1/4 grain of Armour. It’s a fact that prolonged exposure to cold increases your demand for energy, which in turn can increase your demand for more thyroid hormones. As a result, many patients find that adding an extra 1/4 grain of desiccated thyroid to one’s daily amount helps meet the demands of Frosty the Snowman or that holiday sprinkling of lights all over your house in the cold air.  Talk to your doctor.

6) Give a gift of the STTM book to a loved one. There are other good thyroid books on the market, but unlike all of them, this is the bible of patient experience on successful thyroid treatment. You’ll find volumes of information that patients all around the world have learned. A true patient-to-patient guide to feeling wonderful again.  Go here to order.  And the publishing company is extending the time you can order a book to be sent DIRECTLY to your loved one.

SECOND UPDATE as of Dec. 10th: WHOOPI GOLDBERG has it RIGHT! Today on The View, she stated that Oprah needs to take her thyroid problem SERIOUSLY!! Contact the View about STTM and the seriously correct treatment here.

UPDATE as of Dec. 10: Gail King, Oprah’s best friend, was on the Good Morning America show this morning talking about Oprah’s weight gain and thyroid problem. She also talked about how depressed she looked.  Oprah, a huge and growing body of thyroid patients are all around the world, waiting to tell you what the answer is.  Listen to us.  We have been emailing you for years, and you’re going to see more of those emails. Contact Good Morning America here. (Then contact Oprah below)

Just on the stands, Oprah’s January issue of “O” magazine has an eye-opener: Oprah Winfrey admits that she’s now back up to 200 lbs, a condition that puts her at higher risk of several chronic conditions, including diabetes and heart disease.  She states “When it comes to maintaining my health I didn’t just fall off the wagon. I let the wagon fall on me.”

But what Oprah, a wonderful talk show host and chairman of  Harpo, Inc, doesn’t seem to get is that the “wagon” is probably a “poorly treated” hypothyroid condition, which causes a lower metabolism and easy weight gain.  She even admits in the article that she deals with an out-of-balance thyroid condition which has made her develop a “fear of working out.”

A fear of working out?? Oprah, do you get exhausted from working out? Because there is NOTHING to fear with working out if you are optimally treated with natural desiccated thyroid in the presence of strong adrenals or adequate treatment.

Are you on desiccated thyroid, Oprah?? Are you dosing high enough to remove all symptoms?? Have you learned what patients have learned? And what condition are your adrenals in, Oprah?? Because it’s all too common for thyroid patients to have developed adrenal fatigue from being poorly treated for so long.

And Oprah, when you state that you don’t need to be thin, but do want to be “strong, healthy and fit”…the way to do that is optimally treat your thyroid! We are a large and growing body of patients worldwide who have done just that, and now live “strong, healthy and fit”.

IT IS TIME FOR JANIE TO BE ON YOUR SHOW, OPRAH. (Thyroid patients even have a book you can recommend to others.)

Because in all due respect to your personal trainer Bob Greene and Dr. Mehmet Oz…you have YET gotten someone on your show who can give you GOLD about the right thyroid treatment.  Call me, Oprah.  Email me, Oprah.  I am waiting to tell you how to stop your yo-yo weight problems and fear of working out!  We and I have a LOT to tell you, Oprah, to stop your own personal thyroid madness. Contact Oprah here.

Send a message to Oprah’s best friend, Gayle King, here.  Tell her about desiccated thyroid and YOUR story. Send Gayle to this website so she can understand all this.

Who, as a smoker, hasn’t heard how deleterious tobacco smoking is for your health. Not only will you acquire health problems directly related to smoking, but your life is shortened by 10-15 years average according to statistics. My own father died at age 63 directly related to his smoking.

But in spite of strong reasons to quit, most smokers will tell you it’s NOT easy. Why? Because the nicotine in tobacco is the addictive bogeyman. Nicotine stimulates those pleasure centers in your brain, besides being a substance which “gets you going” by releasing both blood sugar and adrenaline. The American Heart Association states that “Nicotine addiction has historically been one of the hardest addictions to break.”

But for hypothyroid patients, tobacco smoking presents another whammy. Namely, it stresses your adrenals over and over. And with adrenal fatigue being a common side effect of treating hypo with T4 meds like Synthroid, Levoxyl, Eltroxin, et all, as well as being dosed by the lousy TSH, you’ve got a third reason to fall into adrenal fatigue if you are a smoker.

Additionally, another factor in the difficulty of quitting is that cortisol decreases when you try to quit. A 2006 research report found that the lowered cortisol after quitting is associated with smoking relapse and with reports of increased withdrawal severity and distress. So, when you already have adrenal fatigue, and you quit smoking–a double whammy against being successful.

What’s the solution? If you don’t have adrenal fatigue and want to quit, it may be wise to have a good adrenal support on hand, such as Isocort or any quality OTC adrenal product at your health food store. If you DO have adrenal fatigue, staying away from cigs may require adding additional cortisol to your daily amount. Chapters 5 and 6 in the STTM book have good information to help you with cortisol support.

Are you a smoker with hypo? Don’t hesitate to respond to this post with your experience. (Please note that replies are not for questions.)

READ DEBORAH’S STORY ABOUT HER ATTEMPT to STOP SMOKING.

The topic of iodine supplementation for your overall health has been growing the past few years among patients, especially in light that many of us may be low in iodine, or just the fact that iodine has anti-cancer qualities. I became interested in the topic after reading Dr. David Derry’s book Breast Cancer and Iodine. I’ve also seen the testimony of several women with Fibrocystic Breast Disease who saw it disappear once they started iodine supplementation. Impressive!

And since thyroid hormones are primarily composed of iodine, thyroid patients are listening to and questioning the use of iodine supplementation. Yahoo Groups has an excellent iodine group now led by Stephanie, where you can ask questions and decide for yourself. Also, if you google “iodine”, you’ll find much to read.

But thyroid patient Mike Lawson came up with some very interesting facts this week about iodine in desiccated thyroid–just one more reason to consider using Armour, Naturethroid, Westhroid or other desiccated thyroid products! He figured out the below:

T3 = C15H12I3NO4 = molar mass of 650.9776
T4 = C15H11I4NO4 = molar mass of 776.87

So, each grain of Armour has 30.20325 mcg iodine. In other words, each
grain of Armour has 1/5 the RDA of iodine (150 mcg).

Very interesting facts, Mike! Sure, some thyroid patients feel they need more than what desiccated thyroid offers. But it’s a good start when so many individuals feel their own iodine levels are too low, and need help, especially those who have had to deal with thyroid or breast cancer, or have a family history of it.

Shock and amazement.

At the 90th annual meeting of the Endocrine Society, it was announced that T3 can be an effective substitute for T4. And…the target TSH was .5 - 1.5.

DUHHHHHHH.

But it’s GOOD news.

OK, so…

1) it’s light years behind what patients had already figured out for a longgggg time
2) it’s not as effective as being on desiccated thyroid (which has exactly what your thyroid would be giving you: T4, T3, T2, T1 and calcitonin)
3) the TSH needs be even LOWER when you are adequately treated.
4) NO THYROID TREATMENT SHOULD BE BY THE LOUSY TSH AT ALL….

….but it’s a GOOD STEP in the right direction!!

http://www.endocrinetoday.com/view.aspx?rid=28931

p.s. Maybe if some of those Endo’s would open their minds to what PATIENTS HAVE LEARNED on this site and the book, they might finally make the next great step!! TAKE THIS INFORMATION INTO YOUR DOCTOR’S OFFICE!! It’s the power YOU have to change this mess!

I was lucky.

My cholesterol hadn’t started to raise yet when I was on Synthroid and later Levoxy. But it was going to, because nearly everyone on a T4-only medication has a climbing cholesterol number, sooner or later, along with heart problems and/or elevated CRP. And what do their doctors do next? Put them on statins with all the lovely side effects: muscle aches & pains, memory loss, and peripheral neuropathy. (See the Yahoo Stopped My Statins group here.)

My mother is the classic example. We have absolutely no heart problems in our family history that I know of. Yet, here was my mother who, in her 60’s, was suddenly in the hospital having a balloon procedure on her heart, called an Angioplasty, done to open up a clogged artery to her heart. Huh??

It was only years later, when I become a thyroid patient advocate, that I could look back and see why that happened to her. She had been on a T4 medication for the majority of her adult life!

Today, as patients are switching to natural desiccated thyroid like Armour, Naturethroid and Westhroid and others, and as they are allowed by their informed doctors to raise NOT according to the TSH but by the complete elimination of symptoms…VOILA…. their once-high cholesterol….FALLS!!

But guess what else falls? Your CRP.

CRP stands for C-Reactive Protein, and it becomes elevated in response to an inflammation. With that elevation comes the heightened risk of heart attacks and strokes. And guess what: continued hypothyroid (as found with T4-only treatment) results in an increased CRP level.

On an optimal amount of Armour, which for me is 4 grains, my CRP is 0.9. Ideal is less than one. Bingo.

***Have a story to share about your improved lipid or CRP levels since you became optimal on Armour? Let us know.

YEEHAW! Check out this study done in 2007–the higher the TSH, the worse your lipids. Ironically, even a TSH IN RANGE does this, according to the experience of MILLIONS of patients!! Thanks Nita for bringing this to my attention!

Cuz it ain’t the one WE live on, dah’ling.

For a few years now, patients have repeatedly written the Oprah show, begging her to address the thyroid scandal of decades of T4-only medication and the lousy TSH lab, both of which have left MILLIONS of patients with lingering hypo symptoms while our doctors proclaimed we were NORMAL…and about a FAR better treatment called natural desiccated thyroid and dosing by symptoms, NOT the TSH.

And when she finally has a program which somewhat addresses the thyroid issue this week, she allows her hallowed guest, Dr. Christiane Northrup, to state “your symptoms are actually your soul’s way of bringing deeper issues to your attention.” Hogwash! And thyroid patient Mary Shoman has rightly proclaimed that “thyroid disease is NOT your fault, despite what Dr. Northrup says.”

But the issue goes even further. Oprah implies, by her own experience, that taking a month vacation and eating fresh foods is enough to make one well from thyroid disease?? Double hogwash! Thyroid patients seek to live some of the healthiest lifestyles there are. All you have to do is observe the conversations in most any internet thyroid patient talk group, and you will see daily posts on the best supplements to take, healthiest foods to eat, and best ways to de-stress our lives. We are overall a VERY educated group of patients about health, and we practice it. We HAVE to be in light of how poorly educated most of our doctors are about our thyroid disease. And in spite of all the above, our thyroid condition persists.

What has CHANGED our lives is leaving the scandal of T4-only treatment in the dust, and learning about desiccated thyroid like Armour, switching to it, and dosing according to the elimination of symptoms, NOT simply labs. We have also faced the fact that at least 50% of us have adrenal fatigue, which leaves us impatient and angry, with headaches and body aches, chronic back pain and body aches, a loss of passion, and sleep issues. And we have tread new ground in our knowledge on how to treat it, when many of our doctors pooh-pooh the reality of adrenal fatigue.

I love ya, Oprah, as do millions of women out there. But taking a month vacation and eating fresh foods does NOT cure our thyroid disease. So time will tell what went on with you! So now, all we can do is hope eternal that Oprah will get on the planet that the rest of us live on, and help us to spread the word as to why millions of thyroid patients have been suffering and about a far better treatment. If you can continue to have persistence, you can email her here. STOP the thyroid madness!

P.S. Go here to read thyroid patient Anna’s humorous experience with following the same kind of advice given on Oprah’s show.

I’m sick. I’m tired. I feel awful. I’ll go the my doc’s office for help.