The Case of the Missing Thyroid Nodules

1-Screen Shot 2014-08-02 at 6.21.24 PMHave you ever had thyroid nodules? Read the real life testimony of thyroid and Hashimoto’s patient Cheryl and how she single-handedly removed her nodules with iodine and selenium…even though she has Hashimoto’s disease!

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My first thyroid ultrasound came during July of 2011 as I was fighting for proper thyroid care.

The new doctor I had just recently hired had decided that my thyroid looked “spongy.”  I knew that an ultrasound was a step up on the ladder that would eventually lead to a diagnosis and therefore treatment.

Within three days after the ultrasound study, my doctor called me and stated she was referring me to an endocrinologist. Multiple nodules covered my thyroid and several were going to need a biopsy. It would be much later before I found out how many nodules I had and exactly what shape my thyroid was in.

To say that those words, nodules and biopsy, scared me would be an understatement.

Never the less, I did what so many of us do when confronted with a health issue. I hit the Internet.  First, I looked up the words “Thyroid nodules.”  What exactly did that mean? Was it a nice way of saying I had cancer? Thyroid nodules, according to Mayo Clinic, are “solid or fluid-filled lumps that form within your thyroid.”  The article went on to state that most are benign (over 95%) and not serious.  That was not enough of a definition. I wanted, needed, and felt I deserved more information.

The next site, The American Thyroid Association page, said virtually the same thing, only adding that it was an abnormal growth of thyroid cells on the thyroid gland.  I kept perusing the internet, reading anything and everything I could find on thyroid nodules including the size at which a nodule becomes clinically significant (1cm and over) and needs a biopsy.  I also found that not all nodules are solid abnormal growths but that some are the result of tissue breakdown. Those are the fluid-filled cysts and can occur due to Hashimoto’s.

Once I was satisfied with the information I gathered on the how and why of nodules- I made it my next mission to find out about biopsies of these “abnormal growths.”

The biopsy, and was I going to die?

What I learned was that Fine Needle Aspiration is the preferred method to biopsy a clinically significant thyroid nodule, and the doctor usually performs it right in the office.  The endocrinologist inserts a hollow needle into the “lump” and extracts a sample of cells for analysis. It is a safe and relatively painless procedure.

The biopsy went flawlessly, as they always do, and my results came back: The lumps, numbering 21, (with only two being significant), were classified as being hyperplastic (adnomatoid) nodules.   Being benign, they mostly contained follicular cells, Hurthle cells, and some foamy macrophages. When I asked about treating my thyroid, the nodules, and medication, I got the usual answer. “We aren’t doing anything. We are going to watch and wait.”  I left that endocrinologist’s office with a sense of defeat. I was for sure I was going to die and no one in the world was going to help me.

The fighter in me did not stay down for long.

I was not going to “watch and wait.” “Not this girl,” I thought.   It was obvious to me that my thyroid was floundering and needed help!  By the time I got home from the follow up visit, about an hour and half away, I once again hit the World Wide Web to educate myself on the pathology findings. The next phase of my journey for true thyroid care began.

In the days immediately following my biopsy results, my primary care physician finally agreed to test my Free T3, Free T4, and both antibodies tests.  When the results of those tests came back, they clearly proved my suspicions. My thyroid was down for the count.  It was then that my doctor agreed to medication and Armour natural desiccated thyroid was my choice. She started me off small with one 60 mg pill a day.

But, I did not stop there.

I had nodules that the field of medicine had completely disregarded. I started reading on how to treat an under medicated thyroid. I read about what nutrients and supplements the thyroid had to have for proper functioning.  I started digging into benign tumors and how to treat them as well. I, then, packaged that information into a regimen of supplements made easy by online ordering.

My regimen to begin with consisted of Armour and selenium.  I started the selenium first because I understood that it was critical to the thyroid. So vital, in fact, that the body will take selenium from the brain for thyroid use. It was determined from the lab/biopsy results that I had Hashimoto’s and I had heard that people with Hashi’s should not take iodine. Through my research, though, I began to understand that those with Hashi’s could take iodine but do need the selenium to protect the delicate thyroid. So, I started my selenium (400 micrograms a day). I began taking it a full two weeks before my iodine.  I did not want to have a Hashi’s flare from taking iodine and knew the selenium would need a while to build up completely in my system.1-SC20130929-175052_20130929175910267

Iodine supplementation was next

I had visited several sites regarding the use of iodine to cure cancers and tumors. I had joined the Iodine Yahoo group and absorbed Stephanie Bust’s information. I visited Breast Cancer Choices.org and found a ton of helpful information there as well.  I educated myself on the many uses of iodine and the vital role it plays in the human body. I learned that as important as selenium was to the thyroid, iodine was just as important.  It is the main ingredient in all thyroid hormones.

I was cautious with the iodine. I worked on building up a tolerance. I started with one drop of J.Crow’s Lugol’s 2% iodine solution a day for one week.  I then “upped” the dose to 2 drops (6mg) a day for a week.  And so on and so forth until I exhibited “hyper” symptoms at which time I dropped back down to the next lower dose.  My body was set at 33 milligrams of iodine a day.  I was going to heal my thyroid or die trying.

What happened next has left many, including my physician, declaring a miracle.

Three months after the initial ultrasound, my doctor ordered a repeat. The results left her scratching her head and claiming divine intervention. In three months, I had lost 14 smaller clinically insignificant nodules.  Fourteen nodules on my thyroid just disappeared. When I asked her, “How does that happen?” her response was “I don’t know – God.” I smirked but I knew it was the iodine and selenium I had religiously been taking.

As an experiment, and to confirm to myself what I already knew, I did come off the iodine and selenium, for a while, to see what would transpire. I told no one what I was doing, as I wanted to see it for myself, without influence or interference. For four months, I took no iodine or selenium- only the Armour.  The following ultrasound showed a new nodule.  That was proof enough for me.  I went back on the iodine and selenium and continued to take my Armour, which, my doctor had upped to 2.5 grains a day.

Now, three years later, I am nearly “lump” free.

I no longer have any clinically significant nodules. In fact, I only have three nodules and the ultrasound reports shows that they are shrinking as well.

However, that is not all. For the first time since my fight for thyroid care began, my thyroid itself is no longer swollen and is in “acceptable normal limits,” meaning it is a “normal” size.  While I know my thyroid will need consistent life-long care, as I do have Hashimoto’s, I no longer feel like I am a slave to my supplements or that my thyroid is more of a burden than a blessing.  The fight for my thyroid, as long and as arduous as it has been, has been worth it. The “the Siamese sisters of the thyroid,” what I now call selenium and iodine, have given me my thyroid, and consequently, my life back.  The ultrasounds alone prove it.

Cheryl

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Read more about selenium.

Here’s good information about iodine.

Have Hashimoto’s? Here’s what patients have learned!

Join the conversation at the STTM Facebook group!

 

172 Responses to “The Case of the Missing Thyroid Nodules”

  1. Andree

    Gosh! I am so pleased I found your site as I feel totally lost and confused at the moment after years of battling health issues I find myself in the boxing ring again. This time living in a foreign country making it more difficult. So any advised is gratefully received. I have half a thyroid in which are multiple nodules which are not showing problems at the moment.I am showing signs of of hypothyroid TSH of 4.9 and free T4 of 8 ( well I have been for years!) which the Dr is now recognising. I am not showing any TPO issues or Hashimotos. I also have adrenal fatigue with very low DHEA and high cortisol in the afternoon and eve. My iodine levels are very low,and I have mitochondrial malfunction too and osteoporosis. My Dr here in France has prescribed the equivalent to Synthoid. However I am lactose intolerant which is contained in the medication and it says if you have adrenal fatigue and osteo do not take it. I return to the GP and she informed me there was no other thyroid medication available in France to take!!!!! What do I do? I feel rubbish with the double whammy of thyroid and mito fatigue. Interestingly I have had a list of supplements that keep appearing in my head to take and selenium and iodine are there at the top. I am so determine to deal with this naturally after years of drug taking for various issues and having cleared myself of them all I find I am having to start again. But I am so confused whether in my case what’s the best thing to do. I am grain and dairy free,do not drink alcohol and am about to drop my one coffee a day! I eat organically as much as I can.Would really appreciate some guidance. Thank you so much for such a fantastic site x

    Reply
    • Janie Bowthorpe

      Hi Andree. If you have high cortisol in the afternoon and evening, all we have to do is take certain cortisol-lowering supplements about an hour before those highs appear, and usually in amounts higher than the bottles say. This will usually cause the morning lows to come up naturally. We do this for a few weeks only. See http://www.stopthethyroidmadness.com/ps In the meantime, you could order Thyrogold from the US. Google it.

      Reply
    • Janet Cook

      Im in France too, struggling to get seen by medical profession despite nodules discovered by UScan 2015

      Reply
  2. Debbie

    My TSH lab shows 0.011. I see two doctors and they both disagree with the other. My female doctor wants me to lower my Armour. I am on 90mg. My thyroid doctor says he doesn’t go by labs but how I feel. Am I in danger with the reading of a low TSH of 0.011? I have always had the symptoms of hypo and have been told I have Hashimotos but from what I’m reading now, my levels point to hyper – so confused at what to do…..My T4 is 1.28. I believe I was/am estrogen dominant. These symptoms all exaggerated after a hysterectomy (my uterus was 6 times it’s normal size). I have my ovaries but they have small cysts. Now I have the growths on my thyroid which are at 3.8 centimeters. I suffered with cystic acne in my early 40ies and was told by a ND that it was a shame someone didn’t treat my hormones much sooner. I am being treated with bio-identical hormones (bi-est cream, 2 mg, testosterone cream 1.5 mg, progesterone capsule 200mg). Not sure why I am on estrogen cream other than being 50 and going into menopause…. I’m also taking Naltroxene to help with inflammation. It has truly helped my joint pain and muscle weakness. I take a liver cleanse in fact I have been on your liver pills. I believe my adrenals are affected also. I do take a herbal adrenal support and many supplements. I’ve honestly tried everything and have seen 8 doctors in 4 years. It can be very depressing. The DR treating me with Armour is truly trying to help and I do feel better with what he has done. Just am starting to think that the dose of Armour might be too high. I plan to talk to my DR about reducing my Armour dose since learning of my TSH level.I do feel better than I did 4 years ago – I also take J Crows iodine… 2 drops a day. But I do have every symptom of hypo or Hashi’s. I live in MT….greatest state but not the greatest doctors…. Sorry MT. Thank you and I appreciate any advice!! I was so inspired by Cheryl’s article and was hoping to know how she is today.

    Reply
    • Sheila

      I understand the struggle with different doctor’s opinions.
      I am hypothyroid when I don’t feel well. I always feel my best when my Tsh levels are under 1.0, like at .01
      That means hyperthyroid as far as a blood test and what doctors would tell me, however, for me it feels normal and balanced.

      I spent many years with an endocrinologist that continued to lower my thyroid meds because of what my blood tests showed. Later, other doctors wanted me on an arbitrary number of mgs. they seemed to think was right. Two years ago, I had almost all of the hypothyroid symptoms in the Stop the Thyroid Madness book. Now I have virtually none of those symptoms.

      Right now I feel the best I have felt in many years, and my blood tests show I am hyperthyroid. I fired my doctors, order my thyroid meds from Thailand and took control of my own health. I take large amounts of thyroid compared to what a doctor might want to prescribe. (I have no thyroid gland; it was removed decades ago due to nodules doing their own thing and from Hashimoto’s). Now that I monitor my own medicine: my cholesterol levels are normal, my HDL and LDL are great, my blood pressure is greatly improved, my blood sugar levels are normal, etc. I am not depressed and have no anxiety. I had all of those problems for years while with the endocrinologist only went by blood tests. At one point I was on 15 other medications to solve the above listed symptoms. Even when he tried me on Armour, he refused to raise it even when I told him that when I took more by accident (I had received the wrong prescription from the pharmacy), and it helped me feel better. He would not listen.

      I also cut out gluten years ago and felt better. I must say, the natural thyroid I am on now is the best I have ever used.

      Finding Stop the Thyroid Madness and About where the best things that ever happened to me. It made me know I had always known what was best for me, but thought doctors knew best.

      I also discovered for myself, that I feel best when I split up my desiccated thyroid into several times per day. I do not take the full amount in the morning. I set timers on my smartphone and have figured out for myself that I feel best taking the medication about every 3 hours during the day. That works best for me.

      It took keeping track of my symptoms in a notebook and trial and error. It was well worth the trouble.

      Trust yourself.

      Reply
      • Shannon

        This is the long journey I have been on too!! So hard when you are swimming against the current . Good for you. I believe more people need to take care of their vessel and take control. Stop going to doctors for every snivel and well listening to your body.. Anyhow, I am hyporthyroid. Got diagnosed when I was about 18. I am 40 now. I went to my doc complaining of my cold hands and asked for a thyroid test. Low and behold came back hypothyroid. He prescribed synthyroid and I went straight to the health food store. Got a product called T-100 from Australia. Did not tell my doctor. Went for my blood test after recommended time and my levels were good ( now I know that blood tests are just not accurate enough when it comes to thyroid testing.). My Doctor was surprised but just wanted the best for my health and did not seem to care that I was wanting to take the natural medicine route. They stopped being able to bring this product in and I ended up on synthroid. Was for years on and off.

        My first child was tested at birth and was hypothyroid. 1 in 3000 children are born with hypothyroidism ……I have two. we spent several trips to the endocrinologist at the childrens hospital. I attempted to see if there was alternate advice instead of getting them on a synthetic drug from birth. Feel that all I got was scare tactics. Here is the other interesting and unique thing about my children. They are hypothyroid due to they genetics,. The majority of children born with hyperthyroidism is due to coming out of birth canal oddly and damaging the thyroid or a birth defect where a piece of thyroid is missing. Most of the children have low growth rates ,end up being over weight etc. My children have always been above 90 percentile for growth rate, both tall and both in great shape. But I did not want myself or my children on anything synthetic as I don’t believe in it. So began my journey. I am not going to list all of the different places that I have found knowledge and enlightenment on this but there is some excellent info out there. Chris Kesser, David Wolfe, there is a female doctor ( can’t remember her name right now) but also has a great article on thyroid . There are people who have even cured themselves of Hashimoto’s by lifestyle change and diet.For the past year I have been seeing a Naturopath and have been so pleased. Finally someone who right off the bat tested for antibodies . I have been on a naturall thyroid support and nothing else for over a year, This support is composed of iodine, selenium, bromine, L-taurine, zinc. to name a few. My Naturopath did want to get me on a desiccated but I asked him what would we do had I been vegan. So my levels have been good and I have been feeling great. My kids have been on desiccated and keep having their doses lowered , which is awesome. We have also been gluten free for 2.5 years now. Be careful on going GF , anyone out there considering, to buy quality products or even better make your own as there are some bad products out there giving GF a bad name. Anyhow 2 weeks ago I developed( or first time i noticed) a thyroid nodule. My Naturopath wants me to get an ultrasound and I will. Wanted to share what i have been doing to help remedy and it is shrinking. So putting drops of iodine in my large water and drinking sips thru out the day, drinking cut up ginger with boiling water once or twice a day, serrapeptease 6 a day and going to acupuncture twice a week oh and topically putting on apple cider vinegar on my neck. I have read a flax paste can also work. I always believe there is a way naturally. Modern medicine is amazing but to me should be more for emergency or surgeries. Anyway I have so much else to share on this topic, but honestly this is the first time I have on line. Thank you all for sharing your stories and keep up the good fight.

        Reply
    • Liz

      Debbie, you said you’re in MT, which city? I’m new to Billings and looking for a quality dr.

      Reply
  3. Melissa

    Thank you! I have a very large benign thyroid nodule that the doctors just wanted to cut out of me I did not feel right or comfortable with this. I have done alot of work finding the spiritual origins of my problem, this helps greatly but I need something else. I trust you are telling the truth and I’m going to try this, I will update my results!

    Reply
  4. yvonne

    hello
    I have been diagnosed with thyroid nodules and cysts and am newly diagnosed with hypothyroidism and started on Synthroid. Am interested where can I get the iodine supplement and if the selenium is miligrams and where can I find it also. thank you

    Reply
  5. yvonne

    hello
    I have been diagnosed with thyroid nodules and cysts and am newly diagnosed with hypothyroidism and started on Synthroid. Am interested where can I get the iodine supplement and if the selenium is miligrams and where can I find it also. thank you

    Reply
  6. Regina

    I’m brand new to all of this as of 1/21/2016.
    My PC called and gave me results of the sonogram that I have a thyroid nodule and they are referring me to a ENDO doctor. I Must say I am a scared. I have notice in the past 3wks since I first noticed the limo it seems to have gotten smaller or moved lower. Is this something that is common?

    Reply
  7. Joi

    I did have nodules, however mine ended up growing. Thyroidectomy in 2005 due to thyroid cancer (thyca). It’s good that you are being monitored. I pray that your ENDO doctor will do the correct labs. http://www.stopthethyroidmadness.com/recommended-labwork/. Continue to be your on best advocate. : )

    Reply
  8. Kim

    I was told I have 3 masses on my thyroid. They did a ultrasound and said it looks suspious and now I’m scared. So now they are sending to a Endo so they can run more test and possibly do biopsies on all 3 of them. I hear a lot about Iodine therapy and of course I am highly allergic to Iodine. Does anyone what happens when someone allergic to iodine and they say we need it ? I confused and very scared

    Reply
    • Janie Bowthorpe

      Hi Kim. I would recommend joining the FTPO THYCA group where you can get great feedback from others who have been in your shoes. Because you will get through this! It’s listed on this page: http://www.stopthethyroidmadness.com/talk-to-others

      Reply
    • Laura

      Hi Kim,
      I’m a Homeopathic/Herbalist/Nutritionist and I myself thought I was allergic to Iodine. Every time I took it, my breasts were very painful and my throat felt like it “closed up”. It wasn’t until I trained with a Naturopathic Nurse that she said, “Oh honey, you’re not allergic – you’re detoxing from bromine that is in soda, bread, water etc… that has displaced Iodine and taken up receptor sites in those areas.” She started me on teeny teeny tiny amounts of Iodine and it eventually went away. She also put me on Selenium. I think had I have done what Cheryl recommended, the Selenium FIRST, those symptoms would have been minimal. I don’t know if that is what you are experiencing, but I’m so glad I found out I wasn’t “allergic” – just detoxing! Hope it helps someone!

      Reply
  9. Lisa

    I am newly diagnosed with hypothyroidism and had an ultrasound revealing 4 complex nodules. One is 2.5 centimeters. I have an appt. with an endocrine surgeon for a biopsy and am scared to death. I have read several accounts of painful biopsies. I am also concerned about the one nodule being so large. I am currently taking compounded thyroid of t3 and t4.

    Reply
  10. Sara

    Hello, received PEI (percutaeous ethanol injection) on my thyroid nodule (over 70% cystic, large 5.7cm) over 6 weeks and have felt the nodule slowly decreasing until today, when I felt it may have increased in size. UGH. I am taking herbs from my acupuncturist, along w/magnesium, selenium, Vit D, fish oil and fermented cod liver. All of my labs are good, 4 benign FNA’s. Has anyone else actually decreased the size of their nodules/cysts? I’ve read a few studies about the effectiveness of different types of ablations (ethanol, RF, Laser), but have yet to read many testimonials. Any advice/thoughts would be so appreciated because I am so committed to saving my thyroid, and so terrified of having it removed (2 doctors have said to have it removed since it is so large – most likely a TT). Thank you!

    Reply
  11. Kath

    While having the Carotid artery testing (2011 and 2015) I was told both times that I had a large nodule on my thyroid. First time, I mentioned to my regular Dr. – and it was dismissed as nothing to worry about. Second, time different doctor – he suggested having a scan, then after that did the biopsy – no cancer- good news! However, This doctor said there were two large nodules and it could eventually cause issues in swallowing or breathing….so that is when I got really scared. I asked if he could refer me to a specialist. I just wanted the nodules removed! Little did I know that when he checked me over and suggested surgery – is when I found out that he would have to remove part of the thyroid in the process – and mentioned the risks involved – and I really didn’t like what I was reading on the internet – totally screwing up your metabolism, etc. Now, since my thyroid is fine -it is not overactive or under – just the nodules that the specialist told me would most likely continue to growth…so in my search for other options – is how I found your article. It sounds like I would only need to take the iodine supplements…any suggestions? I really don’t want to have part of my thyroid removed!

    Reply
    • Janie Bowthorpe

      All we know is that many have reported shrinking their thyroid nodules with either an optimal amount of natural desiccated thyroid or the way the author of this blog post did.

      Reply
  12. Maria

    Hello,I am confuse about this. I have thyroid my biopsy is done and my ultrasound…I am very scared about this and I don’t want the operation I want to take medicine for this thyroid.its impossible for take medicine for this benign thyroid? I hope I got the answer…my partner he ask my specialist doctor he ask what is the result said benign but I want to know what I gonna do I am really scared and I don’t know I am dizze sometimes and my hair problem..thank you

    Reply
  13. Maria

    If benign its is cancer??? My result my GP but my partner he call my specialist said benign I am really confused about this.thank you.

    Reply
  14. Maria

    Yeah, the doctor said benign but what is the next janie? I want to take medicine for this? I feel pain on my neck and sometimes hard me to breath and my hair fall…I am scared of this and I am dizze.thank you.

    Reply
  15. Saz

    Hello, I had an ultrasound can in August 2015 and it showed a 0.5cm nodule on the left and a 3.2cm nodule on the right side of the thyroid. But the one on the right grew bigger during the last stage of pregnancy in January so my Gp referred me to see an endocrilogist and he sent me for a scan and to have FNA. The scan showed the nodule on the right is now 5cm. It’s really big and noticeable. The biggest discomfort is muscular pain, I have so much pain on my right shoulder and arm. And sleeping is a bit uncomfortable when I have cold/ sore throat I can’t even breath it feels like I’m getting strangled. Anyways it has been 3 weeks since I had my biopsy and the result is not back yet and I’m really scared. Any advice would be appreciated

    Reply
    • Adriana

      Hi Saz,

      Three weeks is a long time to wait. Can you call your doctor on Monday and ask about it? I definitely would. With your pain in your shoulder and arm, it sounds like it is causing some nerve impingement. I know that is really painful. Have you seen an acupuncturist? That can help. Once the nerves get irritated it can take them a while to calm down. I can also totally relate to the sore throat and feeling like you are being strangled. I could barely eat food without choking for 3 years and oftentimes woke up gasping for breath before I had my thyroid removed. I found that sleeping on my side was best for me. I wish I could give you magical advice. Just know that I had my thyroid removed 11 years ago and I am doing great. I have had rough patches, but getting my thyroid removed was one of the best things I ever did. Luckily you found STTM and can get the support you need no matter what happens. Hang in there and know that a lot of us have been there and were very frightened as well. Just take one day at a time and reach out when you need to hear some encouragement. We will be here for you! You are not crazy, and it’s normal to be afraid, and everything is going to be OK.

      Reply
      • Saz

        Thank you Adrina and Cathy for your advice and encouragements. It has been 7-8 weeks now I called the hospital about the FNA result they didn’t tell me so I went to my GP and he said its benign that’s why they haven’t contacted you and about the shoulder pain he said holding your baby is the main cause of it you need to rest your arm as much as you can. I asked him to send me for a neck scan he said no there’s no point. I have a 4 months old baby he wants to be held all the time i try not to hold him but he cries so much and he doesn’t stop. I asked him to check my t3 and t4 because I kept thinking I had hypothyroidism he said no way we won’t check it, i got really angry and just left. I came home and found a private Gp, I went and did the blood test for hyperT and hypoT and it came back normal and about the shoulder pain he said it could be an inflammation so he prescribed Diclofenac Sodium but when I took it I had very high temperature and stomachache so I stopped taking it. Since yesterday I have started taking Higher Nature Thyroid Support Supplements, each capsule contains 30mg of iodine and selenium. I have started with one capsule then I will increase it to two capsules a day from next week I just hope it helps shrink the nodule a bit. My endocrologist’s secretary said they will see me in 6 months time they just want to wait and see what happens. I live in UK, LEEDS. My Gp and endo are both useless they don’t do anything, if I could afford I would’ve done the surgery at a private hospital. Now I have no choice but to wait for them 🙁 again thank you both for your responses I really appreciate it

        Reply
    • Cathy

      Hi Saz,
      I’m so sorry you are going through this. You should have gotten your results on the FNA by now. Where are you located? Perhaps you should make an appointment with an endocrine surgeon or an ear, nose and throat surgeon to have your thyroid removed instead of waiting on the FNA results. I had a 2.7cm nodule that was also choking me and had taken on a life of it’s own due to it’s own internal vascular flow. I couldn’t swallow, breathe and could barely speak because of the location. I went to one of the best endocrine surgeons in the US at one of the leading cancer centers even before I knew it was cancer and she recommended removing the side of my thyroid the nodule was on. While in surgery she found a second smaller nodule on my isthmus and removed it as well. Then the pathology came back as cancer and I had to go back to have the other side removed. With the size of your nodules and the issues they are causing I would go ahead and have a complete thyroidectomy. On another note, while I had symptoms of being both hypo and hyper with normal TSH, I did not have shoulder pain and problems until a year after my last surgery. Turns out I developed impingement syndrome as well as frozen shoulder. This could be what is happening to your shoulder and arm. I know it is the worst pain I’ve ever had including worse than childbirth without an epidural. You might want to see an orthopedist about your shoulder just to be sure you aren’t experiencing something similar. There are many thyroid cancer support groups on Facebook which you can join even if you don’t yet know if you have cancer. Good luck and hope you get better soon!

      Reply
      • Saz

        Thank you Adriana and Cathy for your advice and encouragements. It has been 7-8 weeks now I called the hospital about the FNA result they didn’t tell me so I went to my GP and he said its benign that’s why they haven’t contacted you and about the shoulder pain he said holding your baby is the main cause of it you need to rest your arm as much as you can. I asked him to send me for a neck scan he said no there’s no point. I have a 4 months old baby he wants to be held all the time i try not to hold him but he cries so much and he doesn’t stop. I asked him to check my t3 and t4 because I kept thinking I had hypothyroidism he said no way we won’t check it, i got really angry and just left. I came home and found a private Gp, I went and did the blood test for hyperT and hypoT and it came back normal and about the shoulder pain he said it could be an inflammation so he prescribed Diclofenac Sodium but when I took it I had very high temperature and stomachache so I stopped taking it. Since yesterday I have started taking Higher Nature Thyroid Support Supplements, each capsule contains 30mg of iodine and selenium. I have started with one capsule then I will increase it to two capsules a day from next week I just hope it helps shrink the nodule a bit. My endocrologist’s secretary said they will see me in 6 months time they just want to wait and see what happens. I live in UK, LEEDS. My Gp and endo are both useless they don’t do anything, if I could afford I would’ve done the surgery at a private hospital. Now I have no choice but to wait for them 🙁 again thank you both for your responses I really appreciate it

        Reply
  16. Teresa

    I have had antibodies for 13 years and no medication. I recently had an ultrasound and they found my thyroid was multi-nodular and I had 2 nodules. They biopsied those and they were benign. I am going to try the selenium/iodine to shrink the nodules on my own, because the doctor still won’t put me on any medications because my other levels are within normal range. They also told me the biopsy revealed I didn’t have Hashimotos. How can I have antibodies, but not have Hashimotos? I’m confused….

    Reply
  17. Gailen

    I have goiter and nodules low antibody for Hasi, which was 11.Told it was nothing.Ferritin a 9 and iron labs high.Ths, around 1.75 .I am currently taking a supplement of selenium and iodine and bvitimans.Vitamin is low too.

    Reply
  18. jo anne wooldridge

    I had low thyroid but now I have high t3 (5.3) with normal t4 (1.4), tsh 0.1. Endo says I have 2 nodules that appeared within 2 years of last ultrasound. I read read read and I swear I think I have Hashi’s but how do I get a doctor to treat me if the TSI (100) etc are not screaming at them? I live in backwards AZ. I have seen Dr. Alan Christianson who is supposed to be all that and several others but were not all that. My saliva cortisol has tested high at times and low at others…most recently (6.4. 6.9, 2.3, 0.7). I’ve been on everything you ever mention. I’m sure there’s adrenal dysfunction as well. I think the past therapies have not worked because it’s like an orchestra without a conductor, too much stuff going on without an expert leading the way. I’m exhausted (not just tired) and in pain (muscle, joint pain…fibromyalgia they say) and frustrated… 8 years of this is too much. What do you do when what we read in STTM is in line with what we think, feel and our symptoms and tests (oftentimes who according to “they” but not STTM and more insightful thinkers) but doctors poo poo it? HELP 🙁

    Reply
  19. May

    I found a big tyroid nodule 2.3cm in the middle and 2 small one on the right tyroid gland and doctors advise that the ultra sound shows a benign nodule and it is up to my decision to do a biopsy. the next appointment is fixed 6 month later. i am so worry and not sure if i should wait or insist for biopsy. I am confused.

    Reply
  20. Anurag Malhotra

    Hi, i am having a thyroid cyst on my right thyroid which was almost covered , my T3,T4 and Tsh are normal and don’t have any problem in breathing or swallowing , via FNAc it is cleared that it is benign but still my doctor asking me to have a surgery :(,
    i am doing some yoga and natural treatment from last 4-5 months but with no effect,
    Please guide me how am i able to dissolve it completely as i don’t want to undergo a surgery ,
    Hoping for your valuable resopnse
    thanks in advance 🙂

    Reply
  21. Korin K.

    Looking for a little advice. Was diagnosed in February with bi-lateral thyroid nodules through ultrasound, both measuring under 1 cm, solid and vascular. My primary doctor (internist) told me they will monitor them and repeat the ultrasound in 6 months (August). I don’t really like this whole sit around and wait approach. They tested my TSH levels and told me they were all in the acceptable range. I would like to try natural supplementation, but don’t see a lot of people who have nodules without some other thyroid diagnosis. Would I follow the same approach that you did, Janie? If so, should I pursue it in the same amounts.
    I was told by my doctor that nodules are common and most people never know they have them. I have yet to many anyone who has them, besides finding people online. Are there people who live with nodules for years and years? It seems like most people online end up with some type of thyroid cancer.
    Thank you!

    Reply
    • Janie Bowthorpe

      Well, I hate to give “advice” as I’m not a doctor. But I can tell that yes, it’s pretty common to have nodules, we notice, and no, it’s not common for them to be cancerous, even if for some, it happens. I just know if your situation were mine, I’d try the iodine protocol since it’s helped some people to shrink nodules. And I’d do the Companion Nutrients ahead of time. So I’ll let you decide. Oh, and I would NOT let a doctor go by the lousy TSH, unless there was suspicion of hypopituitary.It’s the free T3 and free T4 that count, NOT the TSH, when figuring out hypothyroidism and/or dosing. http://www.stopthethyroidmadness.com/tsh-why-its-useless

      Reply
  22. Korin K.

    Do you need a doctor to prescribe Armor or something similar? Are there better brands of Selenium?

    Reply
  23. Amber DeBirk

    I was just at my annual physical and my GP felt a lump on my right side thyroid. I was sent in for an ultrasound and I have 4 nodules, 3 on my right and 1 on my left. Two on my right are 1.96 cm and 2.25 cm. They want to do needle biopsies. My thyroid blood work is normal. Is that weird? I am obviously afraid of a cancer diagnosis. I already had selenium and just got some kelp iodine drops. Any words or thoughts on the normal blood work with the nodules? Just super scared. Thank you.

    Reply
  24. Aiga

    HI! I have noticed a lump in my throat and usg approved that it is thyroid nodule 3cm, I did blood tests and my thyroid serum tsh level is 0.81 which they say is absolutely fine. \now GP suggests to do biopsy and do the surgery just because it`s too big and cannot risk.I`m scared as hell…is there anything else I can do to make it shrink???Already though to start drinking selenium and iodine, but not sure how much I can and must drink.A few drops desolve in water. Hope anyone can suggest me something. Thanks

    Reply
  25. Ana

    Hello!!

    I have multiplie and big thyroid nodules I have been taking lugol and selenium for about 6 months and I went to the doctor today and she said, that just only one have srink (the liquid one the solides are with same size ) ! My thyroid levels ar considered ok! Am I doing something wrong ? Thanks

    Reply
  26. Aiga

    i started to take selenium and iodine as tablets sea kelp 1% I`m taking 3+1 selenium 200microg. How can you know if you`re taking enough iodine?

    Reply
  27. Lucy

    My complex thyroid nodule was nearly 40mm long and benign. I ‘decided’ to shrink it through diet and a bit of ‘mind over matter’ thinking. Last year it was 26mm long, and this morning it was 15mm long. 🙂

    Reply
    • Jeanne

      Hi Lucy, I have a large (indeterminate, class III/IV on FNA) nodule that I hope can be managed without surgery…can you share wjat worked for you? Thanks!

      Reply
  28. Dante

    I have read through this very informative string of post and wish each of you success in your quest for better health.

    One thing I didn’t see in all of these posts, was any mention of a hyper-functioning, or “HOT” nodule. It is my understanding that iodine is not recommended for this, and will cause major issues.

    Has anyone been diagnosed with a “HOT” nodule? And if so, is there a natural way to resolve them?

    Your feedback is much appreciated.

    Dante

    Reply
  29. Karly

    I love your description of the biopsy process. Knowing exactly what to expect can help ease your nerves! If anyone would like a more in-depth look at what happens during a thyroid nodule biopsy appointment, please check out this video: https://www.youtube.com/watch?v=VTkdsUzUl0Y
    This animation walks viewers through what to expect during the procedure.

    Reply
  30. Ethel Lang

    Dante posted a question June 8 which I too would love an answer to.
    I also have large, hot, benign nodules. Untreated sub-clinical hyperthyroidism (low TSH, in range Free T4 & Free T3) Strongly advised by two Endo’s to have TT due to size, pressure and position (one nodule below sternum.) Taking Iodin is not an option due to having hyperthyroidism. Anyone else in the same boat or have a suggestion or answer? Thank you in anticipation.

    Reply
    • Janie Bowthorpe

      You know, you might want to seek feedback from others who may have been through the same thing in this group: https://www.facebook.com/groups/FTPOWithoutAThyroid/ Anyone who has might be able to give you good things to consider, I’m thinking.

      Reply
    • Alice

      Just today, I saw a site in which a lady shrunk her nodules using modified citrus pectin, zeolite, and Reishi mushroom supplements on a naturalnews.com site. titled “Woman shrinks thyroid nodules with pure nutrition not meds.” I haven’t researched this association as to whether the protocol was actually the cause of the shrinkage and what factors might be involved. I noted a few years ago that MCP altered the ability of cancer cells to adhere to sites in the process of metastasizing and Reishi had a similiar effect. I think zeolite is a clay.

      Reply
  31. Pearl Anderson

    I just discovered this site, I have had a goitre for over 10 years, which presented when I went through menopause. I have consistently refused surgery believing that I would find a natural cure. Here’s hoping. I tried to join the Australian group as this is where I now reside, and have had no reply from the group as yet. I am scheduled for a total thyroidectomy this year against my better judgement. I am starting to research your various sites, and would like to contact others who are working on shrinking their nodules. Much appreciated.

    Reply
  32. Teresa

    Is Kelp a good source? I have several nodules I want to see if they will shrink.
    The Kelp gelatin capsules contain:
    Iodine 360 mcg,
    Sodium 35mg,
    Kelp (whole thallus) 600 mg.

    Reply
  33. JK

    I’ve been reading this article with interest. I’ve had thyroid problems over the last 12 years – first diagnosed with both Graves and Hashimotos (still not clear how that is possible). Was initially noticeably hyperactive. Had the left thyroid removed a decade ago due to some suspicious nodules, and my thyroid hormone levels (at least the TSH) have remained pretty stable and normal during that time (it hovers around 1). However, in the last 6 years or so, the right lobe has increased in size (it’s noticeable when you look at me, and the measurements from ultrasounds confirm this) and I have a very large benign nodule on it. It was biopsied two years ago and found to be benign, and it is continuing to grow a bit.

    So here’s the thing. I don’t really want surgery to remove it, however, it is getting to the point where I can feel it occasionally when I swallow (I am convinced the thyroid grows and shrinks at will on a monthly basis). The doctors don’t want to put me on any medication because my levels are fine (and honestly, I feel fine – if anything, I think I still feel a little more hyper than hypo – I definitely do not want to be MORE hyper). So I have been taking selenium for the past two weeks since seeing this article. I wonder if it will work (will try to remember to post back if/when I have another ultrasound).

    I feel like it’s kind of annoying that there appears to be so little understanding in the medical profession of why these things grow and ways to stop it! I would be totally fine having a benign thyroid nodule as long as my thyroid wasn’t also growing and causing occasional discomfort!

    Reply

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