thyroid disease tags

Michelle, 40-or-50-something, came over to my house today to go over some paperwork. I hadn’t taken my Armour yet, and I said “Excuse me, I need to pop my thyroid meds under my tongue.”

“Oh, I take thyroid meds, too.  Synthroid” she explained as she was writing on the papers with her pencil.

Now when I hear something like that, being who I am, I’m like a bear in a china cabinet who suddenly smells honey.  So as not to overwhelm,  I casually say “Oh, I used be on Synthroid.” And after a long pause while we are going over the paperwork, I say “Did you know there’s a worldwide patient revolution going on against medications like Synthroid?”

At the point, she raises her head in curiosity.

I then stick my paw in the honey: “You and I and millions have been put on meds like Synthroid and then told we are “normal” because the TSH says so. But all of us have continuing symptoms of hypothyroidism.  It’s a lousy medication. “

And when I laid out what those continuing symptoms were, her eyes got as big as saucers and she was shaking her head up and down in recognition. “Depression, rising cholesterol and blood pressure, easy weight gain, fatigue, less stamina than others, dry hair and skin, feeling cold, etc”, I told her.

And the most profound aspect of Michelle? She lives her life like the Energizer Bunny, going and going and going. She told me she often doesn’t get home until 6 pm doing her job, and she clearly has a lot of professional responsibilities.

But does an active Michelle mean that Synthroid works and is just as good a thyroid treatment as desiccated thyroid? You know the answer. She revealed that she’s quite tired when she comes home, wishes she had more energy, and still has issues with her weight, even though she lost some when she got on Synthroid.

And reading between the lines, it was clear that Michelle is probably on an anti-depressant, a statin, and a blood pressure medication.  And…she clearly has an adrenal problem that’s only going to get worse. She has a terrible time falling asleep at night (high cortisol), and is very sensitive to light and noise (high or low cortisol).

Suddenly it dawned on me. I am sitting across hundreds of millions of women, and some men. I am listening to how millions live their lives–making a living, maintaining a home, loving their spouses and children, interacting with people.  But underneath it all, it’s not a pretty picture. They cope, and they cope again.  And they dish out their money for more medications to treat the very symptoms caused by an inferior medication. And as they age, they’ll pay each of their millions of prices, just as my mother did, and as I was headed.  Energizer bunnies with faulty batteries.

P.S. Barack Obama has a health care reform plan. Will it change the lives of those 50 million with thyroid disease in the US, or will it only continue this T4-only travesty and health care scandal?  Are we headed in the same insane direction as the UK when it comes to T4-only?  Express your opinion.

In the magazine India Today, it’s estimated that there are at least forty million individuals with thyroid disease, according to Dr. Ganapathi Bantwal, faculty member of the Indian Thyroid Society (ITS) and Professor and Head of Department of Endocrinology, St John’s Medical College, Bangalore.

He adds that most are women, and most hypothyroidism is occurring after the birth of a baby, called postpartum hypothyroidism.

The Indian Thyroid Society wants to observe January 2009 as Think Thyroid Month with experts calling  thyroid related disorders as the next diabetes to affect the nearly forty million Indians.

A side note from Janie: Sadly, when you visit the website of the Indian Thyroid Society (which by the way was created by the Department of Endocrinology at Amrita Institute of Medical Sciences in India), there is a flashing ad on most pages for thyroxine called Thyronorm. And guess who makes “Thyronorm”? Abbott Labs in India, the same pharmaceutical in the US which produces Synthroid.  Anyone hear the theme song from Twilight Zone playing in the background??

Cuz it ain’t the one WE live on, dah’ling.

For a few years now, patients have repeatedly written the Oprah show, begging her to address the thyroid scandal of decades of T4-only medication and the lousy TSH lab, both of which have left MILLIONS of patients with lingering hypo symptoms while our doctors proclaimed we were NORMAL…and about a FAR better treatment called natural desiccated thyroid and dosing by symptoms, NOT the TSH.

And when she finally has a program which somewhat addresses the thyroid issue this week, she allows her hallowed guest, Dr. Christiane Northrup, to state “your symptoms are actually your soul’s way of bringing deeper issues to your attention.” Hogwash! And thyroid patient Mary Shoman has rightly proclaimed that “thyroid disease is NOT your fault, despite what Dr. Northrup says.”

But the issue goes even further. Oprah implies, by her own experience, that taking a month vacation and eating fresh foods is enough to make one well from thyroid disease?? Double hogwash! Thyroid patients seek to live some of the healthiest lifestyles there are. All you have to do is observe the conversations in most any internet thyroid patient talk group, and you will see daily posts on the best supplements to take, healthiest foods to eat, and best ways to de-stress our lives. We are overall a VERY educated group of patients about health, and we practice it. We HAVE to be in light of how poorly educated most of our doctors are about our thyroid disease. And in spite of all the above, our thyroid condition persists.

What has CHANGED our lives is leaving the scandal of T4-only treatment in the dust, and learning about desiccated thyroid like Armour, switching to it, and dosing according to the elimination of symptoms, NOT simply labs. We have also faced the fact that at least 50% of us have adrenal fatigue, which leaves us impatient and angry, with headaches and body aches, chronic back pain and body aches, a loss of passion, and sleep issues. And we have tread new ground in our knowledge on how to treat it, when many of our doctors pooh-pooh the reality of adrenal fatigue.

I love ya, Oprah, as do millions of women out there. But taking a month vacation and eating fresh foods does NOT cure our thyroid disease. So time will tell what went on with you! So now, all we can do is hope eternal that Oprah will get on the planet that the rest of us live on, and help us to spread the word as to why millions of thyroid patients have been suffering and about a far better treatment. If you can continue to have persistence, you can email her here. STOP the thyroid madness!

P.S. Go here to read thyroid patient Anna’s humorous experience with following the same kind of advice given on Oprah’s show.

….if you will take the time to read here of what thousands of patients have found out about the medication you will PROBABLY be put on, and about the lab you will PROBABLY be dosed by.

For those who haven’t heard, Oprah announced on September 10th during her Good Morning America interview that she “blew her thyroid out”. Now that also sounds suspiciously like she also has adrenal fatigue, but time will tell.

And Oprah will now join the club of an estimated “billions” worldwide with thyroid disease. But even worse, she may also be joining the club of those who for nearly 50 years, have been put on the lousy T4-only medications (Synthroid, Levoxyl, Levothyroxine and others) and who have been terrorized with the TSH lab and it’s dubious and pathetic “normal” range.

Yes Oprah, beginning in the 1960′s, doctors starting putting ALL of us on T4-only meds, and in the early 1970′s, dosing by the TSH lab. And NEITHER have worked. Sure, some will state they felt better. But many will tell you that NOTHING changed. And ALL, to one degree or another, have been left with a variety of hypothyroid symptoms while doctors have been proclaiming that those VERY symptoms had nothing to do with hypothyroid since we were now “adequately” treated.

But we have NEVER been “adequately” treated, Oprah. Doctors became cattle in the chutes of their pharmaceutically-financed medical schools, blindly believing that T4-only meds were working and that the man-made TSH was the gold standard of diagnosis and dosing…and ignoring clinical presentations which showed the opposite.

And when we still complained of symptoms, we have been put on anti-depressants, statins, anti-anxiety meds, and a variety of other pills to bandaid our continuing hypo symptoms.

And we finally fought back Oprah. For the last 7+ years, patients like myself found out that there has always been a MUCH better treatment (desiccated thyroid), MUCH better labs (free T3 and free T4) and much better dosing strategy (by symptom elimination). Our lives have become far better because of what we have learned.

This website represents the knowledge of a large and constantly growing body of patients worldwide, and some wise doctors, which goes totally COUNTER to nearly 50 LOUSY years of pitiful thyroid treatment.

You, Oprah, are a megaphone of influence. And if you can take the time to read this website, you might play a huge role in helping to change MILLIONS of lives. Because right now, the vast majority of the medical community does NOT get this, and is continuing to keep patients SICK and TIRED and/or with continuing hypothyroid symptoms of some kind. And YOU are going to be one, with your own continuing list of symptoms, if you don’t consider what thyroid patients are trying to tell you by nearly 50 years of LIVING it.