adrenal fatigue tags

As a thy­roid patient who was pro­foundly har­med by the use of Synth­roid and Levoxyl in the treat­ment of my hypothy­roi­dism, and as an acti­vist who sees this same harm­ful truth with poten­tially millions of other patients, I find this recent news interesting.

But you gotta won­der if they will be wea­ring noise reduc­tion head­sets and ear plugs…or not…when it comes to the scan­dal of synthe­tic T4-only medi­ca­tions.  Will they?

Just today, the U.S. Depart­ment of Health and Human Ser­vi­ces and the Food and Drug Admi­nis­tra­tion (FDA) announ­ced the Safe Use Ini­tia­tive, “a pro­gram aimed at redu­cing the like­lihood of pre­ven­ta­ble harm from medi­ca­tion use”.

Sta­te­ments I glea­ned from this ini­tia­tive include:

1. Today, tens of millions of peo­ple in the Uni­ted Sta­tes depend on presc­rip­tion and over‐the‐counter (OTC) medi­ca­tions to sus­tain their health — as many as 3 billion presc­rip­tions are writ­ten annually. Too many peo­ple, howe­ver, suf­fer unne­ces­sary inju­ries, even death, as a result of pre­ven­ta­ble medi­ca­tion errors or misuse.

2. Although FDA and many other sta­kehol­ders have been wor­king to improve how the health­care sys­tem mana­ges medi­ca­tion risks in the Uni­ted Sta­tes, it is widely recog­ni­zed that more needs to be done to pro­tect the public from pre­ven­ta­ble harm from medi­ca­tion use.

3. Medi­ca­tions offer great bene­fit, but they come with risks. Whe­ne­ver medi­ca­tions are not used opti­mally, risks of harm can inc­rease significantly.

4. FDA pro­po­ses to iden­tify, using a trans­pa­rent and colla­bo­ra­tive pro­cess, spe­ci­fic can­di­date cases (e.g., drugs, drug clas­ses, and/or the­ra­peu­tic situa­tions) that are asso­cia­ted with sig­ni­fi­cant amounts of pre­ven­ta­ble harm.

This ini­tia­tive is actually far broa­der than what I glea­ned above, and also invol­ves self-abuse, expo­sure of dan­ge­rous medi­ca­tions to chil­dren, dire side effects, and more. Five areas are also spe­ci­fi­cally tar­ge­ted:  Con­su­mer medi­ca­tion infor­ma­tion (CMI), Medi­ca­tion dosing devi­ces, Ace­ta­mi­nophen toxi­city, Alcohol-based sur­gi­cal preps, and Medi­ca­tions in vials. You can read more in the fact sheet.

But if the FDA is going to do their job with this ini­tia­tive, or do their job ove­rall, you have to won­der if they will lis­ten to and inc­lude the pro­blems asso­cia­ted with being trea­ted with a T4-only medi­ca­tion as expe­rien­ced by millions of patients world­wide. Con­ti­nuing symp­toms of hypothy­roi­dism while on this ina­de­quate treat­ment is wides­pread and dama­ging for many, cau­sing hands reaching deep in poc­kets to pay for nume­rous doc­tors appoint­ments, besi­des anti­de­pres­sants, anti-anxiety meds, blood pres­sure meds, sta­tins, cor­ti­sol meds for adre­nal fati­gue, and other medi­ca­tions which we would have never nee­ded, and would have been pre­ven­ta­ble, if we had been on natu­ral desic­ca­ted thy­roid like Natu­reth­roid or Westh­roid in the first place.

Many patients on thy­ro­xine, T4-only medi­ca­tions will also report actual hos­pi­tal visits due to the side effects of a poor treatment.

In other words, thy­ro­xine aka levothy­ro­xine aka T4 treat­ment has been an unsafe and harm­ful treat­ment, cau­sing millions to suf­fer unne­ces­sary inju­ries and side effects for over 50 years of its use­less and popu­lar use.  It fits the Safe Use Ini­tia­tive. Or at the very least, it calls for the FDA to lis­ten to patient expe­rience with this lousy choice to treat hypothy­roi­dism.

Lis­ten to us, FDA. Lis­ten and be wise.

P.S. See the blog post below about a gene­tic rea­son why so many do lousy on T4.

*Want to be infor­med of these ‘fringe web­site’ blog posts?  Curious what’s on radi­cal Janie’s mind? Just use the Noti­fi­ca­tions on the left below the links.

* The extre­mely hip and sophis­ti­ca­ted STTM t-shirts are half price! I love sales!

* Pre­fer STTM in book form with more detail? You can read about it here.

*Need options for thy­roid treat­ment during the current shor­ta­ges due to demand being grea­ter than supply? Go here.

Just when you think we’re full of great infor­ma­tion for bet­ter thy­roid care, there’s still more to learn and find out.  Below is infor­ma­tion that you might find inte­res­ting on STTM.

ADRENALS: For those who dis­co­ve­red via the 24 adre­nal saliva test that they nee­ded cor­ti­sol sup­port, we have come to rea­lize that some can’t do the ram­ping up sche­dule from a small amount to a lar­ger amount without having pro­blems from the feed­back loop.

Ins­tead, many simply need to “start” on the higher amount, which would range from 20 – 30 mg. You can read about that on the How to Treat page, and you’ll note that not one mor­ning amount goes higher than 10 mgs.  With the excep­tion of men, higher than 10 mg seems to sup­press the ACTH and adre­nals too much.

A NEW LOOK: To make the STTM home page more unders­tan­da­ble to new­co­mers, the home page has bro­ken down the infor­ma­tion bet­ter into sepa­rate pages, and also has a new inte­res­ting way of using it.

LISTEN TO THIS INFORMATION: STTM has short audio clips you can lis­ten to, or send someone else to, to help unders­tand what this is all about.

STORIES OF OTHERS: Indi­vi­dual real-life sto­ries con­ti­nue to come in, pro­ving over and over that this revo­lu­tion for far bet­ter care really does work.

FEEDBACK and MORE FEEDBACK: I get emails daily about lives chan­ged thanks to this patient revo­lu­tion. It’s won­der­ful to see peo­ple fin­ding out WHY they have depres­sion, less sta­mina than others, rising cho­les­te­rol and blood pres­sure, hair loss plus other lin­ge­ring symp­toms of  hypothy­roi­dism left untrea­ted because of the lousy TSH, or under­trea­ted because of the equally-lousy T4-only treat­ment like Synth­roid. I can’t begin to post them all, but STTM does con­tain a sam­pling of this feed­back.

DESICCATED THYROID BRANDS: Wow, the list is gro­wing for desic­ca­ted thy­roid brands around the world! We now have lis­tings for Den­mark, Ger­many, Italy and New Zea­land, as well as more detai­led infor­ma­tion on com­poun­ded thy­roid in Aus­tra­lia. Thanks to all who contributed.

KEEPING UP WITH ADDITIONS TO STTM: In case you didn’t know, there’s a page meant to inform you of what’s added to STTM. I may neglect to list a few addi­tions occa­sio­nally, but think I’m pretty close to get­ting most of them up there.

MEDICAL RESEARCH TO PROVE WHAT WE ALREADY KNOW: Did you know that STTM has a page which com­pi­les research and stu­dies which prove what we as patients already know? It’s not loa­ded with research yet, but it’s gro­wing. And if you have found more to con­tri­bute to that page, use the Con­tact Me form.

SITE MAP: And bot­tom line, you can always go to the Site Map, or review the infor­ma­tion more com­pactly in the book, which patients are taking into their doc­tors offices.

*Want to be infor­med of these blog posts? Curious what’s on Janie’s mind? Use the Noti­fi­ca­tions on the left at the bot­tom of the links.

*Stop the Thy­roid Mad­ness T-shirts are now 50% off! I like sales, don’t you? And by wea­ring these shirts, you’ll never know what seed you put in the mind of someone wal­king past you who’s still on Synth­roid or any other T4 meds, and doesn’t know WHY they have depres­sion, rising cho­les­te­rol, easy weight gain, the need for naps, etc. You”ll also find humo­rous bum­per stic­kers which defi­ni­tely spread the word.

Louis Nei­pris, M.D., a staff wri­ter who has writ­ten many fine artic­les for myOptumHealth.com, recently wrote one article tit­led Adre­nal Fati­gue: Is it for real? It appea­red on Upper Michi­gan News, TV 6 web­site on July 16^th and is making the rounds on other sites. His ans­wer to his own ques­tion?  “Not really”. He adds  “it’s not an accep­ted medi­cal diagnosis.”

Oops.

Dr. Nei­pris, thy­roid patients all over the world beg to dif­fer, as do a gro­wing body of collea­gues in your pro­fes­sion. Adre­nal fati­gue, aka low cor­ti­sol, has been dis­co­ve­red on the back of a huge body of thy­roid patients, wea­ring them down with  irri­ta­bi­lity, anxiety, sha­ki­ness, fee­ling dizzy or lighthea­ded­ness, sleep issues, swea­ting, salt cra­ving, nau­sea in the face of stress, and a host of other symp­toms uni­que to each indi­vi­dual with adre­nal fati­gue. My per­so­nal obser­va­tion, as a thy­roid patient acti­vist, is that up to 50% of millions of thy­roid patients all over the world, may have adre­nal fati­gue, or at the very least, a slug­gish feed­back loop.

Even worse, the wides­pread occu­rrence of adre­nal fati­gue, espe­cially in thy­roid patients, has cau­sed pro­blems when they try rai­sing a far supe­rior thy­roid medi­ca­tion called desic­ca­ted thy­roid. Because cor­ti­sol is nee­ded to faci­li­tate the move of thy­roid hor­mo­nes from the blood to the cells, the direct T3 in desic­ca­ted thy­roid pools in the blood, cau­sing low-cortisol-induced hyper symp­toms like a poun­ding hear­trate and irri­ta­bi­lity. The first-pass treat­ment then has to start with hydro­cor­ti­sone like presc­rip­tion Cor­tef from their doctors.

Why have such a large body of thy­roid patients found them­sel­ves with adre­nal fati­gue and its low cor­ti­sol? It’s clear. The TSH lab test sucks, giving one a “nor­mal” rea­ding for years in spite of obvious cli­ni­cal pre­sen­ta­tion of hypothy­roid symp­toms, and pushing one’s adre­nals into over­drive with high cor­ti­sol and adre­na­line to keep the patient going, and ulti­ma­tely lea­ding to adre­nal fati­gue.  On page 65 of the Stop the Thy­roid Mad­ness book, you’ll read about a 44 year old woman who went 15 years with a “nor­mal” TSH result, in spite of obvious cli­ni­cal pre­sen­ta­tion of hypothy­roi­dism, and which led to her own low cor­ti­sol. This is not uncommon.

Second, the risk of adre­nal fati­gue is high due to the ina­de­quate treat­ment of T4 medi­ca­tions like Synth­roid, Levoxyl, levothy­ro­xine, Eltro­xin and other T4-only meds. They all leave patients with their own brand and inten­sity of lin­ge­ring symp­toms of a poor treat­ment, for­cing the adre­nals to kick in too long for many.

Even William Mck. Jef­fries MD., who wrote the medi­cal clas­sic Safe Uses of Cor­ti­sol around 1984, unders­tood the pre­pon­de­rance of adre­nal fati­gue even without the diag­no­sis of Addison’s, and the need for phy­sio­lo­gic doses of cor­ti­sol treat­ment, or the amount nee­ded by each indi­vi­dual.  And he would cer­tainly be ama­zed by the explo­sion of adre­nal fati­gue that has occu­rred since then in thy­roid patients thanks to the lousy TSH and synthe­tic T4-only ‘affaire de coeur’ with doctors. 

Adre­nal fati­gue may not be an “accep­ted diag­no­sis” by many.  But medi­cal pro­fes­sio­nals and doc­tors who think it’s not real or an accep­ta­ble diag­no­sis will have to face a huge body of patients glo­bally who DO have real live adre­nal fati­gue. And adrenally-fatigued patients can get realllllly hos­tile and angry because of low cor­ti­sol, and be very impa­tient when you deny their rea­lity.  (You’re going to see a lot of com­ments to this post which I highly sug­gest reading.)

P.S. Even desic­ca­ted thy­roid like Natu­reth­roid and the pre-reformulated Armour are not con­si­de­red to be the stan­dard of prac­tice for trea­ting hypothy­roi­dism, yet thy­roid patients all over the world are having lives CHANGED thanks to it.

***Want to be infor­med of my blog posts? Curious what’s on my mind? Use the Noti­fi­ca­tions to the left and right below the links.

***Read below why thy­roid patients are not happy with Armour and switching to brand names like Naturethroid. 

As the “newly” for­mu­la­ted Armour desic­ca­ted thy­roid pills, made by Forest Pharmaceuticals/Laboratories, have been hit­ting the mar­ket, so are com­ments coming out from some thy­roid patients…and they are not in the least complimentary. 

The rea­son that Armour had been favo­red by so many thy­roid patients among all the desic­ca­ted thy­roid brands is the abi­lity to take it sublin­gually.  Sure, Armour was never offi­cially made to be taken sublin­gually, but it worked.

Sublin­gual refers to the admi­nis­tra­tion of a medi­ca­tion via the millions of tiny capi­lla­ries that line your mouth and mucous mem­brane. The pill was pla­ced under the ton­gue and allo­wed to dis­solve – most of it ente­ring the body directly via your sublin­gual glands, and only a small amount swallowed.

Some patients who switched from swa­llo­wing to sublin­gual noti­ced the dif­fe­rence, too.

But the beauty of sublin­gual has gone even farther than noti­cing anything dif­fe­rent. First, it was always a known “baddy” to swa­llow any pills that might con­tain iron, estro­gen or cal­cium at the same time we swa­llo­wed Armour or any other desic­ca­ted thy­roid brand. Why? All three inter­fere with and bind a cer­tain per­cen­tage of the thy­roid hor­mo­nes in our sto­machs.  We were for­ced to take any of those hours apart from swa­llo­wing our pill. So doing the Armour sublin­gually allo­wed us to swa­llow the above pills, or drink milk, or eat high iron foods, at our own timing and not hours away.

Second, the old for­mula was usually gone in our mouths within 30 minu­tes give or take. Now, patients who take their newly for­mu­la­ted pills sublin­gually (which now has less dex­trose and more cellu­lose) des­pise the “chalky, pasty, gritty resi­due” left in one’s mouth.  It also results in Armour taking far too long to be pro­perly absorbed.

Third, those with adre­nal fati­gue can find them­sel­ves waking up with nau­sea due to the mor­ning low cor­ti­sol. And being able to take Armour sublin­gually bypas­sed the need to swa­llow a liquid to take a pill and pro­mote more nausea.

Fourth, those with Celiac disease, and even those with stan­dard low thy­roid diges­tive issues, found sublin­gual admi­nis­tra­tion to help their absorp­tion of what desic­ca­ted thy­roid offers, which they didn’t get well if they swa­llo­wed the pill.

All in all, the buzz around patient groups or on com­ments here  about the newly for­mu­la­ted Armour is not com­pli­men­tary.  It doesn’t work well sublin­gually. It’s too chalky. It lea­ves a gritty paste in your mouth.  And patients are highly disap­poin­ted.  Let’s hope that one of the phar­ma­ceu­ti­cals takes the ball and runs to create a sublin­gual desic­ca­ted thy­roid.

What is your expe­rience with the new for­mu­la­tion? Are you still trying to do it sublin­gually?  Have you found doing Natu­reth­roid sublin­gually works? Are you switching to Natu­reth­roid or Westh­roid out of prin­ci­pal, as many are sta­ting they are doing? Use the com­ment sec­tion and let’s talk.

*Express your opi­nion to Forest here: 1 – 800-678‑1605, ext. 66297.

*Want to know what’s on Janie’s mind? Want to read the latest about desic­ca­ted thy­roid and bet­ter treat­ment? Use the Noti­fi­ca­tions on the left at the bot­tom of the links. 

Miche­lle, 40-or-50-something, came over to my house today to go over some paper­work. I hadn’t taken my Armour yet, and I said “Excuse me, I need to pop my thy­roid meds under my tongue.”

“Oh, I take thy­roid meds, too.  Synth­roid” she explai­ned as she was wri­ting on the papers with her pencil.

Now when I hear something like that, being who I am, I’m like a bear in a china cabi­net who sud­denly smells honey.  So as not to overwhelm,  I casually say “Oh, I used be on Synth­roid.” And after a long pause while we are going over the paper­work, I say “Did you know there’s a world­wide patient revo­lu­tion going on against medi­ca­tions like Synthroid?”

At the point, she rai­ses her head in curiosity.

I then stick my paw in the honey: “You and I and millions have been put on meds like Synth­roid and then told we are “nor­mal” because the TSH says so. But all of us have con­ti­nuing symp­toms of hypothy­roi­dism.  It’s a lousy medication. ”

And when I laid out what those con­ti­nuing symp­toms were, her eyes got as big as sau­cers and she was sha­king her head up and down in recog­ni­tion. “Depres­sion, rising cho­les­te­rol and blood pres­sure, easy weight gain, fati­gue, less sta­mina than others, dry hair and skin, fee­ling cold, etc”, I told her.

And the most pro­found aspect of Miche­lle? She lives her life like the Ener­gi­zer Bunny, going and going and going. She told me she often doesn’t get home until 6 pm doing her job, and she clearly has a lot of pro­fes­sio­nal responsibilities.

But does an active Miche­lle mean that Synth­roid works and is just as good a thy­roid treat­ment as desic­ca­ted thy­roid? You know the ans­wer. She revea­led that she’s quite tired when she comes home, wishes she had more energy, and still has issues with her weight, even though she lost some when she got on Synthroid.

And rea­ding bet­ween the lines, it was clear that Miche­lle is pro­bably on an anti-depressant, a sta­tin, and a blood pres­sure medi­ca­tion.  And…she clearly has an adre­nal pro­blem that’s only going to get worse. She has a terri­ble time falling asleep at night (high cor­ti­sol), and is very sen­si­tive to light and noise (high or low cortisol).

Sud­denly it daw­ned on me. I am sit­ting across hun­dreds of millions of women, and some men. I am lis­te­ning to how millions live their lives – making a living, main­tai­ning a home, loving their spou­ses and chil­dren, inte­rac­ting with peo­ple.  But under­neath it all, it’s not a pretty pic­ture. They cope, and they cope again.  And they dish out their money for more medi­ca­tions to treat the very symp­toms cau­sed by an infe­rior medi­ca­tion. And as they age, they’ll pay each of their millions of pri­ces, just as my mother did, and as I was hea­ded.  Ener­gi­zer bun­nies with faulty batteries.

P.S. Barack Obama has a health care reform plan. Will it change the lives of those 50 million with thy­roid disease in the US, or will it only con­ti­nue this T4-only tra­vesty and health care scan­dal?  Are we hea­ded in the same insane direc­tion as the UK when it comes to T4-only?  Express your opinion.