* You are viewing the archive for the ‘Patients’ Category

Iodine – thyroid patients figure things out again!

The topic of iodine sup­ple­men­ta­tion for your ove­rall health has been gro­wing the past few years among patients, espe­cially in light that many of us may be low in iodine, or just the fact that iodine has anti-cancer qua­li­ties. I became inte­res­ted in the topic after rea­ding Dr. David Derry’s book Breast Can­cer and Iodine. I’ve also seen the tes­ti­mony of seve­ral women with Fibrocys­tic Breast Disease who saw it disap­pear once they star­ted iodine sup­ple­men­ta­tion. Impressive!

And since thy­roid hor­mo­nes are pri­ma­rily com­po­sed of iodine, thy­roid patients are lis­te­ning to and ques­tio­ning the use of iodine sup­ple­men­ta­tion. Yahoo Groups has an exce­llent iodine group now led by Stepha­nie, where you can ask ques­tions and decide for your­self. Also, if you goo­gle “iodine”, you’ll find much to read.

But thy­roid patient Mike Law­son came up with some very inte­res­ting facts this week about iodine in desic­ca­ted thy­roid – just one more rea­son to con­si­der using Armour, Natu­reth­roid, Westh­roid or other desic­ca­ted thy­roid pro­ducts! He figu­red out the below:

T3 = C15H12I3NO4 = molar mass of 650.9776
T4 = C15H11I4NO4 = molar mass of 776.87

Iodine has a molar mass of 126.90

Iodine con­tent of T3 = (3 * 126.9)/650.9776. T3 is 59.725 % iodine.
Iodine con­tent of T4 = (4 * 126.9)/776.87. T4 is 65.339 % iodine.

Armour has 38 mcg T4 & 9 mcg T3.
.65339 * 38 mcg = 24.828 mcg iodine
.59725 * 9 mcg = 5.37525mcg iodine

So, each grain of Armour has 30.20325 mcg iodine. In other words, each
grain of Armour has 1/5 the RDA of iodine (150 mcg).

Very inte­res­ting facts, Mike! Sure, some thy­roid patients feel they need more than what desic­ca­ted thy­roid offers. But it’s a good start when so many indi­vi­duals feel their own iodine levels are too low, and need help, espe­cially those who have had to deal with thy­roid or breast can­cer, or have a family his­tory of it.


  • Want to keep track of these “fringe web­site” blog posts? ;-) Curious what’s on Janie’s mind? Use the noti­fi­ca­tion on the lower left of the links, called a News­let­ter, or an RSS Feed.
  • The extre­mely hip and sophis­ti­ca­ted STTM t-shirts are half price! Great BUMPER STICKERS, too. Spread the word – YOU may make a dif­fe­rence in someone’s life.
  • Check out the patient-to-patient book with even more detail (and which doc­tors seem to res­pect more than websites).
  • Need to unders­tand all your best options for thy­roid treat­ment? Go here.
  • Keep infor­med of each live Thy­roid Patient Com­mu­nity Call on Talkshoe by sig­ning up as a follo­wer.

Addressing folks who do well on T4 aka Synthyroid, Levoxyl, etc.

I recei­ved a reply to a post below that I was una­ble to approve because it men­tio­ned someone by name. And the reply was not par­ti­cu­larly friendly, and defi­ni­tely not accu­rate. lol. But the reply brought up some good issues, which I have no pro­blem addres­sing.

Namely, can I agree that there are some peo­ple who do well on T4-only treat­ment such as Synth­roid or Levoxyl??
I can…sorta. I have a friend whose hus­band is one of those see­mingly lucky indi­vi­duals on T4, with no thy­roid, who leads a fairly active and happy life. Con­si­de­ring how lousy I did, he ama­zes me. But I did notice something else about him: he has high and rising cho­les­te­rol and is on sta­tins. That’s a clas­sic symp­tom of a poor treat­ment and con­ti­nuing hypothy­roid, even if he does have much bet­ter energy that I ever did.

And by obser­ving him, and kno­wing a few others who sub­jec­ti­vely feel they do well on T4, I came to the follo­wing conc­lu­sion: though some may do bet­ter than others on T4, I have yet to find anyone on T4 who doesn’t have some kind of side-effect of a poor treat­ment, whether they are trea­ting it with sta­tins, trea­ting it with anti­de­pres­sants, or not trea­ting it at all & den­ying it. Sure, some may do bet­ter than others, but the proof is in the pud­ding if you look deep enough. And, at the very least, I’m just plain sus­pi­cious that ANYONE on T4, even doing sub­jec­ti­vely well, is going to have symp­toms of a poor treat­ment creep up on them as they age. The body was not desig­ned to live on con­ver­sion alone.

Can I agree that some peo­ple just can­NOT tole­rate desic­ca­ted thy­roid like Armour and need to be on T4?
Ini­tially, that may be. The gal that wrote me sta­ted she felt a lot bet­ter on T4, and that no mat­ter what she did, she couldn’t tole­rate Armour. I believe her. If Armour was that mise­ra­ble, she should be on T4 for the time being, or even bet­ter, a synthe­tic T4/T3 com­bi­na­tion. But I also believe that even if she feels she did everything to a “t” and still couldn’t tole­rate it, there was more for her to learn that she didn’t get the first time around when it came to her adre­nal fati­gue treat­ment. I see it too many times. And perhaps, over time, it will become more clear.

Do some pro­po­nents of desic­ca­ted thy­roid go over­board in their fer­vor? I don’t doubt it one bit. We’re human. And we hope you are for­gi­ving. But once you get past howe­ver you view are com­mu­ni­ca­tion short­co­ming, do know that our fer­vor is based on the fact that a huge volume of indi­vi­duals are having lives chan­ged due to desic­ca­ted thy­roid (and/or treat­ment of low ferri­tin, and/or treat­ment of adre­nal fati­gue). And it’s too wides­pread and glo­bal not to have fer­vor, besi­des com­mon sense that a treat­ment that gives us back what our own thy­roids would be giving us is just plain remarkable.

So, do know that if you are on T4, and feel well, I’m behind you. It’s your life, not mine, and I believe you. But neither can I stop my belief and too many obser­va­tions that if you are truly hypothy­roid and need treat­ment, desic­ca­ted thy­roid is a supe­rior choice, now or later, whether you are lucky enough to have esca­ped adre­nal fati­gue, or whether you have a cha­llen­ging case of adre­nal fati­gue that can be ade­qua­tely treated!


  • Want to keep track of these “fringe web­site” blog posts? ;-) Curious what’s on Janie’s mind? Use the noti­fi­ca­tion on the lower left of the links, called a News­let­ter, or an RSS Feed.
  • The extre­mely hip and sophis­ti­ca­ted STTM t-shirts are half price! Great BUMPER STICKERS, too. Spread the word – YOU may make a dif­fe­rence in someone’s life.
  • Check out the patient-to-patient book with even more detail (and which doc­tors seem to res­pect more than websites).
  • Need to unders­tand all your best options for thy­roid treat­ment? Go here.
  • Keep infor­med of each live Thy­roid Patient Com­mu­nity Call on Talkshoe by sig­ning up as a follo­wer.

Celebrities with hypothyroidism – where are you?

I often won­der how many cele­bri­ties MUST have hypothy­roi­dism, yet we don’t know it. Tonite, I just found out that Jillian Michaels, the tough and mus­cu­lar fit­ness buff on the TV show Big­gest Loser, has hypothyroidism.

And you’re left to won­der: is she, and are others, on Armour, Natu­reth­roid, Westh­roid?? Have they found out about the supe­rior treat­ment of desic­ca­ted thy­roid over a T4-only treat­ment with Synth­roid, Levoxyl, et al?

Other cele­bri­ties with hypo inc­lude Kim Ale­xis, Linda Rons­tadt, Kim Cat­trall, Kelly Osbourne, Oprah Win­frey and others. We can only hope that one day, someone will figure out that desic­ca­ted thy­roid is a supe­rior treat­ment, and help us spread the word. So far, Oprah has let us down. Maybe…maybe…someone with the abi­lity to spread the word will step up to the plate. :)

p.s. Pre­fer a book to a web­site? STTM is now in book form, with even more infor­ma­tion than you can find on this site, and wai­ting to be in your hands.


  • Want to keep track of these “fringe web­site” blog posts? ;-) Curious what’s on Janie’s mind? Use the noti­fi­ca­tion on the lower left of the links, called a News­let­ter, or an RSS Feed.
  • The extre­mely hip and sophis­ti­ca­ted STTM t-shirts are half price! Great BUMPER STICKERS, too. Spread the word – YOU may make a dif­fe­rence in someone’s life.
  • Check out the patient-to-patient book with even more detail (and which doc­tors seem to res­pect more than websites).
  • Need to unders­tand all your best options for thy­roid treat­ment? Go here.
  • Keep infor­med of each live Thy­roid Patient Com­mu­nity Call on Talkshoe by sig­ning up as a follo­wer.

Good grief! Stop the judgment!

Six years ago, when I got invol­ved in thy­roid patient advo­cacy by star­ting the Natu­ral Thy­roid Hor­mone Users group on Yahoo, I did it because I was ama­zed and shoc­ked what switching to desic­ca­ted natu­ral thy­roid did for me! There I was, on the brink of appl­ying for Social Secu­rity Disa­bi­lity after YEARS of misery & lack of ans­wers, and simply chan­ging to a dif­fe­rent thy­roid treat­ment com­ple­tely tur­ned my life around. I owe some of that change on what I found out on Mary Shomon’s Thy­roid group in early 2002.

And it daw­ned on me: if desic­ca­ted thy­roid with its T4, T3, T2, T1 and cal­ci­to­nin did this for ME, what could it do for others?!I  A group was NEEDED with a direct focus on desic­ca­ted natu­ral thyroid.

And over time, as NTH grew and other fine inter­net patient groups evol­ved and grew, other patients were just as ama­zed at what it was doing for them, as well.  This wasn’t coming across at ALL as a treat­ment only for “some”. It was coming across as a treat­ment that might just bene­fit quite a large body on indi­vi­duals! We also lear­ned by the seat of our collec­tive pants about low ferri­tin, low cor­ti­sol, low B-12, Celiac and glu­ten into­le­rance – you name it.

From all the above came the STTM move­ment: a patient-to-patient com­pi­la­tion of all we have lear­ned – and then the book with even more infor­ma­tion.  The STTM move­ment was crea­ted because “inter­net groups” were NOT enough to get the word out about the effi­cacy of desic­ca­ted thy­roid, nor were they enough to change the huge and rigid medi­cal esta­blish­ment. Change had to come from the bot­tom up – in other words, edu­cate patients, who in turn can take the new infor­ma­tion into their doctor’s offices.

But sadly, with the suc­cess of patient infor­ma­tion about the ama­zing results of desic­ca­ted thy­roid treat­ment has come vei­led cri­ti­cism and over­blown mis­con­cep­tions within our own ranks. And it’s a sad thing to behold!

Namely, we can now read a Sep­tem­ber 10th inter­net blog “con­ver­sa­tion” by so-called thy­roid patient advo­ca­tes who imply that it is “dogma and narrow-minded” if anyone dares state there just might be a thy­roid treat­ment which JUST MIGHT BE bet­ter for most all thy­roid patients. IMAGINE the auda­city!! I guess it was just as “dog­ma­tic and narrow-minded” when it was first sug­ges­ted there were bet­ter ways to deal with cer­tain health con­di­tions than blood­let­ting. I can hear it now: “To deny blood­let­ting is just boxing peo­ple in!” “Offe­ring blood­let­ting as a choice is hel­ping peo­ple expand.”

And con­trary to the self-righteous tone, con­des­cen­ding mis­re­pre­sen­ta­tions, and vei­led cri­ti­cisms towards cer­tain patient groups, this patient move­ment is not a one size fits all move­ment.  Ins­tead, it’s a “one size JUST MIGHT BE a bet­ter alter­na­tive” than the other avai­la­ble alter­na­ti­ves, and we strongly encou­rage that each patient con­si­der fin­ding a doc­tor to help them give it a try.  And, if something about desic­ca­ted thy­roid isn’t wor­king, we strongly encou­rage patients to look at par­ti­cu­lar rea­sons that can under­lie problems.

If you think T4 is wor­king for you, go for it! The same goes for the use of T3 only, or synthe­tic T4/T3, or cer­tain ratios of T4 and T3.  Choice is a bles­sing we can all res­pect.  Just keep an eye out for depres­sion, rising cho­les­te­rol, less sta­mina than others, adre­nal issues and/or a myriad of other con­ti­nuing hypo symp­toms that just might creep up on you as you age on these treat­ments.  Or, con­si­der that we’ve seen many peo­ple on these treat­ments, who, when they switched to desic­ca­ted thy­roid like Armour, Natu­reth­roid, Westh­roid, etc, they repor­ted even bet­ter results. (The use of T3-only for high RT3 is a dif­fe­rent issue and is where T3-only may be abso­lu­tely nee­ded and good. We also res­pect those who have ethi­cal issues with ani­mal products.)

Finally, I encou­rage others who con­si­der them­sel­ves thy­roid patient advo­ca­tes to TAKE A BIG BREATH and TAKE THE TIME to be in open-minded dia­lo­gue with all patients, inc­lu­ding me and all of us over here, ins­tead of openly igno­ring our exis­tence or deci­ding what we pro­mote is simply narrow-minded dogma.  You might find that direct com­mu­ni­ca­tion and kind­ness is a far bet­ter method to help thy­roid patients ins­tead of the underhan­ded vei­led bashings and mis­re­pre­sen­ta­tions within this recent blog con­ver­sa­tion.


  • Want to keep track of these “fringe web­site” blog posts? ;-) Curious what’s on Janie’s mind? Use the noti­fi­ca­tion on the lower left of the links, called a News­let­ter, or an RSS Feed.
  • The extre­mely hip and sophis­ti­ca­ted STTM t-shirts are half price! Great BUMPER STICKERS, too. Spread the word – YOU may make a dif­fe­rence in someone’s life.
  • Check out the patient-to-patient book with even more detail (and which doc­tors seem to res­pect more than websites).
  • Need to unders­tand all your best options for thy­roid treat­ment? Go here.
  • Keep infor­med of each live Thy­roid Patient Com­mu­nity Call on Talkshoe by sig­ning up as a follo­wer.

The tortoise and the hare: the STTM movement is the tortoise, but we’re winning!!

Hardly a per­son hasn’t heard Aesop’s fable of the tor­toise and the all-too-confident hare, run­ning their I’ll-prove-to-you-who’s-boss race. The hare was FAST and cer­tain to win the run. But the ever-so-committed tor­toise, even if slow, slo­wer and slo­west…was steady…and won the race.

Until recently, I thought our thrust and deter­mi­na­tion to change the Big Pharma, zombie-doctoring medi­cal sys­tem in the treat­ment of hypothy­roid would be like the hare. We’d get the atten­tion of the mass media through our great deter­mi­na­tion, shout the mes­sage of a FAR bet­ter thy­roid treat­ment, and create huge change.

But I think I was wrong. Change has occu­rred, but we have been doing it like the tortoise…slow and steady.

Slowly but stea­dily, we are seeing more and more doc­tors star­ting to “get it”, even if they still have a way to go. Slowly but stea­dily, folks are fin­ding out why they have less sta­mina than others, or depres­sion, or rising cho­les­te­rol, or fibrom­yal­gia, or thin­ning hair in the face of the dog­ged “nor­mal” diagnosis…all due to an ina­de­quate medi­ca­tion called T4, aka Synth­roid, Levoxyl, Eltro­xin, et. al. and a lousy lab called the TSH.

Slowly but stea­dily, folks are fin­ding out about desic­ca­ted thy­roid to treat their hypothy­roid, and cor­ti­sol to treat their adre­nal fatigue.

Even the STTM book has been like the tor­toise. Lite­rary agents didn’t get it, nor did huge publishing com­pa­nies. I finally stop­ped coun­ting, but I bet I had over 200 rejec­tions. They all thought it was simply “another” thy­roid book. So the frui­tion of the STTM book came out of true sweat and tears, and a lot of cuss words as I squir­med through my frus­tra­tions. Yet, the STTM book – a PATIENT-TO-PATIENT book of which I was only the mes­sen­ger, is not only a steady seller like the tor­toise was steady, but sales keep gro­wing every month, reviews are exce­llent, and lives ARE chan­ging. How can you cri­ti­cize a mes­sage, whether the STTM site or the book, that is based on the posi­tive and cri­ti­cal expe­rience of thou­sands of patients around the world!!

Change IS hap­pe­ning! Like the tor­toise, we’re win­ning the race and crea­ting change, bit by bit, whether it’s via STTM, various inter­net thy­roid groups, other good books, or just word of mouth. We’re all a part of it. But we can’t be com­pla­cent, because it’s truly obvious by blogs and web­si­tes I read that there’s still a huge body of hypothy­roid patients still suf­fe­ring on T4 who need to find out what WE have found out. But it will hap­pen, bit by bit. :)


  • Want to keep track of these “fringe web­site” blog posts? ;-) Curious what’s on Janie’s mind? Use the noti­fi­ca­tion on the lower left of the links, called a News­let­ter, or an RSS Feed.
  • The extre­mely hip and sophis­ti­ca­ted STTM t-shirts are half price! Great BUMPER STICKERS, too. Spread the word – YOU may make a dif­fe­rence in someone’s life.
  • Check out the patient-to-patient book with even more detail (and which doc­tors seem to res­pect more than websites).
  • Need to unders­tand all your best options for thy­roid treat­ment? Go here.
  • Keep infor­med of each live Thy­roid Patient Com­mu­nity Call on Talkshoe by sig­ning up as a follo­wer.
Do NOT follow this link or you will be banned from the site!