* You are viewing Posts Tagged ‘free t3’

This and that–an array of interesting info for your thyroid pleasure

I’ve been distracted the past week, having to do extensive research and traveling to find the perfect “new used car”.

Then I caught a cold from hell–rare for me.  I was taking zinc and Vit. C. But a good friend reminded me about Vit. D and it’s immune enhancing effect. OMG, I forgot about it!  So later last night, I took what I thought was 12,000 IU on the first night of being sicker than a dog.  They say to take 1000 mg per 10 lbs of weight. Turned out the gel caps were not 1000 IU each, as I thought, but 2000 IU each. So I ended up taking 22,000 IU.  lol. But the long and short of it is this: though I woke up this morning quite tired and weak, I’ve slowly gotten better all day!! My congestion has hugely improved.  Read this: http://pandemicsurvivor.wordpress.com/2009/11/28/eliminate-the-common-cold/

Love your green powder drink? Just a word of caution: much of what is in many of those powdered greens are goitrogens, which inhibit thyroid production, such as wheat grass, barley grass, broccoli, spinach,  cabbage, maca and spinach, plus much more. But that doesn’t mean you can’t use the green powder. You’ll just have to be sure to use it in moderation, and not consume too many other goitrogen foods each and every day. Or, raise your thyroid meds.

Dr. Peter Gott can give even better information to readers. I noticed that a column on the Tulsa website by Peter Gott, MD of the Newspaper Enterprise Association  could have given different information to a distressed reader who couldn’t find Armour anywhere.  He recommended to this reader, who already stated that Synthroid is not a well-handled treatment, to see if her physician could “alter the Synthroid dosage to find a level”  that could be tolerated.  Actually, there are far better options during this backordered time, which I have compiled here, and includes Erfa’s Thyroid and more.

Naturethroid is appearing in pharmacies! Yup, patients are reporting it! No, it’s not all pharmacies. But you might want to call and see if YOUR local pharmacy has it. Otherwise, it’s coming.  For options during the current natural desiccated thyroid shortages, go here. To see why we are where we are today, read this.

Is there research to prove having a free T3 in the upper quarter of the range when on desiccated thyroid?? A gal emailed me, wanting studies to show her doc. But unfortunately, the answer appears to be no. Instead, this is what patients all over thyroid groups discovered from their lab results when they were feeling fabulous again with no lingering symptoms.  So we simply spread the word. Patient experiences DO count for something.  P.S. Here’s an ongoing list of research that DOES prove some things patients KNOW first hand.  And by the way, when you have a high free T3 and continuing symptoms, time to do labs for ferritin and adrenal fatigue.

By using a code, you can save on labs from HealthcheckUSA. I was informed from HealthcheckUSA that many patients were forgetting to mention the discount code. So look again, and be sure and use it from the Recommended Labwork page.

Janie on radio shows, and a great guest for the upcoming Talkshoe Thyroid Patient Community Call. Can’t say much more, because it’s in the works. Watch for announcements soon.

A new way to be informed of these thyroid posts. The former Notifixious notifications went out of business. But we have a new and GOOD one, referring to the notification as a newletter, and you can sign up free and with no strings attached.  See on left below on the links. :)   Also, there are many more important posts right below this.


  • Want to keep track of these ‘fringe web­site’ blog posts? ;-) Curious what’s on radi­cal Janie’s mind? Use the notification on the lower left of the links, called a Newsletter, or an RSS Feed.
  • Keep informed of each live Thyroid Patient Community Call on Talkshoe by signing up as a follower.
  • The extre­mely hip and sophis­ti­ca­ted STTM t-shirts are half price! Great BUMPER STICKERS, too. Spread the word--YOU may make a difference in someone’s life.
  • Check out the patient-to-patient book with even more detail (and which doctors seem to respect more than websites).
  • Need options for thy­roid treat­ment during the current shor­ta­ges due to demand being grea­ter than supply? Go here.

Confessions of an Undercover Thyroid Advocate

The following guest blog post is written by Amy McMullen, who had undiagnosed & symptomatic hypothyroidism for 20 years due to the sole use of the TSH, resulting in multiple health problems. She is now treating per the guidelines on STTM including T3 for thyroid hormone resistance, adrenal support, and desiccated thyroid.

I found her story below as an undercover advocate fascinating,  and think Amy is caring and committed,  in spite of severe restrictions! Bless you, Amy.

I spend an inordinate amount of time these days contributing to a well-known online thyroid disorders forum I’ll call “Thyroid Health Forum” (not its real name).

It’s a tricky forum with draconian rules: they don’t allow you to post any links to resources, talk about where you get your online labs done, include quotes from studies, or post any names of thyroid advocates. You can’t use a username you’ve used on any other forums and you can’t mention using their personal messaging system.

I’ve received a few “infractions” from the ever-vigilant board “administrators” and “moderators” (never could color inside the lines, I guess) and have been warned to never, under any circumstances, use the words “Stop the Thyroid Madness” or any references to this website or book in my posts.

At more than one point I was ready to walk away and just give up on it.  How can you share your experiences when there were so many rules that seemed designed to inhibit a free flow of information, to the point of not being allowed to mention the title of a good book by name or type in the word Google?

But I would read the following posts submitted by desperate people and this would keep me coming back to try, somehow, to help:

  • “Hi, my doctor says my labs are all normal but I’ve got so many symptoms, I can hardly function…”
  • “My doctor says that free T3 and free T4 testing is not useful, that my TSH is normal and that unless my TSH is high he won’t order any antibody tests…”
  • “My doctor says that my TSH is too low and wants me to cut back on my thyroid hormones, but I know I will start feeling bad if I do this… Help!”
  • “I am taking Synthroid but I feel terrible and my hair is falling out and now my doc wants me to take an antidepressant…”

You see, I was in this very same boat for far too many years. About 20 years back I started noticing symptoms:  fatigue, depression, menstrual irregularities, and dizzy spells. I went to see my doc who did the usual TSH test and when it came back “normal”, prescribed antidepressants. The antidepressants did help, but my menstrual problems intensified and other symptoms increased until I finally underwent a hysterectomy for dysfunctional uterine bleeding. Shortly thereafter, I collapsed with heart irregularities and autonomic nervous system dysfunction in the fall of 2006.

I went to over 10 different specialists spending thousands of dollars for medical bills with no real answers–just a lot of shrugged shoulders and a fibromyalgia diagnosis.

It wasn’t until my mother was hospitalized and routine blood testing came back with a TSH of over 6 that I looked again at my own thyroid. My TSH was never above 3. I had one free T4 test done following my initial collapse but, again, all tests were flagged “normal” and thyroid was passed over once again.

But a search about TSH lab ranges led me to Mary Shomon’s About.com articles, and while she seemed to be stuck on the idea that 3 was an acceptable number for the top of range for TSH, based entirely on the American Association of Clinical Endocrinologists recommendations, I finally found the Stop the Thyroid Madness site and learned otherwise.

It was here that I learned about other testing like free T3, free T4, thyroid antibodies, vitamin and ferritin levels and, very importantly, that the TSH should be the LAST test done for diagnosing hypothyroidism instead of the ONLY test. I finally caught on to how the medical establishment has failed miserably to adequately diagnose and treat hypothyroidism. I felt both incredibly empowered and very, very angry.

I quickly delved into the thyroid forums to share what I’d learned and to learn from others. The first forum I found was the aforementioned  “Thyroid Health Forum”, and since this is one of the best-known, it is where many of the newbies, like me, find themselves. There were both natural and synthetic hormone proponents on the board and the advice ranged from very good to quite bad. I soon found there were better forums like Realthyroidhelp and the natural thyroid hormone Yahoo groups that had really smart people who were happy to share resources and information that was truly useful. I spent a lot of time on these and learned a great deal.

But for some reason I couldn’t seem to leave the “Thyroid Health Forum”. The people who stumbled on there seemed so lost and I felt compelled to impart what I had learned to them. I would offer alternatives to the synthetics and explain why natural desiccated thyroid (NDT) was a superior treatment option and, more importantly, that they did have an option for their treatment, despite what their doctor told them. I’d relay what I had learned from other boards about access to NDT during the shortages.

When I figured out I had adrenal fatigue and later thyroid hormone resistance as a result of being undiagnosed for so long, I started relaying information about these issues to the many who were having difficulties getting optimized on their hormone replacement therapy. I found it to be both rewarding and enormously educating for myself as I would spend time researching questions that were asked about supplements, lab tests, and studies. I was not allowed to post links so had to summarize things I had learned and this taught me even more. The main messages I pushed were (and are):  get the right labs done, learn how to interpret them correctly, be your own advocate, know your treatment options, and don’t implicitly trust doctors.

I will continue to contribute what I’ve learned to the “Thyroid Health Forum”. So far I’ve managed to fly under the radar and play, however grudgingly, by their rules. I figure if I can get just one or two people to question the present thyroid clinical guidelines, as written by our friends at big pharma, I’ll be more than satisfied. I actually believe that by getting good information out there to as many sufferers as possible, we may create a groundswell of people who will no longer accept being dismissed as depressed complainers by their healthcare providers. And this is one more way we can help enact real change to the currently abysmal medical practice of thyroid diagnosis and treatment. Well worth it in my book!

*******************************

Latest news from RLC: Shipments of Naturethroid are beginning Monday, January 4th and the first two weeks with backorders going out ASAP.  Medco should have some by the end of January. Their Patient Information Line: Naturethroid/Westhroid: 877-600-4752

Thyroid  patient guest posts can be read about here: /writing-a-guest-blog-post-on-sttm/

Want to honor someone who has helped you?? See the blog post below and thank someone.

NOTE: if you were receiving email notifications about these posts,  the company doing them is out of business. Instead, use an RSS Feed.


  • Want to keep track of these ‘fringe web­site’ blog posts? ;-) Curious what’s on radi­cal Janie’s mind? Use the notification on the lower left of the links, called a Newsletter, or an RSS Feed.
  • Keep informed of each live Thyroid Patient Community Call on Talkshoe by signing up as a follower.
  • The extre­mely hip and sophis­ti­ca­ted STTM t-shirts are half price! Great BUMPER STICKERS, too. Spread the word--YOU may make a difference in someone’s life.
  • Check out the patient-to-patient book with even more detail (and which doctors seem to respect more than websites).
  • Need options for thy­roid treat­ment during the current shor­ta­ges due to demand being grea­ter than supply? Go here.

Thyroid Patients sending a big KISS to this British Doctor!

kiss2

I recently discovered a very humorous and appropo medical blog on the net, written by a United Kingdom General Practitioner who wisely stays incognito. His blog is called The Jobbing Doctor.

And his most recent and humorously brilliant post is titled Hairy legs are better than blood tests! He describes his occasional confusion when blood tests don’t agree with the patients symptoms.

Says the UK doc: “The textbooks teach that the level of circulating thyroid hormones (which are called T3 and T4) are inversely related to the Thyroid Stimulating Hormone (TSH). If your T3 and T4 are low, your TSH will be high: this suggests an underactive thyroid gland. If the T3 and T4 are high and the TSH is low, then you have an overactive thyroid gland. That’s easy, huh!”

But his confusion sprang forth when a patient’s labs showed “a highish TSH, T4, and a normal T3.” Yet apparently her symptoms didn’t imply there was any problem, so he chose to do nothing as far as changing her treatment.

A month later at her next appointment, this patient expressed her approval that he didn’t change anything…because her leg hair and eyebrows were coming back.

And his conclusion?  “Pah! Who needs blood tests!”

Jobbing Doctor, you are discovering what thyroid patients have been learning over and over for years: it’s SYMPTOMS (or lack up) which need to pull the cart, NOT labwork. Sure, we love our labwork. They can give clues to areas where our bodies are screaming for help.  But they definitely do NOT tell the whole story.

Look at the ignoramus TSH lab test. Countless patients have walked into their doctors offices with clear and obvious hypothyroid symptoms–and desperate for a diagnosis–yet the ink spot on the office piece of paper called the TSH lab result proclaims they are “normal”. And that dubious “normal” diagnosis can go on for years before it rises high enough to reveal what was already there by SYMPTOMS.

Or, while on thyroid medication, patients will have a lamebrain “normal” TSH lab result, yet will continue to have their own brand and degree of continuing hypothyroid symptoms which the clueless doctor dismisses as an hysteric female interpretation, motherhood, stress, a need for psychological help….or just “something else”. Uh huh.

In fact, Jobber Doctor, patients have learned that when they are optimal (on desiccated thyroid), along with optimal ferritin and cortisol), they will generally have a free T3 in the upper part of the range, and a SUPPRESSED TSH, with no symptoms of hyperthyroidism.  That is general, and there can be some exceptions, but overall, it has spoken volumes to patients on how inadequate thyroid lab tests can be.  i.e. being in the “normal” range—anywhere in the normal range–can be mean squat.

Thanks for a great post,  UK Jobber Doc. And P.S.  Desiccated thyroid is an even better treatment than thyroxine. :)

*Want to be informed of these blog posts? Curious what’s on my mind? Just use the Notifications at the bottom left of the links.


  • Want to keep track of these ‘fringe web­site’ blog posts? ;-) Curious what’s on radi­cal Janie’s mind? Use the notification on the lower left of the links, called a Newsletter, or an RSS Feed.
  • Keep informed of each live Thyroid Patient Community Call on Talkshoe by signing up as a follower.
  • The extre­mely hip and sophis­ti­ca­ted STTM t-shirts are half price! Great BUMPER STICKERS, too. Spread the word--YOU may make a difference in someone’s life.
  • Check out the patient-to-patient book with even more detail (and which doctors seem to respect more than websites).
  • Need options for thy­roid treat­ment during the current shor­ta­ges due to demand being grea­ter than supply? Go here.

The “Three Stooges of Belief” of the British Thyroid Association (let’s hope this stupidity doesn’t rub off in the US!)

The British Medical Journal (BMJ) recently came out with yet another thyroid article, benignly titled Diagnosis and treatment of primary hypothyroidism and authored by the British Thyroid Association (BTA),  that at first blush, looks so caring.

Namely, they express deep concern that that since hypothyroid symptoms can mimic other conditions, patients may be getting an incorrect diagnosis which could expose some patients to the harmful effects of excess thyroid hormones, while other serious conditions may go undiagnosed.

And they add: In other patients, adequate replacement with levothyroxine does not resolve symptoms, which are attributed to hypothyroidism rather than other conditions that may coexist, such as depression.

The article continues with:  Normalisation of thyroid stimulating hormone means a return to normal health in most patients with primary hypothyroidism.

In other words, what you have above are the Three Stooges of the stated beliefs of the British Thyroid Association.

Stooge stated-belief #1: “Incorrect diagnosis allow other conditions go undiagnosed” What is inferred is that there are a host of diagnoses of hypothyroidism that are incorrect. Why? Because a wise physician dared to listen to clear symptoms of hypothyroidism or use the free T3, in spite of a so-called “normal” TSH–a lab test which measures a pituitary hormone, not the cells ability to receive enough thyroid hormones.

Stooge stated-belief #2: “If adequate doses of levothyroxine do not resolve symptoms, those symptoms are due to something else.” That is akin to saying if eating 100 calories a day results in malnutrition and starvation, your malnutrition and starvation is due to something else. And one particular symptom they are referring to is depression–a classic symptom of undiagnosed and undertreated hypothyroidism in MILLIONS of individuals around the world.  And isn’t it just odd how that depression resolves itself when the patient is put on Armour and allowed to dose by the elimination of symptoms.

Stooge stated-belief #3: “A normal TSH lab result equals normal health in those treated for hypothyroidism”. Gee, funny how millions of thyroid patients around the world have had a so-called “normal” TSH lab result along with a diverse blend of continuing and CLEAR hypothyroid symptoms.  Additionally, we have a large and growing body of patients who, when they switched to Armour desiccated thyroid or other fine desiccated thyroid prescription meds,  had those symptoms resolved when they were dosed according to the free T3, improved blood pressure, strong heart beat, lowered cholesterol, and complete elimination of symptoms. Patients have learned what works!

When you understand the British Thyroid Association’s hell-bent and rigid stands against Armour desiccated thyroid, their promotion of one of the worst labs ever created to diagnose and dose by, their love affair with the most inadequate thyroid medication ever thrust onto the market by money-grubbing pharmaceuticals (levothyroxine), and their complete failure to listen to patients and recognize continuing symptoms of hypothyroidism while on synthetic T4, you come to realize how meaningful any article on hypothyroidism will be by the British Thyroid Association.

P.S.  Do ya wonder if the British Broadcasting Corporation (BBC) has the smarts to report the other side of the story??

*Want to be informed of these blog posts? Curious what’s on Janie’s mind? Just use the Notification feature on the bottom  of the links to your left.


  • Want to keep track of these ‘fringe web­site’ blog posts? ;-) Curious what’s on radi­cal Janie’s mind? Use the notification on the lower left of the links, called a Newsletter, or an RSS Feed.
  • Keep informed of each live Thyroid Patient Community Call on Talkshoe by signing up as a follower.
  • The extre­mely hip and sophis­ti­ca­ted STTM t-shirts are half price! Great BUMPER STICKERS, too. Spread the word--YOU may make a difference in someone’s life.
  • Check out the patient-to-patient book with even more detail (and which doctors seem to respect more than websites).
  • Need options for thy­roid treat­ment during the current shor­ta­ges due to demand being grea­ter than supply? Go here.

Ten reasons you may still feel bad: health is like a chocolate cake

Want to be notified of my blog posts? Curious what’s on my mind? Use Notifixious to be informed. Look on the bottom left of the links where you can sign up. )

Today I baked a chocolate cake for my son’s birthday. It was excellent. Why? Because it was the result of several important ingredients. Leaving any of them out would have resulted in a cake less than great.

And your health and feel-goods as a thyroid/adrenal patient, including your ability to successfully get off HC,  is like my son’s cake: a combination of ingredients that you have to get right. Below are ten “ingredients” to investigate and find out which may not be right in you for good health and feel-goods.

1) The right amount of cortisol: Too little cortisol or too much cortisol has its consequences. Too little results in thyroid hormone still pooling, continued hypo symptoms, plus hyper in some. Too much can mean easy bruising, rising blood pressure, fluid retention, a round face, etc.  And both can increase anxiety, feeling poorly, etc.  Watch for symptoms and compare your daily averaged temperatures. Also, have you checked your aldosterone?

2) The right amount of desiccated thyroid: I have a friend who was stuck on 3 grains Armour out of habit. But she continued to have hypothyroid symptoms out of habit. I finally convinced her to talk to her doctor. Labs showed her free T3 was just a few points over mid-range, and having a free T3 towards the top seems to work better for most. So she did raise, and it finally did the trick.

3) Optimal B12 levels: Since hypothyroid patients can have digestive/absorption issues, B12 levels can be lower than optimal. Symptoms include fatigue, weakness, feeling faint, breathless, bruising, heart palps or others. Don’t take a chance. Get a B12 test. You want the result to be at the top of the range.

4) Plenty of Ferritin (storage iron): Low ferritin means you have no iron in storage to draw upon. And it also means you are probably anemic.  Additionally, low ferritin adversely affects the conversion of T4 to T3. Symptoms include fatigue, depression, weakness, achiness, breathlessness or others.  Have a ferritin test.  Optimal is 70-90.

5) Good digestion: Hypothyroid patients can have low hydrochloric (HCL) stomach acid levels. That not only contributes to acid reflux because of the overgrowth of bad bacteria, it means you don’t absorb nutrients well (including low B12 mentioned above). As a result, it’s crucial to give that acid back to yourself.  A tablespoon of Apple Cider Vinegar mixed in water and taken twice day helps many. Or try taking Betaine, which is HCL in pill form, or any other quality HCL or digestive product.

6) Recognition and treatment of Gluten intolerance: Some thyroid patients lack a particular digestive enzyme, intestinal glutaminase, that helps digest gluten in various food products. As a result, they don’t absorb nutrients well. Symptoms include bloating & gas, aches, stiffness, fatigue, burning or numbness in arms or legs, rashs or hives, worsened allergies & others. Your chance of have a gluten problem is higher if you have Hashimotos disease. If you suspect a possible problem, eliminate all gluten from your diet. Also consider having your doctor run a Celiac antibodies blood test.

7) Controlled EBV: At least 90% of adults have the Epstein Barr Virus (EBV) sitting dormant in their bodies. EBV is what causes mononucleosis, but you don’t have to have had mono to carry the virus.  Because hypothyroidism lowers your immune system, it’s not uncommon for thyroid patients to have activated EBV. I did, and my symptoms included extreme easy fatigue, ringing in my ears, achiness and some swelling of my lymph glands. Some may have a sore throat return and other symptoms.  Ask your doctor to test EBV. You’ll then need to ask about treatment options, which include beefing up your immune system.

8 ) Sex hormone balance: When your thyroid or adrenals get out of balance, your sex hormones can follow suit, from estrogen dominance to low testosterone.  When estrogen dominance occurs, you can feel depression, fatigue, and sore breasts.  Low testosterone can equal lower energy and mood. Ask your doctor to test all your sex hormones.

9) Taking plenty of supplements: There are a variety of good supplements everyone with thyroid or adrenal issues should take for good health. They include high potency B-vitamins, Vit. C (1000-3000 mg. or to tolerance), Selenium (around 200 mcg), minerals including magnesium, probiotics, Vitamin D (1000 iu), iodine, and others.  In addition to these, I also take CoQ10 (for heart and blood pressure health), and my favorite: a green powder which I stir in my orange juice.

10) Exercise: If you are a couch potato, you’re going to feel like one. Instead, do what it takes to get moving, which promotes all sorts of good health. If you have adrenal fatigue, keep it very light and easy.  If you just have hypothyroidism, get out and walk.

P.S. My chocolate cake: I think cake mixes are just as good as homemade. I use Devils Food Cake. But the icing is ALWAYS homemade: cream one stick butter, add about 4 cups powdered sugar, 1/2 cup cocoa, then cream or half-n-half.  Shake some sea salt in. Add two tsp. vanilla.  Beat, beat.  Taste. Modify as needed. YUM.


  • Want to keep track of these ‘fringe web­site’ blog posts? ;-) Curious what’s on radi­cal Janie’s mind? Use the notification on the lower left of the links, called a Newsletter, or an RSS Feed.
  • Keep informed of each live Thyroid Patient Community Call on Talkshoe by signing up as a follower.
  • The extre­mely hip and sophis­ti­ca­ted STTM t-shirts are half price! Great BUMPER STICKERS, too. Spread the word--YOU may make a difference in someone’s life.
  • Check out the patient-to-patient book with even more detail (and which doctors seem to respect more than websites).
  • Need options for thy­roid treat­ment during the current shor­ta­ges due to demand being grea­ter than supply? Go here.
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