* You are viewing Posts Tagged ‘free T4’

As a hypothyroid patient, you might want to think twice about drinking water out of plastic bottles

As a hypothy­roid patient, think you are fine drin­king that purely fine mine­ral water from a plas­tic bottle? Think that fluo­ride and chlo­rine are the only subs­tan­ces we need to worry about when it comes to our thy­roid health?? Think again.

Thy­roid patient Amy McMu­llen, who has con­tri­bu­ted before on STTM’s blog as a GUEST POSTER (Con­fes­sions of a Under­co­ver Thy­roid Advo­cate) and has a pas­sion about human rights, has writ­ten another impor­tant article below which should be of keen inte­rest to all of you.

BPA — A POWERFUL ENDOCRINE DISRUPTER THAT AFFECTS YOUR THYROID

Perhaps you have read recently about how the che­mi­cal Bisphe­nol A (BPA) is found to be pre­va­lent in our food and water. As a hypothy­roid patient, I was sur­pri­sed to see that not all artic­les about this harm­ful subs­tance ade­qua­tely desc­ribe the con­nec­tion bet­ween thy­roid func­tion and BPA. This is an over­sight that should be addres­sed since hypothy­roi­dism is esti­ma­ted to affect over ten million peo­ple in the US and this num­ber is gro­wing. It makes per­fect sense to look to envi­ron­men­tal toxins as a likely cul­prit in this serious health epidemic.

BPA is a synthe­tic estro­gen and an endoc­rine dis­rup­ter that cau­ses mul­ti­ple health pro­blems. There are over 200 stu­dies lin­king it to breast can­cer, obe­sity, atten­tion defi­cit disor­der, early puberty in girls, geni­tal abnor­ma­li­ties in boys and girls alike, polycys­tic ovary disease and infer­ti­lity in women and pros­tate can­cer in men. Stu­dies indi­cate that up to 92% of Ame­ri­cans have BPA in their urine. Also BPA doesn’t leave the body quickly; fas­ting adults still had BPA levels in their bodies after 24 hours.

BPA comes from many plas­tic sour­ces. It’s used as a har­de­ner in plas­tic manu­fac­tu­ring. Many tin cans have plas­tic linings that con­tain BPA inc­lu­ding soup and toma­toes, and it’s also in plas­tic water bott­les, some infant for­mu­las and can­ned jui­ces. BPA is also found in PVC water supply piping.

How does BPA relate to thy­roid disease? Accor­ding to a seve­ral good stu­dies, BPA is a thy­roid recep­tor anta­go­nist. This means that BPA will inter­fere with the bin­ding of the thy­roid hor­mone T3 with cell recep­tor sites. This will cause hypothy­roi­dism, not only with peo­ple with under-functioning thy­roids but also for those who are currently taking medi­ca­tions for hypothy­roi­dism or even those who have nor­mally func­tio­ning thy­roids. BPA was found to accu­mu­late in many organs when injec­ted into rats inc­lu­ding the lung, kid­neys, thy­roid, sto­mach, heart, spleen, tes­tes, liver, and brain. In this way, BPA has the poten­tial to inter­fere with thy­roid hor­mo­nes in each organ that has accu­mu­la­ted the subs­tance. A study also indi­ca­tes that the levels of BPA that are con­si­de­red safe (upper limit of emis­sion is set to 2.5 ppm [µg/liter], which is more than 90 µM) are high enough to inhi­bit thy­roid hor­mone recep­tors. Yet another study shows that BPA appears to accu­mu­late in rat fetu­ses in sig­ni­fi­cantly high levels and dis­rupts thy­roid func­tion in baby rats.

There’s also evi­dence that BPA may influence the meta­bo­lism of endo­ge­nous ste­roids, which may be a fac­tor in adre­nal fati­gue and its treat­ment, as well as and its treat­ment, as well as dysau­to­no­mia stem­ming from adre­nal pro­blems. Many with hypothy­roi­dism also suf­fer from co-morbid adre­nal fati­gue and BPA may be a con­tri­bu­ting fac­tor in this.

What this means for ever­yone, but espe­cially for thy­roid patients, is every effort should be made to remove BPA from food and water sup­plies. For those who are not able to get pro­perly opti­mi­zed on their thy­roid meds or who are fin­ding they are suf­fe­ring from hypothy­roid symp­toms des­pite nor­mal levels of TSH, free T3 and free T4, con­si­der BPA as a pos­si­ble source of the problem.

Steps you can take to mini­mize you expo­sure include:

  • Avoid all can­ned foods with plas­tic liners and avoid bott­led water. Buy your can­ned toma­toes in glass jars, not metal cans or stick to using fresh ingre­dients. Most other can­ned foods use BPA as well, espe­cially green beans (Here is a list of BPA-free can­ned foods).
  • Drink water out of glass or stain­less steel con­tai­ners (and make sure there’s no plas­tic liner or lids that have BPA) or BPA-free plas­tic. Low den­sity pol­yethy­lene bike bott­les con­tain BPA.
  • Do not mic­ro­wave foods in plas­tics or use plas­tic wraps when mic­ro­wa­ving. Avoid poly­car­bo­nate (“PC” or #7 and #3) plas­tic food con­tai­ners altogether.
  • Since most muni­ci­pal water piping is PVC and some hou­ses have it as water supply lines, con­si­der ins­ta­lling a reverse osmo­sis sys­tem for your drin­king water. This will also remove fluo­ride and chlo­rine (other thy­roid dis­rup­ters) and many other harm­ful subs­tan­ces from drin­king water.

Most impor­tantly we need to make our voi­ces heard that BPA is not an accep­ta­ble subs­tance and that its use in our food and water supply must cease. Recently Sena­tor Feins­tein intro­du­ced a ban on BPA to the Food Safety Moder­ni­za­tion Act but this was modi­fied to remove the ban due to pres­sure by industry groups. Sena­tor Feins­tein still has an effort under­way to ban BPA from child drink bott­les and toys and seve­ral sta­tes have enac­ted such bans but this does not go far enough.

Con­tact your repre­sen­ta­ti­ves today and let them know that a natio­nal ban on BPA must be enac­ted. If they don’t lis­ten then I sug­gest you make your­self heard at the ballot box this November.

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  • Have you cut down on your expo­sure to Fluo­ride? Buy non-fluoridated tooth­paste as a first step.
  • Cut down on more che­mi­cals by using baking soda under your arms rather than commercially-made unde­rarm deo­do­rants. Note that the baking soda may at first cause red­ness, but it will go away within days and is a great way to kill odors.
  • Have a poun­ding hear­trate that you can’t explain? You may be making too much RT3.
  • Check out typi­cal Ques­tions and Ans­wers about thy­roid treat­ment and rela­ted issues.
  • Want to write a GUEST BLOG POST on STTM? Go here.

  • Want to keep track of these “fringe web­site” blog posts? ;-) Curious what’s on Janie’s mind? Use the noti­fi­ca­tion on the lower left of the links, called a News­let­ter, or an RSS Feed.
  • The extre­mely hip and sophis­ti­ca­ted STTM t-shirts are half price! Great BUMPER STICKERS, too. Spread the word – YOU may make a dif­fe­rence in someone’s life.
  • Check out the patient-to-patient book with even more detail (and which doc­tors seem to res­pect more than websites).
  • Need to unders­tand all your best options for thy­roid treat­ment? Go here.
  • Keep infor­med of each live Thy­roid Patient Com­mu­nity Call on Talkshoe by sig­ning up as a follo­wer.

The shackling and gagging of Dr. Sarah Myhill of the UK

(4 – 30: Paula has infor­med me that you can down­load Dr. Myhill’s com­plete web­site to your com­pu­ter via this zip file: www.drmyhill.co.uk.zip — Win­dows Live )

Today, it has been announ­ced by the GMC (Gene­ral Medi­cal Coun­cil) of the UK that Dr. Sarah Myhill is now strait­jac­ke­ted. She is for­bid­den to presc­ribe medi­ca­tions, is bound by other medi­cal prac­tice res­tric­tions (see the details on the Sup­port Dr. Myhill Face­book page), and most egre­giously, has been orde­red to remove parts of her web­site (thanks to Lethal Lee for poin­ting this out), some of which you will not see two weeks after I have pos­ted this.

Why remove parts of her web­site? Because by daring to edu­cate the public, espe­cially if that edu­ca­tion goes against “stan­dard medi­cal prac­tice”, it seems to be dee­med “harm­ful”. In other words, you as a patient are not allo­wed to dis­co­ver, or are too “vul­ne­ra­ble to get it,  that there just might be a TOTALLY dif­fe­rent story to the medi­cal prac­tice you are sub­jec­ted to.

For exam­ple, here is part of a page on Dr. Myhill’s web­site which is com­ple­tely correct, infor­ma­tive, and wise, and I want to see her words stay sharp and vie­wa­ble, espe­cially for thy­roid patients. It fits our expe­rience. The page is tit­led “Test results and what they mean”. If you want to be infor­med, read all the below.

http://www.drmyhill.co.uk/wiki/Category:Test_results_and_what_they_mean

Only too often peo­ple come to me with tests results which have not been pro­perly inter­pre­ted. The rea­sons why this hap­pens are as follows:

  • Test results are flag­ged up and con­si­de­red to be abnor­mal if they are outside the refe­rence range, but one’s indi­vi­dual nor­mal range is not the same as the popu­la­tion refe­rence range. This is a par­ti­cu­lar pro­blem in the inter­pre­ta­tion of thy­roid tests.
  • Refe­rence ran­ges for tests change. Refe­rence ran­ges are based on ran­dom bloods from the popu­la­tion. The trou­ble is anyone follo­wing a Wes­tern lifestyle is not evo­lu­tio­na­rily correct and many not nor­mal! So labs change their refe­rence ran­ges to adjust for this. So, for exam­ple, the nor­mal range of a gamma GT used to be up to 36, it is now up to 70. This enzyme is indu­ced by alcohol and presc­rip­tion drugs and because so many peo­ple drink alcohol it is con­si­de­red nor­mal to run a high gamma GT! The lab I use has a nor­mal refe­rence range for thy­roid hor­mone T4 of 12-22pmol/l but some labs give ran­ges of 5.6-17pmol/l!
  • Tests are often incom­plete. So someone with a thy­roid sti­mu­la­ting hor­mone (TSH) within refe­rence range will be told they have no thy­roid pro­blem, when in fact one also needs a free T4 and a free T3 together with a cli­ni­cal his­tory to assess if there is a thy­roid problem.
  • Drug com­pa­nies influence nor­mal ran­ges. The nor­mal range for cho­les­te­rol has come down stea­dily since sta­tins have been such big money ear­ners for Big Pharma.
  • Inco­rrect break­down of test results. Many peo­ple are presc­ri­bed sta­tins on the basis of a sin­gle cho­les­te­rol level. This is faulty for many reas ons — firstly one needs a break­down of good (HDL) and bad (LDL) cho­les­te­rol to get the ratio. If the ratio is not favou­ra­ble then this is likely to be a symp­tom of arte­rial disease. Cho­les­te­rol lowe­ring drugs are often irre­le­vant. See Cho­les­te­rol —  the com­mon cau­ses of rai­sed levels
  • Results close to the limits of nor­mal may be abnor­mal for that per­son. For exam­ple, a high nor­mal bili­ru­bin may mean Gilbert’s syn­drome — this means someone is a poor deto­xi­fier. A high mean cor­pus­cu­lar volume (MCV) could point to hypothy­roi­dism, B12 or folic acid deficiency.
  • Nor­mal tests do not mean no patho­logy. A nor­mal ECG at rest does not mean there is no heart disease, yet many peo­ple are told this is the case.
  • Tests may ask the wrong ques­tion. So many peo­ple come to me with severe fati­gue syn­dro­mes having been told nothing is wrong because all the tests are nor­mal! But ask the right ques­tion and do Mitochon­drial Func­tion Pro­file and you find gross abnor­ma­li­ties with res­pect to energy supply at the cellu­lar level.
  • Tests for poi­so­nings are par­ti­cu­larly mis­lea­ding. For years doc­tors have pro­mo­ted levels of cho­li­nes­te­rase as a good test for orga­nophosphate poi­so­ning. It is a rot­ten test and mis­ses the majo­rity of cases! Much bet­ter would be Fat biopsy for pes­ti­ci­des or Vola­tile Orga­nic Compounds

GOOD FOR YOU, Dr. Sarah Myhill!

I and many other thy­roid patients, strug­gling to fight the inane thy­roid treat­ment pro­to­cols, have a strong fee­ling that though this pro­gres­sive doc­tor may be res­tric­ted as a phy­si­cian, we’re going to hear a lot more good infor­ma­tion from the cou­ra­geous and wise Sarah Myhill.


  • Want to keep track of these “fringe web­site” blog posts? ;-) Curious what’s on Janie’s mind? Use the noti­fi­ca­tion on the lower left of the links, called a News­let­ter, or an RSS Feed.
  • The extre­mely hip and sophis­ti­ca­ted STTM t-shirts are half price! Great BUMPER STICKERS, too. Spread the word – YOU may make a dif­fe­rence in someone’s life.
  • Check out the patient-to-patient book with even more detail (and which doc­tors seem to res­pect more than websites).
  • Need to unders­tand all your best options for thy­roid treat­ment? Go here.
  • Keep infor­med of each live Thy­roid Patient Com­mu­nity Call on Talkshoe by sig­ning up as a follo­wer.

Confessions of an Undercover Thyroid Advocate

The follo­wing guest blog post is writ­ten by Amy McMu­llen, who had undiag­no­sed & symp­to­ma­tic hypothy­roi­dism for 20 years due to the sole use of the TSH, resul­ting in mul­ti­ple health problems. She is now trea­ting per the gui­de­li­nes on STTM inc­lu­ding T3 for thy­roid hor­mone resis­tance, adre­nal sup­port, and desic­ca­ted thyroid.

I found her story below as an under­co­ver advo­cate fas­ci­na­ting,  and think Amy is caring and com­mit­ted,  in spite of severe res­tric­tions! Bless you, Amy.

I spend an inor­di­nate amount of time these days con­tri­bu­ting to a well-known online thy­roid disor­ders forum I’ll call “Thy­roid Health Forum” (not its real name).

It’s a tricky forum with dra­co­nian rules: they don’t allow you to post any links to resour­ces, talk about where you get your online labs done, inc­lude quo­tes from stu­dies, or post any names of thy­roid advo­ca­tes. You can’t use a user­name you’ve used on any other forums and you can’t men­tion using their per­so­nal mes­sa­ging system.

I’ve recei­ved a few “infrac­tions” from the ever-vigilant board “admi­nis­tra­tors” and “mode­ra­tors” (never could color inside the lines, I guess) and have been war­ned to never, under any cir­cums­tan­ces, use the words “Stop the Thy­roid Mad­ness” or any refe­ren­ces to this web­site or book in my posts.

At more than one point I was ready to walk away and just give up on it.  How can you share your expe­rien­ces when there were so many rules that see­med desig­ned to inhi­bit a free flow of infor­ma­tion, to the point of not being allo­wed to men­tion the title of a good book by name or type in the word Google?

But I would read the follo­wing posts sub­mit­ted by des­pe­rate peo­ple and this would keep me coming back to try, somehow, to help:

  • “Hi, my doc­tor says my labs are all nor­mal but I’ve got so many symp­toms, I can hardly function…”
  • “My doc­tor says that free T3 and free T4 tes­ting is not use­ful, that my TSH is nor­mal and that unless my TSH is high he won’t order any anti­body tests…”
  • “My doc­tor says that my TSH is too low and wants me to cut back on my thy­roid hor­mo­nes, but I know I will start fee­ling bad if I do this… Help!”
  • “I am taking Synth­roid but I feel terri­ble and my hair is falling out and now my doc wants me to take an antidepressant…”

You see, I was in this very same boat for far too many years. About 20 years back I star­ted noti­cing symp­toms:  fati­gue, depres­sion, mens­trual irre­gu­la­ri­ties, and dizzy spells. I went to see my doc who did the usual TSH test and when it came back “nor­mal”, presc­ri­bed anti­de­pres­sants. The anti­de­pres­sants did help, but my mens­trual pro­blems inten­si­fied and other symp­toms inc­rea­sed until I finally under­went a hys­te­rec­tomy for dys­func­tio­nal ute­rine blee­ding. Shortly the­reaf­ter, I collap­sed with heart irre­gu­la­ri­ties and auto­no­mic ner­vous sys­tem dys­func­tion in the fall of 2006.

I went to over 10 dif­fe­rent spe­cia­lists spen­ding thou­sands of dollars for medi­cal bills with no real ans­wers – just a lot of shrug­ged shoul­ders and a fibrom­yal­gia diagnosis.

It wasn’t until my mother was hos­pi­ta­li­zed and rou­tine blood tes­ting came back with a TSH of over 6 that I loo­ked again at my own thy­roid. My TSH was never above 3. I had one free T4 test done follo­wing my ini­tial collapse but, again, all tests were flag­ged “nor­mal” and thy­roid was pas­sed over once again.

But a search about TSH lab ran­ges led me to Mary Shomon’s About.com artic­les, and while she see­med to be stuck on the idea that 3 was an accep­ta­ble num­ber for the top of range for TSH, based enti­rely on the Ame­ri­can Asso­cia­tion of Cli­ni­cal Endoc­ri­no­lo­gists recom­men­da­tions, I finally found the Stop the Thy­roid Mad­ness site and lear­ned otherwise.

It was here that I lear­ned about other tes­ting like free T3, free T4, thy­roid anti­bo­dies, vita­min and ferri­tin levels and, very impor­tantly, that the TSH should be the LAST test done for diag­no­sing hypothy­roi­dism ins­tead of the ONLY test. I finally caught on to how the medi­cal esta­blish­ment has fai­led mise­rably to ade­qua­tely diag­nose and treat hypothy­roi­dism. I felt both inc­re­dibly empo­we­red and very, very angry.

I quickly del­ved into the thy­roid forums to share what I’d lear­ned and to learn from others. The first forum I found was the afo­re­men­tio­ned  “Thy­roid Health Forum”, and since this is one of the best-known, it is where many of the new­bies, like me, find them­sel­ves. There were both natu­ral and synthe­tic hor­mone pro­po­nents on the board and the advice ran­ged from very good to quite bad. I soon found there were bet­ter forums like Realthy­roidhelp and the natu­ral thy­roid hor­mone Yahoo groups that had really smart peo­ple who were happy to share resour­ces and infor­ma­tion that was truly use­ful. I spent a lot of time on these and lear­ned a great deal.

But for some rea­son I couldn’t seem to leave the “Thy­roid Health Forum”. The peo­ple who stum­bled on there see­med so lost and I felt com­pe­lled to impart what I had lear­ned to them. I would offer alter­na­ti­ves to the synthe­tics and explain why natu­ral desic­ca­ted thy­roid (NDT) was a supe­rior treat­ment option and, more impor­tantly, that they did have an option for their treat­ment, des­pite what their doc­tor told them. I’d relay what I had lear­ned from other boards about access to NDT during the shortages.

When I figu­red out I had adre­nal fati­gue and later thy­roid hor­mone resis­tance as a result of being undiag­no­sed for so long, I star­ted rela­ying infor­ma­tion about these issues to the many who were having dif­fi­cul­ties get­ting opti­mi­zed on their hor­mone repla­ce­ment the­rapy. I found it to be both rewar­ding and enor­mously edu­ca­ting for myself as I would spend time researching ques­tions that were asked about sup­ple­ments, lab tests, and stu­dies. I was not allo­wed to post links so had to sum­ma­rize things I had lear­ned and this taught me even more. The main mes­sa­ges I pushed were (and are):  get the right labs done, learn how to inter­pret them correctly, be your own advo­cate, know your treat­ment options, and don’t impli­citly trust doctors.

I will con­ti­nue to con­tri­bute what I’ve lear­ned to the “Thy­roid Health Forum”. So far I’ve mana­ged to fly under the radar and play, howe­ver grud­gingly, by their rules. I figure if I can get just one or two peo­ple to ques­tion the pre­sent thy­roid cli­ni­cal gui­de­li­nes, as writ­ten by our friends at big pharma, I’ll be more than satis­fied. I actually believe that by get­ting good infor­ma­tion out there to as many suf­fe­rers as pos­si­ble, we may create a grounds­well of peo­ple who will no lon­ger accept being dis­mis­sed as depres­sed com­plai­ners by their health­care pro­vi­ders. And this is one more way we can help enact real change to the currently abys­mal medi­cal prac­tice of thy­roid diag­no­sis and treat­ment. Well worth it in my book!

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Latest news from RLC: Ship­ments of Natu­reth­roid are begin­ning Mon­day, January 4th and the first two weeks with bac­kor­ders going out ASAP.  Medco should have some by the end of January. Their Patient Infor­ma­tion Line: Naturethroid/Westhroid: 877 – 600-4752

Thy­roid  patient guest posts can be read about here: /writing-a-guest-blog-post-on-sttm/

Want to honor someone who has hel­ped you?? See the blog post below and thank someone.

NOTE: if you were recei­ving email noti­fi­ca­tions about these posts,  the com­pany doing them is out of busi­ness. Ins­tead, use an RSS Feed.


  • Want to keep track of these “fringe web­site” blog posts? ;-) Curious what’s on Janie’s mind? Use the noti­fi­ca­tion on the lower left of the links, called a News­let­ter, or an RSS Feed.
  • The extre­mely hip and sophis­ti­ca­ted STTM t-shirts are half price! Great BUMPER STICKERS, too. Spread the word – YOU may make a dif­fe­rence in someone’s life.
  • Check out the patient-to-patient book with even more detail (and which doc­tors seem to res­pect more than websites).
  • Need to unders­tand all your best options for thy­roid treat­ment? Go here.
  • Keep infor­med of each live Thy­roid Patient Com­mu­nity Call on Talkshoe by sig­ning up as a follo­wer.

Doctors still have a long way to go a.k.a. Those symptoms might just be the thyroid!

Just as I was finishing up the post below about a short sum­mary on the Endoc­ri­no­logy Today web­site, I saw a link at the bot­tom of the page that inte­res­ted me.  It took me to a blog post on the same site from Decem­ber 10th tit­led “Why can’t it be my thyroid?”.

And a slew of thy­roid patients around the world, as well as a gro­wing body of doc­tors,  would com­ple­tely disa­gree with this post.

Namely, a DO explains the pro­blem of patients arri­ving in doc­tors offi­ces with “innu­me­ra­ble pos­si­ble symp­toms of hypothy­roi­dism” inc­lu­ding “fati­gue, cold into­le­rance, dec­rea­sed energy, weight gain, depres­sion, hair loss, low libido, mens­trual irre­gu­la­rity and others.”

Yet, he bemoans, these patients have a “nor­mal TSH” which is “well within the nor­mal labo­ra­tory refe­rence range.” He also refers to their nor­mal free T3 and free T4, and sta­tes there is no his­tory to sug­gest pitui­tary dys­func­tion or that the TSH is unreliable.”

He then pro­ceeds to pat him­self on the back because he 1) will treat some patients with a high-normal TSH and other cli­ni­cal fea­tu­res,  2) he will treat to a low-normal TSH of less than 2.0, but like the good-boy-doctor, “still within the nor­mal labo­ra­tory refe­rence range” and 3) he will not induce iatro­ge­nic hyperthy­roi­dism, even if symp­toms per­sist. (yikes)

“Iatro­ge­nic hyperthy­roi­dism”??  Since “iatro­ge­ne­sis” refers to harm­ful medi­cal pro­ce­du­res, he’s pro­bably refe­rring to a TSH below the range, which in his mind, equa­tes to hyperthyroidism.

***Then comes the obser­va­tion that has made many thy­roid patients shi­ver, since so many doc­tors have said it: because he feels that adding T3 to T4 has more nega­tive results than posi­tive, he explains to his patients that there may be cau­ses of their symp­toms besi­des the thyroid.”

THUD.

So here is my 6-point res­ponse to any doc­tor who might share these beliefs:

1) There’s hardly a thy­roid patient around who hasn’t had a so-called “nor­mal” TSH in spite of clear and obvious hypothy­roi­dism.  The TSH lab test fre­quently lags behind what is rea­lity in the body, and has been doing so since it’s crea­tion in the early 1970’s (see Chap­ter 4 in the Stop the Thy­roid Mad­ness book for his­tory).

2) Having a “nor­mal” free T3 and free T4 means nothing. It’s “where” the result falls in that range that means something. i.e. patients all around the world are noti­cing that having a free T3 mid-range or lower in the pre­sence of hypothy­roid symp­toms is usually a BINGO lab result poin­ting to hypothyroidism.

3) Exactly because doc­tors tend to dis­miss clear hypothy­roid symp­toms as “something else” thanks to a lousy TSH refe­rence range, a bur­geo­ning num­ber of thy­roid patients are falling into adre­nal fati­gue with its low cor­ti­sol, which ser­ves to mess them up even more.

4) A huge body of thy­roid patients who are on desic­ca­ted thy­roid hor­mo­nes (aka Armour, Natu­reth­roid, etc), and who finally have a com­plete remo­val of symp­toms with a nor­mal tem­pe­ra­ture and hear­trate, also have a sup­pres­sed TSH lab result, and not one iota of “iatro­ge­nic hyperthyroidism.”

5) When it appears that adding T3 to T4 is having nega­tive effects, the pro­blem is most likely adre­nal fati­gue that needs correc­tion, and/or low ferri­tin, NOT deci­ding that the symp­toms must be from another cause or T3 doesn’t work.

6) “Fati­gue, cold into­le­rance, dec­rea­sed energy, weight gain, depres­sion, hair loss, low libido, mens­trual irre­gu­la­rity and others” may be sha­red in other con­di­tions, but you are most likely mis­sing CLEAR symp­toms of hypothy­roi­dism, both in the undiag­no­sed patient with a so-called nor­mal TSH, or with a patient trea­ted with the lousy thy­ro­xine, which lea­ves most ever­yone with con­ti­nuing hypothy­roid symp­toms.

“I’m sorry. It IS your thy­roid” is exactly what patients need to hear.


  • Want to keep track of these “fringe web­site” blog posts? ;-) Curious what’s on Janie’s mind? Use the noti­fi­ca­tion on the lower left of the links, called a News­let­ter, or an RSS Feed.
  • The extre­mely hip and sophis­ti­ca­ted STTM t-shirts are half price! Great BUMPER STICKERS, too. Spread the word – YOU may make a dif­fe­rence in someone’s life.
  • Check out the patient-to-patient book with even more detail (and which doc­tors seem to res­pect more than websites).
  • Need to unders­tand all your best options for thy­roid treat­ment? Go here.
  • Keep infor­med of each live Thy­roid Patient Com­mu­nity Call on Talkshoe by sig­ning up as a follo­wer.

The mainstream media – monkey-see, monkey-do.

Have you ever had someone say something in JUST a way that it hits you bet­ween the eyes?? That’s what Diane did to me. She’s a thy­roid and adre­nal patient, and we were dis­cus­sing the way a huge medi­cal web­site still gives out back­wards and harm­ful thy­roid treat­ment infor­ma­tion, telling patients to “raise their Synth­roid” to coun­ter their con­ti­nuing hypothy­roid symp­toms (which doesn’t work), or pro­noun­cing that because their TSH is “nor­mal”, those symp­toms are not rela­ted to hypothy­roid (they are.) This huge web­site has kept patients sick for YEARS, and is one of the main rea­sons I crea­ted STTM!

And Diane said to me “Somehow the true mes­sage needs to get into the main stream.”

Boink! That just hit me squa­rely bet­ween the eyes! Sure, I’ve been saying the same in a dif­fe­rent way for years – that our mes­sage needs to get out. But when Diane men­tio­ned the “mains­tream”, it hit me.

Here we are, vic­tims of a medi­cal scan­dal which has been going on for 50 years, and which has effec­ted HUNDREDS OF MILLIONS all that time. Some of those vic­tims are dead; and many more are still alive, with new vic­tims hap­pe­ning DAILY. Yet, the “mains­tream media” has never taken the time or inte­rest to report on this. HUHHH??

Wiki­pe­dia defi­nes the mains­tream media as the sec­tion of the media spe­ci­fi­cally envi­sio­ned and desig­ned to reach a very large audience, and that might inc­lude tele­vi­sion, radio, news­pa­pers and maga­zi­nes. Yet, what do you see on any of those mediums? You see the regur­gi­ta­tion of the old-boy, Poll­yanna methods of hypothy­roid diag­no­sis and treat­ment – the use of the TSH and total T4, plus T4-only meds like Synth­roid, Levoxyl, Levothy­ro­xine, et al. And if there is men­tion of desic­ca­ted thy­roid, it’s bare. YAWN.

Some pun­dants feel that there is a form of lite­rary cen­sorship going on in the main media…i.e. if it’s not sen­sa­tio­nal, for­get it. Others will cite bias and mani­pu­la­tion by those that report, espe­cially in the poli­ti­cal arena.

But what I lean to believe is that there’s a monkey-see, monkey-do men­ta­lity in the media. Namely, the mains­tream media lazily con­forms itself to the lou­dest, lon­gest or most financially-influential voice. And who’s had that voice in the thy­roid treat­ment arena?? The money-grubbing phar­ma­ceu­ti­cals, who thrust billions of dollars into medi­cal schools, besi­des their bright-eyed reps, to even­tually con­vince every doc­tor since the early 1960’s that the lousy T4-only medi­ca­tions (Synth­roid, Levoxyl, et al), and the dubious TSH lab tests, are from God Almighty.

So, that lie keeps being repea­ted, ad nau­seum, and the TRUTH, which comes from every­day patients all around the world, gets igno­red by the mains­tream media. Thus, millions out there still sit, mise­ra­ble or com­pro­mi­sed in their day-to-day lives, and on a myriad of other pills to coun­ter the lin­ge­ring symptoms…because their main con­tact with the world – the mains­tream media – is deaf and dumb – and they have not yet found Stop the Thy­roid Mad­ness, and may not for years!

So.…what can YOU do?? Con­tact the mains­tream media. SCREAM at the mains­tream media. DOG the mains­tream media. I have wor­ked hard to put YOUR truth up here and in the book. You can help by sprea­ding that word, one by one, like the Lilli­pu­tians who moved the giant.

*To con­tact ABC, go here.
*To con­tact MSNBC, go here or email Health@MSNBC.com
*To con­tact CBS, go here. Use the drop down menu to click on a news pro­gram
*To con­tact Fox News, go here.
*To con­tact CNN, go here.
*The top 20 Women’s maga­zi­nes are here.

Want to add more emails or web­site URL’s for con­tact? Just add a com­ment to this post below.

**Patients are repor­ting that the STTM book is even bet­ter than the web­site! Yeehaw! To order your copy, go to the publishing web­site here. There are also options to order one for your doc­tor, and one for Oprah!


  • Want to keep track of these “fringe web­site” blog posts? ;-) Curious what’s on Janie’s mind? Use the noti­fi­ca­tion on the lower left of the links, called a News­let­ter, or an RSS Feed.
  • The extre­mely hip and sophis­ti­ca­ted STTM t-shirts are half price! Great BUMPER STICKERS, too. Spread the word – YOU may make a dif­fe­rence in someone’s life.
  • Check out the patient-to-patient book with even more detail (and which doc­tors seem to res­pect more than websites).
  • Need to unders­tand all your best options for thy­roid treat­ment? Go here.
  • Keep infor­med of each live Thy­roid Patient Com­mu­nity Call on Talkshoe by sig­ning up as a follo­wer.
Do NOT follow this link or you will be banned from the site!